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Sympathy symptoms and conditions

Here are side effects posted by other members, that mention sympathy.
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100 Side Effects posted for sympathy

June 12th
2009
3:56 PM

I'm fed up. About 4 years ago I had a complete thyroidectomy and OMG my life has been a mess ever since, Yes, I needed the gland removed (it was a goiter pressing on my air way and esophagus), it needed to come out but OMG what a nightmare. Synthroid is a drug I can't figure out. I am convinced that this has ruined my life. I have developed chronic/non-stop head pain and pressure. My B.P. has gone up and now I'm on B.P. medicine. (still have severe head pain). It just never leaves me. E.R. visits/hospital stays and on and on. They treat me like I'm a complete lunatic because they can't seem to find anything organically wrong with me. Ummm-it hurts(my head). I am starting with a new Doctor who is a D.O. rather than an M.D. and I am praying that he finds what the **** is causing my pain. I feel like crap. The T.S.H. is in normal range but I have learned that the T.S.H. is not everything (even though my thyroid is gone). The isiots for lack od better description, are just too lazy to go the extra minute to find out what is wrong here. I just want to be able to function and this head pain will not let me do that. It is a nightmare and I have nothing but sympathy and empathy for anyone who suffers with pain on a daily basis.

The only constant is the Synthroid. Maybe I can't take this stuff. It has to be that my body just can't tolerate it and need something else or T3 added (I don't know). I just pray that this new doc can figure it out because I feel so helpless with this. My pain is always there squeezing and pressing. It is horrible. Maybe Synthroid is the culprit. Good luck to everyone.

-- By levels | Reply | (3) replies | Private Message me

June 3th
2009
2:17 PM

I'm sitting here in tears reading all of your posts because I've also been on prednisone and have horrible side effects. I was diagnosed with metastatic breast cancer in my lungs in June of 2002 and, after starting at 60 mg/day then, I have been on 20 mg/day for years now. The very first posting that I read mentioned problems with the femur bone. Besides all of the other problems associated with this devastating drug, in December, 2007, I broke a bone in my left foot with no known cause for it. Then I started experiencing pain standing or walking in my left leg and was diagnosed with a fractured femur bone and after several months of trying to get it to heal (including an ultrasonic bone healing system), it just kept getting worse until an orthopedic surgeon recommended that I have a 16 inch rod put into my leg which I did and it ended up to be one of the worst decisions that I have ever made. After experiencing all of the prednisone side effects for almost seven years including depression, severe fatigue, weight gain, moon face, thin skin, cataract surgery on both eyes, hump on my back, mood swings, etc., the pain and suffering that were caused by that operation brought me to seriously consider suicide. I was also diagnosed with chemical neuropathy in both of my legs also which makes my legs so weak that I have to crawl up any steps and have trouble just standing. I actually have an appointment for this evening to have an x-ray done to see what is wrong with my knees and did not realize that this also is yet another side effect. I never make it through the night without waking up in pain and getting a pain pill and then getting up in the morning is almost unbearable with that "burning" pain. I am now on Cymbalta for depression, Xanax for anxiety, Percocet for pain, and of course 20 mg of Prednisone. I was told that I would have to remain on Prednisone for the rest of my life because of the lung scarring and COPD. After reading all of your comments, I have decided that I would rather put up with any breathing problems (and I don't even know how slight they may be at this point) than to remain on the Prednisone. I have tried weaning off several times but get so fatigued that I can't move and that's dropping one mg every week. I'm affected by the decrease but it gets out of hand when I get to 14 mg and I get so frustrated and depressed at not being able to do anything that I just go back up to the 20 mg/day. If you have been able to wean off of it, would you please let me know how you did it and what you had to go through? I'm 65 years old now but I have two wonderful granddaughters (ages 4 and 6) who I can't do any normal "Grammy" things with anymore at this point and I have to change this condition for them and for me. Obviously, the doctors don't recognize the severity of the drug because they just keep prescribing it and out of a regular doctor, an oncologist, an orthopedic surgeon and a neurologist, they can't seem to get together to come up with a solution. I have to say that I haven't considered suicide lately but I do wish that I would just die and be out of this pain. My family and definitely my granddaughters and wanting to see them grow up are the only things that keep me going. There are probably things that I'm forgetting but I'm sure that one of you have covered it in our posting. Although my family is so supportive, no one and I really mean not one of them, realizes knows what we all go through because of this drug. How could they know that something that is supposed to help you could cause these problems? My life is a living hell, all because a pulmonary doctor prescribed prednisone seven years ago and I trusted him to only do what was right without informing me of what was to come. I more than sympathasize with all of you. I sincerely appreciate the time that you took to post to this site and so thankful to know now that this knee pain is not something new that I have but another side effect of the prednisone. I wouldn't have known that if it wasn't for this site because I'd be willing to bet that after I would have had this x-ray done, one of my doctors would have just prescribed another medication to take. Please feel free to contact me directly with any comments or especially any help that you can give me. I know that all of you are going through the same thing so if I can do anything for you, even just listen and understand, please contact me also. Sometimes that's the only thing that people can do is to listen and someone who is in the same situation can always understand. I'm here for anyone who needs a hug for the day.

