August 26th
2009
5:06 AM
26th August 2009 I am at the point of wanting to tear my husband into little pieces, nothing he does is right. My emotions are horrible ranging from angry to utterly furious. My anxiety level ranges between moderate to pounding heart almost panic attack level I presume. I am restless, cant sleep, swollen face, neck, puffed up shoulders, very weird stuff. My eyes are so so puffy I want to cry. My husband was so worried about my personality change he called the doctor who laughed and said that some people get some side effects with Prednisone. OMG why didn't the hospital staff and doctors say something about this when they were pumping the stuff into me? I actually was thinking my life was not worth living anymore.........everyone around me was angry at my bad behavior, which I could not control and still cant. What the hell is this all about, cant they use another drug? D. from Santa Barbara
-- By debbiefromsantabarbara | Reply | Private Message me
June 6th
2009
6:46 AM
I am so glad I found this posting! Hi everyone my names Vanessa..I am 20 years old and was prescribed doxycycline for mild adult acne in Jan..5 months ago...and never knew how much the side effects change someones lives. Experienced: insomnia, nightmares, hot/cold spells, difficulty breathing, paranoid, swollen face and tongue, crying spells, severe mood swings, inability to concentrate, weakness, fatigue, suicidal, shakiness, nausea, vomiting, diarrhea, irritability, feeling outside of my body.....it wasn't until I started to stop drinking coffee and drinking loads of water and exercising..that I realized it was the doxycycline side effects. I would wake up have a good breakfast....and water....than take the pill and start to get blurred vision...shaky..feel depressed. and confused...than I would start drinking more water and trying to sweat (knowing that water flushes toxins out of your body and sweating) and by 2 ish? the side effects subsided...and I could see clear. Today my first day not taken the pill...and from what I read it takes a few weeks to get it completely out of your system. But I get a kick out of doctors who prescribe all of these medications to people thinking it cures things..not realizing that it really can disrupts someones lives who's sensitive to medication.
-- By hikerchic4 | Reply | (2) replies | Private Message me
May 27th
2009
1:53 PM
Started with fever, then rashes, then swollen face, then rashes all over the body, then no taste buds and did not feel like eating. Very tired all the time. Stopped taking the drug after the 8th day when fever and rashes started to appear. Took lots of water after that to try to flush out of system. After 12 days, taste bud seem to be coming back. Skin has started to become flaky and peeling. More like extremely dry skin. This was an extremely bad reaction and can cause very bad side effects. See you doctor as soon as an allergic reaction starts. Blood tests seem to be necessary to make sure the drug hasn't affected other organs. Good luck to any one who has to go through this reaction.
-- By jssako | Reply | Private Message me
March 20th
2009
6:26 AM
my feet are swollen and I feel a lot of water retention......even my face is swollen
.increase in appetite. Like a Hungary Man appetite...along with painful stomach distention
I have been off it for 2 days and my feet still hurt. I feel bloated....I won't ever I repeat ever take antibiotics again...God will have to heal me.
January 11th
2009
2:13 PM
I have ITP, I started out with 60 mg, i am now down to 30 mg. I have numbness,tingling and swelling in the face now. Besides the bodyaches, heart palpitations and stomach aches. Well i was really concerned with my face went to urgent care and they said it probably just the prednisone. So here I am with my big swollen face,numb tingling my ears,neck and jaw with a double chin! I thought it was allergic reaction, sill concerned!
-- By jessy30 | Reply | Private Message me
December 18th
2008
12:52 PM
Hi, I was put on a dose pack today, not sure after reading all the side effects. Has anyone been put on just a small dose pack? Starts out with today i should take 6, tomorrow 5, etc.... till down to one than done. Have major back and knee problems can't afford any sort of weight gain to trigger problems with muskuloskeletal Thanks for any experience or input any of you may have with this sort of dosing.
-- By tlbobb45 | Reply | (2) replies | Private Message me
August 15th
2008
2:18 PM
whole body rash,very high fever,swollen face & neck,over half of body turned purple,face & neck started peeling,chills,cough,headache
I would never recommend this drug to anyone.
