August 15th
2008
6:28 AM
Please contact me if you would like to help by sharing your story with the media,I am looking for stories of recovery after stopping the medication.Please use my private email under kate2 or just reply under this posting.Kate M.
-- By kate2 | Reply | (4) replies | Private Message me
August 7th
2008
3:25 PM
Hi to all,
I wanted to take a minute to say Thanks to all who post and search for answers to this drugs confusing and serious side effects.To all who have taken the time to contact the FDA and file a report to help others.Dr.Sarah Sellers is no longer the person to contact at the FDA,she has moved on after concluding her end of the investigation on Singulair.If you have a serious side effect please still take the time to file on the official FDA site for adverse event reporting.In NY. state we are still searching for legislation to help with the notification process for these serious side effects.There are to many Doctors that still do not have a clear idea of the updated side effects,and are not reporting as they should.
Letting your doctor know that good medicine is all about follow up on complaints,such as researching the singulair website to rule out that it may be the drug or it may not.Just dismissing the patient and prescribing another drug is how these drugs go undetected for so long.We want this to stop and only the unfortunate recipients of the horrors of this drug can make this happen.Again thank you for your efforts to change the system with follow through and perserverance.Our horror story is one of many and we want to help those who have survived the ravages of this drug, OUR CHILD DID NOT. Kate and Dave M.
June 29th
2008
5:50 PM
In July 2007, I was put on Levaquin for pneumonia. I was 53 years old, working full-time, active. The pneumonia was caused by aspiration when vomiting. I had never had these problems - pneumonia or aspiration - before. I had gradually worsening generalized joint and muscle pain and stiffness, which I reported to my doctor after about 5 days on the Levaquin. The pain I was experiencing was worse than the pneumonia symptoms (mostly high fever). The course of levaquin was supposed to be 14 days. After 9 days, I could not tolerate it any longer. My doctor put me on a Z-pack (azithromycin) for the remainder of my treatment. It is a year later, and I am still plagued with muscle pain in my back, shoulders, arm, abdomen - and, at its worst, my legs. The only way I'm able to function is on prescription painkillers, which I detest having to take - but they're a lifesaver. I've been seeing a rheumatologist since December '07. He dosen't seem to believe the levaquin - pain connection. He thinks I may have Polymyalgia Rheumatica. I have consistently elevated blood levels of creatine phosphokinase, a muscle enzyme which indicates muscle damage. I was on prednisone 10 mg. from early March '08 which I have just weaned off of after suffering a depressive episode with a suicide attempt at the begining of this month. I can't work now. I'm terrified of becoming permanently disabled. Finding answers has been very difficult but I firmly believe that the Levaquin started all this.
-- By 4shadow | Reply | (1) replies | Private Message me
June 15th
2008
4:10 PM
When i was 13 i was put on paxil for major depression. I stayed on it till i was about 17 after a downward spiral of depression that lead to a suicide attempt. After that the doctors decided that Paxil wasn't benefiting me anymore and decided to take me off of it, cold turkey. At that time i was on 40mg.
I started getting zapping headaches, muscle spasms, i was sensitive to light, my body ached, i had hot flashes, pretty much anything over stimulated me... i was irritated with just hearing anyone talk, i was completely out of touch with anything around me and i didn't feel like i was real.. I basically shut myself in my room for over a month getting over paxil. My family was afraid i was planning suicide.
After that, it's made me afraid to take any of my prescribed antidepressants, but i just cannot go through that again. At the time they put me on it, there was nothing that said that it was addictive, i was even told that there was no proof that it was addictive.
Also, I still experience the headache zaps to this day, and im 22 now, and i never had those type of headaches before paxil. I really think my mental illness is a lot worse from paxil. I have depersonalization disorder now, my short-term memory's crap, im more uncoordinated, im a lot more depressed and social phobic.. i know part of it could be from not taking any meds at all.. but i know that paxils really screwed me up, and i would have been a lot better not taking it at all. I just wish they would have warned me before putting me on it, or warning me before taking me off.
