Shame symptoms and conditions

Just checking in again. Wrote about my dad,(Feb. 08 and May 1st) 77 yo white male, had been on Lipitor 7 years. After my mom passed away I got involved with his health. Read so much about the side effect of Lipitor - finally convinced him to GET OFF LIPITOR ASAP- he has been off since Feb. 4, 2008 and is getting back to where he should be. About 85-90% better than he was last year. It is a shame that my he and my mom were not able to do things last summer because he felt so bad. (He had muscle aches, spasms in his wrists, joint aches, bad nightmares, tossing and turning. Although he was also being treated for arthritis, his blood and xray showed none!) PLEASE take the first step and get off this drug - call your pharmacist if you are not sure, tell them your side effects. It will take awhile to get back to your old self - but my dad is proof that it will get better. Weput him on Fish oil supplements and CoQ10 - all natural - not medication and over the counter.
Have also taken him for acupuncture for his arthritis and he is seeing great improvement with this in only 6 visits AND NO DRUGS, he was surprised by the results. Please consider an alternative to drugs and medications.

PLEASE Check out what the NEW ZEALAND MEDICINES AND MEDICAL DEVICES SAFTEY AUTHORITY says about MIRENA http://www.medsafe.govt.nz/consumers/cmi/m/mirena.htm SCROLL FURTHER down to the section that says ADVERSE SIDE EFFECTS!!!!!

BTW THIS IS THE MOST DETAILED AND PROBABLY MOST ACCURATE DESCRIPTION OF MIRENA SIDE EFFECTS BY A PROFESSIONAL BODY.

Its a GREAT SHAME that in the US & UK , and in other parts of the world this type information is not available to women :-(

On the fda;s cder web site is a calender of meetings,there is also a calender for tentative meetings,tentively scheduled on dec 10 and 11 is a meeting of asthma allergy,risk management and drug safety,we know they hired public relations so we wonder if maybe they will be there,as this investigation comes to an end,i wonder is there more we could have done,i don't think so,i am perturbed that we were not contacted after we filed our reports,as i wonder how they will get the rest of the story.It is my understanding that these meetings are open to the public,unless otherwise specified,there is no specification on this one yet,i hope if any one is in the Dc area and they have a chance to go they will tell us what is said.I hope they look into the chances of some having maybe perm issues and give us guidance,they have been silent for so long as we have battled this in the dark.If by scheduling this meeting the investigation is over and they have a conclusion and our not going public yet ,well shame on them,if there is one thing we are disparate for is information as to what to do next,heres hoping every one,keep fighting

i have been an asthmatic since the age of 2 years old i am now 24 years old. preds as i call it has been a part of my life since then. i have a number of reactions to it from gaining 30 lbs in les than 6 months to almost definitely hallucinating. i urinate frequently,my hubby says that i'm a leaking tap. i cry and grumble at times for no reason: yes mood swings like rain in spring time. i even threw away my wallet after a dose of preds three months ago. i laugh uncontrollably. i get depressed. sleep for long hours one time and then become insomniac for days. i am super hyper. i am creative and expressive and get even better for a few hours after taking preds. also i appear to have an attention disorder at times. i have acute hearing i.e i hear like a fox really well and then some day si behave like an 89 year old with a hearing aid. i get rashes on allergic reactions to things i've been using all my life like band-aid.i don't like it in fact when the doctor gives me 8 to be taken 3 times daily for a week, i take two and feel better without all the side effects. i am so fat its a shame. i was tall and lean and sexy now i am tall heavy and my hubby still says sexy. we all hate it don't we?!

