May 17th
2009
12:31 AM
Hello to All
I'm 33 yr old female who began taking Topamax 2 years ago, after diagnose with Pseudotumor Cerebri,(elevated intracranial pressure),doctors still don't know why i have PTC, it is common overweight women, certain medications, secondary to disease, which all did not connect with me as I was not overweight, have never taken any medication, other than OTC allergy or pain relievers, and all secondary diseases I was tested, and nothing, with a history of migraines headaches, that suddenly became unstable, with vision disturbance I was put on diamax, it lowers elevated intracranial pressure, finally help for this horrible headaches, , I had a side effect it elevated my glucose levels to dangerous levels, due to elevated intracranial pressure I was hospitalize, undergoing several lumbar punctures and eye surgery for decompression of my optic nerve, doctors still unsure of my diagnosis, but telling me I must have surgery for a spinal fluid shunt, I was terrified, I decided to try and consulted with another neuro ophthalmology who had a totally different opinion, I switch doctors and this is when I was prescribe TOPAMAX 25MG to start, now I'm taking 250mg daily, at first the fact that I was going to be OK, that I can continue my life without shunt, no more lumbar punctures, the fact I was not loosing my eye sight, I can go running, rock climbing, after been told I couldn't, I was convinced TOPAMAX was a miracle. The 1st side effects constipation; decreased sweating, drowsiness, dry mouth, loss of appetite I lost about 20 pounds, family friends were really concern, after a while I gain it back, numbness, tingling, I was ok with it, because I no longer had debilitating headaches, had perfect vision, surgery was out the question. and I was stable, but then I suddenly experience seizure, 3 different occasion, no explanation, severe joint leg pain, trouble with speech, bruising, light sensitivity, severe acne, irregular menstrual cycle, vaginal issues, anxiety, heart palpitations, and the worst one yet, the reason I began to search on line mood swings, I'm in the medical field and the people that I work with tells me I'm just getting older, depression, 1st sings of menopause, I'm very active healthy women, with normal daily stress 2 children and 16 years marriage, I have seen my family doctor, had blood work done, and all normal. I have told my neuro about my experiences, and he says is not topamax, my ob says take birth controls it might help, im just lost any one suggestions?
April 21th
2008
8:23 AM
What needs to be explored now is the path of least resistance,the human body is an amazing thing,when things don't work right it tries to fix itself by taking the path of least resistance ,causing symptoms that we will go seek help for,My older son had hydrocephalus at the age of 2,and a shunt was put in, making him shunt dependent, as it would always be the path of least resistance,my dad had a silent heart attack, new capillaries showed up keeping his heart alive ,making this the path of least resistance,some of the behaviors that remain from singulair side effects may very well be symptoms that are taking the path of least resistance, can this ever be reversed???????????????
-- By flindy | Reply | Private Message me
June 23th
2004
12:36 PM
i have had brain ssurgery for the past three years for hysdrocephalus the last surgery the 23rd time the shunt was moved to the arachnoid cyst in the middle of the brain since then i have been wetting the bed without knowing at night i have been taking this medicine for 4 months and that surgery happened 6 wks ago would the medicine be causing this problem
-- By jean184 | Reply | Private Message me
June 23th
2004
12:32 PM
i have a arachnoid cyst in the middle of the brain i have had 23 ssurgeries in the last 3 years for this the last time i had sdsurgery they moved the shunt close to the cyst now and ssince then i developed dthis problem please tell me if it is from the medicine thank you jean giarrusso
-- By jean184 | Reply | Private Message me
August 3th
2009
11:43 AM
this is probably the worst thing Avelox caused, besides death, which would have happened without help..
7th day on Avelox for sinusitus - massive pain back of my head, sweating so much my clothes were soaked, threw up 2 times, legs were uncoordinated when trying to walk
Called 911 - paramedics took blood pressure - guess what.. 210/180.. something was definitely wrong. Rushed to hospital - passed out in ER - woke up with wife and family present - CT scan found my brain bleeding and brain surgery was performed to remove the clot..
But wait, it gets better... 2 days in the ICU my brain swelled from the surgery and the fluid stopped circulating.. I was semi conscious in the ICU for probably 4-5 hours and nothing was done. My wife came in early in the morning and thought I was sleeping, but could not wake me.. The nurse said that a doctor was called and will be there later. I'm DYING right before their eyes in the ICU!!! My wife demanded I get a CT scan immediately. If she didn't I would have stopped breathing. Later CT showed my ventricles enlarged with fluid backed up so much that my brain and brainstem was ridiculously squeezed so much, my head was all ventricles and barely any brain showing in the CT. I attribute my current brain damage to this episode.
A shunt was placed in my head for about 3 days.. basically a needle is inserted into my brain and left there to drain the excess fluid.. After my condition stabilized, the shunt was removed.
