Suspicions symptoms and conditions

This is not a new side effect, but the same day I started taking Levaquin for sinusitis, I suspected something was wrong. Within hours, ears were roaring. First night, NO sleep, and that's WITH Ambien CR. Day 2.....depression! Immediate. This is in spite of having a severe depression under control for over a year. Sudden. I really started suspecting Levaquin then, but thought it was a coincidence. Took it this morning. Deep, dark depression. After reading these posts, I knew my suspicions were correct. The depression is getting better after 10-12 hours after the dose. This is really scary stuff. Really scary. Oh, yes, and I had the stomach pains, also. Told my husband it was just hurting like a bruise, not like indigestion or gas. I will report it to my doctor so they will no it's a "no-no" for me....in spite of all the websites that said how safe it was. Glad I found this website. Thank God.

My 16 yr old daughter had her series on Gardasil shots completed in March 09. I don't recall any major side effects right away. In the past three months, she has been throwing up after taking a few bites of food. She drinks a lot of Pepsi and has a lot of stress, so I thought she was developing an ulcer, so I told her to stop drinking pop for awhile to see if that helps. The symptoms have subsided, but now that I am reading this website, I am worried. Before the shots she had headaches or migraines, they run in our family, but I have noticed that she has them more often now. Another thing is her hair is everywhere. I thought she was damaging her hair with the straight iron, but geeze, now I don't know. All these problems might be tied to the Gardasil shot.

I am a generally active and fairly healthy 77 yr old who had been taking 10 mg of Lipitor for over 12 years with no obvious adverse effects. Recently I started having pain in my right leg, severe enough to wake me at night. This was followed by a significant weakness in both legs, and for a while, accompanied by a lightheartedness. The doctor had me take a series of lumbar and leg x-rays which didn't show much of significance. He wrote a prescription for physical therapy, which I did not follow.
I did internet research on my own which made me aware that Lipitor could be the cause, in spite of the fact that I had tolerating the drug for so many years. I told the Doctor of my suspicions and we agree to stop the Lipitor for at least 6 weeks to see. A few days later, all my symptoms were gone. So be cautious, adverse effects from Lipitor can occur anytime.

I'm feeling the same as many of you ladies on here- it's certainly breaking my heart for all of you too. If we had known then what we knew now....
I got my Mirena about 6 months after the birth of my daughter and then spiraled into some serious depression. I'm so horrified now thinking back about how angry and ungrateful I was to my husband- I returned everything he gave me for Christmas in an angry huff. My behavior was awful AND it wasn't me. Over the next two years I had serious mood issues felt pregnant all the time (I even took to buying those dollar store tests so I could relieve my suspicions each time but not spend a fortune). And then there were the headaches. I had always had hormone related headaches (a few a month) so they weren't really new to me, but it got to a point where I was having so many I went to a neurologist for help - he asked me to chart them, I fund I was having 14 to 16 days a month with pain. I think the "off" days were just off because I was still under the influence of the pain drugs from the day before. My husband and I were planning on a third anyway- and suddenly I really wanted this thing out! I took it out, here I am, 9 months later- headache free!!! 9 months of no headaches and the "freedom" came within days of removal. I have now been trying to get pregnant for 9 months too- my period returned immediately after removal (the one perk I loved of the Mirena was no period) unfortunately, I can't seem to get pregnant. This, from a woman who seemingly got pregnant just by her husband looking at her. Literally, 3 cycles pre-mirena, meant 3 pregnancies for me. We had to be seriously careful- I'm terrified that this thing has now caused me to be infertile. I have been tracking my cycles watching for my ovulation and I can't find it despite having a regular 28 day cycle. Don't get Mirena- it's just not worth it

I am a 35 y.o mom of two and I had my Mirena put in Jan. 2008. I was patient for the first several months with some of the longer periods, cramping, etc. I was loving it initially since it was such low maintenance. But, let me tell you that since the Fall of 2008 I have had unbelievable emotional issues which have been far more severe than I have ever experienced. My two boys that are 5 and 6 and postpartum blues were nothing in comparison to this! I was recently married to my second husband in September and my emotional spiral got even worse during this time. By Feb. 2009, I was hospitalized a week for depression and attempted suicide. For a month after my discharge, I also attended daily outpatient treatment for which I was off work for the entire time. It has been a long road for me and my family and I'm still in therapy at least once a week and attend several support groups. Recently, I just started putting it all together because I have never experienced such emotional turmoil. I'm convinced it is related to the Mirena and I've got an appointment today to have it removed. I'm on so many medications now for my mood disorder that one more (birth control) won't be a big deal. I'm hoping that I will have relief of my symptoms once it is out. I empathize with everyone who has posted and it just confirms my suspicions.

