May 20th
2009
2:51 PM
They think that I have either crohns or ulcerative colitis. I have tried antibiotics, lialda, mesalamine enemas, with no improvement. After another colonoscopy they put me on prednisone at 40mgs, 30, 20, 10, then 5 decreasing weekly. Well the first week was okay. I had some of the side affects, insomnia, extreme hunger, and crazy. I could deal with that. But then when I decreased down to 30mg, my body flipped. I awoke from the middle of the night with burning pain in the knees. So bad I took 4 ibuprofen and threw myself in the tub with epsom salt. I thought okay that was weird because I have never had a joint pain in my life. I saw the gastroenterologist that day bc I was still having abdominal pain. He totally blew off the knee pain and said he had no idea what that was. I thought okay maybe it will go away. A few days went by and nothing. 3 days later and I awoke one morning crying in pain because of my legs. I called the on call doctor who also said he had no idea and go to the er. So I went crying hysterically for 4 hours. Even after 3 rounds of dilaudid I was still in pain. They suggested a Rheumatologist. So I went to one a week later who said I was going through steroid withdrawals. And there is nothing we can do but treat the symptoms of pain. I am now down to 10mgs have been out of work for 2 weeks and am absolutely miserable with severe leg pain, muscle weakness and fatigue. He also adjusted the drop down increments to 5 instead of 10. Anyway I will never take this drug again and I think they rushed to this one. Just wanted to share. I am glad I found this website because I went from a fully functioning physically fit 28 year old to a crippled crying crazy person. I think I was scaring my husband, honestly, until we both read some of your postings which were similar.
-- By sbl315 | Reply | (6) replies | Private Message me
March 16th
2009
3:31 PM
I have been on Lisinopril for over 30 days. I started getting severe pelvic pain and a routine UA indicated I had an infection as well as blood and protein present. Dr. was worried about bladder cancer. Took sulfur based drugs for the infection and subsequent UA was clear but severe pain continued. Scheduled PAP and Dr. ordered ultrasound. He indicated that uterus was pushed over slightly to one side and indicated it could be fibro cysts. Ultrasound was normal. Dr. ordered CT scan, normal. Dr. wants to send me to gastroenterologist. It takes three 7.5 mg. Vicoprophen for pain to abate for 4 hours. I sat up all night researching and came up with isolated viseral angioedema a very rare and seldom known side affect of ACE inhibitors (Lisinopril). It affects the small bowel. Would assume that small bowel was so swollen that it was pressing on all other abdominal organs, especially bladder, causing pain. Had diarrhea at first then constipation. When looking up isolated viseral angioedema it says that gastroenterologist usually do lap surgeries looking for cause of pain before they figure out that it is the Lisinopril. Immediately quit taking and 3 days later almost pain free. If you have abdominal pain and are taking Lisinopril, cease before undergoing any further testing. It cost me $2,000 to figure it out on my own.
-- By roscoemonkey | Reply | Private Message me
December 17th
2008
10:58 AM
glad I found this site. I have Crhons which I have had for a number of years. Had been complain about heartburn and pains for a while and consultant suggested Omeprazole. Before taking it I have been having a flare up. But knew the symptoms and was relatively calm about it. After taking the Ome, I have had severe stomach cramps, terrible runs, weird dry retching and nausea, all in the small bowel. Terrible panic attacks. This drug is awful
-- By marcusjames | Reply | Private Message me
November 5th
2009
10:27 PM
i just wanted to let you know tha I am a RN. I have been on YAZ for 3 months only. In this time frame, I have had severe abdominal pain, nausea, vomiting, diarrhea and back pain. I at first blamed it on the hormones but now attribute it to bad side effects from YAZ. I have already had my Gallbladder out when I was 18 yrs old (side effect of BC pills). Anyway, my doctor just sent me for an upper GI and small bowel follow through....but, I think that it is all related to YAZ. The MD thinks I am just being a "know it all" nurse, but I have research this med. I have lost 12# in 3 months (bonus), lol....but I am sick of being sick...my husband thinks I am a big complainer, but its real and it hurts. I would have been in the ER also, but being a nurse, I am a little more stubborn to go to the hospital. I did go one night because the pain was sooo bad but the wait was 3 hrs and I vomited 3 times while waiting, The pain was now tolerable so I left! I have 5 days left of YAZ, I was going to try to last out the rest of the pack, but after getting severe pain, again, tonight....after eating soup only all day and throwing it up...I am DONE WITH YAZ. I am stopping cold turkey...the body will regulate itself. I want to feel better. I hope once this stuff clears my body, I will feel better once again! Good luck!
-- By debbiern | Reply | (1) replies | Private Message me