Suffering from symptoms and conditions

ive been on mirena since march 2008. at first i thought this was the best birth control product out there. however for over two years i have been riddled with allergies, sinus infections, upper respiratory tract infections, tiredness, headaches, joint pains, muscle aches, gastric and bowel problems, cyst like acne, mood swings tachycardia (rapid heart rate), anxiety. at first i thought all these were related to getting older (im 29) and work related stress so i wrote it off. but being a person who has never been sick in my life to all of a sudden being sick once a month is crazy. this has been the only thing i could think of that i could think the problem is. i hate to remove the iud because it is so convenient but i am sick of being sick. the doctors dont tell you of the not so obvious side effects like these. i just hope that no permanent damage has occurred.

It is amazing to read about all of the side effects of Mirena and yet it can still be on the market. I don't understand.
I have all of these side effects. I had it inserted in April and am now getting it removed. However - went to have it removed and they can't find it (as they cut the strings to close) so I have to go back in for an Ultrasound so they can remove it??? GRRRRR!!! I have to wait until next Tuesday to get it removed.
I have put on 15 lbs in 3 months (I eat healthy and exercise daily), my back is killing me, my breasts are the size of watermelons.
I am so angry and movited to get this device taken off the market. I can't wait to get my life back. If you are considering it DO NOT DO IT!!!!!!!

I got my Mirena o June 18th, 2009. It is now November 17th and I have an appointment to have it removed this Friday. It started with unexplained hives and rashes constantly. The bottom of my feet, my palms, my knees, upper arms, throat and stomach. I was on constant high doses of Prednisone and anytime I started lowering my doses, the hives returned. I went to the ER three times for swelling and hives so bad I could barely see and could barely breathe. seemingly caused by NSAIDS, which I had never had a problem with before.Next was severe lower abdominal pain accompanied by groin pain so bad I could barely walk. Friends said it sounded like cysts, but, when I had an internal ultrasound done, nothing was found. After that I had severe breast pain and swelling. The final straw was the constant all over muscle aches and joint pain in my knees. I feel like I am 100 years old! I am tired all the time no matter how much sleep I get. I went to a dermatologist and I mentioned the Mirena, as I had to my OB, his response was "middle age". I thought I at first has Lupus, but, the rash did not fit that description. I changed detergents, blamed it on a foster dog, anything I could think of. Finally after reading so many posts and finally finding a connection with the rashes and hives, it can be nothing other than the Mirena. I even noticed that this device had the second most posts on this site. I can not wait to have the Mirena removed.

Kenalog destroyed my life! All corticosteroids are dangerous. Almost 4 years now of intolerable suffering. A doctor gave me trigger point injections w/Kenalog and it spread a "hidden" bacteria throughout my body and reactivated dormant viruses (that we ALL have). It shoots down immunity for MONTHS and gives opportunity to bacterias and viruses to disseminate throughout the body. The FDA should ban all corticosteroids. The pain and suffering from a bacteria I didn't even know I had, that was co-existing in my body fine until "set free" was Lyme Disease. Lyme disease is the most insane disease there is, trust me and it is NOT easy to get rid of, especially when your body has been slammed by these immunosuppressants. Also, I was on Ibuprofen for pain, but the doctor never asked if I was on any NSAIDs and the two combined are like a bomb. If this helps anyone ....thank God, because I go on trying to survive.

I am 22 years old and had a baby last feb in 2008, shortly after that i had a mirena inserted with minor side effects...well now a year later i decided to remove that darn thing after noticing the side effects! i lost most of my pregnancy weight all but around 10 pounds so that was (150) then several months later i noticed my weight shooting up...now i'm almost 170 poun\nds! i dont eat all crazy either and did my fair share of exercising...not too mention the constant bloating and stomach aches...i have also been suffering from acne for the past year which is way out of the ordinary! my vision has worsened in the past year, im very moody, and i'm taking wellbutrin for my depression. i just removed this darn thing last week and have not stopped bleeding, it is very heavy with huge clots! i hope this ends soon, i'm ticked off because i was not told about any of these side effects, and this darn company should be sued! ugh, well i'm glad i did my research because never again will i get this mirena iud! there was also some info on infertility so everyone should read up on that. glad to know i'm not the only one with these problems! good luck everyone!