I am a 45 year old woman (NOT a new mother) who had the Mirena inserted in January of 2009. I had gone off of the pill in 2003 after 16 years of being on it - told my hub I was DONE with hormonal birth control (weight gain, headaches, etc). After the pill, the weight fell off, headaches were gone, and my brain-fog and forgetfulness vanished. 6 years later I couldn't stand the heavy periods after so many years of light ones and decided to give Mirena a try since the hormones supposedly stayed in your uterus (YEAH RIGHT!). In my head, those 5 years of Mirena protection would buy me time until menopause and my doctor agreed it was a good choice. Fast forward 7 months. The weight came back (over 20 lbs) with NO change in diet. The headaches are back. The almost constant discharge is still there - and is not pleasant smelling by any stretch. I am not a new mom and am very in-tune with my body (thank you very much to the rude posters on here who have suggested it is all in our heads) - yes I did the research and expected some side effects, but the worst side effect I have and can't stand any longer however is hip joint pain. It is so bad that I feel like an 80 year old woman in the morning that can hardly move! It gets a little better during the day, but is constant. I can't lift my grandchildren without severe pain and this is NOT NORMAL! This did NOT happen before the IUD was inserted and I just now put 2 and 2 together that Mirena could be the cause. I also have virtually no energy - my house has fallen apart since January and my husband is beside himself. I just sent an email to my doctor asking her opinion on my suspicions and will more than likely have it removed SOON! Ladies, I want to say that this is NOT IN YOUR HEAD and the people who suggest otherwise should be ashamed of themselves. If you have Mirena and have no problems, good for you - just don't criticize those who do. It works differently on different people.

I've been on the Nuvaring for about a year and I didn't experience any of the crazy stuff people are mentioning on here. Every birth control is different for everyone, so you really have to know your body and what works for you. I.E., someone mentioned crazy thoughts while either on or when taking out the NR like suicide and suspicions of a cheating boyfriend. I was wicked anxious while on the Shot, and crying for anything! So, really, it depends on what works best for you.

I happen to love the ring, and I'm on here looking for more information on long-term effects if anyone knows where I can read about that. I know it's fairly new, so this may be hard to find.

I am a 35 year old woman, mother of three. I had the Mirena IUD inserted Feb 9, 09. So far, my experience has been NEGATIVE. I just removed it yesterday. I hope to get better soon.

I first want to thank everyone who has shared their experiences. Without you, I wouldn't have confirmed my suspicions. I am NOT going crazy and all these side effects I am having are REAL! I want to share my experience too, in hopes that it will help others.

Since having the Mirena inserted, I have had multiple side effects. My side effects have included:

BLEEDING all the time. Each period I bled 2 1/2 weeks straight with spotting in-between. It may have gotten lighter if I had left it in longer.

WEIGHT GAIN. I am an advid gym goer, a runner and watch what I eat. I have gained 8 pounds in the last two months! The last three weeks I have cut back on calories and increased my workout intensity and have not lost a pound! Usually, I can loose weight easily if I really put effort into it. Since the Mirena, I have been unable to manage my weight.

FATIGUE. I am SO tired all the time. Especially around 3p in the afternoon. I literally feel like I could sleep walk.

MOOD SWINGS. That has been hard. I have had less patience with my family and I am not as happy and chipper as I usually am. I feel blah. My husband and mother have both noticed and have said something to me.

HEADACHES. I normally only get headaches for specific reasons but now I get them all the time. I got headaches easily when I was pregnant, so I know it has to be the hormones.

DIZZINESS. My head feels off.

LOWER BACK PAIN and CRAMPING. I feel like I am PMSing like 2 weeks out of every month. It is constant.