-- By karen122275 | Reply | (2) replies | Private Message me

March 24th
2009
10:00 PM

I am 62 years old and I was taking Lipitor 10 mg for the last 5 years in New York. When I moved to California the new doctor switched to Lipitor 20mg and I started to have strange side effects. After a pause of two days, I restarted and the symptoms were worse: my muscle in the upper arms, and my calves were hurting and week, my back ached, my head was empty nad I felt dizzy all the time.
I stopped two days ago and today I had blood in my urine. What's happening? should I go on any medication at all to lower my cholesterol? My new test was: 179 Cholesterol
HDL 71
LDL 95
I am too scared to start any other drugs like Crstor or Niaspan as I was recommended.
Please advise,

-- By lilia | Reply | (7) replies | Private Message me

January 21th
2009
12:18 PM

I definitely have sympathy for everyone here! I have had Mirena since June of 2008 and made my appointment to have it removed today! I will not be able to have it removed until Feb. but I am counting down the days!
This thing, this foreign body inside me is tricking my body into thinking it is pregnant, hence that is how the light or no monthly cycles!
I have become severely depressed over the last month. Someone can look at me and I can start crying. This thing messes with our natural hormones! I feel like I have a lot of anger built up in side me and I keep thinking what is wrong with me?!?
Not to mention I have put on about 15 pounds and I look like I am 6 month's pregnant -- which, I am not! I have never in my life had problems with a tummy! NOT even after having 4 kids, until now!
I told my husband I was getting it taken out and the sooner the better. He said, it can't be good for your body -- we are messing with Mother Nature here!
I researched and researched before I decided to have it inserted. I never found anything negative when I put "Mirena" in the search engine. I started finding negative things when I put in things such as: weight gain and mirena or depression and mirena. How was I to research weight gain or depression if that is not even listed as one of their side effects!?!
The only thing positive that has occurred is I now have boobs!:)
I cannot wait to get this thing taken out.

-- By mushymom | Reply | Private Message me

January 6th
2009
12:30 PM

My daughter is 11 years old. In Nov 08 she received her first Gardasil shot, she did okay at first just some very mild tenderness at the injection site. Just two days ago, she was just lounging around the house and a substantial chunk of her hair fell out! Of course she was devastated and I immediately called her pediatrician. The on call doctor did not seem concerned and didn't' provide any useful information so I took to the internet. I found photos of Alopecia Areata that looked EXACTLY like the bald spot on my daughters head, same shape and size. I searched for a couple days and racked my brain trying to figure out what caused this to happen to a healthy, athletic 11 year old, then I found this website. Although none of the other sites even mention hair loss as a side effect to Gardasil, I now realize that it has occurred in many. I am connived it was the Gardasil that caused this.

