Slew symptoms and conditions

Hello, I can't help but get into the Mirena conversation. Three months after my son was born, I was put on the Mirena IUD. I had a ton of symptoms. My hair was falling out, tired, weak, headaches, stomach cramps, and just all around felt like crap. I went back to the doctors to have the Mirena removed positive that it was the Mirena that was making me feel like crud. The doctor persuaded me to keep it in longer and after much debate and feeling flustered with the doc I agreed for a couple more months. Well symptoms got ten times worse to the point I called and demanded to be seen right away to have it removed. Well after it was removed, I felt better but not completely. I started losing weight, I had periodic migraines which mind you I never had a migraine in my entire life, and felt like a truck ran over my body every morning when I got out of bed. I went to the doctors and they ran a slew of tests and NOTHING! Well about a month after a car ran a stop sign and crashed into me. I hit my head. IT was the best damn thing ever, I got a cat scan and it showed something on my brain. A MRI picked up a right cerebellum hemangioblastoma about 3cms. I had to have brain surgery to have it removed. They decided to do a full scan and I now currently have a kidney hemangioblastoma. Moral of this story. I am 31 years old, I have always been healthy with no migraines, no ailments, nothing. I have the Mirena put in and I feel like shit and they found a brain and kidney tumor. The estimated both my brain and kidney tumor to be about 2 yrs old. THE EXACT TIME I GOT THE MIRENA IN. Hemangioblastomas are either sporadic of VHL. With sporadic, usually you only get 1 and if you get another its later on down the road and my two tumors would not be the same age so it rules that one out. VHL, I had a genetic test done and it came up negative. So anyone of answers for my mishap. I know the Mirena caused this for me. Im just looking for someone with a similar story

my 85 yr old father had a slight heart attack recently. they put in a stent and a pace maker and sent him home with a slew of prescriptions- lipitor, plavix for 4 weeks, 2 BP meds, nexium for his daily baby aspirin.
he decided to only take the baby aspirin and a licorice supplement i gave him to protect his stomach instead of the nexium.
his doctor talked him into taking plavix for 14 days but he gave up on lipitor. he knew dad would never take it.

anyway, i talked to dad tonight and he stopped taking plavix after just 9 days. he didn't like the way it made him feel. he said it made him tired. he felt great before he started taking it and he's feeling better now that he's stopped

Our daughter is now 5 1/2 and has been taking singulair since she was two, when she was diagnosed with asthma. She also has a slew of food and environmental allergies. It was not until she started taking Advair that her asthma became controlled. Her allergies still seem to bother her occasionally. I feel since her asthma is under control why take two meds? I did not refill her Rx and we are on day two of no Singulair. She's had headaches for two days and feels lousy. After reading the side effects of this drug I may now have answers to the headaches she'd get often and the moodiness and the sleepless nights and the deep dark circles under her eyes and the diarrhea. We'll see what happens in the next few weeks, although I agree that dose of antihistamine now and then is much better than all this other nonsense!

After reading all the comments that have been posted, I feel compelled to add my story. I have been on advair for approximately two years. One of the first comments I read a week or so ago was about the person that had horrible foot pain for over two years and felt it could have been from the Advair as well.

I have had severe foot pain for over 2 years. I had plantar faciitis in both feet and had surgery on both to fix that. Several months after surgery I still wasn't healed as much as I thought I should be and my doctor felt the same way. I then began a series of more cortizone shots, physical therapy, ultrasound therapy plus an on going slew of blood tests to rule out everything we could. I even went to a Neurologist and had an EMG done. Newest diagnosis is tarsal tunnel syndrome, so I was put on yet another drug (Cymbalta) I wouldn't recommend that one either. And still the pain exists. In fact the pain went from the heals to the tops of my feet. It feels more skeletal than nerve related. I have had stress fractures in both feet and ironically the same exact bone approximately 6 weeks apart. Is all of this coincidence, or linked to being on Advair?

I also have gone through most of the symptoms that others have posted; fatigue, insomnia, blurred vision, sore muscles, headaches, water retention, weight gain (40 pounds in 2 years), slow healing, bad scaring, easy bruising and many more I'm sure I've forgotten.

The day after being on this site and reading everyone's comments, I went and threw my Advair away. I don't have asthma, just bad allergies, and right now my breathing has been fine being off of the Advair. I still use my inhaler though as needed. The one comment that scared me the most was the side effect that several posted about rotting teeth and jaw problems. That's one side effect I haven't had and that's the main reason I stopped using the Advair. I have perfect teeth and don't want to ruin them.

I don't have any answers either, but just know that we as patients have to take control of our health. Don't feel bad if you disagree with your doctor or ask for a second opinion. We as a society have become quick to fix our ailments with drugs that have yet to be "proven" as safe over a long period of time.