BLOATING. My stomach really protrudes and I've always had a flat stomach area.

I have not had the acne and hair loss problems. I'm sure the Mirena effects everyone differently.

Hope this helps someone. I wish I would have looked up the side effects before I had the Mirena inserted. I would have never done it!.

Good luck to all.

OMG, thank goodness I found this site and have been able to confirm my suspicions. I had my mirena inserted 5 months ago, god how excruciating. It wasn't long after I noticed how tired I was feeling. Non stop spotting, smelly awful brown discharge. I am finding it very hard to motivate myself at work, even workmates have said I'm just no myself and haven't been since I got the Mirena. I feel nausea every day, sore joints, TIRED TIRED TIRED...... and HUNGRY like I'm pregnant. I thought I was experiencing the start of menopause with hot flushes. I can't seem to concentrate on anything, constantly loosing things or cant find them. Not to mention the aching abdomen, the bloated stomach. I'm waiting for an appointment at the breast clinic because of constant breast pain... on and on it goes..
I went back to the Dr. who assured me it wasn't likely to be caused by the Mirena.... blah blah blah but I made an appointment today to get them to take it out... and tonight I'm glad I did after reading this site. Now I am totally convinced that the hormone levonorgestrel doesn't agree with me at all. Why won't the medical practitioners listen???? do they get paid a commission for each one they fit?? I'm not sure but listen to your bodies ladies and look after them.

So, I had my Mirena removed almost 2 weeks ago now and immediately started taking Yaz. I will miss the fact that I haven't had a period in about a year and the ease of not having to remember to take anything but the acne got too much to bear. My reflection caused me to cry and I couldn't seem to shake 8lbs, and I workout all the time, we're talking 3 times a day, 3-4 days a week, so it wasn't due to my lack of effort. And my diet is phenomenal, it was all very disheartening. I even made peace, finally, with my larger self but my acne was just unreal! After reading the other experiences on here I was simply reaffirmed about my personal suspicions and had a scheduled pap so I told my gyno to remove it. She completely agreed with me, saying that she's seen an increase in these types of cases over the last year, (one resulted in a 40lb weight gain and after removal 20 lbs dropped over several weeks!). She is a wonderful doctor. She said that IUDs have been relatively unused in the states until recently so we simply lack the data for longer termed effects and that since she's come across so many of them lately that she makes sure to inform all of her potentials of them. Mirena works for a lot of women, I have friends on it that swear by it, beautifully clear skin, but they have also seemed to gain that 5-8lbs that's unshakable, but I'm sure they don't associate it with the IUD, like I didn't at first either, but it was irremovable! Anyways, my doctor said it best, Mirena works for a lot of women, but not one thing will work the same on everyone, just as my side effects were pretty common but some of the effects on here were WAY different than my own experiences. All I can say is that I'm glad I didn't have a nightmare of a doctor like some of the other ladies here. If you are referencing this site and are wondering if your effects will go away, I had my Mirena in from Oct.07 to Feb.09. About Jan.08 I started breaking out, not that I ever had phenomenal skin, but these were cystic almost, different than normal acne, but my weight was unchanged. About July08 I noticed a little weight gain but had been on a couple vacations and was about to take a sabbatical, all likely reasons, but I can drop any holiday 5-10lb weight gain within 2 weeks due to effort, but not the 8lbs I gained then, as of Feb09 the acne had persisted and increased, new ones popping up everyday around my chin area and jawline ( not ever before), some on my back (also not ever before) which, after further research, found that those areas around the chin break out usually due to hormonal effects, and then I just finally couldn't take it. I looked in the mirror one day after work and just started crying. My reflection was horrible, my self esteem was diminishing and no amount of my wonderful boyfriend's admiration could make me look any better :( I can say I'm seeing a difference in my skin now on Yaz and am simply hoping there are no nasty side effects waiting in the works for me there! I hope this helps someone out there like so many other testimonies helped me!

