July 6th
2009
4:10 AM
I am so glad I found this site. i had the mirena inserted in march of this year. i am having horrible side effects with the mirena. because of this iud my relationship with my amazing boyfriend is completely falling apart. I am angered by him for no reason at all. I make assumptions towards him all the time. I started to realize that i was going crazy when he surprised me with an amazing new car, and all i could do was complain, and treat him like crap. i feel lousy for the way i have been treating him. I have felt that he is the one to blame. I now realize it is the mirena that is making me paranoid, and mean. I am going through a horrible depression, when actually I am a very happy upbeat person. I am tired all the time. I am moody, and I explode a rage of anger on people all the time, from my mother to my coworkers, and my boyfriend. Right now i feel so guilty for not realizing that i have been the problem all along. I also have bad memory loss. which is very unusual for me. I am known for my great memory. My school work suffered because i was sleeping through homework assignments, and class. i am bloated, and swollen every day. I am also gaining alot of weight. at first i was using diet and exercise, but with no results, and weight gain during the diets, I have given up and have been giving into my cravings. for the past month i have thought i was pregnant due to tummy flutters, lack of bleeding, crying a lot, and cravings. after taking a pregnancy test that came out negative i decided to do some research, and found this site. I also have headache, swollen throat, and vomiting. I am a very healthy person so this is also unusual. i am getting acne which has never been a problem, and am also getting back pain. I am calling my doctor in the morning to get this thing removed asap. i can not take these side effects any longer. i just hope that I have not lost my soul mate due to this stupid iud. does anyone know how long it takes for these side effects to stop after removal of mirena? I really just want to be my normal happy self again.
-- By hmpf | Reply | (2) replies | Private Message me
July 6th
2009
4:09 AM
I am so glad I found this site. i am having horrible side effects with the mirena. because of this iud my relationship with my amazing boyfriend is completely falling apart. I am angered by him for no reason at all. I make assumptions towards him all the time. I started to realize that i was going crazy when he surprised me with an amazing new car, and all i could do was complain, and treat him like crap. i feel lousy for the way i have been treating him. I have felt that he is the one to blame. I now realize it is the mirena that is making me paranoid, and mean. I am going through a horrible depression, when actually I am a very happy upbeat person. I am tired all the time. I am moody, and I explode a rage of anger on people all the time, from my mother to my coworkers, and my boyfriend. Right now i feel so guilty for not realizing that i have been the problem all along. I also have bad memory loss. which is very unusual for me. I am known for my great memory. My school work suffered because i was sleeping through homework assignments, and class. i am bloated, and swollen every day. I am also gaining alot of weight. at first i was using diet and exercise, but with no results, and weight gain during the diets, I have given up and have been giving into my cravings. for the past month i have thought i was pregnant due to tummy flutters, lack of bleeding, crying a lot, and cravings. after taking a pregnancy test that came out negative i decided to do some research, and found this site. I also have headache, swollen throat, and vomiting. I am a very healthy person so this is also unusual. i am getting acne which has never been a problem, and am also getting back pain. I am calling my doctor in the morning to get this thing removed asap. i can not take these side effects any longer. i just hope that I have not lost my soul mate due to this stupid iud. does anyone know how long it takes for these side effects to stop after removal of mirena? I really just want to be my normal happy self again.
-- By hmpf | Reply | Private Message me
May 23th
2009
4:26 PM
Thanks everyone here for your comments. I experienced severe insomnia, restlessness, and anxiety while taking Flomax. Also, stuffy nose, swollen throat, and shortness of breath. Since insomnia, restlessness, and anxiety are not widely reported side-effects of Flomax, at first I didn't think that was the cause. Instead I thought I was having a relapse of the major depression that I recovered from 10 years ago, which began with similar symptoms. That scared me! Then I talked to my doctor, and he told me to STOP taking Flomax. I did, and within 24 hours, the insomnia and restlessness are gone. I don't know what our next treatment option is going to be, but it sure won't be Flomax. Flomax had me flummoxed!
