January 28th
2008
8:25 PM
My husband and I found out he had Meatastic prostate cancer 13 months ago..We went to the doctor because his lymph glands were hudge.. He has been on the Lupron injections ever since.. He had really bad hot flashes for the 1st few months but that has past, but now he is very moody and angry for no reason.. He yells and gets angry over the littlest things i think he is going crazy and he is driving me nuts, he has no desire for me and is rude and acts like he don't even like me sometimes.. it is torture to me..He has depression he doesn't enjoy anything like he use to.. whenever we go try to have fun he gets all stressed and makes the fun turn into miserable..He acts as if he has no problems..He has some big rashes on his legs and crack and I am pretty sure it is from the Lupron shot also.. he has a little aches and pains. Very tired all the time..just about a week ago we found out the Lupron shot is not working very well anymore, his psa level went up to a 15..I am thankful for the shot because i know it has saved him some time to be here.. I love him so much, but the way he is now has caused me to feel like he is a grouchy roommate on his period 24/7.. There is other things like casodex to take but i heard it does not work as well as the Lupron..Hopefully one of these days they can find something that works even better then Lupron without the side affects..The lupron Shot has helped many people live longer, but what about the quality of life he is miserable but I am sure he rather be alive and miserable.. Good luck to everyone with the Lupron shot, it is a trying time when they or you go through these changes and do not understand why you feel negative and unhappy..
-- By sadwoman | Reply | (2) replies | Private Message me
November 16th
2006
4:00 PM
Be very cautious with this medicine. My 4 yesar old son has taken 2 30 day trials of singular, about 6 months apart. The first time we didn't notice a difference, so we agreed to try when it was recommended again. The most recent traial, just ending this week, was more of a success. His breathing has improved; However, he has had a series of strange side effects. It was only when discussing the renewal of the medicine, that we discovered that all the strange behaviors reported at school and home correspond with the start of his singulair treatment. The first time, we tried to explain it away as a growing toddler, trying to find his own. During this trial, he has been in an environemt dedicated to putting a child first. The teachers don't know what has been going on, but continue to ask us what happended that changed his behavior so suddenly 3 weeks ago. The only change in our lives was Singular. He has started to wet his bed, and even his pants at school on a daily basis. He is alway tired, but can't sleep for more than 3 hours at a time. He is very agressive, violent and verbally abusive for no reason. He is very bothered by his behaviors, but even more so that he can't make them stop. He has begun to sleep walk, and is unaware of what he is doing, or what he has done during the night. He always wakes up very confused, and never wants to get out of bed. He says he can't get up, but now I think that his muscles or joints have been aching, but he doesn't have the language skills to explain that. His new favorite book is the "my terrible horrible no good rotten day" Last night we read it, I explained to him that the medicine was causing him to make the bad decisions, and have the accidents that he has had. I tell him that I know he is a good boy, and he should start feeling better soon. It has been three days since we pulled him off of Singulair. His teachers have noticed a difference, as have I. He actually wanted to go to school today, and he didn't have an accident (this is the frist day in 3 weeks!). My son is normally a bit more hyperactive than others, so maybe he was pre-disposed to these unusual side effects. But even congested, he gets a better sleep at night without it, and has a better self esteem.
-- By hidinginidaho | Reply | Private Message me
April 2th
2008
11:34 AM
Our story is so similar to many of the others posted. I am including it because it adds to the data. Our 12 year old son has been on Singulair since age 7. Prior to going on Singulair (although I did not make the connection between these two events until this week..) he was an easy-going, happy, delightful boy. During the late fall of first grade he started developing strange behaviors--obsessive hand-washing, kicking our pediatrician, saying the water was poisoned. He is continuously irritable, moody, easily annoyed, impulsive, self-critical and has difficulty modulating his attention. He has had a few incidents where he has said he wants to die, he is worthless and a loser. He continually apologizes for his behaviors and is extremely remorseful, but then goes and does it again. We have seen so many specialists, spent so much money on counseling, have tried neurofeedback, Adderall, alternative supplements (eg omega 3's)...the list goes on. His issues have been like a part-time job for me. I never made the connection to Singulair, because the pediatrician and allergist assured me that Singuair had virtually no side effects. Right after the New Year (2008) he had a few days where everything seemed to go right for him-- moodiness disappeared, did his homework agreeably, seemed truly happy for the first time in a long time. In retrospect, I am guessing it is because we forgot to bring his Singulair on our vacation, so it was out of his system for several days. Now that we've tossed the meds, I'm hoping that the side effects are short lived...and we see our old son again.
As for the individual who wrote that we may be ambulance chasers, I can promise you that any money I receive in a successful class-action law suit would go towards helping other families avoid the pain and suffering our son has gone through. I consider myself an educated & well-informed parent and yet I was blind-sided by the medical industry.
-- By hsuttin | Reply | (3) replies | Private Message me