November 28th
2008
1:20 PM
I was diagnosed with Optic Neuritis in my left eye, at the time of diagnosis, I felt fine. Had an MRI to check for lesions on the brain, there were none. I was put on IV solu-medrol for 3 days, then 90 mg of prednisone for one week, with a rapid taper the second week. 6 days into the prednisone, I started have shortness of breath, etc. Went to the ER and my white count was 22,000. Had bronchitis and the beginnings of pneumonia. Because of the breathing problems, I only did 2 days of taper (doctor's advice). I have lost site completely in the left eye and now I have blurred vision in my right eye. Extreme fatigue, and a mental fog I just can't explain. A "twitch" in my left left hand and muscle weakness. I just don't feel "right". How long does it take for this drug to leave your system? Has anyone had a similar experience? My eye doctor was considering another round of prednisone for the optic neuritis, but I am not so sure I can survive it.
-- By spammy08 | Reply | (3) replies | Private Message me
July 29th
2008
12:33 AM
I just wanted to be sure you all read the directions in the pamphlet that they give you when you get the IUD....here they are in case you forgot to read the fine print.
ADVERSE REACTIONS
The most serious adverse reactions associated with the use of
MIRENA are discussed above in the Warnings section. Others are
presented in the Precautions section. Other adverse events reported
by 5% or more subjects include:
Abdominal pain Upper respiratory infection
Leukorrhea Nausea
Headache Nervousness
Vaginitis Dysmenorrhea
Back pain Weight increase
Breast pain Skin disorder
Acne Decreased libido
Depression Abnormal Pap smear
Hypertension Sinusitis
Other reported adverse reactions occurring in less than 3% of
patients include: failed insertion, migraine, vomiting, anemia,
cervicitis, dyspareunia, hair loss, eczema.
May 23th
2008
5:32 PM
Hello everyone. I have had my mirena in for 2 years now and have absolutely no desire for sex at all. I decided to google the Mirena side effects to see what I could find and this site came up. Let me tell you all your story sound just like mine, but the one symptom that I haven't seen is having symptoms similar to Lactose intolerance or Gluten intolerance. I did find this ****** website and it specifically states "Glucose Tolerance
Levonorgestrel may affect glucose tolerance, and the blood glucose concentration should be monitored in diabetic users of Mirena ." Now I am not a diabetic, but my family Dr. said that I had all the symptoms of being Glucose intolerant. I was tested and came out negative. Also all my symptoms increase the longer I go with out a period. I usually go 2 months without, as soon as I have it it is like my body come back to normal for a week.
Now my husband is all about permanent solutions, so I told him that I was ready for a more permanent birth control. snip snip. I am planning on having mine taken out this year. I just want my body back.
Oh this website that I have attached is the actual Official FDA information sheet that we don't get to see, but the doctor does. Make sure you read the adverse reactions. Here they are so if you don't get to the website.
Adverse Reactions
The most serious adverse reactions associated with the use of Mirena are discussed above in the Warnings section. Others are presented in the Precautions section. Other adverse events reported by 5% or more subjects include:
Abdominal pain Upper respiratory infection
Leukorrhea Nausea
Headache Nervousness
Vaginitis Dysmenorrhea
Back pain Weight increase
Breast pain Skin disorder
Acne Decreased libido
Depression Abnormal Pap smear
Hypertension Sinusitis
Other reported adverse reactions occurring in less than 3% of patients include: failed insertion, migraine, vomiting, anemia, cervicitis, dyspareunia, hair loss, eczema.
******
-- By julie880 | Reply | Private Message me
July 20th
2007
5:26 PM
I'm a 34 year old petite 110 lb female and have been on Prednisone for 7 weeks now for a kidney disease (Focal Segmental Glomerulosclerosis). The treatment is supposed to be 3-4 months to see if I go into remission. If not, then I'm "steroid resistant" and they will have to move to a more aggressive treatment (a type of chemo). So I'm praying that this prednisone works!!
The first 2 weeks were a peice of case, then I developed many side effects, but the following being the most troublesome:
- 2 weeks - Edema. I got really bad fluid retention in my lower body and was put on a diuretic. A few days later my heart started pounding so hard I thought it would pop right out of my chest. Well turns out I was totally dehydrated from the diuretic so I'm off that now but the edema seems to be under control anyway (following a low-sodium/low carb diet). At the same time as the edema my skin dried right up too, and I need to put moisturizer on all the time. Even when I bend over I feel the skin on my back stretching.