After 18 months of 80mg daily simvastatin my right shoulder pain kept me awake at night. Soon after my left shoulder followed suit. GP immediately took me off the drug but after 2 weeks the pain is still excruciating at night and I have acute pain, weakness, lack of mobility when trying to raise either arm. I'm hoping physiotherapy will help. Would welcome other suggestions

Although I suffer from Bi-polar, BPD and PTSD my doctor prescribed me Duromine to lose the weight I had gained from using seroquel. My prescribed dose is 600mg. The duromine sent me absolutely nuts and being a recovering addict and alcoholic i used more than the dose prescribed. Then I found I could not sleep and am now (after stopping taking the duromine) trying to cut the seroquel down as I got up to taking 1500mg a night. I'm now on 900mg and strange things happen in the night. I live alone with two dogs....my babies... and although i cant recall it things happen. the dishes are done or the weirdest one my dogs wear fleeces and coats in winter. I woke to find India (one of my dogs) with her coat and fleece off and folded neatly on the shelf. I don't recall doing this. Just a warning for thoes suffering from dry mouth and constant thirst, i ended up drinking so much water that i was flushing the sodium out of my body. your sodium levels should be between 136-145. my levels were 117. Had they dropped to 113 I would have had irreversible brain damage. I was in hospital twice because of this. I now take ten salt pills throughout the day to make sure my sodium levels are ok...........VERY SCARY

I had a injection of Kenalog on11/25/2008 since then I bleed for 19 days straight, I notice a white spot and a small indentation with a red spot at the injection site. My doctor refused to listen to my cry for medical needs and even told me his materials to pre form a procedure was expired. I became upset with this and started investigating my drug interaction to learn I had an allergic reaction. I went to him and demanded a MRI. IT was then I learned I had muscle atrophy from a injection of some nature my doctor would get the results and go over them with me. When i asked and basically told him I figured out what happened he became very angry with and such issue and told me I had a mental issue that was incurable and proceeded to call the law on me. I promise since the I have a very large indentation in my right elbow very little muscle left very sensitive very limited use and suffering from major depression over how horrible it looks. And it now is starting to spread to my lower fore arm as well, what can we do. I filed a complaint through the FDA AGAINST THE DOCTOR... ALSO a lawyer here in thr grand rapids area, and my contact the news station to help find answers to WHY SO MANY ARE BEING PHYSICALLY HARMED BY A DOCTOR WE TRUSTED. AND NO REASONS OR EVEN A I'M SORRY!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I was diagnosed with Factor V Leiden after suffering from bilateral PEs in February 2004. I am on Warfarin for the rest of my life (I turn 45 in November). Since starting the Warfarin I have gained about 70 pounds. Nothing I do seem to work. I have tried eating better. I would love to exercise but my knees are shot. Probably from lugging around all this extra weight.

Has anybody else had this problem? From what I have read online, doctor will say the drug doesn't cause weight gain but come on.

Can anything be done short of stopping the medication? I am too afraid to do that. It sucks that there is not an alternative rx that would work.

I suffer from depression too (have for almost 15 years). As my weight has climbed, my meds for depression don't work as well. I am at the end of my rope & slowing losing my grip.

Hi.
I had the Mirena fitted 4.5 years ago, due to suffering from very heavy periods.
I had my Mirena coil removed two days ago, along with having a smear done. I had a bit of spotting that day after the removal and smear test.
Yesterday, I had a bit to stomach ache and bleeding.
Today, I have experienced constant stomach pain, not like normal period pain, but it is constant, feeling a bit like dragging inside and similar to trapped wind (which I know it is not). Also, I have heavy bleeding, not flooding, but very heavy.
I just wanted to know if anyone has experienced anything similar to the above when having the Mirena removed.
Thanks LW1501

UPDATE: Hello to all you lovely ladies, I thought i would update you all on my sister. She now has had the Mirena out for exactly one week. She told me to tell everyone that even in the one week she can feel and see such a HUGE DIFFERENCE. The first thing was that within 24 hours her headache TOTALLY disappeared, yes thats right after having a constant headache for one year it just DISAPPEARED. Secondly she felt that she had more energy, she still felt tired but not that completely trashed feeling of not being able to get up and the aching feeling in her feet has gone also. Her bloated stomach was a bit less bloated also. She is keeping a journal as the days go on. God bless everyone suffering from this nightmare. I will keep updating you all. Oh and one more thing she stopped bleeding today after one week of removing that "Evil" WOOHOOOO !!!

