April 29th
2009
8:45 PM
I had my mirena put in on 2/24/06. I still have it. It has been over 3 years. I have experienced a lot of the above symptoms. I had Mirena placed 10 months after my 3rd son was born. he is medically fragile with a lot of special needs. I was depressed and angry, so I went on Zoloft. I figured it was the stress from trying to keep my son alive. I have NEVER bled- not even when they put it in. I have not had a single period. I have had contraction like cramping a lot- off and on. Sometimes it even seems painful to urinate. I just ignored these symptoms. I too have NOOOOO sex drive.. which I of course have blamed on the Zoloft. I have not slept more than 2 consecutive hours in over 3 years.. again- I blamed this on worrying about my son. I have not gained weight- but no matter how much I diet or exercise, I cannot lose and ounce. I have always been that person that women love to hate- eat what I want and never grow out of a size 4. I blamed this lack of weight lose on age.. I blamed my fatigue on my insomnia. I have answers for all of these symptoms.. but I never once put them all on Mirena. I think I will get this taken out to see if my spirits, sex life and sleep ability change.
-- By nocobean1 | Reply | Private Message me
January 18th
2009
5:14 PM
this is such old news, and such sad news, and I am so tired. Previous severe tendon pain, now after 6 mos. tendinitis on an mri in two ankle tendons, and a longitudinal tear in one tendon. sever pain after 10 weeks. do not know what to do anymore, I feel like the system has swallowed me up and no one wants to listen. Is someone out there for me???????????????//
-- By rubellaumbrella | Reply | (1) replies | Private Message me
October 31th
2008
10:08 PM
Started with a Pred pak for a sinus infection. Made my heart race and had tach and early heartbeat, which kept me from sleeping. Went to Cardiologist. Several doctors denied that the Pred would cause the rapid heartbeat. Then the Cardiologist did an echo and found a pericardial effusion and some weird spots on my lungs. They suspected lung cancer which may cause the effusion, so I had surgery to do a pericardial window and a lung biopsy. Then a pulmonologist decided to put me on Pred again...steady dosage...because she didn't know what else to do. (Didn't have lung cancer) I didn't have any more funny heartbeats, so maybe the pred didn't cause it after all. But I've gained 40 pounds. My hair has grown faster, and I've gotten some facial hair (not supposed to have that, being a female)...which I call fur. Moon face with cheeks that are hard, muscle cramps, can't sleep, but once I do go to sleep, I can't wake up. Tired all the time, headaches, joint pain-sometimes severe, dry skin, generally bad attitude, with very little patience, low potassium levels which add to my muscle cramping problems, difficulty swallowing, indigestion which I've never had, with painful and burning reflux. And occasionally when I eat, I have the rapid heartbeat again. I go in search of food like I'm going to store it in my thighs for winter. Anything you eat will turn to fat, including protein. Can't wait to get off this stuff which will take until June of next year. Then my doctor says it will be 3 months before all these effects wear off. No one told me I would get fur.
-- By jannski | Reply | (3) replies | Private Message me
September 14th
2008
11:04 PM
Hello Fellow Women Against Mirena (WAM! O.K. I'm going to copywrite it) I am so, so, so relieved that I'm not alone. Don't get me wrong, I wouldn't wish this ....on anyone, but just like the support groups for any cancer (which I have to take a blood test for), or disease, it helps to know your not alone. I know that sounds corny, but I have always been a person who's feet hit the floor at 5:30a.m. and don't stop until 11:30p.m. and was able to lift 75lbs over my head, handle a charging stallion (not the hubby as noted by you all...not happening), now I am 50lbs overweight, don't eat at all, I used to be a grazer, ate little bits all day long just like my horses. Now if it wasn't for them waiting for"Mom" with their big brown unjudging eyes,cuz animals don't care about you being fat etc, but they do want their Mommie time back. I think that we should keep our removed Mirenas in little viles or zippys and chuck them on the desks of the CEOS who manufactured this demon ...then ask them to try their product out on their wives, girlfriends, daughters. mothers...I bet they wouldn't...I think after surgery to get it removed, I'll be mailing a package to Bayer and the company who makes it in Finland.....Look out Bayer in Wayne, NJ...your going to get your product back and I want a refund!...Thanks WAM, you have lifited my spirits..and if I happen to flat line in surgery, guess who I am going to haunt!!!