Hi All,

I was diagnosed with dermatologists when I was 14 years old and put on very high dosage of prednisone to get my disease under control (40 mg a day at the beginning). My muscle enzymes were out of control (CPK was almost 8,500 when it should be less than 215) and I was barely mobile, huge amounts of weight loss, alopecia, Raynaud's, etc. That was 11 years ago and I am now almost 100% better. Prednisone saved my life, but the side-effects were TERRIBLE! Especially for a girl going through puberty. Kids at school don't understand you're sick, and they can be extremely cruel. Luckily for me a large number of my family members are in the medical profession all over the world and my parents were able to pool knowledge to find the best treatment for me without all the horrible side effects. An uncle in Germany suggested I take a Prednisone alternative widely available in Europe called Diflazacort. This medicine is not available in the states apparently because the FDA thought it was exactly like Prednisone so was unnecessary. I'm sure this is some pharmaceutical company lobbying to preserve Prednisone's monopoly on inflammatory diseases, but regardless it makes finding Diflazacort difficult for Americans. This is a HUGE shame since this medicine gave me ALL of the benefits of Prednisone with NONE of the side effects. My mood swings, water retention, increased appetite, hazy brain, thinning skin, etc etc etc ALL stopped with Diflazacort. This wasn't only true for me either. A family friend had been diagnosed with Crohn's at the time and he was put on Diflazacort from the beginning of his treatment after seeing how I reacted to it and NEVER had any of the negative side effects I had to deal with. Really this drug was like a miracle for me. Prednisone prevented my sure death, but Diflazacort gave me my life back in its entirety. I've now been off of any steroid for 7 years and my muscles are fully back to normal. Some of the fat deposits Predinose caused still linger, but to most people's eyes I'm totally back to normal. I wish I could find everyone having problems with Prednisone side-effects and tell them about Diflazacort. Even though it isn't available in the states (although I heard recently they are trying to get it approved again since a number of studies showed Diflazacort is much more effective treating Crohn's than Prednisone is) you can get it on the internet or if you have doctor friends abroad as I did. I'm always wary of buying drugs over the internet since there's no control so I would suggest contacting doctors in Europe or Asia directly or through your doctor here in the states. Anyways, I wanted everyone to know that some people do get better and I wish you all the best of luck!

Hi All,

I was diagnosed with dermatologists when I was 14 years old and put on very high dosage of prednisone to get my disease under control (40 mg a day at the beginning). My muscle enzymes were out of control (CPK was almost 8,500 when it should be s no control so I would suggest contacting doctors in Europe or Asia directly or through your doctor here in the states. Anyways, I wanted everyone to know that some people do get better and I wish you all the best of luck!

My son has been on singulair for the past 6 to 8 months and my husband and i have had a very difficult time with him and his behavior. We have noticed him being very angry, mad, sad, screaming out for no reason, very defiant and not listening. He has been making threats to me for a while now, saying he wants to kill me, but only to me, his mother. He has become physically violent to himself and household items and me at times. He has night terrors and screams out at least 6 nights out of the week. He has bad headaches and often doesn't feel good. His stomach bothers him a lot. He makes constant threats to me and seems to not be able o handle the simplest task. I will not be giving my son this medication ever again after reading on this site. My son has suffered long enough as have we, his family. I want my loving sweet baby boy back! It makes me wonder what the hell is wrong with our society that they would continue to prescribe this medication knowing the horrible affects that our children endure. Shame on you! You deserve more than a slap on the hand! You should have your licensed stripped and e put out of business!

I have been on Wellbutrin 300mg for about 5 months now along with Cymbalta 90 mg for postpartum depression. I have had VERY VERY bad memory loss (mostly short term), constant overheating (sweating for no reason), headaches, muscle spasms, trouble urinating, dry mouth, also I have been told by my practitioner that the generic form of Wellbutrin for some reason DOES NOT work as well as the name brand even though they are supposed to be the same thing.

I am a 51 y/o white female that has been on Lipitor for 2 years. I am 5' 1" and when I had to go on it my cholesterol was 267 I weighed 112 lbs. I was shocked.... my doctor told me weight had nothing to do with cholesterol. She kept a close watch on me and my cholesterol came down...... and then my ex-husband of 17 years and I re-connected and got back together and I moved so I had to get another primary care physician. I took all my meds to her, she also kept a close watch on everything. At this time my cholesterol is down to 109 and I asked if I could stop taking it, as I take quite a lot of meds, due to different things and if I could stop anything it would be great, but she said it I stopped it, my cholesterol would go right back up. So since I am not experiencing any side effects I'm okay with continuing it.