Spent 1 week in the hospital, then transferred to another hospital to stay in for inpatient PT and treatment. I didn't know left from right, had double vision, was throwing up constantly, was hot, then very cold, my legs hurt, had hallucinations (was believing certain things were happening, that really weren't) was incontinent, had a new catheter inserted every single day, was taught to walk again, had to use a wheelchair.
I had always been healthy, was vegetarian and did not smoke cigarettes.. I exercised regularly, did not use drugs (i.e. - cocaine or methamphetamine which can cause high blood pressure leading to a stroke)
Didn't know what happened to me, but realized I had to be there.. After 1 month, decided to go home (the hospital was becoming too stressful, somebody was always screaming and yelling at night and the daily catheters were uncomfortable), to be back in the lifestyle I knew.. my wife, my granddaughter, my house, my dog, cats, and other pets were sorely missed.
Once home I found that I couldn't do what I used to anymore - could not mow the lawn, drive, speak well, walk properly, had double vision, a tingling on my face, a metallic taste in my mouth so bad that good food tasted bad.
My wife set me up for physical therapy three times a week daily outpatient at the hospital I was at. Vomited regularly from the daily dizziness.
This was most disturbing, I developed a pain in my left hand and left shoulder, to the point where I could not raise my arm above my head and had to sleep with my arm straight down for at least a year. After playing guitar for 30 years, I found myself unable to play my guitar anymore. My left hand had lost all its dexterity and was not usable. I did not realize what happened to me until my wife explained the entire thing to me.
In the next few weeks I spent each day trying to put "2 and 2 together" and figure out why this happened to me. When doing research on strokes, I realized that certain things happened to me that were not consistent with having a stroke. In my brain damaged condition, I remembered taking the antibiotic Avelox, based on a physicians prescription. I researched the adverse effects and to my amazement, the listed side effects were consistent with what happened to me.
I began a quest to file a lawsuit - was unable to find a lawyer willing to tackle such a huge case.. although one lawyer did file before the 2 year time limit expired.. I had MRI's performed on my hand and shoulder which revealed scarring and previous ligament tearing.
During the time of having more outpatient and in home therapy, I regularly visited a psychologist and my physician confirmed that the Avelox most likely caused the brain bleed, tendon tears, and other mysterious symptoms when I presented him with my research. I was unable to work and my only income was from monthly Social Security Disability benefits that didn't begin until 6 months after the incident.. leaving me with no income and unpaid bills for 6 months. The mortgage payments fell behind and soon foreclosure notices arrived. We decided that an alternative would be to sell the house.. it could not be sold after 1 years attempt, so my wife and I moved to an affordable apartment. I put household items in a storage facility. I either sold to pay bills or threw away much of my personal things,since I was devastated by what happened to me, I didn't think I was going to survive long after reading statistics on strokes.
While in the apartment, I needed an income and was forced to take what was in the scpoe of my limited ability. I accepted an early morning paper route and then made deliveries for a courier company using my own vehicle.. That was a 12 hour work day. Being completely upset over what happened, losing everything including my house.. I decided to attempt to escape the overwhelming things that happened and were still happening. I found a house for rent that was less than the apartments rent, except it was in North Carolina. At the time that seemed perfect, a 3 bedroom house located in a far away place where I could forget everything that happened and make a fresh start. Only problem is my wife not want to go, but I was adamant upon doing it. She helped me move everything, including all storage items.. I had moved to North Carolina, but soon found being alone and unable to find suitable employment unbearable. I was being contacted for back rent owed, but could not do everything alone - I became more depressed to the point of feeling suicidal, so I called my aunt in NY and she said just leave everything and get myself to her house. I did, leaving everything behind, and stayed with her for a month until my cousin invited me to stay with him.. which I did. I stayed with him for 3 months, all the while searching for employment.
With help from my family I moved back to my familiar area in NJ in the summer of 2008. I had lost everything..unable to be physical with my wife and being seperated for 18 months, she has requested a divorce. Currently I live by myself and am still slowly recovering, yet my left arm and hand are uncoordinated, my talking is difficult, slurred and gravely (diagnosed with dysarthria), my balance is bad and am dizzy every single day for the past 4 years.. Although brain damaged, I am attempting to rejoin the computer support business again.
My entire past, everything I knew and did, everyone I knew, who I was, etc.. is all a strange hazy memory. If I don't take a sleep aid, I wake up around 4am with racing thoughts, unable to sleep.. My depression and anxiety are so bad, it is difficult to function and interact with others. My psychiatrist has diagnosed me with post-traumatic stress disorder and prescribed Zoloft and Xanax.
Upon proper research, I have to blame the prescription and subsequent use of Avelox for causing the brain bleed which led to my life being completely and utterly destroyed. My intentions are to file suit against the manufacturer Bayer and/or the hospital for allowing me to die in the ICU
-- By greg830 | Reply | (1) replies | Private Message me