February 27th
2008
11:56 PM
Hi! I was diagnosed with wegener's in Dec. 2007. I was hospitalized for 6 days. When I left the hospital I was taking 80mgs of pred's. After 8 weeks I am now down to 60mgs.{per day} I found it amazing how the doctors didn't inform me on the very well on the side effects of pred's. Plus bactrim,actonel,protonix,vitamin-d and cytoxin chemo once a month for six months or more.{i have had 2 four hour infusions,getting ready for my 3rd one in a few days}.
I have severe moon face,buffalo hump. My neck and throat feel full. Almost as if I was drowning.I've gained 25 lbs.,I have severe pain in my legs and knees,my back between my shoulder blades from the massive hump that I have,which by the way makes it hard to sleep. I am puffy all over,I feel like a huge sponge in the ocean!!!!! I only hope that when the med's are over I will return to normal. I cry a lot because of all the changes to my body! I don't feel like getting out, afraid people are laughing at me, my clothes look horrible,and my memory has been fading! I sometimes feel like I'm in the "o" zone.
I am grateful for the wonderful care my doctors have given me,I just wish that they would of prepared me a little better for what I was facing for possibly a year!
For every one out there that are facing all types of effects,just remember not to forget who you are and things will get better.
October 17th
2007
9:28 AM
I was on Paxil for about a year and have stopped taking Paxil about 5 months ago. I had to stop taking it because I do not have health coverage BUT my main reason is because i've been depressed and have fought anxiety my entire life and I do not want to be medicated my entire life. I did it for one year, it worked somewhat but coming off of was hell, but I feel that I want to fight my anxiety and depression with God and myself, not any drug, I excercise more now and EVERYDAYYYY! is a struggle! I feel droopy still from the after effects of paxil, im not doing well in college because I have a hard time concentrating, my eyes are always glossy, im nervous in large crowds (going to the groceery store is HUGE for me) and I feel like Ive done something to deserve this. But I know it is a battle that I need to overcome without a drug, I understand some people need to take it, but as for me, I may be struggling in school or feel tired all the time but if I have to struggle and fight through, I want to do it!
Another thing, I soemtimes feel alone when it comes to talking about anxiety and depression and being medicated on Paxil. It is sooooo NICE to write to other people and hear there stories. It makes me feel sooooo much better. THANK-YOU! God Bless!
-- By kristenhop | Reply | (1) replies | Private Message me
April 27th
2009
12:55 AM
Hi all! Well I got my mirena taken out on Wednesday. The Dr. was very sweet I told her my symptoms and she said lets take this out then! While she was down there she said " Hmm I'm going to look at a swab under the scope." She came back in and said that the mirena gave me a bad infection! I had to take some strong one time antibiotic that killed my stomach! I can't wait to start to feel better. I did notice I can see a lot better then I did, no more blurry eyes. The last 3 1/2 years have been utter hell for me. I've been in and out of different Dr. offices not finding anything. I was dizzy all the time, I started out small after I delivered my baby and gained 60 lbs since it was put in. I had a shooting pain on my right side, horrible anxiety attacks, blurred vision, fuzzy mind, head aches, ovarian cysts, lower back pain and bloated belly. I am so relieved I got this disgusting thing out of my body!!! I hope my life will go back to normal now.
-- By amber80 | Reply | (4) replies | Private Message me