-- By ggill78 | Reply | (3) replies | Private Message me

December 25th
2008
1:47 PM

Today is Christmas day 2008. And a Merry Christmas to me ha!!!!!!!! I was given a prescription for the drug Levaquin on the 19th of December for a suspicion of pneumonia. The x rays done at the hospital found no evidence of pneumonia but my doctor wanted me to take it anyway because since I have asthma and my lungs sounded so bad I was told that I was at risk for developing any secondary infection that was out there. My husband filled the prescription on the 20th which was Saturday, took the first one of a seven day supply 500 mg tablets. About 4 hours after taking just one pill was awakened by severe and agonizing pain in both of my feet and my knees that I was writhing in pain. Since I have nerve damage in my feet anyhow I know what the pain that I normally experience feels like and instantly knew that this was not normal for me. When I thought that I finally might be able to walk I hobbled into the kitchen and dug the list of side affects out of the garbage (stupid me had not read them first.) I discovered that it was one of the side affects. Called the on call doctor in the morning since it was on the weekend and he stopped it immediately and put me on something else. I only took that one pill and since Saturday night every night I wake up in agonizing knee pain and I have never had pains in my knees before. The pain is so bad that I feel like I am ready to go on a morphine drip, or cut my legs off above the knees. Six days now from one pill, how much longer can this go on? I really feel bad for the people that contined to trust their doctors and continued with the full course of the medication and I realize that what I am experiencing is minor compared to what others are going through. This drug should come with a handout that says: Take this drug at a risk to your health!!!!!! Last night the pain lasted all night and I cried all night. Have to get through this day am entertaining for the holiday and have had no sleep. Actually getting afraid to go to sleep at this point.............D.

-- By debbie___2929 | Reply | (5) replies | Private Message me

December 13th
2008
9:24 PM

My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child.

Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!!

Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...).

There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it.

BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)

-- By nomeds2 | Reply | (5) replies | Private Message me

October 4th
2008
3:00 PM

As a Doctor myself I think drugs are NEVER the answer except in EMERGENT issues in Heroic life saving... YOU however and all individuals are and should be MORE accountable for your own health and STOP DEMANDING the Drugs and look to LIFESTYLE changes in DIET and EXERCISE to achieve the GOALS so necessary for quality and quantity of life.... The tools are at your fingertips ... The almighty internet ... And your OWN imaginative mentation is your TRUE limitation... So TAKE control of yourself and BE accountable .... Sorry so blunt but MORE tough love and Educating people is whats needed.... NOT more drugs....

MDG

-- By traumaerdoc | Reply | (28) replies | Private Message me

August 27th
2008
9:19 AM

okinawak so sorry to hear about your daughter. All I can relate to you guys is my personal experience. I was on Norimin for a couple of years from the age of 19. For the last year (up until a couple of months ago) I was on Yasmin. I experienced anxiety whilst taking these pills which I attributed to stress, but since I have been off the pills I am feeling fantastic. I stopped taking Yasmin because I was experiencing other things like pains in my calves, hair loss and getting spider veins, loss of libido (I'm only 23). :-( I decided upon reading other experiences on this page to stop taking Yasmin. I am happy to report back that I am feeling great... Fantastic in fact. I won't say that its directly related to Yasmin as I have no way of proving that. All I can say is how I felt during and after. And for the last three months I have felt greater confidence in my ability to deal with what life throws at me. I am feeling happier all the time, and I think my libido is improving. All the best to you guys, and all those out there worried about symptoms, please go see your doctor!