My daughter's doctor put her on Singulair just about a week ago. She had a persistent barking cough that would not go away, even after 3 weeks on Albuterol. Because the pill was so expensive (even WITH insurance it was $120.00) and I could not afford it, her doctor gave me free samples. I gave it to her for the first time last night. I was telling a friend of mine about how nice it was that my daughter's doctor gave me free samples and what a blessing it was. When I told her what pill it was she started telling me about what happened to some of her kids in her class (she's a teacher). I was surprised. She told me she didn't want to scare me, she just wanted to make me aware. I didn't get scared, but I certainly wanted to find out if what she was telling me was common or just rare in a few cases. I am one of those people that will ask advice of other moms, etc., but ultimately do my own research and find out for myself to confirm any suspicions. I know some moms who freak out over every little thing and take someone's word for it, even without doing their own research. I am not one of those mom's. So I Googled "singulair side effects" and found this site. I could not believe that everything my friend had told me has also been experienced by so many others on this site. Needless to say, I will NOT be giving her Singulair anymore. I am just so thankful that I had someone tell me about it BEFORE she had to experience some of the terrible things that other children have had to experience. It is unacceptable that this drug is allowed to be prescribed, especially for young children. I am going to look into a more natural way to help ease her sniffles and cough.

Started at 10 mg/day, then doubled to 20 and finally 40mg lisinopril with 25mg HCTZ..

After being upped to 40mg I started getting a itchy lump in my throat that lead to an amazing amount of cloudy white mucus. This would usually occur later in the day and especially when I tried to lay down to sleep. Lungs feel fine, no wheezing, rumble or pain. Nostrils sometimes clog a little but not enough to explain where all the mucus was coming from. Throat doesn't really hurt except when I used a lot of generic sore throat spray.

Doctor mentioned the possibility of acid reflux or a seasonal allergy and give me generic Claritin which didn't help a bit. I'm 56 and can't say I've ever had a seasonal allergy in my life but he said they can develop at anytime so I was hoping he was right. When the weather turned cold and the symptoms remained I even thought I was allergic to something in my home, new drywall, fiberglass, mold something.

After considering the possibility of a reaction to lisinopril or terbinafine I started googling to find posts that described my reaction to a tee.

Besides the cough/mucous I've had a pounding heart, anxiety, fear of dying not knowing what was wrong etc.

Lisinopril seemed to bring my pressure down at the one month point so my Doctor doubled it to bring it down another 15 points. Three weeks later instead of going down it went back up so he doubled again and added the water pill. Today when I went to the Doctor it was still up and I told him about my web research. He agree it was not working for me anyway and I suppose he believed my suspicions about the side effects, at least for me.

He asked me "You're self pay aren't you?" as if just because I had to pay for the stuff myself I'd rather take the $4.00/month crap rather than pay for what I need. If you're self pay you even get 20% off if you pay within 30 days. I bet if I'd walked in there with insurance I'd have erg's, mri's, all that overpriced stuff.

Anyway he put me on Bystolic (30 days free samples :)) which I think I could detect a bit more confidence in his voice that it would actually work. I mean I'd much rather pay $4/month for generics if it worked and didn't make me feel like crap but I'll gladly pay the over inflated $50/month price for something that actually works without making me feel so much worse.

A week and a half ago my doctor prescribed Leviquan for a sinus infection that I had. The day that I started taking it I noticed that my left shoulder was hurting when i stretched my arn out and lifted it over my head. My heels began to be sore and I developed a rash around my buttocks. Being 67 tears old, at first I attributed it all to my age and thought it would get better. I have had rashes before and got over them. I began to loose sleep and then there where 2 night where I didn't sleep at all. This is when my suspicions developed and then last night I went to bed and awoke an out later on fire. I have a rash covering my entire body now. i tried to use the restroom but could not relieve myself. I went to the computer and that's when i found that all of these symptoms are for Leviquin. The urination problem has to do with crystallization of the drug in the urinary track or something like that. I called the doctor's office and was immediately taken off the drug (I had already taken myself the damn stuff) and told to take bynadryl. If it get's worst, go to the emergency room (Well Ya!!). Time for the lawyer