-- By sufimike | Reply | Private Message me
September 9th
2008
1:29 PM
HI - I had my Mirena removed yesterday. I had it inserted on Valentines Day 2006 - so 2 and a half years. A week after having it inserted I woke up one morning sweating and shaking like a mad woman....also starting Vomiting and then fainted. I went to my OB/Gyn and he told me that I had a virus and it was nothing to do with the mirena...Hmmm???? In hindsight (yes I know hind sight is 20/20) I have to say I am sure that I didn't have a virus - I think it was some kind of shock reaction to the Mirena - 12 weeks after having it put in I threw my boyfriend out - he just started getting on my nerves!!!....and every month or so I have been getting a severe dry swollen throat they have been getting progressively worse over the past 2 years - once again my doctor told me it was nothing to do with the Mirena, but that I had reflux...or allergies....The reflux medication that I took for a year nearly stopped my natural stomach acid production - so I swelled up (was it the reflux medication or the Mirena?? or Both?) About a year ago I stopped the reflux meds and concentrated on Allergies....at first it seemed to help - I think it was wishful thinking - last month my throat was so dry I could hardly swallow....as I said yesterday I had the thing removed - today my tongue is tingling strangely, but I have a feeling that it is actually trying to go back to normal....here's hoping!!!!
One more thing - I started exercising in Dec 2007....have lost about 5 kgs but for the amount of work I have done, it is nothing. I really hope that now that it is out, I will start to show something for the fitness regime I have been on the past 9 months.
I'm scared of the crash that will probably come on Saturday or Sunday - I started taking 5HTP last week in preparation - I hope it helps.
June 18th
2008
9:23 PM
I'm surprised I haven't seen this one here. After taking 2 sprays in each nostril for a month, I woke up with a swollen throat and hard to swallow. Thinking it was strep throat I went to doc and right away he said, "you have thrush". It was not a fun thing to have, it even went down my esophagus. The treatment for that was not fun either, sucking on big pills 5x a day for a week, they left the roof of my mouth sore. I think the manufacturer should pay for my side effect treatment, I was just an unsuspecting seasonal allergy sufferer.
-- By mrss1ck0 | Reply | Private Message me
May 31th
2008
3:27 PM
I took simvastatin about a year ago and took myself off it because I had really agonizing night cramps in my legs. A different doctor recently persuaded me to take the drug again because my cholesterol was high, but after only two weeks this time I have a swollen throat and tongue and a persistent cough. Last night I had a breathing problem and thought I was going to die - I just couldn't get any breath into my lungs. I woke up every half hour or so in the night, unable to breathe. I'm thinking I shouldn't be taking these things into my body if they have such dreadful effects. Are they common> Does anybody else have these effects?