49 year old male started 4 years ago at 20mg and 10mg HCTZ. some results in lowering BP. 2 years ago MD upped it to 40mg because BP inching up. quit smoking 3 years ago, not one puff since. After MD upped mg the side affects have really kicked in. I experience all the side effects listed on this site with the exception of the cough which I started with but went away after a couple months. I have had stress tests, Holter monitor for heart arrhythmias, mri, blood work, stool samples, colonoscopy, and all sorts of other tests all coming saying I'm ok, yet I don't feel ok, I get progressively worse. After 4 weeks of 5 day a week exercising with weights and aerobics to get in shape to return to racquetball I have had it. I couldn't last 45 minutes my second day out. I felt like I was hit by a truck and it took a couple days to recover.
My MD attributes the issues to aging. I going for a second opinion and third if necessary. I am told by my MD that there are no studies showing these side affects for this medications. However I look at this web site and find it hard to believe that these doctors just haven't seen any evidence of what we are all suffering from. Why don't doctors really listen to patients. We are asked to listen to our own bodies and told we know our bodies better than anyone, yet when we bring up these issues we are treated like children.
No real answers, just questions

Recently, my sister at 39 years old lost her life to a condition called pulmonary thromboembolism, which was directly caused by the birth control pill she was taking, YAZ. I need to know if there is something that we can do. She left behind three young children, and it is not fair that just because a product has a warning label that gives manufacturers a license to destroy a family and take a life. I believe that warning labels on products are just another example of economics being placed above public safety. Please reach me asap if there is someone who can help.

I've been suffering from hair loss and on my 2nd visit with the dermatologist he gave me 10 shots of that kenalog crap in my scalp. When the doctor came in the room he said I'm going to give you several shots in your scalp and I said what kind of shots and what are the side affects. His answer was there are a few side affects like headaches and etc., but no major side affects you're in good health you'll be fine. I've been having severe headaches, vomiting, losing more hair then I did before I received the injections and diarrhea. I cannot sleep at night and my whole body is severely sore. If I sit longer than 10 minutes when I get up I feel pain all over my body. I feel like an older person. I trusted this punk and I can't believe that he would violate me like this. My body has not been normal for the last 3-4 days. I don't feel like myself. After reading about the indentations, I'm hoping I don't get one on my head where he put the injections. Sheeeez! Unbelievable.

My wife (66) was using salbutamol inhaler for the last 10 years being a bronchial asthmatic. Even prior to that, she was being treated with a combination of theophylline, cortisones . In 2001 she was diagnosed to be suffering from OCD and citalopram 20 mg was prescribed. With significant improvement, the dosage was reduced to citalopram 10 mg, though we lowered the dosage only in December 2007. However, during the last month, when she had to be admitted in the hospital for a stomach virus the doctors prescribed MONTELUKAST SODIUM 10 MG combined with lEVOCETIRIZINE 5 MG. .
Dramatically,montelukast had a dramatic effect in that my wife never used the salbutalmol inhaler for well over 2 months, about which we were very happy.
But the worst was yet to come.
During the last few days, she again showed symptoms of the dreaded OCD once again, and she suffered like anything. On contacting a well known doctor, we were advised to stop MONTELUKAST and asked to continue citalopram (though escitalopram instead of citalopram ) along with clonozepam 5 mg to be tapered down every week for about a month.
I would like to be advised from a doctor whether (a) discontinuance of Montelukast will be able to bring back normalcy from OCD of course with citalopram or escitalopram. and (b) whether montelukast can be abruptly stopped. For the time being, we have reduced the dosage of montelukast from 10 mg to 5 mg.
PLEASE ADVISE US.

I wrote a post few days ago about Singulair and how great my daughter is doing since she started to take this medication three months ago.
Then I started reading about all the side effects that other children had because of Singulair. I GOT SO SCARED!
So scared that last night I stopped giving Singulair to my daughter.

From January to September my daughter had asthma every other week. She was put on steroids (prednisolone) every time she couldn't breath. Then in September the pulmonologist said we have to take control of the situation because so much steroids can damage a little body.
She made me feel I had been a terrible mothers since I always refused to give her singulair.
She convinced me and then I started Singulair, but now I feel worst because I have the feeling I am giving poison to my daughter even if her asthma is under control.