My daughter had been on singulair from the time she was 8 yrs old until she was 14. This will sound as if I am a horrible mother but I just thought that she was a raging bitch. Without my knowledge, she stopped taking her Singulair for a few months and she became a different person. She was so sweet and loving. One night she came in my room having an asthma attack and I asked her if she was taking her meds, she admitted that she had stopped taking her singulair and I got on to her and immediately got her prescription refilled. Within a few days of taking the singulair she turned into a raging, screaming emotional wreck, a TOTALLY different person. I feel so bad that for 6 years of her life I put her on medicine that caused her to have screaming, uncontrollable tantrums, and severe mood swings that caused her to be miserable. It does seem to be the only thing that effectively controls her asthma symptoms but the emotional havoc that is causes her and the people around her is not worth the benefits. We have an appt. with her doctor to see what other options we have.

hi everyone, i'm a 36 y.o. male and have been on and off of prednisone for 25 yrs. my experience has always been more positive than negative with taking this drug. it has helped me to breath better and has made me to feel extra healthy and even physically stronger. but i have my suspicions about this drug also. it has given me a false since of good health and i feel like i want to keep taking it just to feel better. i have only taken the drug after an asthma attack for about 5-7 days. early on the only side effect was increased appetite and occasional insomnia. but the last time i took this drug the doctor increased the milligrams and a VERY UNUSUAL side effect occurred that never happened before. I HAD HALLUCINATIONS! i have never had these side effects before and on the leaflet of possible side effects that came from the pharmacist for the very first time i saw hallucinations listed as a possible side effect. the hallucinations were damn near demonic in nature. the experience went like this... i woke up in the middle of the night to use the bathroom and on my way to the bathroom i passed my dresser mirror and in the mirror was writing on the mirror in a mist! just like it would be when you get out of the shower and take your finger and write on the mirror. THERE WERE LEGIBLE WORDS ON MY MIRROR! mind you this is in my bedroom and the shower was off! at that point i refused to read what i saw in the mirror! it was weird enough what i saw i didn't need to read it. i refused to be fearful at that point cause i realized i was hallucinating and not getting a haunting. when i woke up later i went back to the mirror and of course no writing in the mirror. IF THERE IS ANYONE WHO HAS EXPERIENCED THIS PLEASE TELL ME YOUR STORY PERSONALLY! MY EMAIL IS ******! i would like to know that i'm not alone in this. to make it easier for me to see your response please type prednisone in the subject box on the email cause i receive a ton of emails and spam. and i would really like to hear other stories and experiences of taking this drug with very weird side effects!

August 5, 2008

Thank you for this website. These testimonies has confirmed by suspicions of Advair's side effects.

I am 52 years old and was diagnosed with adult onset asthma 10 months ago. My physician prescribed Advair (500) and Albuterol inhaler. I was instructed to take the Advair 2 times/day and Albuterol 3 times/day. During the last few months, I have noticed a slight weight gain, fatigue, hoarseness, dry mouth and occasional insomnia. The hoarseness has resulted in 2.5 weeks of losing my voice. Also, I have noticed that my recovery from a prior illness, such as cold, was very slow.

As a result, I discontinued the Advair and use the albuterol as needed. My voice began to returned to normal in two days and I am feeling much better.

Now I am wondering if I am experiencing drug withdrawal symptoms due to discontinuing Advair five day ago. The following symptoms are: dizziness, and needle-like tingling in hands, feet and side.

Again, thank you gals for sharing you'll experience with Advair.

After reading these posts, I am glad I didn't change my mind about having the MIUD removed. I have had all sorts of problems since that evil piece of plastic was inserted. I didn't think much of it at first and thought maybe I am just tired because I have my period and cramps alllllll the time. The relationship I was in was bad and thought maybe I was tired and moody because of that. After a couple of months - boyfriend free - things didn't change. I had horrible mood swings, my concentration was shot. My work ethic went down the toliet, I felt like a 10 year old kid with ADD. No energy, back hurt on a regular basis, carpal tunnel came back with a vengence and TMJ (I don't know if that's related but I've never had it before), acne, weight gain, no sex drive, and a constant itching around my neck. I am sure the NP was ready to try to talk me out of it and wait the full 6 months for "side effects" to go away. Well, the last 5 sucked, I really didn't want to deal with this crap any longer, besides with the price of gas, I can't afford the money for the regular buying of feminine products. I am only 6 hours free of this and I am already feeling a little better. I don't have that "pressure" you feel in your belly and a have bit more energy. I am so looking forward to the next few weeks when things start to get back to normal!!! If you have any doubts about this thing....get rid of it. Its really not that bad to get it out, 99 times less painful than getting it inserted!!!