-- By minihorse3 | Reply | Private Message me
September 11th
2008
9:09 AM
I am currently taking levaquin for a sinus and double inner ear infection, i have also taken this antibiotic before,i am 35 years old. I think this drug works wonderfully and tell the doctor this drug works the best for me.i have noticed a harder time falling asleep if i take it too late in the evening and some mild stomach cramping if i do not eat at least 2 hours prior to taking it.i also take it with a full glass of water.some of the side affects listed in this blog that people are describing are normal if you read your insert that comes with the medication.And if you follow the directions and eat and drink with a full glass of water the side effects are not as severe.Unless you are allergic to the drug,i do not find it bothersome knowing i will not be taking it forever and it is just temporary that i will be having a hard time falling asleep.i do eventually fall asleep.My suggestion while taking this medication if you are in reasonably good health,is to read the directions about eating and drinking plenty of water and don't panic,that just makes things worse.
-- By cherylathomas | Reply | (4) replies | Private Message me
June 27th
2008
6:14 AM
I have just been switched to Synthroid (by my Endocrinologist) after being on Armour for 4 years. I have to tell all you out there that think "Armour" is the save all drug..and believe me I am not an advocate of Synthroid either because I have not been on it long enough to know what possible side effects I might have..however when I first started on Armour I felt like I did before I had been diagnosed with Hypothyroidism ..then about 1 yr ago I started to gain rate rapidly like 40lbs in 6 months feeling sluggish, off and on skin problems, puffy hands, face, feet,hives, pimples in the back of my head almost hive like,some hair loss that is noticeable to me as I have had very thick curly hair all my life now it is getting noticeably thin and It is making me very nervous...My Endo put me on .75 mcg Synthroid and .5mcg Cytomel which she calls a "controlled Armour"..Armour does not stay consistent with your T4's and T3 levels and that is what cause my thyroid to become suppressed and these are the symptoms I was experiencing...she also put me on Spironolactone which is a mild diuretic to lose the puffiness in my face,hands,and feet and so far so good...Like I stated earlier, I am not an advocate of Synthroid or Armour our any drug for that matter, I just want to find what is right for me and stick with it..and if Synthroid doesn't work for me, then I will try something else...Just remember one very important thing.."You" are the only one who knows how you feel and Dr's are not God they can't fix everyone that is why its very important to read about your disease and find out what things might work for you..I suggest getting this book I bought that was recommended to me by my Endocrinologist called "Screaming to be Heard" Hormone connections women suspect and doctors still ignore written by Elizabeth Lee Vliet, MD...its a fabulous book and I am sure all you women can relate to this book...its all about us....Most important thing is to stay healthy eat a well balance diet and exercise..also find out about the foods that only worsen thyroid problems...
-- By alleekat219 | Reply | (3) replies | Private Message me
June 9th
2008
8:03 PM
I posted last Friday night about my 4 year old daughter's Singulair experience. Just wanted to add a note that my daughter was actually on it for 16 days - forgot to include the free sample. Her last dose was last Friday. She had one more hallucination experience on Saturday evening. Sunday she developed an unexplainable itchy rash behind her ears and along her jawline. I gave her some Benadryl. Monday morning the rash is not as severe or itchy. This evening she is in very good spirits and ate quite well too.