My 7 years old stopped Singulair 12 hours ago, I do not know what is going to happen now. Of course I cannot call the pulmonologist anymore in case my ds gets bad.
Somebody here said that she is giving her son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and changing his diet - increased magnesium and decreased dairy.I will love to have more information about this alternative way of controlling asthma. I do not remember who wrote this post. If there is a web site of a doctor I can contact i will do right away. I live in New York.

I need help. Thank you so much.

I found this web site while searching side effect of Singulair. My Son - 7 years old is experiencing same issue - Severe random leg pain in both legs or 1 leg as mentioned by few others. He can not walk when it happened and I have to carry him. The pain disappear in 2-3 days or sometimes it takes 5-6 days.

We did X-Ray and doc could not find anything wrong.

Others..who are facing same issue...I would appreciate if u can send me an email to ****** so that we can talk in detail.

Ok so I want to thank you guys so so so much. I have been on NR for the past 8 months, on and off for 2 years and everything was fine but in the last month everything has gone down hill. I have had numerous ANXIETY/PANIC ATTACKS, DEPRESSION AND SEVERE MOOD SWINGS, chest pains, shortness of breath, muscle aches and the lack of ability of shut my mind off. I went to the doctor a couple of days ago and tried to explain all this and they started me anti-depressants and said I had generalized anxiety disorder. I started taking the pills 3 days ago and last night had the worst panic attack I have ever had---Manic thoughts, severe crying, pacing my house and just wondering what the hell is wrong with me.
After reading all these posts I believe that the combination of the drugs and NR now contributed to this. I have been a very active person but this summer all I wanted to do was stay inside even when it was awesome outside. I would lay in front of the TV and just sit there and then feel bad for myself for not getting outside. When I did get out I felt amazing but at night my mind would race again and when I wasn't working all these symptoms came rushing back. I was so glad to read that I wasn't the only one suffering from this I truly thought I was going crazy. I took the ring out about 30min ago and I don't ever plan on going back on.
If anyone can tell me though what they experienced when they took the ring out that would be helpful so I know what to expect for the future while this all works out of my system.

question that I have is that has there been any report for side effect sexual for either male or female? If so what was suggested?

I am a 35 yr old male and have been taking lipitor about 7 yrs. I have a genetically high cholesterol and it has been up to 275. On lipitor its around 175. Over the years I have been on this drug I went from being a normal weight and active to pretty much lethargic and sedentary due to lack of energy and gained ~50 lbs. I couldn't sleep. I got random nausea and fogginess in my brain to the point I could not remember how to perform my job. I usually had minor aches and was bloated. the past year everything has gotten much worse. For a year now, I have been getting large rashes on my body that itch severely and no medications have worked to alleviate them. I found out recently from my doctor that I have a genetic marker in my cholesterol that makes me 3 times as likely to have a heart attack. Its a portion of the cholesterol, i think its called LDL-b or something like that. Anyways, My doctor prescribed zetia to help with my cholesterol since the lipitor wasn't doing it alon. I begin feeling very sick when taking the zetia and after a week or two stopped it. The problems didn't end. As long as I remained on the lipitor, the problems seemed to continue. Its like the zetia released a dam of problems. I stopped the lipitor 4 days ago and have noticed that I feel energy coming back to me and the rash is starting to go away, but I ache severely all over. My shoulders, forearms, and legs are so sore and painful that I can't do anything about this except sleep so I don't feel the pain. I am also very weak feeling and I notice stiffness in my fingers and my grip is very weak compared to how it normally is. I have nausea and stomach cramps and constipation. I feel miserable. I notice its worse in the morning and gets a little better towards the afternoon. I typically took my lipitor in the morning. I do not know if there is a relationship here. Please advise on any help you can provide.

KMJ
07-30-08

Took Lisinopril for one week, this was the only medication I was on at the time. I experienced light headiness, dizziness, motion sickness, rapid heart beat, chest pain, shortness of breath, numbness in my hands and arms. I suffer from some sort of bowel disorder, I have anywhere from 6 to 12 bowel movements a day normally, Lisinopril disrupted my bowels - they became totally unpredictable - make for the worse week of my life. My mother died the month before and I was already depressed, under enormous stress and most likely suffering from some sort of trauma disorder (PTSD) from watching my mother die in ICU screaming for 42 day. I became suicidal, to the point of sticking the gun in my mouth and cocking it. Guess I just don't have the guts to pull the trigger. I can sincerely say Lisinopril has changed me and it ain't for the better.