-- By sunnygirl | Reply | (1) replies | Private Message me

August 12th
2008
5:35 PM

I have now finished my fourth month on Loestrin 24Fe. Still no period. Prior to being on it, I was on Seasonale--now, sure it's great not getting your period for 3 months, but that is another side effect page! Since switching to LoE24, for the first 2 months I had CRAZY mood swings and 6 out of the 8 signs of peri-menopause (I'm only 37). I did find out that Seasonale has a higher dosage of hormones and LoE 24 has less.

When I first switched, I LOVED the Loestrin--it made me feel so much more alive and like me again from the Seasonale. After two weeks, I started the "yogurt-like" discharge that went on for two months--no, not a yeast infection or anything, just weird hormonal stuff according to my doctor. After the two months, the discharge and the major mood swings went away all of a sudden, I was just fine one day and those symptoms have gone. Still, no period...it's been four months and 6 pregnancy tests. Now, I'm still a little moody but I'm not sure if it is pill related or frustration at not knowing what is wrong.

A girlfriend of mine loved this pill, so I guess everyone is different.

-- By pinupgirl | Reply | (3) replies | Private Message me

August 4th
2008
2:38 PM

hi all. thanks for writing your comments here. it has helped me today, another HORRIBLE day of prednisone hell. i have been seriously ill for 8 months been told ever other week I'm likely going to die from lung disease (i'm 35) and after a painful lung biopsy have been told my lung problems are almost all reversible... after a year on high dose prednisone. i was on 40mg a day for a month a while back and was so out of control from rage and crying and insomnia and panic/suicidality, ravenous appetite, that they lowered me to 30. then after biopsy they said i should be on 100mg to cure me, we settled at 60mg. it's been 24 days. The moon face started about one week in. i've gained 8 lbs. i am an emotional wreck. i have at least one rage filled attack per day where i am screaming and want to kill somebody or destroy something. some days i am so filled with hopelessness and worry i just want to die. my body changes (after just losing 30 lbs and being a work out fanatic my shortness of breath makes it impossible to walk up 2 flights of stairs without resting) face changes, acne, excess body hair (oh my god please make it stop i'm like a chia pet and i'm so afraid it is going to get worse) double chin, puffy eyes and cheeks, absolutely uncontrollable emotions and mood swings, inability to be logical or reasonable. i don't want to leave the house, i'm panicked and scared all the time. i never sleep. ambian gives me minimal relief (just started taking it) i feel like i'm losing everything, except my lung functioning is returning and i'm not going to die from this illness (they assure me THIS week) i understand light at the end of the tunnel, but living like this is unbearable most days, almost impossible the rest of the time. am i alone with the severity of this? or are all the others like me too busy hiding the sharps and crying in a corner to write on this board? thanks for listening :)

figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.
figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.

-- By sobbinghulk | Reply | (8) replies | Private Message me

August 3th
2008
10:07 AM

I think Fosamax KILLED MY MOTHER. My mon was previously healthy with no known medical problems. No hypertension, no high cholesterol, no diabetes...nothing. She was taking Fosamax for osteoporosis prevention. She developed an acute liver failure. There was no viral, bacterial, or cancer linked to this sudden onset of liver failure. She received a liver biopsy and within one week was dead from bleeding from the biopsy site. I have recently found some journal articles linking Fosamax to acute liver failure. MY HEART IS BROKEN. Do not take this drug without doing in depth research on its side effects and discontinue it immediately if any side effects occur. God Bless.

-- By drmom | Reply | (2) replies | Private Message me

June 16th
2008
5:59 PM

I had many of the same problems (as jssrabbit) which were a result of Lupron injections. I did not lose my job, but easily could have had I not been there so long. I did wind up taking a leave of absence. My doctors kept saying that they didn't know what was wrong with me, and that my severe muscle pain, joint pain and fatigue weren't known side effects. My life drastically changed as a result and I am still trying to recover emotionally a couple years later. My sympathy to all who have had these horrible problems. I understand that many people can take this with minimal problems (my father was given for cancer), but people should be aware of the potential for very bad side effects and be allowed to make an informed choice. It can have a huge impact on your life.
BTW, I'm just curious, do any of you who have had bad side effects have a thyroid disorder? I'm pursuing a theory - I am hypothyroid and wonder if that affected my outcome. Best of luck to all -- skrrks

-- By skrrks | Reply | (1) replies | Private Message me

June 10th
2008
8:54 PM

I had surgery in August, 2006 for Endometriosis, and a Lupron injection 2 wks later. That one injection changed my life. Even though it was a year and a half ago, I'm still feeling the effects. Which is what brought me to this site -- I'm searching for an answer.