-- By annemacken | Reply | (1) replies | Private Message me
May 13th
2008
5:41 PM
I am 43 yr old woman and have been on simvastatin on and off for the past 3yrs, it's only since coming across this website that I have actually managed to find a connection between this awful drug and a whole heap of medical problems. The most recent course made me so ill that I thought I had an incurable illness that no one could diagnose, at times I have been in so much pain I thought I was going to die. It started with severe knee pain, I have a little arthritis in the knee but doctors were baffled at why it would hurt so much as x-rays on knees and hips were ok. I ended up having an operation to cut a ligament, that was over a year ago and had been in crippling pain ever-since. Also; foggy head, headaches everyday lasting all day, pain in jaw, shoulders, neck, swollen throat, incredible limb swelling, numbness all down right side, kidney problems, weakness in muscles, aching hips and legs, itching, insomnia, to name a few. I complained to my doctor when I was prescribed 50mg of this poison because as soon as I took it, I immediately felt ill and collapsed from terrible weakness, couldn't even lift a feather. They reduced it to 20mg, and I blindly kept taking it, in the meantime, my leg function was worsening, my back was killing me, I couldn't sleep because of the unbelievable burning in my shoulders, hip, neck and legs, everything hurt so much. I have been in tears from the pain and frustration of not knowing what was happening to me, painkillers, even high potency prescriptions just didn't work. I was a healthy gym-going person with a slightly high cholesterol reading, and suddenly, I was almost crippled, unable to function or look after my family, couldn't even handle simple chores that I had done a thousand times before, couldn't think, speak well, do crosswords, it was unbelievable. I have had ECG's, heart stress tests, been to and fro to doctors, hospitals, specialists, even seen an osteopath with these pains, they must have thought I was a hypochondriac! Finally, I insisted on an MRI on my thigh as it had changed shape as there was a lot of muscle wasting in both my right arm and thigh, and so much pain. A lump had also appeared and was really worrying me. The doctor tried to fob me off and said it was a fat lump, I argued that if it was fat it wouldn't hurt so damn much, so the result of the MRI is that I have a tumor which is getting bigger. If I find out that this is a result of the medication, the gates of hell will open.
I took myself off this lethal stuff immediately as soon as I realized there was a connection between it and my debilitating condition, though it's too late to save my 12 yr relationship, that went down the tubes because I just couldn't function well, oh, and my job. and any chance of working after being ill for so long.
I have been off it just a few days but already I feel almost human again. I know it'll be a while before I can see a marked difference and do some of the things I used to be able to do like walk the dog!! but I am furious with my doctor's and have written a letter of complaint, and have told them that I would rather take my chances with god and be a happy person than ever trust them again. I am in no doubt whatsoever that this drug has ruined the last 3 years of my life and probably caused irreversible damage to my leg muscles. Why take a pill because the doctor said so??NEVER AGAIN from now on everything will be checked via websites like this, I am so disgusted that instead of helping me, my own doctor just prescribed other medications I need not have had because of this pill when all he had to do was take me off it. I find it hard to believe that they don't know of these side effects, or pretend not to, how can they not make the connection?? Absolutely furious. I am in worse health now than I ever was, there should be a serious health warning before this is given to anyone, and the first port of call for any complaints should be the doctors who prescribe them instead of offering alternative solutions. This is a time bomb waiting to explode.
October 2th
2007
1:51 PM
I took this drug before bed one night and within 2 hours I woke up with a swollen throat and tongue. I had to go to the hospital to get a shot of Benadryl for an allergic reaction. I have taken other Robitussin cough syrups before, but this particular brand did not agree with my body. Luckily I did not have hives.
-- By renlowe26 | Reply | Private Message me
November 24th
2006
3:23 PM
The company that manufactures Levaquin is called ORTHO-McNEIL. They have a main website.
I have entered here before also.
I can't believe that so many of us are telling the world here what happened to us taking Levaquin...and NOBODY...is doing anything about this !
These stories are not made up or exaggerated. These stories are telling us that we are being given a poison!
If someone just printed out all of the stories on this board and put them in a book form and mailed it to "all" the newspapers in the country...maybe then this insane denial and non-concern would end! Maybe then the nation would see and acknowledge the massive damage this drug is doing to thousands!
Just read these stories...what more does our FDA have to see before they shut down the administering of this toxic substance?
It's been a year since I took 7 days worth of Levaquin.
I did "not" have the swollen throat and hives and red skin "immediate" reaction to Levaquin. Therefore, my doctors say it didn't damage me. They get angry if I bring up this possibility.
But within 24 hours of taking this drug I awoke at home in the night with burning pain in my shoulders, arms and hands so bad I was calling out. I was so confused. I had never felt anything like this before. My hands would also get cold and go numb.
My insides went haywire this first time too. My bladder would feel the urge and then not. I was feeling wincing sharp pains all over. I could not sleep except for a short nightmare type thing. I was anxiety ridden. Shaking inside and out. My legs felt weird. My sensitivity to cold became unbelievablely extreme. I was freezing.