Hi All! I am very excited that I came across this site because if I wouldn't have, I think I would have driven myself crazy. I was on Yasmin for about 8 months before I started feeling VERY anxious, suffering from panic attacks, always crying, very low sex drive, palpitations. I couldn't even go to the grocery store without having a panic attack. I went to see my doctor and he put me on anxiety medication (which is a concern for me because I do not want to be addicted to Xanax). I have now been off Yasmin for close to 3 months. I do feel somewhat better, but I have noticed that when I am close to getting my period and on it, my anxiety level increases. ITS DRIVING ME CRAZY! Does anyone know how long it takes for this awful medication to leave your system? I want to feel normal. If anyone has any idea…PLEASE HELP!!!!

The first 2years I was trying to sell the Mirena to everyone! no Periods!!! awesome. The third year started my misery. I have gained 25 lbs regardless of exercise and diet(weight watchers didn't make a difference) and look pregnant. My belly is very distended and my legs and arms look normal. I am dizzy, exhausted, suffering from insomnia and lets talk joint pain. I look like an 80 year old woman when I walk. I limp from foot pain, knee pain and lower back pain. My doctor doesn't believe me that this might be from my mirena and has ordered rheumatoid arthritis labwork. I have been labeled depressed by my doctor even though I have tried to explain that I don't believe I will be when this is removed. By the way, no one ever gets pregnant with a mirena because no woman cares about having sex! The ending to my story is- I will be having a Tubal ligation, Uterine Ablation and having this device removed June 23rd. I CAN'T WAIT TO GET MY LIFE BACK!!!!!!!

I'm 19yrs. old and I had my IUD put in 5 1/2 months ago with the promise of no periods anymore. So far I have also experienced lighter but MUCH longer periods (aprox. 10 days) with on and off spot bleeding all month. Also I seem to get cramps all the time on and off, whether there is bleeding or not and especially after intercourse. This is really irritating because I feel like Im having my period or suffering from PMS like symptoms ALL the time. Also I have noticed a slight weight gain, and constant annoying pimples regardless of my twice a day cleansing routine. This is just so frustrating, and I keep thinking my body will eventually "adjust," but how long must I wait.
On a good note though, my sex drive is just as strong as its ever been, if not stronger. Also, my partner says he can't feel the strings and we're both confident on the high level of birth control protection we're receiving.

Some of you who are following this site may remember that I posted that when I was following the pathways of the leukeotriene receptor antagonist Singulair that I got to a point where I concluded that there has to be a genetic component (meaning that there are different gene groups of people) and that the efficacy of Singulair (and possibly safety) can vary depending upon what gene group people are in. So I took a little time to see if anybody else was already studying that issue. And YES, they are -- including Merck.

quote:

" However, logically one might predict that it will be the combination of the polymorphisms in these different key regulatory enzymes and receptors that may ultimately determine treatment response. There have been some attempts to tease out the possible contribution of different genes important in this pathway for treatment response to a Cys leukotriene receptor 1 antagonist.18 However, because of the number of potential gene variants that may contribute to efficacy, large studies will be needed to fully evaluate the potential contribution of pharmacogenetic variability in this pathway to treatment response to Cys leukotriene receptor 1 antagonists. Work in the cardiovascular field has demonstrated the potential importance of genetic variants in this pathway to disease risk and also to treatment response,19 suggesting the potential for important effects to be defined in asthma."

(Chest. 2006;130:1873-1878.)
© 2006 American College of Chest Physicians

Pharmacogenetics of Asthma
Ian P. Hall, DM
* From the Division of Therapeutics and Molecular Medicine, University Hospital of Nottingham, Nottingham, UK.
Correspondence to: Ian P. Hall, DM, Division of Therapeutics and Molecular Medicine, University Hospital of Nottingham, Nottingham NG7 2UH, UK; e-mail: Ian.Hall@nottingham.ac.uk

http://www.chestjournal.org/cgi/content/full/130/6/1873

And Merck sponsored a study on this which is now completed.

http://clinicaltrials.gov/ct2/show/NCT00116324?intr=%22Montelukast%22&rank=79

Of course, it was sponsored by Merck and paid for by Merck.

I don't know if the study discovered anything but I believe this is an indication that Merck acknowledges genetic differences in populations that may predict the success of montelukast.

I am not any where close to being an expert in this field. I have another background but I believe that there are experts who can tell you exactly why you had side effects from Singulair.