Im in the process of weaning my self off of two other drugs that I was taking besides the Advair. I'm doing more on-line research regarding natural remedies for some of my ailments. I still have some side effects but that could be due to the detoxifying process. This is a process that takes a few weeks. Make sure you consult with your physician first before trying any of this.

I have been on Paxil off and on now for about 5 years.... the current length of treatment for the past 1 1/2 years. I need to be on it ( or something for that matter ) for my panic disorder. I am a 36 year old nurse/ manager and some days was almost debilitated by panic attacks. Depression was part of it, but not nearly as much as panic. I must say, that I have been experiencing memory loss now for about a year.... I thought maybe it was due to overwork/ stress...which I do understand it COULD be. However, I find it interesting that I am seeing so many more people with memory loss than I imagined. Is it due to stress in this type of people's lives, or is it in fact, the drug Paxil?
Keep in mind this is an SSRI ( Serotonin Reuptake Inhibitor ) ~~ even though there is no solid evidence (YET!) this is a side effect of the drug, I would bet my license on the fact that that it is!
I have tried time and time again to wean myself off of Paxil.. ( with and without my Dr's advice )--- I did succeed for a few years to be without the medicine, however being on a slew of other meds in the interim did not help as much for the panic as does the Paxil. Paxil, honestly, scares the hell out of me!
Besides the "numb emotions", memory loss, sexual appetite decrease, yawning, lack of sleep, etc... the side effects of coming off of it are worse! As I read earlier, it IS addictive, indeed! The brain gets used to the drug being there ( as with any addiction ), and the "surges" of dizziness, sweats, and out-of-body-like experiences I experience coming off of the drug are excruciatingly harder to bare than the depression itself. Those above symptoms of withdrawal are just that....withdrawal!
Once your body is "allowed" to reuptake serotonin (as it is supposed to), this is when those symptoms raise their head...sometimes for weeks or months until they subside.
I would welcome anyone with help on this matter---is there another Drug out there that can help with anxiety/depression symptoms, and not cause the plethora of side effects we have all discussed here?
Diane

Hi, I'm a 25 year old male. I've had severe seasonal allergies for as long as I can remember. I'm to the point where the coming of spring usually means that I'm going to be visiting the emergency room inside of a few weeks. I've been involved with Zyrtec since the spring of 2003. During that season I experienced what could only be described as a near complete nervous break down. I had an issue involving administration at the college that I was attending losing some paperwork regarding a semester withdrawal ... as a result I ended up with 7 F's and owing the university around $4,000.

I ended up crashing. My family describes me as the guy "with a big heart" ... but I began getting into screaming matches with my parents that ended with me breaking down and weeping / sobbing almost hysterically while holding the door shut to my bedroom. I became incredibly "anxious" (that's how my families General Practitioner {GP} described it), but I'd describe my behavior like more along the lines of a parody of a guy that just smoked a ton of REALLY cheap pot and therefore began to think that everyone was out to get them and that no one had their best interests at heart. My GP decided that I must be on the verge of a nervous breakdown and put me on paxil in an effort to calm me down. In a way it helped keep me calm and drastically reduced the extreme emotional spells that I was having. I pulled myself off of Paxil (for another slew of side effects that I'll be posting on that tab) during the late summer and fall when I don't have as severe an issue with allergies and as my season approached I found a new doctor and when I brought up how I had eventually decided Zyrtec D was making me feel he told me that I was right on the money. He ran through the almost all of the side effects that are listed on this page and I was floored ... I couldn't believe that no one had told me about them. He put me on Astelin and since then I haven't had any issues. As a matter of fact, I'm totally psychologically sound now and I haven't experience a "heart flutter" since ... where as a few years ago I was on the verge of committing myself while on Zyrtec D.

As a little note: I'm currently taking Astelin along with the OTC Zyrtec on a once a day basis and the only side effects that I've seen show back up are: slight paranoia, a loss of energy and general virility, and a significant weight gain (about 20 pounds in the past 3 months that could be attributed to my near complete loss of energy) ... which is an ENORMOUS improvement coming from the prescription strength Zyrtec D.

I'd also like to mention that I don't have any disorders like bipolar disorder or severe depression ... but when I take Zyrtec I acquire a lot of the symptoms associated with those medical conditions ... the symptoms slowly subside when the season draws to a close and I stop taking the medication.