- 2 weeks - Bloating. Really bad bloating. I'm bloated constantly now. Eating a low sodium diet helps, but not much. At night I weigh 5 lbs more than I do in the morning. I have terrible gas (burping mostly) all of the time. Sometimes it looks like I'm 6 months pregnant! And I'm sure people think I am because as I mentioned I'm normally thin and now I have to wear looser clothing to hide my belly, which doesn't really work and just looks obvious.
- 3 weeks - Sore knees. It feels like there's something growing in between my kneecaps that make it very difficult to climb stairs and it feels spongy when I walk. I can not put any pressure on my knees, I can't squat down, bend to pick something up, kneel, anything. And it gets worse at night.
- 4 week - Moonface. And my face has been blowing up like a balloon ever since. As I sit here and type I can actually feel it throbbing and growing still. I've got fat on my neck under my chin now that actually feels like it's choking me if I sit hunched over. I'm finding the moonface very difficult to cope with. I do not like to look in the mirror any more. I feel like a candy apple.
- 4 weeks - Cramps. Terrible terrible hand and feet cramps. Sometimes if I'm using my hands to chop vegetables or write or even use a fork, my hand cramps up like a lobster claw. I try to use the other hand then the same thing. And then almost every day, my feet. First one, then the other. Excruitiating cramps that seem to go in 15 minute intervals that make it impossible to walk, stand, sit, anything.
- 4 weeks - Very moody and aggitated. I am usually very easy going, now i have patience for nothing. I will be in a good mood one minute, the next I feel like I can kill someone. My boyfirend and our dogs are being very patient with me... I just hope they know it's the drugs not me! I just don't seem to have any control over my emotions.
- 5 weeks - Extreme fatigue. I used to have lots of energy, especially at the beginning of my Prednisone journey. But now I'm just wasted all of the time. I walk to and from work and the last couple weeks I want to just lay down on the side of the road and have a nap as I walk home. I used to do pilates (as much as possible with the sore knees) but it's too hard now. And forget about any elliptical training or cycling. It's enough just to get to and from work and I'm just exhausted.
There are more issues and I could go on forever, but those are the most troublesome. I just try so hard to stay positive but it's very hard sometimes. I pray that this is working, and that it is not all for not. I can't wait to be off these drugs, and my heart goes out to each and every one of you enduring the same thing and pray that it works for your too.
Good luck everyone.
:)J
-- By jennyc | Reply | (4) replies | Private Message me
November 29th
2006
10:50 AM
I received 4 injections of Kenalog - one a month for 4 months - for a skin disorder. Towards the middle of the 3rd month before I got the 4th and last injection I noticed that my forearms were getting these purple looking scrapes or brusies. I called my Dr about 4 days after my last shot - a male nurse gave me the shots and I never saw the Dr a dermatologist (sp?) - and told her what was happening. She said the shots had caused my skin to thin (and I had made a point to ask her about side effects and she said there really weren't any) and that I shouldn't take anymore shots. I asked her if the skin on my arms would repair itself and she said yes it would get better as it renewed itself and to use alpha hydroxie products on it to help it along. That was almost 5 months ago and my arms are still the same. I have been wearing long sleeve shirts since last June to try to protect them but even thru the shirt sleeve if my dogs walks on my arm,all 12 lbs of him or if I hit my arm by accident, I get marks and bruises that look horrible and take weeks to heal. And more are added as previous ones heal so I look a mess. Has anyone else had this problem and if so does it get back to normal skin and how long did it take?
-- By dudleycochran | Reply | Private Message me
April 30th
2004
2:54 AM
my daughter is on Lamictal for epilepsy...petit mal seizures. She started to develop skin disorder that a dermatologist says is achne. She has a swelling of her lips that he cant explain. Her neurologist says she isnt sold on our feeling it is lamictal related... The dermatologist has her on antihistameme and some lotion for her face... it is around her mouth and down the neck to her chest. She is 18...
The breaking out on her face isnt red or blotchy...it is like pimples but no heads and more like gritty feeling to it....
any ideas??
November 30th
2008
6:53 PM
The only side effect so far that I've had is a sense of well being. But I just took my first and last dose of 40 mg last night given to me in the emergency room to treat a skin disorder called Lichen Planus. I will not be getting the prescription filled because I will not be taking this drug after reading these posts.
-- By cosmiccutie | Reply | (1) replies | Private Message me