I surely hate to hear what you all are experiencing with your Lipitor..... could your doc try another cholesterol medication?

The only one of my meds that is giving me any problem is TOPAMAX........ that we are using as a Migraine preventative! HORRORS!!! Today is pretty good day. But my cognitive abilities are in the trash... I say the wrong word when I mean something else...... I search my mind looking for a memory...... I am also on disability since 2002 because of the Migraines....... I have has them since 1978, but they got progressively worse over the years until I was sick more days per week, sometimes more than 7-10 days at the time, having to be in the hospital being rehydrated and on IV pain meds.......... and as awful as the TOPAMAX is.....it has been reduced the migraines to approx 2 per month and they do not last nearly as long.

So sorry, I got waaay off topic, but I know that it is not the Lipitor that is giving me the side effects as it the last med I had to go on and I had no new side effects....... but that TOPAMAX is kicking my behind.

I am a 51 year old male. November 2007 jaw pain sent me to the hospital where they found a 99% block in my right coronary artery, yep 4 stent's. Three month late the same this time 2 stent's and two weeks later 2 more. I now have 8 stent's. My DR. put me on several meds including Zocor. The zocor made me very tired and headaches. He change it to Lipitor 10mg. I have been on it for 7 months and a few day's ago I have notice pain in both knee's and hip. I once again find it hard to concentrate, feel sluggish and have headache's. I NEVER have headache's. Stopped taken the Lipitor, hope the pain goes away. It a shame that the medical field is so quick to put us ALL on drug's, how about herb's instead. I'm going to look into a natural way to lower my cholesterol.

Cymbalta made me gain weight, 20 lbs in one year, in fact. I was on it for migraines. It was a shame because it worked.

Hi all, I was amazed to find this site. I too have had a rough life for the past eight years! I am going to be 39 in a few days but this story starts back in August 21, 2000. The day that put me in HELL for the next eight years and still going through it. Prior to this day, I had a lot of UTI's and Pneumonia and several times prescribed both Levaquin and Cipro. I did develop Achillies tendinitis but I thought this was due to my active life style, see I was an LPN and a firefighter. So I went for treatment to fix the Achillies tendinitis. This was a foot Dr that of course gave me a cortizone shot in it. I cant remember how much earlier this was that this took place and I am still not sure if this is what did it but as I am thinking back these are the things that come to mind. On August 21, 2000 I was on a fire call and my right Achillies tendon popped off the bone! They took me away by ambulance. The Dr in the ER said to go home with an air cast on, eat or drink nothing and come back in at 10:00am and they would possibly do surgery. Well, I did just that. The orthopedic Doc said oh yeah it is achillies rupture will have to go in and tie back all the little fibers. So away to the operating room I went. They gave me a spinal and just knocked me out. I was awakened suddenly by my Dr. voice loudly saying " Holy shit it peeled off the bone!" And another nurse saying let me see! I came up on my hands and they grabbed me put me back down and knocked me back out! (I still have night mares over that!) Anyway, I spent the next 3 months in a cast. During this time, I was told from over usuage of my left foot, I now was developing tendinitis in my achillies tendon in the left foot! Which this sent me to a wheel chair. They took the cast off in 3 months then I was still no weight bearing for another month. Then i had physical therapy for about 6-8 months with little improvement. I complained to the Dr about the left achillies tendon and he said he would not do anything about it unless it too popped! So now many Dr later, and many many medications tried and many surgeries later, and now diagnosed with Lupus, Sjogrens, and Fibromyalgia, the most my rheumatoligist says is I have a connective tissue disorder, and taking cancer medication (Methotrexate) I am now disabled at 39! My life taken from me. I have situational depression, panic attacks, sleep trouble, Suffer from post traumatic stress, nightmares, basically my life is a mess and it is over. On July 1, 2008 I had to go to the ER cause I was sick. I had been run down and feeling bad and sleeping a lot, disoriented, couldn't stay awake. They found I had another UTI and a sinus infection. The Dr Says we will put you on Levaquin and that should take care of both problems. So he left, it took me a while for it to sink in that I should stay away from that drug, so I caught him and told him, he said to me that this was only found to be in kids while they are young and developing that it causes tendon rupture, and besides he said, one dose will not hurt you. I took 5 pills, one a day. Since then I have been in so much pain all over my body it is unreal! It still took me days to figure out that it was the Levaquin doing this to me! I feel like at random someone is sticking a knife in different muscles in my body! I felt like I had done Tie bo for 24 hours straight! Even my butt muscles hurt so bad to sit here and write this email! I have days when I cant even use my hands! Write my name with a pen. I am not sure if this is all due to these drugs, but I am most miserable and not a bit better. I may have just made it worse by taking this last round of them. Has anyone else had this kinf of symptoms?