First, I would like to tell you what my daughter used to be like. My daughter used to laugh, smile, sparkle and she loved life! My daughter was smart, as her pediatrician had been telling us since she was one. She sailed through life! Then we had hurricane Isabell come through, and she was rushed to the hospital in the middle of that storm for our first asthma attack. She was three at the time. We took her to a Pulmonologist, which she has seen since. She is now 7 going on 8. She was put on Singulair about 4 years ago. Starting kindergarten was pretty much a breeze. First grade came and she complained of headaches, stomach problems, trouble concentrating. Telling me "mommy I can't think". I asked her Pulmonologist, 5 times that year if it were any of the asthma medications. I was assured it was not. now we are in second grade, and she has steadly declined in every aspect of her life. She started having "eye darting" and head movements, which she was unaware of over Christmas. Her teacher kept saying there is something wrong, "but I can't put my finger on it". She retreated from family and friends. Since December we have been through a slew of testing. The first was an EEG, next came an MRI and lastly an 24 hour EEG. All looking for seizure activity. She has seen a pediatric Opthamologist. She has been through testing for ADD....this being the last. She had a serious reaction to an ADD medication last week. When my daughter asked me "mommy, why did God make me this way", the tears just wanted to run. I had no answer. My husband and I both feel that it is NOT ADD! Let me add some facts here...she can not concentrate, she can not focus, she has withdrawn, she has started to have anxiety, she is weepy one minute, and agitated the next, she can not stay on task and finally her grades are dropping to the point of retention. My heart aches for her, I feel helpless. I want to see my girl back, I want her happy smiling face back, I want her to be confident again. I just pulled her off the Singulair last night, after my sister left many phone messages concerning this blog. I have read them with the love only a mother knows, and the pain for each and everyone of you going through this. As I sit here and type this, I can only have hope. This is very difficult to write, and I am not even sure if I have written it all down. What I do know, is that at 2:00 AM last night I took the time to report her side effects to the FDA. Today is a new day, and I hope and pray for my daughter and everyone of you out there dealing with this.

Terry A

one year and seven months ago i was given a coarse of laviquin--750 mg--for seven days.after 5 days I was so sick i thought i would die and at times wanted to--I had severe depression, diarea, musle pain a weakness, ancles ,knees, back and shoulders hurt so bad that I had trouble getting out of bed. my heart was raceing at 120 beats per minute and blood pressure was very high. I also had a lot of pain in my butt muscles and could not sleep, then I got to where i could not breathe and had to go to the E R

now it has been over a year and a half and still have trouble walking because of pain in knees and ancles. shoulders are sore all the time and I can not sleep more then a couple of hours at a time. my butt hurts so bad that I can not sit in a recliner for over an hour with out extreame pain.. I changed doctors now tree times and none of them will consider that the laviguin was the cause. the last one did send me to a hospital for a rectal exam but they found no problem. now that I know what caused the problem, the depression is most replaced by anger. this drug should be recalled and the drug companys should be made to pay for our care. I am 67 years old and been in pain now all that time and think I will never be the same again. my advise would be---DON'T TAKE THIS POISON--AVOID AT ALL COSTS

YOUR FRIEND---ALP

Has anyone out there had an increase in urination? I started Yaz in Feb. and since then I've been peeing like a race horse. My OBY said it was probably an overactive bladder, typical for a peri-menopausal woman. I had tests for bladder infections and they read negative. I was in the middle of relocating my family across many miles and I just put up with the symptoms. Now I find out there is microscopic blood in my urine and I am scheduled for a slew of tests probing for tumors, cancers, polyps, etc. in my bladder and kidneys. My Dad had bladder cancer so I'm pretty scared. However, I am starting to wonder if there is a Yaz connection. I hate the thought of returning to periods where I couldn't leave the house because I was bleeding so much but all the risks here are scaring me. I don't have an OBY here yet but assuming I am not harboring cancer or an other disease (i.e., kidney stones) I think I'll go off Yaz. I already have horrible migraines and acne so I'm wondering if it will all get worse. My headaches are the same (2-3 times a month) with Yaz and my skin is better. It's been pretty good for water weight but as I said, I am in the bathroom way too much.

I too have been taking Aciphex for acid reflux for about three weeks and although it seems to have helped with the burning and nausea, I have just recently (four days ago) been experiencing a slew of symptoms. They include headache, blurred vision in my left eye, facial numbness, both forearms numbness, leg (knee down) numbness, and tingling sensation in head. I went to the ER yesterday due to the left arm and left side facial numbness. They ruled out heart attack, blod clot, stroke, bleeding in brain, and brain tumor via a CT scan and a host of other neurological examinations. Doctors have suggested an MRI to rule out something else neurological (MS, neurofibromatosis, etc.) that a CT scan might not pick up. Also, will do a neck MRI to rule out a bulging disc or pinched nerve. I am hoping that it is just the Aciphex.

Mamalove,

Do you know that you are not to use Nuva-Ring after surgery? I am sure that is where most of those problems are coming from. That will cause a slew of problems. Did her surgeons know she was taking it? You should have been advised.