Next morning my stomach went into literal shock with pain and I had to call an ambulance to go back to the ER as I was seconds away from passing out. The weakness? So bad....let me repeat that...SO BAD that I could not lift my hands while laying down! My entire body felt like it was going to die.
I could not walk, legs so weak and body shakey, and feeling so unbalanced. Crying with pain and anxiety and just unbelievable crashing of everything. Lost 35 pounds in 2+ months! Couldn't eat. Metallic taste in throat. Still have most of these symptoms after 1 year! Sorry to tell you all this last point.
Since all my tests "supposedly" haven't shown anything that would explain these most extreme conditions...I have been relegated to the psychiatric area almost totally.
Yes, my nervous system has been effected...damaged.
Yes, I get so anxious and depressed and scared and frantic at times with my suffering and non-treatment and adversarial treatment. Have lost my self-confidence of my body.
My regular doctors have found ways to dump me or schedule me so infrequently they are really out of this situation.
It is like living in cold war Russia. I have made too much protests against my regular doctors refusal to consider levaquin...and now my record is full of psych visits. Once you have these on your record. Let me tell you...most new doctors eyes get real big when they first see these. They label you immediately and silently to themselves as a "problem" case. Your care is different because of this. It's an incredible injustice and almost Kafka'n in it's implications.
But that's just one of the "levaquin" poisoning problems. A medical community refusing to acknowledging it...and if you protest to much to their view...you will be sent off to the psych ward.
54 years and I never saw a psychiatrist in my life. 54 years and I never ever had a problem with drugs, alcohol, the law or even in my first and still on-going 25 year long marriage. I have raised two responsible kids...both working and in college. I had a wonderfully social job as a hotel concierge that I loved for 5 years previous to this "levaquin" poisoning.
But with this case, my normal past means nothing. I am just all of a sudden a nut case for complaining too much about my belief that Levaquin did this to me. That Levaquin destroyed me. Especially since the doctors say they can't explain why I got so sick and I am still so sick. I still feel like I am going to die almost every other day! And it's been a year.
Also, my statute-of-limitations one year period to sue the hospital that gave me this drug ( and never ever told me to quit taking it even after I came rushing back to them with these incredible, unprecedented symptoms just 1 or 2 days after they prescribed it to me and were told it was the only medicine I was taking ) and the drug company that manufactures Levaquin ( Ortho-McNeil ) are almost up.
Not one lawyer I have contacted out of maybe 50 will even consider taking this case. They say it's too hard to prove, drug companes can ruin them they are so rich and powerful and that Bush has limited suit awards to 250,000 dollars and they would need a lot of this to prove you have been damaged!
They say if my liver failed and I died and I had never had liver problems before I took Levaquin...that they would then "consider" taking on a case like mine. But as long as I am alive I haven't got a chance.
I wrote to Ortho-McNeil and told them their product Levaquin has destroyed me and I asked for their financial help with my tens of thousands of dollars I owe in medical bills as financially I am also ruined. I also asked them to help me finanically get more specific, technical tests done beyond my small ton area. Never a word back.
-- By jb7th | Reply | Private Message me
August 20th
2006
5:16 PM
I had an afib attack a few years back & was diagnosed w/WPW. Had catheter ablation...afib returned 1 year later. I am now on flecanide for rhythm & toprol 25 for heart rate/bp for the last 9 months. Over the last 3 months, I've been getting attacks of a swollen throat that are getting more severe every week (cardiologist, pulmonologist, e.n.t., gastroenterologist, er docs all have no clue!). I feel that it is probably angioneurotic edema that has been brought on by the beta blocker (has been linked to ace inhibitors as well). I'll post back in a few weeks after being off of Toprol (cardiologist approved). BTW...I am only 36.