My husband has solumedrol IVs for 4 days-500mg every 8 hours due to a MS flare-He could not walk at all before he had the IVs. Now he is home and has used predisone to wean off the IVs. He has diabetes now with severe depression and he is in a fog a lot. I understand this is basically the only way he got through the MS flare, but now he is worse off due to the side effects. It is a shame that so many people have been hurt by this medicine that is suppose to help. My ex husband was so violent when he was on predisone for back pain that it caused us to end up divorcing because he would beat the crap out of me or become so mean, then depressed that it drove us apart after 20+ years of marriage.

It is so funny to read all of the negativity but nothing positive! I came here looking for side effects and get a bashing about how horrid Yasmin/Yaz is! Let me first start off by listing my side effects that I wanted to know about:

breast tenderness
change in appetite
tiredness
red spot in eye

Next, let me tell you that I researched BEFORE taking this medicine because 1. I have MS 2. I suffer from migraines and seizures and 3. I take a whole boat load of medications! My doc recommended Yasmin for PMDD coupled with Sarafem to help my mood right before and during my time of the month. I must say that I have only been on it for about 10 days so I do not know anything of how it works with my period.

I am APPALLED at the fact that there are few, if any, positive comments about this pill! I know for a FACT that it works because I know 7 people personally that are on it that have NO PROBLEMS! So, I ask you all that have negative comments, what is wrong with you, other than you HATE the pill? What OTHER meds were you on while taking it? I read a few comments about stopping for a month and then starting again and then wondering why they felt like crap?? Well HELLO?! You are effing with your body's hormones! And there is a difference between Yaz and Yasmin hormones. If you had a bad experience with Yaz, make sure you are not confusing it with Yasmin! Yaz is a 24 day hormone pill where Yasmin is only 21 days.

I am not a doctor, but like I said, I have done my research. I have suffered with adult acne and PMDD for years. It sucks. If Yasmin helps, I want to know. I don't want to read a bunch of bull about people who mess up their cycles by taking the pill and smoking or taking the pill with meds they shouldn't be taking them with. I know what I can and cannot take. Most of what I take is natural and what is not, well, it CAN be taken with Yasmin. Like the website for Yasmin says and like most of the informational, non-biased websites say, Yasmin and Yaz is not for everyone. Some people cannot handle this type of hormone.

I can guarantee you that some doctor or pharm company can tell you that whatever symptom you are having is from something completely unrelated to the BC you are taking. Warnings are clearly marked...read them and obey!

I had used NR for six weeks when I woke up at 3 am with SEVERE chest pains. Went to the ER and was diagnosed with *substantial* pulmonary emboli (blood clots in the lungs). I was hospitalized for five days and am now under the direction of a pulmonologist and hematologist for the next six months while I'm on blood thinner therapy. I had to do injections into my abdomen twice a day to prevent further clotting until my blood reached a theraputic level with the Coumadin (blood thinning drug).

Usually, pulmonary embolism afflicts sedentary people or those who have recently had surgery or those who have cancer . .. etc etc etc. I am a 33 year old personal trainer. I have ZERO risk factors for this to have happened to me . .. other than the nuvaring. It was determined that it was the cause and I was told to remove it immediately and to never never never use it again.