-- By lindsaysmom | Reply | Private Message me
June 4th
2008
3:12 AM
I am a 49 year old male and took a 14 day course of Cipro for a UTI. By day four the souls of my feet were very sore, especially first thing in the morning but no other side effects. Mentioned sore feet to Dr after 7 days of Cipro but he did not believe it was from Cipro and had me complete the course. After 14 day course of Cipro feet were now so painful that I could barely walk on them especially after resting or getting out of bed. Also burning sensation on skin of feet and hands and some minor tremor. Saw a specialist and he immediately confirmed Cipro as the culprit and advised never to take that drug family again. Have since done the whole web search thing and discovered the whole saga of these drugs. Other symptoms have also appeared, some pain in middle of back, sharp pain in middle of back of both knees, hot and cold flushes, pain in left bicep, fingers that are very susceptible to joint injury and feelings of weakness and anxiety. Has been over three weeks now since I stopped Cipro and condition shows no improvement, may even be slightly worse. About to try a shotgun approach with treatment as there appears little documented evidence of anything conclusive on line. Starting course of anti-inflams (Voltaren) and these have already reduced the pain in my feet. Also magnesium and calcium supplements (theory goes that it may mop up any remaining Cipro and there is plenty of reports from sufferers saying that symptoms continue to appear for some months after stopping Cipro), Vitamin B6 (can apparently help with some types of nerve pain and tingling) and Fish Oil (omega 3's can help reduce inflammation). Not very scientific I know and can't be sure that all these are compatible with each other but am a bit desperate at this stage. Bracing myself for a three to six month recovery (just based on experience of many others). At this stage I am just hoping that damage is not irreversible as this appears to be a real risk. As everyone here will agree it is amazing how this situation is being allowed to continue. I could have stopped my Cipro on day two or three if I had been made fully aware of the risks and what to look out for. I am no expert by any means on this but from what I can gather Cipro and its relatives do nerve damage by the very way they work. It appears that anyone taking these drugs will inflict some nerve damage but for many it will not manifest to a degree that is a problem or at least a noticeable problem. So in some ways we are all sufferers, just to varying degrees. Another point mentioned often is that the symptoms may not appear for some months after the Cipro is stopped and therefore is not always associated with the drug. Also some say there is an accumulative affect with using the drug a second or third time. Symptoms may appear only after multiple use or symptoms may get much worse and more likely irreversible with multiple use. It's all scary reading. At this stage I am just hoping I can make a full recovery. Do damaged nerves repair themselves, does the Cipro eventually leech out of our systems .... I don't know. I will post in this forum again in a few months or sooner if I make a recovery.
-- By rgregory | Reply | (4) replies | Private Message me
May 16th
2008
10:19 AM
Just an update about the class action suit discussed previously, and Aamaya had provided us with the Florida attorney, Justin Wikin: I got a letter in the mail yesterday stating that they would not be pursuing suit against them. They said that they deal mainly with wrongful death cases and it does not mean that the case does not have merit, just that it is not their specialty. I will be doing some research here locally in Ohio to see if I can locate a practice to pursue this. If anyone comes up with something, please let us all know.
-- By nyrek | Reply | (19) replies | Private Message me
March 14th
2008
9:48 PM
My daughter was taking Yaz as a predecessor to going on Acutane for acne. After a couple months began having severe nausea and vomiting which we thought was due to the Acutane (it is known to have potentially powerful side effects) so we took her off of that treatment. The nausea and vomitting increased to the extent that she had MRI, sonogram, and ultimately colonoscopy and endoscopy to determine if there was cancer, etc. All tests were totally clean...so doctors said it must be in her head. She was also having significant mood swings and almost a paranoia. That is when I sat down and tracked back to as early as I could the initial slight nausea symptoms occurred. Determine it started at the same time as this BCP. Looked up the message boards and was horrified to see what young women were going through. I immediately told her to stop taking the drug. Within one week, my daughter could eat again and her spirits were lifted. Nice to have her back after thousands of dollars in medical tests. Very frustrating that the doctors, who knew her prescriptions, did not see the potential. Because of this and another prescription issue, I will severely consider whether I or anyone in my family will use the 'latest and greatest' drug. Will ask for what has been tried and true.
-- By gwhitecpa | Reply | Private Message me
February 11th
2008
1:39 PM
My 9-yr-old daughter was just prescribed Adderall for a one-month trial period. The first day was incredible. She was such a joy to be around. It was like I had my little girl back. She has been so trying for so long that I was just ecstatic. Although she did suffer from a bellyache throughout the day, which I hope will subside. The next day was not as wonderful. She was still a little hyperactive but her concentration was still improved and she was on her best behavior all day. The third day was almost as good as the first day, but that night she came into our room saying she heard voices whispering. When I asked her what they were saying she couldn't tell me what was said but was very scared. I have been distraught ever since. Is this indicating she does not have ADHD or is it a side effect from the medication?
Please help, as I don't want her to continue on this medication if her mental stability will be sacrificed.
-- By mamacita | Reply | (2) replies | Private Message me
August 9th
2007
10:58 PM
Hi there... I have just found this site and I'm very grateful to everyone who has taken the time to sit down and tell us their story mine is very similar. BELIEAVE me I feel like I am pushing my family away and I'm losing my relationship with the one person who used to make me feel like I was the most beautiful woman in the world.