-- By ericd | Reply | Private Message me
March 8th
2006
9:35 AM
I had bronchitis, they gave me something called a "dosepack" which was steroids, it did terrible things to my voice... swollen throat, croaking, almost laryngitis.
With advair, it's just a swelling in the throat, but it's annoying enough that I want to reasearch alternatives.
-- By guest | Reply | Private Message me
December 8th
2005
11:00 AM
I WAS STARTED ON 40 MG OF LINSOPRIL AT FIRST-WITHEN THE SECOND DAY I BEGAN DEVELOPING BAD SIDE EFFECTS, SORE THROAT, NO ENERGY,VERY DEPPRESSED, ANXIOUS. IT TOOK ME A WEEK OR SO TO FIGURE OUT WHAT WAS DOING THIS TO ME I FINNALY LOOKED UP SIDE EFFECTS OF THE MEDICATION ON THE NET AND DOZENS OF PEOPLE HAD THE SAME SIDE EFFECTS, I QUIT THE MED AND WAS FEELING BETTER THE NEXT DAY, DOC THEN SWITCHED ME TO LOTREL A COUPLE WEEKS LATER AGAIN SAME SYMPTOMS BUT WORSE IT BROUGHT MY BP DOWN BUT MADE MY PULSE SHOOT THROUGH ROOF, NO ENERGY AGAIN, SORE AND SWOLLEN THROAT, SWEATING PALMS AND FEET, BLUE ANKLES, I AGAIN QUIT THIS DRUG AND IM ALREADY FEELING MUCH BETTER, I THINK THAT I MUST BE ALLERGIC TO ALL ACE INHIBITORS OR ARE THESE JUST THE NORMAL SIDE EFFECTS? ANYONE HQVE SAME PROBLEMS?
-- By bhick01 | Reply | Private Message me
August 26th
2005
1:05 PM
I'm a 30 year-old female. I've been on Lisniprol for almost four years. And these four years have been the worst of my life. I've had test after test and seen dr. after dr. trying to figure out what is wrong with me. I have a terrible cough, my face gets hot and I get the chills (kinda like the flu), I'm very achy with pain in my legs and back, headaches, confusion, memory loss, sensitivity to heat/cold, swollen throat, very tired. Chest pain and trouble breathing (wore a heart monitor and had stress test, but everything was normal). Heart rate is rapid. Gained a lot of weight in the last three years. Everything test-wise always came back normal. Saw an OB/GYN to see if I was premenopausal; nope. Had an MRI and CT for the backpain; nothing; Labs done to rule out throid disease; nothing. Saw a neorosurgeon for possible nervous system disease from so much pain. Nothing he could do. Went to allergist for possible allergies; nothing. Oh....but wait..I go to the dr. today to tell him I'm still not feeling better and that I ran acrossed some information on the web about possible side effects of the bp pill Lisinopril and that I still recall that I started experiencing side effects about the time I started the medication of 10mg. Then when he increased it to 40mg, I really felt terrible. He looked back through my labs and saw that an allergan level had been very high in my CBC. He said, "bingo, you must have an allergic reaction, or maybe a perisite". He said this CBC is done on a normal blood test and will show elevation if the body is trying to fight off an infection or has an allergic reaction to something. So...went off the BP pills today. I'll keep everyone posted. My email is ****** if anyone wants to email me with similar situations.
-- By dgreenlee11 | Reply | Private Message me
August 9th
2005
3:38 PM
I've taken lisinopril for a couple years. A few weeks ago I started having problems with swollen throat and nasal voice. It quickly progressed to swollen/numb/tingly face, tongue and lips. Also, the skin on my chin and around my mouth is somewhat bumpy as well (numerous small skin colored bumps) and sometimes the skin in that area will feel like it's on fire.
After a couple weeks of these symptoms my doctor decided it was a reaction to the lisinopril and took me off. She thought it would take 2-3 weeks for the medication to get out of my system (I see from some of your emails that that number may be a low estimate). It's been almost 2 weeks and I see absolutely no improvement (may be somewhat worse actually).
