March 28th
2008
1:27 PM
My 20 year old daughter suffered with asthma since the age of two. She took theophylline for years, but once singulair came out and we switched it was like a 100% improvement! However, looking back , what I thought may be teenage angst, I can see the correlation between the way she wrote her poetry and the use of singulair. She was never suicidal but did have some symptoms of anxiety and sleeplessness. She ended up having such bad sleep problems in her freshman year of college, that she could not sleep at all for 6 days in a row. She was admitted to the hospital when she was found in her dorm in nothing but a bathrobe and slippers, crouched on the floor, non responsive and in a state that they thought perhaps she had overdosed on drugs! After clearing all drug tests, she was admitted to a state mental hospital and put on risperdal for two weeks. She eventually came out of the hallucinations and the anxiety went away. After being released, she had to withdraw on a medical leave from school and eventually weaned herself from the risperdal and stopped taking the singulair. Her follow up appointments with psychiatrist were positive, they changed her diagnosis and said she was not, after all, bi polar and they did not renew her prescriptions for any anti-psychotic meds or any bipolar meds. Since then , she has not had any recurrence of sleeplessness or any episodes like that. I have started a ******* page so that we can all keep in touch with our stories and give the support and feedback in one community. Please go there, its free,******
-- By texasmom21 | Reply | Private Message me
December 27th
2007
11:49 PM
My ENT prescribed Levaquin 500mg per day for 12 days for an unusual bacterial sinus infection. Within four days I was feeling horrible. I have been off the medication for four days now but my symptoms haven't improved much.
My biggest complaint is that I can hardly walk due to terrible ankle and foot pain. All of the joints in my feet hurt but particularly both ankle and big toe joints. I can’t find a pair of shoes or even slippers that are comfortable. Every joint in my entire body aches. My shoulders and my arm muscles are so sore that it hurts to do anything. My wrists and my hands and fingers hurt and feel swollen. I can’t open jars or similar tasks. My knees and hips are sore so walking is painful. My lower back hurts if I walk much. Joints that I've had problems with in the past hurt even worse including my neck (cervical spine). My skin is very sensitive to touch even to my clothes, bed sheets and slippers. I’m miserable. I already had dry eyes but this drug has made them MUCH worse. My eyes are so dry, they both hurt and they are both bloodshot. My eyes are now even more sensitive to light so I wear sunglasses to reduce pain causing glare. Cognitively, I feel like I am in a fog; it’s kind of a spacey, surreal feeling. I feel like jumping out of my skin. I have had chest pain twice. My heart races at times. I have an intermittent, frequent knife like pain in between my shoulder blades (on the left side) and it is worse when I breathe deeply. I have tingling in my hands and they usually feel cold. I feel queasy at times. In general I feel ill and I have no energy. I fatigue easily. I don't know whether to cry or to scream but I feel like doing both. I've always had headaches but they are more frequent now. On top of it all I still have intermittent burning in my sinuses so I don't know if the drug has even cleared up the infection or not. I was re cultured today.
I have taken Cipro (similar to Levaquin) in the past so I did not make the connection between the Levaquin and my symptoms until two days after I had completed the drug. It was Christmas Day. I was too sick to join in the festivities. As I sat alone I started to think about my symptoms and I went online to research my symptoms. To my shock I discovered that there are thousands suffering as I am with similar symptoms due to this drug. I now fear that I may suffer permanent damage as a result of this drug. I was never warned regarding ANY of the dangers. The common adverse problems associated with this drug is NOT common knowledge in the health care setting but it should be. I printed out pages and pages of postings of sufferers and brought them to my ENT. I provided him with a list of sufferers web sites. He sat in stunned silence and it was obvious that he had been painfully unaware of the suffering that this drug was causing.
I blame the pharmaceutical companies and the FDA for allowing this tragedy to continue. I would like the name of a competent, experienced attorney with a proven track record against pharmaceutical companies. If any of you can provide me with the name of an attorney I will be in your debt.
I thank you all for your postings because at least I know that I am not alone. My heart goes out to you all.
Chris
-- By chris13 | Reply | (1) replies | Private Message me
October 11th
2007
9:49 PM
It's been 2 weeks now since I stopped taking this drug. All I can say is I have really good days and REALLY bad days. I have more bad than good.
When I mean bad, I mean I have days like I had when I First started taking this drug. I can't get out of bed hardly, my joints hurt so bad that I would just rather not move. My feet are still swollen and on the bad days they get so bad that I can't even wear my crocs., sandles, or slippers without design impressions being left on them. My hands hurt so bad that I just want to cry. My emotions are all over the map. My back hurts even worse than it has and thats not a good thing. I can't concentrate and I REALLY have to pay attention and write everything down so I don't forget, esp at work. My walking is getting harder and harder to do. I use my cane on a regular basis now. I had another EMG done because she my dr. didn't like the results of the last one... they came up with nothing. I pee like a racehorse. I always have to go and I don't have a kidney or bladder infection. (though this is why I was on it in the first place~ that has since cleared up). I can't sleep anymore. So I went from always tired to not tired.
I agree about the driving being scary. I almost lost control the other day because I lost my grip on the steering wheel. I got turned around and went the 2 blocks BACK to the house. This drug is soo Dangerous. It needs to be banned and taken off the market for good.
My hubby and I are looking for a lawyer now to see if they can do anything. I contacted the one lawyer on here that someone suggested and I never heard anything back. So I would assume that means they don't have the right to practice in Michigan~ that or they just blew me off.
My feet hurt so bad most of the time, I now use those scooters in the store(these are ENORMOUS grocery stores almost like a Super Wal-Mart) anyway I have little other choice.
Anyone elses hands and feet ice cold. Mine feel like they been to the artic circle without me and it was in the 90s.so now that its in the 40s its worse because now Im completely frozen.
Is anyone else having problems thinking straight>?Im having issues thinking straight, coming up with the right words etc. I even forget what Im talking about in the middle of a sentence.
I think it would be a good idea if we did do updates.
Good Luck to everyone! I hope that you all feel better.
March 19th
2004
10:03 PM
I started on 10mg of Lipitor a week ago. I have excellent cholesterol levels (total = 184; HDL = 77; LDL = 91), but because I am a diabetic (I have been for 35 years), my physician suggested that I begin taking the drug.
I feel like I am hooked up to a diazepam IV!!! I am totally zoned out and have very little energy...and I don't really care if I get any of my work done or (not good!) The other thing that is driving me crazy is that I am cold all the time. As I am typing this, it is 70 in the room and I have on a turtle neck sweater, two sweat shirts (one with a hood that is up), a pair of lined jeans, two pairs of socks, and down slippers...and I am STILL cold. Has anyone experienced this side effect? I don't think that this drug is for me...
June 4th
2009
10:16 PM
I was taking doxycycline for a lesion on my face. I started to have tingling of my feet and fingers but did not associate it with the medication. I only used the doxycycline for two weeks. The tingling in my feet lasted for almost 5 weeks.
Several months later I went on Doxycycline because I thought I had lyme disease. After being on the Doxy for one week I started up with burning sensations of my hands and feet. Puffy, red hands...burning on different parts of my body. My Md said it was anxiety! An immunologist said it was peripheral nueropothy from drinking too much!!! I knew both diagnosis were bogis....then I started to research doxy and came upon this site...thank God. I finished the month of the Doxy. I have been off the med now for two months and the symptoms are finally starting to subside.
-- By hogan | Reply | (4) replies | Private Message meI can remember waking up one night and my entire chest felt like it was on fire. Wearing shoes was so painful that I wore slippers to work...I was a burning tingling mess and I am convinced it was the doxycyline.