PLEASE, PLEASE think hard before letting anyone put you on this drug
God bless everyone
June 22th
2008
4:34 AM
I suffer from cluster headaches as well as several other ailments (Doctors say..."we know it's something we just can't figure it out"...sigh). With my latest bout of cluster headaches they decided to put me on prednisone..60 mg for 4 days...30 for 3 days..etc. until I tapered down. Worked great! Headaches went away and I was feeling wonderful (terribly agitated but physically wonderful) until I went off of it (headaches returned with a vengeance. They immediately started me on a second round of Prednisone at 60 per day. Third day, on this second round, I went to get out of bed and BAM!!! fell straight to the floor. I had absolutely no muscle control below my waist...NONE! Laid there on the floor for about a half hour (trying to get up as I flailed around). Managed to finally raise to a somewhat standing position. Walked (shuffled) down the hallway to the bathroom to try and use the toilet. Went to sit down on it and promptly fell wedging myself between the toilet and the wall...(a disturbing visual). A relative helped me (how humiliating) out from my predicament and we immediately called the doctor. I was told it was not the prednisone but a flaring of my underlying vascular/soft tissue disorder and to stop prednisone. Stopped prednisone, next morning went to get up and low and behold I could stand but I had excruciating pain shooting into my hips, knees and ankles which once again made me fall (from agonizing pain). Day three off of prednisone and the excruciating pain upon rising is better but far from over. Currently, extreme muscle fatigue...so weak my poor little muscles won't even quiver. Headaches are back. Red swollen face...ack!!!...what a nightmare.
-- By intrigue | Reply | Private Message me
June 2th
2008
10:58 AM
im 22. was diagnosed with dermatologist in November. its an auto immune disease...inflammation of the skin and muscles..been dealing with this for like 8 months now. been on prednisone through all of this the whole time. seems like it might have made my muscles better but does nothing for my rash really. i hate being on steroids. i never know how im gonna feel everyday. major mood mood swings. i was on 60mg ive moved down to 20mg a day now. i still have all the stupid side effects. hair on side of face, arms and back..swollen face..acne..and i now have stretch marks..i hate it and cant wait to get off of it. wish i was never on it.
-- By cattyo8 | Reply | Private Message me
May 1th
2008
11:45 PM
Just got prescribed Bactrim today for a URI. I have Chronic Fatigue Syndrome and am very sensitive to ANY medications anyway. THANK GOD I had the brains enough to be cautious and only take a 1/2 of a tablet (I am the butt of many jokes in my family because I am almost medication-phobic due to side effects) but I just took a 1/2 a tablet and 11 hours after taking it, I have a swollen face, eyelids, etc., a bloodshot eye, nasal passages are swollen completely shut, have heart palpitations, and my urine is BROWN. Yes, BROWN. OMG I am not taking another pill, it should be removed from the market. You all know that SOME day, we'll be seeing some attorney commercial on TV asking for people that have been injured/death from side effects of this drug......unbelievable doctors are still prescribing this as I believe they've got to be getting complaints about it all the time. I had a friend that worked for a doctor and she told me that SOME doctors push certain drugs to their patients based on the good "perks" the drug reps give their office (lunches for staff, vacations for doctors, etc) shouldn't be that way but is for compensation for prescribing their drugs more than a competitors. Sad. Pray for me no long-term damage has been done.
-- By princesslori | Reply | (2) replies | Private Message me
March 5th
2008
8:45 PM
My friend has been taking Lisinopril for several years,then suddenly last week she woke up with a swollen face and tongue! Went to ER. When asked what meds she was on, they told her was the Lisinopril. It can happen anytime! They gave her benadryl to bring the swelling down. She was really frighten.
No longer on this bad med!
Maxine
-- By maxine | Reply | (1) replies | Private Message me
January 10th
2008
3:24 PM
I started for MRSA and the first day i got a swollen face, itching and burning. it was horrible. and my eyes went blood shot.
-- By guestuser326 | Reply | Private Message me
January 5th
2008
12:13 PM
Survivors Of Prednisone
Type: Common Interest - Health & Wellness
Description: Many of those with auto-immune diseases such as Crohn's Disease are forced to go on a prescribed steroid known as Prednisone. The effects of Prednisone are terrible. Prednisone creates water retention (puffiness) in your face and torso. It causes severe mood swings. It also causes your hair to fall out. And that is just going on the Prednisone. Once you get off the Prednisone, you then have to deal with the adrenal insufficiency as Prednisone can shut down your adrenal glands.