I've seen some warnings that lisinopril may make a bad allergic reaction more likely. What I'm starting to wonder is if I have a different allergy (food, etc) that lisinopril may have been making worse. Has anyone had an experience like this? My doctor doesn't want to do anything else until I hit the magic 3 wk point, but I'm completely miserable (difficult to talk or eat) and can't imagine spending many more weeks like this. If she's on the wrong track then we'll be starting over at that point...
-- By kathleen.hines | Reply | Private Message me
February 16th
2005
1:21 PM
I, too, am a recent "victim" of Levoquin. Went to the doctors on January 14th with swollen neck glands and generalized physical weakness. Thought that I had mono but a quick culture revealed a strep infection. A RX was written for Keflex. I insisted on a 24/48 hr. culture and sensitivity. Thirteen days later my doctor phoned me at work (without a doubt I should be looking for another Practice!!) and said that the strep would not respond to Keflex but that it would respond to Levoquin. My lucky day! This was the beginning of the end. So, for the first ten days of this infection I was on Keflex. Then seven days of Levoquin 500 mg. daily. A repeat culture done on February 10th still revealed Strep. Way to go Levoquin! Now I am on a twenty day course of Levoquin 500 mg. daily (the doctor refers to it as a nuclear bomb). No kidding, Dick Tracy! Shoulder pain is unrelenting, joint pains all over, glands are still swollen, throat is swollen, ears ache, do not sleep.... even with the aid of Ambien, AND, my eyelids are scalded. A new side effect for this medication? This is day seven of this round. I don't know if I will make it to day twenty. I am still waiting for a return call from my doctor. Help! How in the world can a medication that causes so much harm be good for you? I would love to see the test study data on product.
-- By apapula | Reply | Private Message me
November 28th
2004
12:25 PM
My 16y/o daughter was prescribed Guaifen DM for a sinus problem. She took twice on the first day, the next morning she took one, went to school and at 10:30 I got a phone call at work that she was on her way to the hospital by ambulance for a severe allergic reaction. She had a severe rash all over, tremors (almost like a seizure), swollen throat and tongue. It took about 4 days for the tremors to go away. Ten days later, she experienced another bout of extreme tremors, we went to the Emergency room where the ER Doc said that there was no way that those meds were causing her problems. Now they want to do a MRI and an EEG. I really think that this med is extremely dangerous and has caused all the problems. How long has it been on the market??????
-- By paraleg2b | Reply | Private Message me
August 5th
2004
2:35 PM
My doctor gave me a 250 and then the 500 inhaler, not for athsma but just a bad cough and lung congestion. I have had a swollen throat/hoarseness since then (3 weeks ago). It cleared up my conjestion but I wake up at night choking and unable to breathe. Thank god for this website. I will not use this unhaler again.
-- By nrivers | Reply | Private Message me
Mirena (3) Lisinopril (2) Advair HFA (2) Simvastatin (2) Levaquin (2) Guaifen-C (1) Nasonex (1) Flomax (1) Macrobid (1) Robitussin PM Cough & Cold (1) Toprol-XL (1) Lotrel (1)
September 14th
2009
8:30 AM
I was prescribed Macrobid for a suspected bladder infection. After the first dose, I was so exhausted I could barely move. My kids were with me, and I basically passed out on the couch. I felt drugged, but did not know why and couldn't rationalize that it was from the medication. So, I took my second dose--which was a big mistake. The headache can best be described as a hatchet migraine, followed by vomiting and nausea, swollen throat and dizziness. I stopped the medication two days ago. The headache and most other symptoms disappeared within 24 hours after I stopped. THE WORST MEDICATION EVER. The lab came back that I didn't even have a UTI! But now I do--thanks to Macrobid! DO NOT TAKE MACROBID. The FDA should take it off the market.
-- By ahenslee | Reply | Private Message me