September 22th
2007
8:17 PM
I was prescribed Clonazepam for anxiety about 3 months ago coupled with a generic version of zooloft. I am definately starting to feel insane. My head aches at random times. I do still drink and smoke leafy substances, which i know is not recomended, but I am still in college and I feel sometimes like its the only way to meet ppl, drinking/partying, especially in places where there isn't much else. I want to get off the drug, but I am so afraid of the side effects. I don't really feel better on it. because I like having energy, I am a spunky girl and it takes away my spunk. I just wanna know how to function in society. I get nervous around new ppl, especially bosses/or anyone in my field, if I don't take the drug, but I can't even really tell if it is helping. At first it was fine, but now my head hurts all over/ headache. I forget things, which may be the sertraline, but regardless I want to get off of it. I feel more insane now than I did before.
-- By spunkygal | Reply | (2) replies | Private Message me
June 15th
2007
6:20 AM
I've been taking Januvia for 8 weeks, and have experienced muscle cramps with shock-like pain running down my leg into my heel; upper and lower GI spasms; night sweats with sleep interruption; and I gained 5 pounds in the first 4 weeks which I can't attribute to anything else. I've also taking metformin and glyset for several years, and although I've experienced the night sweats, they've greatly increased in intensity.
-- By judiwein | Reply | (6) replies | Private Message me
January 24th
2007
9:17 AM
My daughter, 6, has been on this for awhile. I was very diligent in keeping her on it nightly (6 months). I was proud knowing that she had not gotten sick since she had started in July. Now that it is late January, I look back with mixed emotions knowing what other effects it has had on her.
Her teachers expressed that she seemed to have lost her spunk and sparkle. She seems depressed and in a zone. We have had many meetings with her teacher, nurse and a child psychologist. Wondering if she had ADD, ADHD, Sensory integration issues (she refused to wear just about everything), or something else unidentified. This normally gifted child was just not herself. I don't know what prompted me to stop giving her the drug, but I did. She is now coming "back to life" and I wonder when the side effects will be completely gone. I pray there are no long term effects. My lesson is to try to solve health problems by weighing the consequences in advance. Thanks to feedback on this forum I know we are not alone.
April 20th
2009
2:53 PM
I was prescribed Paxil and started out at 10mg. then they gradually increased it up to 60 mg a day. Later on they added I think it was 200 mg of Wellbutrin. I was on Paxil for I think 2.5 to 3 yrs. What happened was I was so out of it I didn't know what day it was. The HMO would have to call me to remind me to come in that day for my doctor visits. I slept most of the time and was just worthless. I didn't care about anything much and didn't have the energy to do much of any thing. This was a drastic change in me and my family hung in there with all this. I actually drove which is not a good idea at all. But when they put you on this you don't realize how bad you are on this stuff and once you are on it for so long then you are either a captive at home not able to do anything or you try to take back some part of your life. You also can't just go off of it cold turkey at 60 mg. I tried and it got bad and went back on it. After I got really bad all I did really is drive to therapist appts or to nurse practitioner who managed the Paxil and Wellbutrin. After being on 60 mg of Paxil and Welbutrin for awhile/months and I was so out of it, that is when they said we need to back me off of it. I think it accumulates in your body and I think you can kind of have an overdose in a sense. They didn't really monitor it that well and took their sweet time recognizing it. But they didn't say anything about it. I think that is what happened to me but no one at the HMO said that. Instead they got me scared that I was going to run out of therapy sessions allowed while on Paxil and that is why they were going to back me off of Paxil. I guess another patient had that happen to her and they didn't want that to happen to me. I then say my therapist very rarely while I was backing off of the Paxil. She acted like I was ready to handle everything on my own. I had no idea that suicidal thoughts were in my future when backing off of this drug. But they sure knew it, a lawsuit in California had been filed the month after I started taking the drug and it was all about the lack of disclosure about the withdrawal issues. First I got off of Wellbutrin and then they slowly backed me off of Paxil. It was physically wrenching. Throwing up and diarrhea all at the same time. Painful is not the word. I have given birth to two kids and pneumonia and this was much worse! Chills, tremors, I felt sick all the time. This went on for months. When I talked to nurse practitioner they pretended that it was no big deal. I wasn't sure what was happening. I finally got pissed off about the whole thing and never called them back and they didn't follow up either. Not even therapist. They hoped I would go away quietly which I did. When you are in the throws of this and you know who did this to you, you really don't want any more of their harmful help. It took at least a year to feel better. There is this uneasy weird feeling and zinging noise that lingers for a long time. But my memory is a fraction of what it was. My short term memory is very difficult. I know that Paxil was responsible for this. How do I know? Well when you are on Paxil and if you have a recall on a bad incident and you start to emotionally react to it, Paxil will offset it by making you sleepy. It literally targets your emotional reactions and those thoughts connected to it. It tries to disconnect the feelings from the thoughts. These disconnects also disconnect your ability to remember other things. Even after I got off of Paxil I noticed that I would get sleepy when I thought of stressful things. It has taken me about three years and I am talking better and can remember many more words. I talked very simply for so long since I couldn't recall basic conversation. It targets emotional responses and I got to a point where I was really numb about a lot of stuff due to the constant tapping down by Paxil. I feel like it disconnected those connectors to your brain that talk to each other. My family made jokes about me and how simple I got and how I couldn't remember anything. They are worried that I have alzheimers disease or will get at this rate. I could not work on Paxil at those high doses I was on and while I was withdrawing. I found that afterwards my memory was so bad that I missed so many simple things that I would have never missed before. I am concerned that my memory lapse will cause a big mistake that may hurt someone. I was out of work for so long. I volunteered to keep myself busy until I got too bad. It would keep me busy. I also noticed that while on Paxil I