April 21th
2008
11:43 PM
my son has been on it now for about 4 months and has tried to commit suicide in the process of a 5 week change from keppra to the lamictal.then had to take dilantin until reached full dose of the lamictal which for him is 150mgs 2 xs a day at first the keppra made him fly in to rages so that was blamed for the suicide attempt.but just a few days ago he said that he was having weird feelings again. so i don't know what to do. waiting to hear back from the dr.i would just like to know if anyone else has experienced such severe thoughts from taking this med or if passably it could be not a high enough dose.i don't really know anymore by the way my son is only 15 and he is on the lamictal for seizures.any feedback would be greatly appreciated.
-- By kellgaer | Reply | (2) replies | Private Message me
April 1th
2008
3:28 AM
I have taken adderall xr 30mg once a day for 4 years and have noticed many different emotional levels and behavioral changes. At only 20 i am starting to become concerned with my mental state as of now and in the future. I have experimented with the drug and found that i can take 8 30mg pills at once and survive it, not recommended at all.
-- By riryan20 | Reply | (4) replies | Private Message me
March 20th
2008
3:50 PM
I have posted before but wanted to update. Singulair ruined my life for nearly 2 years, but I did not realize it was the reason until about 2 months ago. About 4 months after being on singulair, I sought treatment for severe depression and anxiety. My docs/psychs thought that it was a delayed reaction to the death of my father a couple of years earlier, so we did lots of therapy and 3 different psych meds trying to help me adjust. After all this (and one suicide attempt), I was finally just starting to accept that I was a miserable excuse for a human being, and I should get used to the fact that my life was going to suck from here on out. Then, I developed GERD and could not see my regular doc. The new doc told me to research all my meds (I was taking FOUR a day at that point, including the singulair...I am 27...) to find out if any could be the cause. That was when I found out what singulair can do, and that it could be the cost of my problems. My doc checked my charts, and sure enough, I started taking it shortly before I developed all of these "psychological problems". I've been off singulair for 2 months and my psych meds for a month (had to wean off). I finally feel like myself again after two years of hell!!!! I still have a slightly foggy head and problems concentrating sometimes, but what can I expect? I've been on mind-altering drugs for a couple of years. I hope things continue to improve. Never again will I take any drugs without doing *thorough* research (not just reading the hand out that comes with it..when I started singulair, there was no information about all these problems on the leaflet).
-- By tetrakis | Reply | (1) replies | Private Message me
February 29th
2008
12:34 AM
Are there people that have not experienced any side effects of Singulair I saw a question, and the answer is that they are the ones that are not going to post here. Millions of people and especially kids are fine with this medication and have no reason to look for this site. Will some people get side effects from Singulair, yes, but unfortunately there is not a drug out there that will cause no side effects.
People saying this could cause all kids to suicide is a bit disturbing. If you want to take a look the most popular allergy medication, Zyrtec has had suicide listed in their information for awhile. The reason these allergy medications have to have them listed is because they are heavily prescribed because of the great amount of allergy sufferers and any time some one passes in a car crash, accidental death, or unfortunately even suicide they have to list all medicines they are on. Obviously with popular medications more people from these cases will exist than the less popular ones. Drug companies are protecting themselves because of the litigious society we live in and have to place all kinds of occurrences there and not to say in this case, but a lot of people are always looking to blame others for something instead of taking responsibility for themselves.
I don't think doctors are prescribing these medicines because they do not want what is best for each of their patients. There is no conspiracy, and I would trust their view and years of studying and practice to someone's inexperienced diagnosis on this forum when I have no idea what their background and job is on here. I do not look to consult my son's teacher to fix a leak in my roof, so I go to my doctor for advice on medicine and not consult someone not in the field.
Sorry about this harshness, but someone showed me this board and as a parent who has their son on Singulair with great results and even trusted my doctor when they suggested to try it in my one year old son I will continue to listen to their advice. I have heard numerous people in the medical community tell me Singulair is one of the cleanest drugs out there, but again there isn't a drug with no side effects. I am sorry that not all parents have achieved the great effects my kids have had with this drug, but I think most have and thus not had the need to find this board.