I had my Mirena removed three days ago and I already feel like if my life is back. I had Mirena since January of 2006 and I had been feeling like another woman for the last six months...The horrible side affects included: Lower back pain, fatigue, depression, cloudiness, slurred speech, rapid heart rate, thinning hair, high blood pressure and the list goes on.....I can't thank one of my co-workers enough for opening up my eyes to take this thing out of me....Of course the doctor told me that the Mirena had nothing to do with the way I was feeling, but I decided to have it removed anyways. He sent me to do some bloodwork, so I did this morning...He's blaming the way I felt on my thyroid....I'll keep you posted....No matter what.... I am glad the Mirena is out!!!

My doctor wants to give me Yasmin due to bad pms every month. I am already on meds for mood disorder but they don't seem to budge the monthly aggravation and agitation I suffer. I am 43 and do not need a BC pill as I had my tubes done a few years back but he feels this may be the answer for the pms. I had an oblation procedure done last year and only have a 3-4 day mild period anyway. Is anyone else in this situation? Should I take this pill ?

I am so glad I found this site as it has confirmed many of the suspicions I've had about advair for quite some time. I've had the hoarseness, dizziness, memory loss, major weight gain, and major cramps and leg pains. I was even diagnosed with rheumatoid arthritis because of the non-stop joint pains etc... The doctors too insisted that non of my troubles were due to the advair and I find this completely maddening that they lead patitents to believe that something is safe when it is not! About 9 months ago, totally fed up with the state my health has fallen to, I began alternative medicine-- acupuncture and am starting homeopathy soon-- and the results have been very promising. I am not using rescue inhaler at all and am weaning myself off the advair. I am starting to feel best I have since I was diagnosed with adult on-set asthma. I would encourage anyone to explore these safe alternatives and would also like to know if anyone has found any "safe" replacement for advair which does help control asthma symptoms w/out the HORRIBLE side effects?

DO NOT TAKE AS A BIRTH CONTROL PILL!!! THE DOSE IS NOT ENOUGH TO PREVENT PREGNANCY. WORST SIDE EFFECTS OF ANY PILL I,VE BEEN ON. IT IS NOT A GENERIC OF ANY OTHER PILL. NOR IS IT MEANT TO BE A BCP. IF YOU WERE SWITCHED TO THIS BY YOUR PHARMACY (IN MY CASE WALGREENS) GO TO YOUR DOCTOR ASAP TO SWITCH TO SOMETHING ELSE. AND REPORT THE PHARMACY. MY DOCTOR TOLD ME THAT THIS PILL IS BASICALLY AN "OLD LADY HORMONE PILL". IT IS AGAINST THE LAW FOR A PHARMACY TO SWITCH YOUR MEDICINE EVEN MORE SO WHEN IT IS SWITCHED TO SOMETHING OTHER THAN WHAT YOU WERE TAKING IT FOR.

Follow up to my post earlier today...

I took the my son to the doctor this morning and he was somewhat dismissive of the recent reports on Singulair...says he's had a lot of kids on the drug and never heard a peep about side effects until last week when the report on suicidal tendencies showed up. He did advise that when these kinds of behavior changes happen after a new drug is started he would recommend that we stop taking the drug no matter what it was, but I still felt uncomfortable with his response to us.

I felt like he was accusing me of making it up or only coming up with it because of recent news and message board posts. In fact, I made the appointment BEFORE I saw the posts. I was worried about his behavior BEFORE I saw the posts. It's just that seeing the stories from everyone else basically confirmed my suspicions that it might be the drug causing the problems.

I feel like I definitely wasted OVER AN HOUR waiting for a doctor to spend five minutes making me feel small.

Last night was the last time my son will take the drug, and I don't care what the doctors think of me.

Repeating my post from way down below - IN CASE someone's child with these head drops is looking for someone with similar symptoms.