These were/are my symptoms:

-- I experienced immediate and increasing hot flashes that lasted for nearly 6 mos.

-- Extreme fatigue and the "activativation" of Epstein Barr Virus. I started sleeping 18-20 hrs/day and lost my career job because of it.

-- Cognitive dysfunction, memory loss, loss of concentration, etc.

-- Blurred vision (and I have otherwise perfect vision!)

-- To date, I have gained 40 lbs that will not budge no matter what my diet!

-- I have severe muscle weakness and burning (such as if I go up a
flight of stairs). Muscle atrophy and stiffness.

-- My joints (hips, knees, feet) hurt and I have a lot of back pain.

-- I have TMJ quite badly and it causes my arms to go numb.

Last year my doctor ordered a hair analysis for heavy metal poisoning -- and my levels were off the charts. I've read that Lupron is suspended in thimerosol, or mercury, and that raises a host of issues that I'd like to research, if anyone has info on that.

Today, I am doing much better in terms of being out of bed and active, but I am unable to lose the weight, despite an organic, all natural, gluten/dairy/sugar/corn/soy/caffeine/etc. free diet! My belly is always bloated and big.

I am really active, but I tire easily and still haven't been able to get over that "hump", as it were, and really exert myself. Before my surgery and the Lupron and the EBV, I was an avid dancer. It is my passion and I can hardly do it at all now. I cannot swim a full lap in a pool without my leg muscles burning.

I have read of some people having good experiences with Lupron, but I have read far more horrifying ones. Part of me doesn't want to accept that Lupron is the cause of what I'm experiencing...could it really be that simple? And part of me is happy to shed the burden of guilt that "I must just not be trying hard enough" in exchange for an outside cause. I guess research and knowledge is the best medicine in this case. =}

-- By jssrabbit | Reply | (1) replies | Private Message me

March 23th
2008
5:16 PM

I am 57 years old, and never had HBP, I went to the cardiologist and told me I have 140/80 and prescribed Toprol XL 25mg. I bought the generic ones. Today is my second week and I did not know that my headaches (never had headaches before), electric chocks ringing ears , breathing problems, were a side effect of this pill until reading all these experiences of so many people. I am going to cut half the dosis and lower it, so I get out of this medicine. The doctor made an EKG and gave me Toprol because my left atrial was big due to untreated HBP. Is there any natural product, better than this killing medicine, please advice.

-- By marviech99 | Reply | (3) replies | Private Message me

February 29th
2008
8:42 PM

Wow. Thank god for this Bulletin! I was diagnosed with hypertension at age 28
and tried a variety of drugs with no control over the BP. So, about 2 1/2 - 3 years ago, I was prescribed 100MG of Toprol XL which seemed to control it well, but with debilitating long term illness. I had no idea until today that Toprol XL was causing similar grief to others. The horrible symptoms that I have been experiencing now for several years are Extreme Chronic Fatigue, Profuse Cold Clammy Sweating, Dizzy spells, weight gain, seeing specs of light and thousands of eye floaters, severe depression, muscle aches, headaches.

After reading about others with similar side effects, I am confident that it's from this medication. I have had all kinds of testing done including T3 & T4 Throid levels and a full array of blood work with NO LUCK! Regardless of the consequences, I am going to quit this damn medicine today because it appears to take 5 weeks or so to get it out of the body to notice a difference. I am so desperate for change. It is ruining my life because I can
't wake up, I'm always tired even though I get 10-14 hours of sleep. My wife and kids are bummed because I have no energy to do anything, EVER!

