July 1th
2008
1:17 PM
I do understand that this medication can be helpful for some people and for them, the benefits out-weigh the side effects. For this reason, I don't think that this med should be taken off the market, but I DO think that we, as patients, deserve to be explained these side effects before we are just injected with such a powerful drug!!
I went in to a walk-in clinic with allergy symptoms that were not relieved by OTC drugs. Nothing super- severe that I couldn't stand, but I was looking for something to make me feel better and the Dr. prescribed Kenalog. No side effects were mentioned/discussed. A nurse came in and gave me the shot. A few months later, I noticed the dent on my left buttocks area. I was very worried because it looked SO bad! The dent has increased in size and depth over the months. My PCP told me that it was most likely from the Kenalog injection but I have an ultrasound scheduled to find out how extensive the atrophy is! She says that it only destroys the tissue and fat but I know for a fact by feeling the area that the muscle underneath is completely gone!! How can this shot be given to patients without a verbal description of possible side effects and a written consent!!
I've read that some people have been lucky enough to have the "dent" go away! How long did that take?? I am only hoping that I am as lucky!!! It is such an UGLY site!! Luckily it is covered by a swimsuit and my fiance doesn't find it as ugly as I do!!
March 13th
2008
2:52 AM
My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona
June 21th
2007
9:14 AM
I received a Kenalog injection in December '06 to provide relief from an allergic reaction. My doctor did NOT inform me of any possible side effects other than drowsiness. Two months later a small dipple formed where the shot was given. I had no idea what it was and just assumed it was a part of getting older (I'm 30). When it began to get deeper, I became extremely worried. It has now been 6 months and the dimple has turned into a very large indentation. I still did not put two and two together and did not think it could have been caused by the steroid injuection. I visited my doctor, the same one who administered the shot in December, to find out what this could possibly be. He said he had no idea!! And even suggested it could be cancer!!!! I came home upset, obviously, thinking I was very sick, possibly even dying!! My sister did some research and found this site, and I am so relieved. But now I am angry at my doctor for not warning me of this possible side effect at the time of the shot AND then diagnosing it as a possible cancer!!! So now I am left with this deformity on my butt and a profound feeling of helplessness. Someone please tell me actions you have taken that have worked, both legally and physically. Will this go away?!?
-- By msjohnson | Reply | (13) replies | Private Message me
October 19th
2009
8:12 AM
Wow, reading this is very scary. I also had a steroid injection about 4 months ago. It is in my lower back/upper buttocks. Now I have an indentation the size of a quarter and pain when I sit down for any period of time. I was searching for what it could be and found this site. My heart just sank. I called my doctor to see what he injected and sure enough, Kenalog. I am so upset about this and feel too uncomfortable to even wear a swimsuit or go to the beach anymore. I am very thin so this huge hole in my butt is very noticeable and people notice it all the time. It looks terrible, and from what I am reading it can get worse! I would love to be part of a class action suit against them, if anyone has any information please contact me with it.
-- By chinniechantel | Reply | (2) replies | Private Message me