There seems to be little support for people who have been on Prednisone. They seem to be left alone to deal with the side effects and the confusion and fear that it causes.
This is what this group aims to do:
***
Provide awareness of how Prednisone can and has affected lives.
So if you are feeling down or suffering from crazy mood swings or can't handle looking in the mirror anymore then come and let it all out !
-- By lostris | Reply | (1) replies | Private Message me
January 3th
2008
8:37 PM
wrist, ankle, knee pain. All over muscle pain, have to take Advil to sleep and function. Fatigue, sleepiness, hoarseness, dry cough. Jaw pain, swollen face. Unable to use hands due to wrist and hand swelling.
-- By wholland5 | Reply | Private Message me
November 22th
2007
5:07 PM
Hi guys,
I have written several replies to people on the side effects of Prednisone.
Mainly I have dealt with how long it takes for your body to go back to normal after being on it. This is because i was on it for ten years and have been off it for three and have dealt with side effects and adrenal insufficiency.
I am trying to create awareness for what people go through on Prednisone and also trying to create some support for people out there.
So I have recently created a group on Facebook called Survivors of Prednisone. For those of you who are on Facebook you might be interested enough to have a look and maybe find other people who you can share things with and know that you are not alone. Also I can answer questions if you want to ask me things.
good luck and hope to see you there,
Anne
-- By paperworkfairy | Reply | (4) replies | Private Message me
August 6th
2007
4:27 PM
August 6th, 2007
Ok so I have been taking lisinopril since July 20th, against the advice of my husband who is an RN. He said the side effects were hell and had long term effects. I however was convinced that my physician new better. I have had the weird dreams, night sweats, nausea, horible abdominal cramps. This mornig I woke up with a swollen face, severely swollen tounge to the point I could not swollow and was drooling. My lymph nodes and neck swollen as well. Needless to say we went right to the hospital before I stopped breathing. When I told the doctor what I was taking he said to immediately stop it, as it was a rare side effect of the lisinopril. GREAT Something to cure me almost killed me. After a cortisone shot and a week of prednisone I should be back to normal. Im going to listen to my husband now, eat less salt and excercise more. Valerie from Roanoke VA
-- By amelia96 | Reply | (1) replies | Private Message me
April 22th
2007
1:02 PM
Have been taking Lipitop 40mg for about 2 and half years and then switchwd to 20mg for about 1 year. One morning I woke-up with a swollen tonque and from there it continued- swollen face, lip, eyes, fingers, foot etc. Spoken to doctors and initially nobody even mentioned it might be Lipitor, went for allegy tests on soya, wheat, gluten etc, but after a few months they suggest I leave Lipitor. Has been 1 month now and still getting side- effects. Don't know how long it takes to leave your body or what treatments I can do/take to help now.
-- By jackermann | Reply | Private Message me
December 9th
2006
7:30 PM
I was diagnosed with a kidney disease when I was 14, and was put on prednisone on and off for a few years. After being free and clear for four years, my kidney problem is back, and I am back on the prednisone, 60 mg a day for the past month. My doctor said I can wean myself off and go to about 40 mg a day for the next two weeks, but this is when I used to have relapses in my condition. I am looking for ward to getting off of the prednisone though, my face is so swolen, and I feel like I look like a bobble-head. My cheeks are so full, and I have the worst double-chin. At first, the prednisone gave me so much energy, which was fine with two kids at home, but now I am just irritable and tired. I am starting to gain weight in my stomach now too. This time of year is the worst too, because the prednisone reall effects my immune system. I have to worst cold, and I had to get a flu and pneumonia shot.
The worst part of the prednisone is the swollen face though. There is no way to hide your face. The weight gain in m stomach can be hidden with a bigger shirt, but I can't seem to hide the ound cheeks. I wish I knew how to apply my make-up to hide it, but I can't It's awful!