was uninhibited and said things that hurt folks and I was unable to monitor myself like normal and couldn't determine what was not appropriate to say all the time. I had an emotional disconnect to myself but also to others. This hurt some folks and cost me a job. My memory is so bad that I have to write down important things if I really want to refer to it again. I also have given up on going back to school. I couldn't test well at all. I can not remember what I did 5 minutes ago let alone a chapter I have read. I am only 52 now and I feel so much older due to this. I suffer from Fibromyalgia and IBS. I was so upset with my doctors at HMO since they didn't warn me of the withdrawals. When they put me on Paxil I was adamant about not taking an addictive drug. My family has had a history of addiction and I was not going there. I know how bad it can get. Paxil's withdrawals is very much like the withdrawals that addicts go through. I was devastated by not only how doped up I was on Paxil but also all time I wasted on it and with the year just trying to withdraw from it. Then the time just trying to get some of my memory back to function. I am mad that there is no way I could go back to school to better myself. I am mad that no one warned me of any of this and if they would have I wouldn't have taken it. How many of you would take a drug knowing that you memory would be messed up? Not many. Certainly not me. My daughters know what a tyrant I am about drugs and alcohol. This is not something I would have opted for if the whole truth were known. They certainly don't warn you that your memory will be like swiss cheese afterwards. No one in my family has had such memory loss. No alzheimers disease. In fact quite the opposite is the case. My grandmothers were very clear at older age, so menopause can not be a big factor and beside this happened before menopause. Also grandfathers and father were very clear getting older. My family noticed a definite change while I was on and after Paxil. The irony was that when I started to go back to HMO for regular care which took me a long time to trust them enough for them to do even that, someone at HMO had put in my automated chart that I was allergic to Paxil. They won't say who put it in either. I was not allergic to it but they are now saying that I had a bad reaction. But what I say is after seeing so many "bad reactions" on websites like this I am convinced that this is more than isolated cases but rather the norm of what happens to patients who take it. HMO doesn't want to admit wrong doing. Paxil seems to have kept a lid on it. Besides how do you measure a bad memory and how do you prove it after the fact? You are getting older and who is to say it isn't genetic. But I was on it for maybe 2.5-3 years. I was so out of it I don't remember how long I was on it. I also was suicidal when coming off of it. I even called a crisis line since I couldn't trust the HMO. I was irrational. For those of you still on it I think you are doing more harm than good. I don't believe all the facts have come out about the side affects from these types drugs. Who would be doing the studies? Certainly not he drug companies, FDA is a joke and if you think the attorney generals are doing much think again. Yeah a couple states like CA an NY they did settle on suits about suicide for kids but they settled quietly. The doctors who prescribe these drugs also are in a catch 22 like my HMO. They don't want to be linked in this and will avoid it too. What attorneys can afford to go up against all those high powered attorneys for those loaded drug companies? Not many. No one is actually dying from this and that is another reason there won't be much done on this either. Fortunately today we can hook up online and share our stories and this is the first step in documenting what is really happening to patients.
Be so careful coming off of these drugs. Give yourself plenty of time to get normal. Make sure you are seeing a therapist you can trust and is trustworthy. It takes an alcoholic about a year to rid their bodies of the toxins that have built up in their tissues. I do believe that is also true of Paxil. Be kind to yourself and get good support while doing so. It can be a very lonely physcially and mentally anguishing time. Think of yourself like someone who has had a brain injury or stroke. You need to practice to get things to reconnected as best as possible considering. You will never be like before you took Paxil but with time and patience and hard work it can get better or you can develop ways to compensate or work around or cope with such memory loss. Financially this can be devastating and it was for us. The loss of income and finally a bankruptcy. We paid dearly for taking this drug. It can be very frustrating and you have to look long term. I think it is very easy and cheap for HMO's to pass out pills rather than schedule needed appointments for therapist and other alternatives. Before they started to take me off of Paxil I was warned by my HMO that I had exceeded my number of appts allotted for a 2 or 3 yr period. So I may end up without any therapy while on Paxil. That is the reason why they decided to back me off. I had apparently used something like 32 appts in two or three years and I was getting close to not being able to have any for a long while. This was interesting approach since by then they knew that suicide was linked with Paxil. They will put you on Paxil and they will leave you high and dry without at therapist if you actually use one regularly and use up a normal amount of visits. I have very little compassion for HMOs. What was amazing was listening to the nurse practitioner tell me if these drugs don't work there are lots of other ones we can use. These are the easy going drug pushers of today and they prescribe these drugs without much thought. They make it cheap and easy and they will swear to your face they aren't addictive but are basing it on very little research. They regurgitate what ever the drug companies tell them. The cost cutting with HMO's is almost frightening. I also have problems sleeping too. I wonder if the drug messes up your serotonin levels since it does make you sleepy so much of the time and when you are off of it the brain is fried from all that artificial serotonin that it no longer knows how to manufacturer it well. I think that is what maybe causing my Fibromyalgia since this is a condition where you muscles never repair themselves at night due to lack of sleep is one theory. I was always a deep sleeper before all of this. I think there maybe a connection.
-- By momwhoispaxilfreenow | Reply | (1) replies | Private Message meFinally depression. When you can't remember what you did 5 minutes ago or simple things it gets more than frustrating, you get depressed at how limited you are now. The pain from the fibromyalgia is constant and that too is depressing. I wish someone could put together the data on this to prove the link to memory loss and how it has affected our serotonin levels.
The only way you can stop companies is to sue them. Government won't do it really. A class action suit might work.