I'm a 40 yr female have or maybe had a great job that I loved... On April 12 I noticed a small red rash on my lower right leg no big deal went to the Dr. gave me some cream and sent me home well I went to work and by the afternoon things just seem to get bad my legs began to swell and little blisters started to pop up so I went to the E.R. they had no Idea what was wrong with me got me an appointment to see a skin DR. so I went home but the pain from the swelling was so bad I could not walk any longer went back to the E.R. they gave me some pain meds and called in some other DR. things had gone from bad to worse my feet had gotten to big I could not put on shoes and I had bruised completely across the bottoms of my feet they put me on 30mg of PRED. and it seem to be under control sent me home after 3 day in the hospital things were good for about a day or so I thought I would go back to work well that was not a very good idea.... My sister had to come and take me back to the ER where they did 2 biopsies and still have no idea what is wrong with me. so now they put me on 60mg of PRED the rash has gone, lots of scaring on my feet because of the blisters once they broke and dried out but I can live with that....
It's the side effects that they don’t tell you about,
MOON FACE I can't look at myself cause really that’s not me anymore,
WEIGHT GAIN I have always been thick but I can't handle the extra 30lbs I've gained,
MOOD SWINGS are unbearable,
PAINFUL JOINTS, CAMEL HUMP, BLOODY NOSE, BRUSING, SORE TEETH/GUMS, DRY EYES, FAITIGE, and worsted of all
I don’t have a support systems in my life so I'm fighting this by myself everyday, I have 3 kids that I have tried to explain all this to but they don't get it and well my boyfriend he tells me he understands that its the meds pushing him away but if I can't figure away to control this I will lose every thing including my job. I cant even get the energy together half the time to make it up and down the stairs which also comes with the pain of just trying to lift each leg up to climb the stairs, I also have the camel hump which I find very painful, The acne and the hair growth that I have to get wax off once a month cause I feel like a man I feel like a loser and as of the last couple of days I just want to give up I am now down to 20mg per day but I find that I am feeling so sick I cant think straight I hope and pray for each and every person out there that has to take this MED that you get better and I do hope that my symptoms wont come back. Thanks for being here and I’m glad I found this site. I know now that I’m not losing my mind completely. Elizabeth.
January 2th
2006
9:00 AM
Hey Silke, Happy new year to you!
I was just wondering how your weight is going. It seems we are the only two out of all the last posters who are suffering from this weight gain.
Do you have improvement yet. I'm still struggling silke. Everyday is a battle to keep my spirits up whilst looking at my body. I wonder if this is ever going to end. I still have heart palps and irregular cycle. Remember I was only 4 months on this sh... and off 7 months.
Oh well........sigh.........
good luck to everyone out there.
Sherry
March 14th
2003
6:34 PM
I am nineteen years old and have had migraines for most of my life. I've tried nearly everything for them , and imitres is one of the only things that makes them tolerable. However, I've found that as I continue taking the drug, i have become lethargic, chronically tired, and down in spirits. My appetite has changed, and my weight flunctuates constantly. I haven't noticed anyone else with these side effects, other than people who take maxalt. Is it just me? Please contact me... this is really starting to interfere with my life.
-- By smiliekylie21 | Reply | Private Message me
Levaquin (3) Mirena (3) PredniSONE (2) Cortisone Acetate (1) Sertraline Hydrochloride (1) Singulair (1) Enulose (1) Adderall (1) Yaz (1) Imitrex (1) Synthroid (1) Yasmin (1)
June 21th
2009
9:36 PM
I have read the posts below and thank goodness I found this site! I got an injection on Wednesday, 6/17, in my right knee and for the first 24 hours it hurt like heck - more stiff and painful than prior to the injection. On Friday I woke up shaky and started to feel anxious. My face and chest flushed a bright red which lasted all day. Saturday was worse; shaky, heart racing or palpitating, head/neck pressure with headache, hot flashes, nausea and stomach cramping/pain. I even actually had a panic attack (already a predisposition for me). I became uncontrollably weepy and depressed! Today, Sunday, I STILL have major anxiety and headache/pressure. I'm convinced the injection brought all of this on because before this, all I had was knee pain. So, WHEN will these icky symptoms start to subside? I was told the cortisone was good for 4-6 months. I can't live feeling like this everyday for that long!!! Any suggestions or encouragement?
-- By goinloopy | Reply | (5) replies | Private Message me