June 17th
2007
3:31 AM
Have been prescribed lisinopril for high blood pressure, stage 1...........
Am scared to start it because I really hate starting new medications.......
Asked the pharmacist about the safey of the drug and was told it was one of the most tolerable drugs out there for hbp.....cough was the chief complaint...............
Anyone else feel this way..........??????????????
September 30th
2006
6:04 PM
I posted here many months ago. I was given 2 Levaquin pills in an ER on Dec 10th, 2005, after fainting from the flu at home and falling face first on a wooden floor and smashing my nose and knocking myself out. Much blood pouring out all over. Very traumatic. Nose smashed to right side of my face. I was rushed by ambulance to our local ER but was sent home after 2 hours in this ER even after pleading with the hospital to keep me. No luck there. I fainted about 20 to 30 minutes after these first two ER administered Levaquin pills were given to me and they sent me home... 5 minutes into the ride home at midnight. My frantic wife rushed me back. They said it was a "vagal" response. My electrolytes were out of balance ( low pottassium) I had a fever and an elevated white blood cell count. I was coughing up bronchial flem and blood running down my throat from the smashed nose. I was extremely traumatized and scared from being knocked out and having blood shoot out of my smashed to the right nose ( I was bleeding and swallowing and spitting up blood for over one more week) and all while I was still in the middle of a powerful flu! But, not sick enough to be hospitalized according to this prestigious hospital here on the super wealthy Monterey Peninsula near Pebble Beach, Ca.
When my wife rushed me unconscious back to the hospital this time they put me in a large "recovery" room. Next day they gave me more Levaquin. Sent me home again that day, again against my wishes ( I had no PC to demand they keep me.) By that night I was having all the symptoms you all here have described. Nightmares, burning pain in right arm and shoulder, left shoulder also down to my hands. Bladder acting whacky, insides feeling haywire. shooting pains in chest, almost complete insomnia, scared, almost paranoid. And weakness beyond anything I have ever experienced...even with the flu. I could not even hold my hands up while laying down!
Went back to ER by ambulance 2 or 3 times that first week as I thought I was dying ( even while laying down ! ) that first day home and that first week. They always asked me what I was taking and it was only one drug...Levaquin. They never once suggested I stop taking this and I took a full 6 day course. Finally they started calling in the psych ward people and almost not treating me when I would go to them. How sad and humiliating that was. My stomach became so destroyed starting those first few days on Levaquin with pain I couldn't eat and lost 35 lbs. ( yes, that's 35 pounds ! ) in 1 or 2 months! Doctors couldn't find problem first couple of months but eventually months later after a camera endoscopy it appeared my middle intestines had been severely damaged somehow. 25 areas of inflammation, damage to fibers in the illeum, two beginning ulcers and I'm still going for more intestinal tests this next month at University Of San Francisco and Pacific Medical Center there....It's 9 and 1/2 months later and I am still going through daily nightmares of my insides and even heart beatings feeling like they have gone ballistic. Still pain in shoulders, arms, hands, chest walls, buttocks, knees, ankles, weak, unbalanced on my feet, weak thighs, incredible itching on forearms, back of elbows and sometimes scalp, incredibly sensitive to cold like never before, sometimes a burning ( sunburn ) type of feeling in face and neck, odd sharp pains sometimes in upper stomach, lower and even above heart area that last a few seconds, and a weird dry throat feeling when I breath like all the moisture inside of me has dried up, eye sight much worse, bladder acts crazy, many panic attacks ( Having one as I type and have to keep lorazapam handy ) Money has dried up.
Can't afford co-pays anymore. Doctors are irritated and impatient with me and don't even return calls. Small town. No more doctors to try. I'm 55 now. Was a concierge in a well known hotel. Loved my job. Hardly ever took medicines, didn't like going to doctors. But now, most doctors think I am just mentally off.
Had never seen a psychiatrist in my life. Married 24 years same woman, first wife, raised two kids who are now in college. This normal mental and social 50 year background means nothing to these doctors. I just all of a sudden have gone whacky according to them because they can't find easy to explain symptoms except middle intestinal damage, torn rotator cuff in right shoulder, fractured vertabrae posterior L-1 and two small cysts on left kydney, slightly enlarged prostate, mild to medium gastritis and diverticulosis...but nothing that would explain my body feeling like it's constantly being gripped and going haywire inside.
Today I feel this and like my heart and breathing is just gone crazy. I'm unsteady on my feet. Took a lorazapam and not feeling much better at all ( This is why I do not think it is simply anxiety...and I took Lexipro for a few months with similar no help with these symtoms. I quit that 2 to 3 months ago...actually can sleep better now and again, my symptoms never felt better with that stuff. ) I layed down but I still feel gripped inside and my heart beat kind of changing like a power surge and then a nervous jumpy feeling afterwards.
I am as scared as ever and it is a nightmare feeling that everyone has given up on you. I mentioned the Levaquin theory to my PC ( who is ready to drop me ) and he got upset and refuses to even discuss this saying it absolutely cannot be from that Levaquin prescripton I took.
No attorney will even touch this as they say it's too hard to prove and Bush has capped awards at $250,000 which you would have to be dead from liver failure to win.) My life is ruined. And no one will even begin to consider that it was the Levaquin even though all of this exploded that first week while taking only ONE medicine...Levaquin... and with thousands of people reporting the exact same symptoms. I literally have to pray constantly to keep it together with all the debt and almost death like feelings I live with every day. Creditors are calling like crazy. Dear God. But nobody will even consider the Levaquin. Isn't there even one doctor in the country that will even try to see what is happening to me outside of saying I'm crazy?
-- By jb7th | Reply | (1) replies | Private Message me
December 22th
2002
8:28 PM
anybody spitting up blood. I feel like my face is numb and I can't feel my nose. I take N for herniated disc(stenosis) in cervical, thorasic and lumbar. I don't know if it was a bad cold cause I really can't tell. It has helped alittle with back pain. Doctor wants to increase the dosage to the max gradually.
-- By spider526 | Reply | Private Message me
December 23th
2002
12:38 PM
RE: Spitting up blood
This is a BAD side-effect (although it's the first I've heard about it as connected to Neurontin) and you need to see your doctor immediately! Blood coming-out where it's not supposed to be is a sign of a broken blood vessel somewhere( you need to be ready to tell your doctor -- or call 911 -- about quantity of blood, frequency and timing of blood flow.) If it's from the head-area it could be from a small stroke. Facial numbness is also a symptom of a small stroke, serious as a heart-attack. Are you having trouble talking, walking, or paralysis in any limbs? CALL YOUR DOCTOR -- preferably the one who prescribed the Neurontin...tell him/her it's an emergency.
The facial numbness could very well be connected to nerve-damage in the herniated disc, but it's more frequently a sign of stroke, nerve damage from clots, etc...
Sometimes pain is a survival characteristic...it tells us something is wrong in the body. Good luck. JanK, Neurontin userid, certified Master's level counselor and First Aid practitioner
-- By jank | Reply | Private Message me
March 18th
2008
1:50 PM
Started 9 days ago. 150 once a day.
-- By barekat76 | Reply | (1) replies | Private Message meHaven't smoked. Insomnia teh last 2 days were AWFUL!
Horrendous nightmares when i did fall asleep for 20 minutes.
Anxiety last 2 nights were painfully scary.
Is it really worth it to take this stuff?
Tylenol pm doesn't seem to work well for me when I am on Wellbutrin.
I have had more energy and the eating goes back an forth. One day I will eat anything I can get my hands on. Next day i hardly eat at all.
Email me. ******
Thank you.
Kat