Please be careful in your decisions to use this product. I used it for the convenience of not popping a pill daily as I would usually forget. Wish I would have just looked a bit further into the possible side effects before choosing to go ahead with it.

Just checking in again. Wrote about my dad,(Feb. 08 and May 1st) 77 yo white male, had been on Lipitor 7 years. After my mom passed away I got involved with his health. Read so much about the side effect of Lipitor - finally convinced him to GET OFF LIPITOR ASAS- he has been off since Feb. 4, 2008 and is slowly getting back to where he should be. About 85-90% better than he was 6 months ago. It is a shame that my he and my mom were bot able to do things last summer because he felt so bad. (He had muscle aches, spasms in his wrists, joint aches, bad nightmares, tossing and turning. Although he was also being treated for arthritis, his blood and xray showed none!) PLEASE take the first step and get off this drug - call your pharmacist if you are not sure, tell them your side effects.
It will take awhile to get back to your old self - but my dad is proof that it will get better.

mirena DOES NOT prevent ovulation!! meaning you will still ovulate, but the sperm and egg cannot implant themselves which in turn will cause a miscarriage!! This is the same for all iud's, For some unknown reason docs will not tell you this, but my doctor did and strongly advises not to use iuds!! You will get pregnant! You may think your having a heavy period but really you could be passing a dead fetus! Sorry to be so blunt, please do research before you choose this method of birth control

I've been on Aviane as my first BC for 3 months and haven't noticed any significant side effects. There's been no weight gain and I've been able to actually start and maintain a fitness program required for a summer job/career (we'll see where it leads!). My period was a bit off the first couple of times with spotting but I read in the pamphlet it should be expected and for about a month, I've been completely 'normal'. The only thing MAY have been the lower sex drive but it was good for mine to shift down a gear so that can't be classified as a problem, and that can probably be attributed to other events in my life. I suggest everyone here take a step back and see if weight gain, acne, sex drives, etc. may be a consequence of other life subjects that shouldn't be blamed on BC. We all go through these events for different reasons and it would be a shame to denounce a valid and proven pharmaceutical product on account of needing a scapecoat.

I noticed a lot of postings about weight gain on Singulair, which is nowhere listed by Merck as a possible side effect. My 15 y.o. daughter experienced sudden weight gain at the age of 9 when she was actually underweight (BMI went from 17 to 21). To make a long story short, after being off Singulair for over a year, she is now over-weight, and diet/exercise have never made a big difference (gymnastics, swim team, figure skating, trampoline, etc.) Extensive labwork is always normal & there is no family history of obesity. It's a shame the quality of life of a child is RUINED by a drug that is deemed to have "no side effects", and the many drs. & specialists out there take it very lightly. We continually worry about our daughter's self-esteem, risk of diabetes, and other complications from weight gain which is not hereditary and goes on unexplained by the drug co. Reversing this weight gain has been nearly impossible. Everytime I hear a news report about our children being overweight and obese, it makes me angry because I think about the many kids that are taking this highly prescribed drug (for even the mildest allergy or asthma) and who knows how many parents don't make the connection!

My daughter had an appointment with a gastrointestinal doctor this morning because of her stomach problems. (She has been off of Singulair 10 days now and ALL symptoms- leg pains, abdominal pain, dizziness, sensitivity to light, severe mood swings, depression, anxiety, severe tantrums have all vanished) We kept the appointment with GI because our physician advised us to. He found it hard to believe that Singulair could be the cause of all of her symptoms. Well the GI also found it hard to believe that Singulair was the cause but said, "The proof is in the pudding." I have filed a complaint with the FDA on medwatch.com. It was very easy. I have also asked the doctor to file one as well. I also gave the doctor a printout of the studies done. Hopefully with more and more people filing complaints the FDA will act quickly. There is so much indisputable evidence regarding adverse reactions. It is unbelievable how many stories sound just alike. So many children have lost years of their life due to this drug. Parents have spent so much time and money trying to figure out what is "wrong" with their child. It is a shame so many have been incorrectly labeled all because of a drug they were taking!!