WELL - Thank God! It is so about time! My son, age 6 now was given a very grim outcome/future by two top pediatric neurologists 2 years ago when he started having not the typical seizures we associate with epilepsy (no epilepsy in our family) - his head would drop forward - like his muscle tone in his neck would collapse for a few seconds and he would literally bang his head on tables (this was when he was 3.5 yrs old) - my husband and I always knew in our heart of hearts it WAS THE SINGULAIR he had been taking for 1 year after he had a bad coughing spell the year before - not formally diagnosed with asthma - but the pediatricians insisted it would only benefit him to continue to take it. When we noticed these head drops and his eyes would at times roll back in a matter of just a second or two and he was the most loving, caring and affectionate child and turned into an aggressive and obsessive compulsive child, who also began to have HALLUCINATIONS at night - he would sit up in bed and be seeing things and scream and cry, WE JUST KNEW IT WAS THE SINGULAIR and we stopped it COLD TURKEY on Oct. 31st 2005 - against the advice of the pediatrician. We took him to a neurologist and we told him about our suspicions about the Singulair he, just like the pediatrician brushed it off, but he had an MRI and an EEG - the MRI came back normal, but the EEG was devastating!!! We were told to get ready and pray a lot - that our little boy would become a vegetable and would require assisted living for the rest of his life. That he had a rare form of seizure disorder for which there was no cure.
We took him then to Duke University Hospital and had him checked by the top pediatric neurologist for a second opinion - he gave him another EEG and the diagnosis from this dr. was even worst - he would probably die an early age due to the severity of his condition and that he would lose all his motor skills and regress to a vegetable. Those were the worst days of our lives. We went back home and put him on anti-seizure medication and prayed A LOT - even strangers added him to their prayer list. Well, the seizures stopped in late January 2006 and just last March of 2007 he had another EEG and it was NORMAL - he was weaned off the anti-seizure medication and is thriving and his a great kindergarten student.
Doctors cannot explain how he was cured - there is just no explanation.
Aside from the faith we have in God's hand in this cure, we just KNOW THAT STOPPING THE SINGULAIR saved him from further damage and probably loss of life.

He is the most affectionate and caring little boy you can imagine and I do want to point out that his speech was affected in our hearts, we know it was the Singulair but in the last year his speech has improved dramatically and he is doing just fine.

My husband and I have been struggling to get awareness about the dangers of Singulair and children but the doctors do not believe us. At our last appointment with the pediatric neurologist, I told him, "one day, you will see that we were right about our suspicion regarding Singulair".

I do want to add that it was just too much coincidence that when he went for his first EEG in Dec. of 2005, there was another little boy in the room next door that his parents suspected Singulair as the culprit too.

If anyone wants to email me and if there is anything I can do to help with my own personal testimony - please email me ****** - I will be glad to share any other information.

LET'S RAISE AWARENESS TOGETHER and stop more damage from occurring. Remember, my son (post is far down) almost became a vegetable and was given a grim prognosis by 2 pediatric neurologists including the top one at Duke. No cure we were told. But we always knew it was Singulair. He was cured and there is no medical explanation. Had he continued to take it he would be the vegetable they had predicted he'd become.

Okay, I just emailed DATELINE NBC - please be sure to submit your children's adverse reactions story to them - here is the email address:
*******

I also tried emailing ABC for PrimeTime and 20/20 but they use regular snail mail for story suggestions - please do your part and mail out your story to them at:

To submit a story idea to one of the ABC News shows listed below, write a single page letter including your name, phone number, and address. Include photocopies of backup information. On the outside of the envelope, write "Story Idea." If a producer is interested in your story, he/she will contact you. Here are the show addresses:

20/20
147 Columbus Avenue
New York, NY 10023

Primetime
147 Columbus Avenue
New York, NY 10023

Together we will do something to help avoid more tragedies

I went ahead and reported our experience online to the FDA:
https://www.accessdata.fda.gov/scripts/medwatch/medwatch_online.cfm

FILE YOUR REPORT - TOO.