-- By catherineyoung59 | Reply | Private Message me
December 1th
2006
3:18 PM
I am so glad I found this sight! For all Prednisone users out there...I was prescribed Prednisone for an upper respiratory infection (I had for 9 months). I was prescribed a 21-day 'taper down' course five (5) times; in actuality not all that much...if I had only known what this drug would do to my body! Besides the insatiable hunger and weight gain (5 - 7 lbs. weight gain per course of the drug), the swollen face/neck, muscle aches, double-vision, sleeplessness - I have been through the worst three (3) years of my life since taking this 'drug'! Three years ago, I had the worst knee pain (in both knees). The orthopedists said tendinitis, bursitis, IT band syndrome...finally a new ortho. ordered an MRI and found out I had Stage II Avascular Necrosis (AVN) in both knees. This is a condition where the blood flow has STOPPED reaching a certain area of the body. It is a side effect of this so-called 'wonder drug' (Prednisone). I had the surgery that is used for AVN (Core Bone Decompression) - it did NOT work! They tried other surgical procedures to no avail. A big issue was that AVN in the knee is very rare. AVN commonly strikes in the hip. There was little or no medical documentation on how to treat AVN in the knee(s). A year later, I ended up having total knee replacements in both knees. Last summer (Summer '06) I broke a bone in my pinky finger by barely hitting a wall in frustration over all this. My bones are extremely brittle from this drug. I am sitting writing this after having dental (oral) surgery because I have lost four (4) teeth as a result of this drug! I need over $7,000 in dental work (implants/bone grafting) that insurance does not cover as a side effect from this drug. I realize that some people out there must take this drug...If you have taken this drug, and have pain in your hips and/or knees, please ask your doctor for an MRI (AVN can not be seen in X-ray until end stage - when the joint collapses from lack of blood flow) and see your dentist regularly. I am only 34 years old and if I can reach just one person regarding the side effects of Prednisone, I will sleep better tonight!
-- By lnewman | Reply | Private Message me
October 9th
2006
11:21 AM
For those who become increased in thirst and urinating after taking Prednisone, you might want to check for your sugar level in your urine or blood.
I was recently on Prednisone for 2 days with 60 mg per day (3 pills of 20 mg) and I started to have severe lower backpain. I went back to see my doctor and found out that my sugar (or glucose) level was high in my urine (and the sugar level was same to that of a person with diabeties) and I stopped the medicine right away. I have been monitoring my sugar level for 5 days now and it is still high now especially 1 hour after meal (i.e >200 whereas a normal sugar level should ~ 80-110).
As some of you, I had anxiety, sleepless, swollen face after taking the medicine for 4 days but now these have stopped. However, the high sugar level still remains the problem of concern.
Do any of you know whether the high sugar level is temperoray problem AND how long the sugar level will come back to normal (being thirsty, blurred vision or sensitive to light can be the results of high sugar level).
Please advise.
-- By tu | Reply | Private Message me
October 1th
2006
11:06 AM
I went to the doctor for trouble breathing. I also wanted to take a physical cause I have never taken one. So he just checked me and prescribed me prednisone 10mg 1pill every antibiotics, and an Inhaler.
The side effect was swollen face and neck within the week of taking it. I would take one a day or sometimes I wouldnt take it and vise versa. But It was supposed to be for 5 day wich would be 10 pills and since. The doctor said yeah keep taking it. So this past week has been 6 more.
16pills in total through a period of three weeks and what I feel is
Pain in my left shoulder. Like muscle pain. My breathing problem once in a while. When I dont have anxiety. My face is not swollen, cause when it did get swollen I would feel it.
Well the doctor said after my X-ray exam that I had bronchitis and previous imflammatory disease. but still I dont know what was the problem in the first place.
For this amount of prednisone how Much effect is it going to do?
Because its been 2 days that I dont take it.
-- By liza977 | Reply | Private Message me
April 15th
2006
6:11 PM
Sleepless,
I had terrible insomnia when I was on Yasmin - along with about 10 other things (leg pain, heart palps, high BP, swollen face, to name a few). Anyway, when I had a really bad anxiety attack, they put me on 12.5 Paxil CR(a SSRI) and it made me sick. So, for the past month I have been on 37.5 (the LOWEST possible dose) of Effexor (SNRI) for my anxiety (since depression has been ruled out 100%) that I take at 9:30 at night and I can sleep straight usually 5-7 hours.