-- By itdoeswork | Reply | (3) replies | Private Message me
September 27th
2007
9:02 AM
I am bipolar II and began taking Lamictal on top of my usual cocktail of Wellbutrin and Zyprexa following a suicide attempt. As everyone else has reported, it took a while to get up to a theraputic dosage; once I got there though, I felt the best I had in years (no exaggeration) - I literally felt completely freed from my illness. This freedom came at a cost, however. During my college days (I am a recent graduate) I was the top student in my department and routinely completed tremendous projects in unusually short amounts of time. Since reaching my current dosage of Lamictal, however, I have begun FAILING a Spanish course I am taking as I am both unable to retain anything I learn from studying (especially flash cards, which as everyone knows are the key to learning new vocabulary words) and, more importantly, feel no motivation to correct the situation. I am currently preparing to take two GREs as well as apply to eight graduate schools and have gone from obsessing over the issue to not caring whatsoever. I have also begun a new job recently and have extreme difficulty waking up each morning due to how exhausted I feel (it's notable that I didn't have this feeling upon switching to a large dose of Zyprexa.) My doctor has instructed me to lower the dose and monitor my mood accordingly to see if I can have positive psychological results with minimal side effects. I am upset about potentially having to give up the radical change in how I feel every day, but the side effects are just too severe (at the current dose, that is.) It still remains to be seen whether a lower dose will have sufficiently positive psychological effects with minimal side effects; I will make a followup post after this one once I can assess that.
-- By lunarhostility | Reply | Private Message me
August 13th
2007
11:42 AM
Started Lamictal after a suicide attempt. Thinking this drug would help, I took the medication with anticipation. I have been taking it for 2 1/2 years, and starting having night terrors, weight gain, exhaustion, don't have the drive I used to, and now it is affecting my sexual behavior (and not in a good way). I used to come home from work, and want to work in my yard and be proud of what I accomplished. However, within the past 3 or so months, I've almost given up. Beings I'm best known for my ambition, and attention to details, (probably on the anal side) I have been told that I have changed. I have had memory laps, trouble focusing at work, feeling as though I am inferior to others, and trouble with the driving aspect also. Sometimes I'll forget where I'm going, and take the exact opposite turns than I should. Although my income just meets my billings, and my credit score is excellent, I am having trouble keeping track of when they should be paid, even though I put them on my calendar. I do find my credit score is falling, and fast. I am seeing my MD, and the psycho-therapist on a regular basis. I am weaning off this medication, but have only been doing this for 1 week. I can't wait til the end of all this depression and still don't understand why they mark me as a bio-polar person. Also, I have never experienced seizures. I wish all of us luck and patience in our endeavors. Let's all think of each other, and thanks for letting me know that I am not alone.
-- By itzmeee2003 | Reply | (2) replies | Private Message me
April 13th
2007
8:12 AM
Hair fall out, extremely chapped lips, vision loss (corrective lenses went from -5 to -9.25), mood swings, suicide attempt.
-- By jessica.cummins | Reply | Private Message me
March 9th
2007
11:36 AM
I am a 50 year old post menopausal woman with osteoporosis. I had 3 injections over a 3 month period for degenerative disc disease (cervical). Last injection was done 1/12/07. I was not warned about increasing osteoporosis as a side effect of this medicine even though they knew I had it and was taking medication for it.
I experienced the following side effects:
extreme sweating around head, neck, and torso
extreme mood swings where I actually became violent (I'm really a passive person), hitting loved ones, throwing and breaking things (completely out of character for me, in fact I've never behaved in this manner)
extreme depression where I tried but failed to commit suicide (I was hospitalized in a psychiatric facility for 9 days)
huge face
huge hump on my back
I now have extremely high blood pressure (was normal before)
I experience confusion and memory loss (sometimes I'm in the middle of a sentence and forget what I'm talking about and I am normally a pretty sharp person.)
I now have adrenal insufficiency and am currently scheduled for an MRI of my pituitary gland next week so they can figure out why my adrenal glands are no longer producing natural cortisol.