I read these posts and regarding my being quoted as saying that it is unclear whether there are leukotriene receptors in the brain, that isn't true, there are leukotriene receptors in the brain and the relationship between neural systems involved in inflammation and mood is well established. I don't think the misquote was deliberate, I wasnt that definitive when I commented to the reporter on the 'breaking' story (she called me because I had just blogged about it and I updated the blog after I got off the phone). There are a number of parallels with other drugs used to treat medical conditions that have been associated with psychiatric side effects, you can follow the links from the March 27 post "If they dont kill us they will drive us crazy" at
http://www.beforeyoutakethatpill.com/blog.html

Doug Bremner MD

My daughter has been on singulair since age 3. I can't believe all the side affects that other children are having on the medicine to. This answers so many questions for me. We have been battling with leg cramps,stomache pain,bedwetting and weight gain. My daughter instantly gained weight over night and is constantly hungry, I never could understand why and I have taken her to a gastrenologist and he never had a answer either. We went to a ENT for constant sinus infections. I had her tonsils removed and seems to be doing better. I definetly will be taking her off the medicine immediatly. She also has been having trouble in school, I wish I would have known about this sooner. I feel terrible about having her on this medicine all these years wich has caused nothing but pain and alot of doctor and hospital visits!!!!!!!!

UPDATE:It is now a week since my 6 yr old son stopped taking singulair. My happy boy is back! He has now had a second day in a row with positive reports from school. These are the first 2 positive days of the entire school year!!! Its no mystery anymore! I am 100% positive it was the Singulair he was on. It may work for some people with no side effects and thats great for them. But for those parents out there that had the slightest doubt I am telling you from experience to go with your gut! Speak to your Dr for alternatives and get back your happy children!

I was on Ortho Evra for a couple years and LOVED IT!!! I did have issues with the patch staying on. I have very dry skin and it would flake and cause the patch to loosen. The only place I could get it to stay was my upper arm, which was embarrassingly exposed during the summer months. But I had NO negative side effects. Except once I got a rash where the patch was, but I believe that was from some new lotion I had just used. I would still be on Ortho Evra if the lawsuits didnt scare my doctor! She refuses to prescribe it anymore because of the lawsuits. Its a shame because it was the perfect option for me. One thing to note though, you MUST be diligent about replacing the patch on the right day. twice I lost track and was a day or two late changing the patch, and I kid you not, BOTH times I got pregnant!! It was a good thing, because i love my girls and they came at perfect times. Just a little unexpected!

I can hardly believe what I have read on this board. It is my son's story repeated over and over again and the sad fact is that I never put 2 and 2 together until I saw the news stories last week. My son has been on Singulair for years (he is now 7 years old) along with other drugs for asthma. We recently started taking him to a therapist because of his extreme unhappiness, violent temper tantrums, bad nightmares, many tics, and overall negative attitude. I took him off the singulair 5 days ago and cannot believe the results so far. My son is not affectionate in any way, does not even like a simple pat on the back, no hugs or kisses for sure. Two days ago he came over and gave me a kiss and a hug out of the clear blue. I cannot express enough what this meant to me. I have 3 other children that can't get enough of hugs and kisses, but coming from my 7 year old it just brought me to tears. The hugs have continued and he even told me that he loved me. The therapist had me convinced that he had a sensory deprivation disorder... until now. I cannot believe that until now I have not heard anything metioned in the news and that the medical professionals are so quick to dismiss claims against Singulair.
I am so thankful that I have found this website and for all of the people that have taken the time to include their experiences as it is evidence that there are serious problems when it comes to prescribing Singulair to children. I cannot help but to be saddened when I think of all the years I have lost to this with my son. All the time spent in frustration and tears over what I thought were serious behavior issues on his part. Not to say that I never expect any negative behavior out of a child, but certainly not like I have had to endure in the last years. The last few days have been amazing...I pray it continues. Shame on Merck for not being forthcoming and only keeping their bottom line in mind.