I went to a female nurse practitioner and she prescribed the Effexor. I am in my mid 30's, married w/2 young kids.
What she is doing is charting my BP and anxiety during the month and during my cycles to check for a correlation. If the anxiety has nothing to do with the hormones and may go away on its own, she will wean me off all medicines. And... that will be the HAPPIEST day of my life.
Take care and stay well. Try and rest.
PS I also use a sleep CD called delta sleep system. It is a great help to keep me asleep. I use it every so often.
-- By twogirlsmom | Reply | Private Message me
March 21th
2006
12:11 PM
February 19th
2006
11:51 AM
I started taking prednisone in September at 90 mgs a day and I gained 30 lbs in three weeks and was hospitalized for five days. The weight, which was all fluid, came off leaving nice stretch marks on my stomach and my dose was reduced to 50 mg a day. I'm now taking 30 mg a day and will be down to 20mg/day in 9 days. As you can tell, i'm counting the days until I no longer have to take this stuff. My side effects include hair loss (legs), hair gain (face), swollen face, legs & feet, headaches, muscle pain/weakness, increased appetite, hand tremor, rapid heatbeat/pulse, and acne. I think that's everything. That's enough. I use to suffer from insominia but my doctor told me to take my prednisone in the morning rather than the evening and it seems to be helping.
-- By jmoody | Reply | (1) replies | Private Message me
PredniSONE (15) Lisinopril (4) Sulfamethoxazole (3) Doxycycline Hyclate (2) Bactrim (2) Advair HFA (2) Yasmin (2) Levaquin (2) Flagyl (1) Zyprexa (1) Cipro (1) Cozaar (1) Lipitor (1)
November 16th
2009
4:52 PM
In 2007 I was diagnosed with HBP and enlarged prostate at the same time. I was working and had medical coverage with my PCP at Nova Southeastern University. The doctors there are very good. They put me on Terazosin for both. I quickly developed severe rash, hives, swollen face, neck, throat, etc and had to go to emergency. They took me off Terazosin and gave me Flomax for the prostate and Lisinopril for the BP. The Flomax works fine-noside effects that I can tell except decreased semen production. I am a 58 year old male. But I quickly developed a cough and the took me off Losinopril right away and put me on Diovan, which worked great with no discernible side effects. Then I lost my job and had to go to the VA for my medical in January of 2009. Because my medical history included my emergency visit for a severe anaphylactic reaction to Terazosin, they allowed me to stay on Flomax. But I had no such record for the cough caused by Lisinopril. So they insisted that Diovan was too expensive and I had to try Lisinopril. Despite my complaining about the previous experience they insisted. I was given a little pink pill which did cause me to develop a minor cough. But being a good soldier, I decided to live with it. Then in August I noticed that my refill no longer had a pink pill but a larger yellow pill. And that was when the problems started. I first felt like food particles were stuck in my throat and nothing could get them out. That feeling would eventually disappear on its own only to later return. I visited the emergency room several times with severe flu like symptoms, including a severe cough. I also discovered a yellow film covering the back of my throat. And my tongue had a thick yellow coating on it that went all the way to the back. In some places this had strands that extended above the back of my tongue for about a half inch. In addition there were bumps on the top of the back of my tongue. This stuff could not be scraped off. The emergency doctors would examine my mouth and throat, tell me nothing was wrong and refuse to take a throat culture. They scheduled an appointment with ear, nose and throat and then canceled it. Eventually they scheduled a CT scan, which showed nothing abnormal. Finally my PCP examined me and said I had a severe allergic reaction to Lisinopril. So a week ago she took me off Lisinopril and put me on Amlodipine. I'm actively researching the side effects of that and will get off if I see anything I don't like. But my goal now is to find natural substances to treat both the enlarged prostate and the HBP. The yellow coating on my throat is beginning to disappear. Still no difference with the yellow coating on my throat. I believe I have seen slight improvement in the cough, but not nearly enough for my liking. I worry whether I will ever be able to get rid of it. I do have more energy now. Any idea how long it will take to get rid of this cough?
-- By coughing | Reply | (1) replies | Private Message me