My almost 7 year old son was prescribed Singulair 3 years ago for severe asthma and allergies. It worked great--for a while. No hospitalizations, incidences of bi-lateral mucous plugs and pneumonia decreased, etc. I thought it was a miracle drug for him. This past summer/fall however, the nightmares, sleepless nights, multiple sinus infections, moodiness and mild anxiety, extreme hunger (he can now eat my 6'7" 260 lb. husband under the table and my son only weighs 52 lbs.), thirst, leg pains, reflux and very frequent complaints of stomach aches and nausea, etc. began. He was even admitted to our local Children's hospital in November for a severe upper respiratory infection that affected his asthma and blood oxygen levels and for the first time ever, did not respond to therapy. He was on oxygen for 3 days. Not realizing all this was likely due to Singulair, I took him to his ped. pulmonologist, pediatrician, ped. allergist, a ped. gasteroenterologist, and an ENT. None of our doctors suspected the Singulair--and I still have confidence that they are all good doctors. In December, he had surgery to cauterize the inferior turbinates in his nose and remove his adenoids to try to alleviate the sinus infections. At the same time, we had an upper G.I. series done to see if we could find what was causing all the stomach aches and reflux. The GI doctor found nothing. I am just sick to think that Singulair did all this to him, that we put him through surgery to try and "fix" the symptoms, and doctors and parents didn't know enough about the side effects of this drug to suspect it as a possible culprit!! I called our pulmonologist and pediatrician this morning to report my suspicions and took him off it. I sure hope his symptoms will improve.

Hi
I started taking 10 mg. daily ofLipitor 8 yrs. ago and about a year later I was diagnosed with Fibromyalgia. There's no test for Fibro, just blood tests to elimate everything else ex: Lupus, RA etc. I've been suffering so much from muscle pain, all the tender points as in Fibro and also diagnosed with chronic fatigue syndrome. Three doctors diagnosed me with Fibro. and chronic fatigue. I had most of the symptoms everyone else is complaining about also. The pain in my stomach muscles are just about gone too.

It reached a point three weeks ago when I was having sharp pains all over my body and muscle cramps and charlie horses at night and I could just about walk up the stairs my hips hurt so much that decided to stop Lipitor. I was so tired all the time and in constant pain.

My doctors said it couldn't be the Lipitor. The pain in most of the tender points are just about gone but I know it will take a while to get out of my system. I lost muscle strength over the years and hope to get that back. I'm 64 years old and know it will take awhile .

I went to my doctor Tuesday and told him I took myself off the Lipitor and that I now remember being diagnosed with Fibro shortly after going on Lipitor. He got so mad at me and said that Lipitor doesn't cause a disease. As I said there's no test for Fibro and it's not a disease it's a syndrome or condition where the brain sends pain signals to the tender point muscles but there's nothing actually wrong with the muscles. I told him that 6 years ago when I tried going off Lipitor for 3 months and joined a gym, Curves, I felt fine and thought I was in remission. Then when I started taking Lipitor again I couldn't do the exercise in Curves and had to stop going. It never dawned on me it was the Lipitor.

I now have a problem with my heart, one condition I might have been born with but the Arrthymia I don't know about. My heart beats too many beats and it beats 4 beats and the 5th beat is backwards. Now I'm on 25mg of Topricin (the generic) beta blocker to slow down the heart beats. I don't know if this is caused by the Lipitor or not. My cardiologist said that Lipitor can affect every muscle in your body and she suggested that I get a RX for a blood test to tell whether I have muscle damage. I went for the test Tuesday but haven't received the results yet.

I'm going to change doctors, I don't like my doctor's attitude with me over the Lipitor. These doctors think they're God. When I told him on Tuesday about the 3 months that I felt fine 6 years ago he said that there are other drugs besides statins to lower cholesterol. I don't want to go on any drugs and the non statin drugs can cause intestinal blockage, he got upset when I told him that too. I'm going to try to lower it with flaxseed and fiber and see if that works. I go to Weight Watchers and kept 17 lbs. off for 6 years now, I do try and eat healthy.

I can't believe it cost me almost 8 years of my life in pain. It's even hard for me to get down on the floor with my granchildren, I have to crawl to the couch or chair to lift myself up and I get tired so easily. I just hope I get back to normal.

I'm so glad I found this website and figured out what was wrong with me. I hope my writing helps someone else dignosed with Fibromyalgia and taking a statin.

Thanks for listening.
Marie