If you have any other suggestions or would like to comment about this.

Sincerely,

Sean

-- By seand777 | Reply | (6) replies | Private Message me

February 23th
2008
11:59 AM

My 16 year old son took Levaquin 6 months ago and had a bad reaction to it. His symptoms were severe muscle weakness (he would get exhausted walking from the parking lot to a store and back, severe joint pain (in thumbs, wrists, elbows, knees, and ankles), dizziness (he felt like the room was moving away from him and would lose balance), and headaches (a severe pressure in the back of his head that was constant and then shooting pains in his his head that would come and go for no reason). I should say he was in top shape before this and wrestling in the 125 pound category. He took Levaquin to prevent an infection after sinus surgery.

Now 6 months later, his joint pain is completely gone except for his knees. They still hurt when he does squats and they are not good enough for him to go back to wrestling, but he can walk around pain free. His dizziness is also gone as well as his muscle weakness. His headaches are still there and still constant, but not as bad as they once were; however, he has had them 24 hours a day, 7 days a week for 6 months. He is on Lyrica which has helped make the headaches subside.

I have taken him to more than 16 medical doctors of all specialties, had multiple MRIs, CT Scans, blood tests, spinal tap, and an MRA. All come back negative. Thankfully, despite all of this, he still remains happy and positive that he will once again be 100% healthy; it will take lots of time, but he will get better. I know the first three symptoms (joint pain, dizziness, weakness) are clearly Levaquin related, but I haven't heard much about the headaches from people. Anyone else out there that has suffered from a constant headache after Levaquin? I REALLY want to hear about headaches from others!!!!

By the way, we have filed a medwatch already. I also know that Levaquin is not approved for anyone under 18 years old and he never needed such a powerful drug to prevent an infection, but there is nothing I can do about that now except to warn others. One of his UCLA doctors wants to write a case study on him to make this more known to others and I am helping him with that.

If anyone has questions, please feel free to ask. If you have had a headache from Levaquin, please let me know where in the head the pain was, if it is constant, what it feels like (pressure, shooting, throbbing), how long you have had it, and what, if anything, helped. THANKS.

-- By martinsmom | Reply | (13) replies | Private Message me

June 8th
2007
3:31 PM

I have been on Yasmin for only 4 days and couldn't take it anymore. At first I was willing to give it a chance but it seemed like every day my nausea was getting worse and worse. I was constantly in bed if I wasn't vommiting and couldn't eat/sleep/work/or go to school I was so sick to my stomach and miserable I had no choice but to stop after only 4 days. I felt extremely dehydrated too because I couldnt even keep fluids down. I'm starting to feel a little better since I haven't took it today and after reading some other messages I'm glad I'm stopping when I am; before everything gets worse. I just didnt think it agreed with my body, because I have took birth control pills before and never been through hell like this. This should definitly get off the market and my sympathy goes out to all those who had suffered from this.

-- By asd827 | Reply | (1) replies | Private Message me

April 14th
2007
2:42 PM

In January I was diagnosed with polymyalgia rheumatica and temporal arteritis (giant cell arteritis). I was put on 60 mg prednisone and an array of other meds to help with pain, inflammation, water retention, and stomach problems from everything. I've lost some vision from the TA. I've experienced the weight gain, the moon face, stomach problems, depression, fatigue, muscle weakness, lack of memory and concentration, and generally feel miserable. The brain fog is awful! I don't trust myself doing much of anything these days!

When I was first put on the prednisone it completely took away all my TA and PMR symptoms. I could walk and get up and down again, didn't have the headaches, and didn't hurt all over.
My doctor tried to taper my dosage about 6 weeks ago and all my symptoms returned and increased as I went down on the prednisone. He upped me back to 60. That time the symptoms didn't go away. They lessened but were still there.