Went to see the doctor who gave me the injections about these side effects (before the suicide attempt) and was told these side effect would go away in 3 or 4 days! He gave me a prescription for 5mg valium and told me not to eat so much!
After my stay at the psych facility I again called the doctor who gave me the injections to try to find out if the injections had caused all of this. This doctor would not order any tests but thankfully his nurse (behind the doctor's back) told me to call my primary doctor and explain the situation and ask for a cortisol level test. My cortisol level was so low that I got an appointment with the best endrocrinologist in town the next day.
I am currently on a prednisone taper to try to stimulate my adrenals to produce the correct amount of cortisol.
Has anything like this happened to anyone else? I am so angry with the doctor I want to sue him but I'm sure I signed something protecting him.
-- By bafisher | Reply | Private Message me
July 8th
2004
8:02 PM
Suicide attempt
hallucinations
heart arrythmia
loss of bone in jaw line
June 26th
2003
3:23 PM
Horrible drug! I was on 3x the normal dosage for a skinny teen female for over a year. (225g 3x a day) The weirdest side effect that I noticed while taking the drug was some 'possession' problems. It would be as if I left my body and someone else took over. I recognized that my body was moving, but I had no control over it.
After I lost my prescription insurance, I couldn't pay the 300 dollar per month bill for this one drug, so I had to stop. It was too fast. The withdrawl symptoms are horrid. I was delusional, hysterical, almost bi-polar, pretty much everything the drug was supposed to get rid of, happened. (I was taking it for depression only) There was a suicide attempt while the symptoms were happening.
Suggestion: either never start or never stop because this drug is nasty. Doesn't even help the depression!
-- By sukiljw99 | Reply | Private Message me
Lamictal (4) Singulair (4) Lupron (1) Accutane (1) Levaquin (1) Paxil (1) Kenalog (1) Adderall XR (1) Effexor (1)
October 16th
2008
1:20 PM
Like many patients, I started out on a low dose of Lamictal. Eventually, I was taking 300 mg. This seemed fine for awhile. Then, I started feeling a bit down, so the doctor increased the dose to 400 mg. Increased dosage does not necessarily mean improvement in mood (bipolar). I began to experience a good number of the adverse side effects reported here, including excessive fatigue, gastrointestinal disturbances, cotton mouth and very bad taste in my mouth, muscle tension (particularly in my legs), forgetfulness and confusion, and sinus and chest congestion. At one point in time, I even had difficulty articulating words.
Though I did not suffer from rash, I have been up in the middle of the night with itching all over my body. I had a few episodes of mouth sores and one pimple on my chin. Many of these have improved since the doctor brought me back to 300 mg. However, they have not entirely disappeared. I continue to suffer from the excessive fatigue many of you have reported here.
I recently had a blood test and learned I have very low levels of Vitamin D and Vitamin B-12. I do not know if there is any relationship between long-term use of Lamical and these test results. However, I do know that low levels of Vitamin D can cause fatigue.
Though I am willing to follow through with further blood tests, I am beginning to understand why some people are tempted to discontinue their medications. I am so tired of being so tired and sleeping so much. When I finally get up, I am still tired and drag through the day.
Sometimes, I think I'd rather have a down day or two than take this medication. I should add, though, that my bipolar is not severe, and that I am only reporting how I feel. I'm certainly not recommending anyone discontinue medications for this or any other condition they may be suffering from. If I were to recommend anything, it would be to get a second opinion if one is concerned about his or her treatment.
If I were to make any suggestion to doctors, it would be this: more is not necessarily better. Send your patients for blood tests (mine were ordered by my M.D. and not by my psychiatrist). Increasing the dosage--at least of Lamictal--might result in a host of negative side effects. Your patients might then become disillusioned with their treatment and give up.
If anyone out there has suffered from B-12 and D deficiencies, let me know. I'll let you know what I find out.
And remember, most doctors are really trying to help us.
-- By lizardess | Reply | (4) replies | Private Message me