He's trying to taper again, and I'm down to 30 mg now and feel worse and worse. My sed rate has been normal, so the doctor thinks it's from the prednisone. Does it mimic all the TA and PMR symptoms? I also am having a lot of hand and feet cramping.

Does anyone else have these two illnesses? I would be interested in your experience. I want off these meds! Anyone found an alternative approach that's helped?

God bless!

-- By logcabin | Reply | (12) replies | Private Message me

March 6th
2007
1:05 PM

Ignorant people should not respond on this web site. By ignorant people I mean people that have absoluetly no clue or sympathy for what devastating side effects this Kenalog shot causes! The shot caused me to loose 10 pounds of weight my body should not have been able to loose. I was grossly thin. Still I developed indentations where that damn shot was given. My indentations developed in my upper back where there is hardly any fat! People that claim people on this site are crazy for sharing their horrifying stories, should find their own site of ignorant people to talk to!

-- By lynn76 | Reply | Private Message me

November 6th
2006
9:13 AM

I agree with "pilot4life2". We are not looking at this site because we are pleased with Singulair, nor are we making this stuff up for sympathy. I know I have better things to do with my time than to try and figure out why a medicine seems to have put a family of 5 through hell.

"saintmorrowind" comes off as seeming to have some anger issues. You may want to take a closer look at the med you are on.

-- By jd2004523 | Reply | Private Message me

January 18th
2006
8:32 PM

I am in tears after finding this site!! I was on Yasmin for three years and finally went off of it a little over a year ago. It has been hell ever since!! My doctors tested me for everything under the sun and came up with the conclusion that it was just stress!! It took a trip to the emergency room at 5:00 am for a panic attack to finally have a doctor agree with what I had been saying all along--it was the effects of going off the yasmin. He said it can take years for your body to be normal again. This is the first month that I have had a some what normal period. It had been lasting for 8 or 9 days some months and when it was over watch out!! My anxiety was so bad on a few occasions I had myself convinced that I was going crazy! I am so happy I found this site. My sympathy goes out to all the other women that are suffering. Hang in there and always keep in mind that you are not alone!! Lizzy

-- By lizzy229 | Reply | Private Message me

August 28th
2005
3:01 PM

What a relief to hear that ~I'm not the only one out here who seems to have suffered from coming off Yasmin! The last 3 weeks have been HELL, I've been thrown into the most debilitating depression and anxiety morning till night, with all time emotional lows that sometimes I think won't end. Weird since usually am quite relaxed and happy. Thought it might have something to do with coming off the pill 1 1/2 months ago after 3+ years and now having heard some more am pretty sure, going to docs tomor.Sympathy to all you ladies who might be going through the same.

-- By sam_kissin | Reply | Private Message me

August 18th
2005
5:06 PM

dont mean to be rude either but what everyone needs from here might be different from yourself guest. Whether it is based on personal experience text book facts sympathy empathy or some reassurance who are anyone of us to decide what can be posted or not here. I personally find jules interesting and some of her information was helpful to me and to some others here. putting her down at every chance someone gets doesnt benefit anyone here.

-- By matt574 | Reply | Private Message me

August 4th
2005
12:31 PM

Hi everyone,

Where do I start?? 2 months I have been on Yasmin and I'd rather be pregnant!! Heart palpitations, nausea, moodiness, excess salivation, it's honestly worse than pregnancy becasue you don't get any sympathy from anyone. I have been told by my gynae that the coil would have less symptoms since the required dose of hormones will be considerably less. I wonder if anyone has been there.

I am seriously considering stopping Yasmin, after 2 beautiful kids in a span of 13 months I really don't feel like another one just yet. BUt since I am not ruling any other children out, I am concerned about the after effects once you stop taking Yasmin.

Thanks for your postings, they actualy made the nausea go away for a while.

-- By koppens | Reply | Private Message me


 

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