Synthroid symptoms and conditions

Ive been on synthroid since Saturday august 23rd and I noticed Im more nervous like I want to climb the walls and im sweating profusly. I have lost over 100 lbs since February and I had blood work done on tues august 19th and the doctor put me on 25 mg. Im suppose to go back in 6 weeks and get my level checked again but Im going to call the doctors office tomorrow and tell them what is happening. If this is what is going to happen Im not staying on it. Im only 42 and I am battling deg.disc disease which hurts enough and sciatia.

I have been on Zocor 40mg for many years and doing fine with it, until my doctor thought it was not working that well, hence, switched me to Lipitor 10mg. After a few months I developed severe chest pain along with neck pain. It felt like it might have been a heart attack, but it lasted more than 24 hours. I was admitted to ER for 1 night in the hospital and released the following day. They checked my heart and found it was fine. They ran my blood work, chest x-rays, cat scan and checked my lungs. All O.K.!!! The next morning they told me I had Slight Diabetes and an Under Active Thyroid and thought Esophagus Spasms were the cause of my pain. OH yeah, I also told them it hurt more with each breath of air I took in rather than out. It did not matter to them. They gave me Protonix 40mg because they thought it would reduce acid reflux to the esophagus, thus reducing my pain. Furthermore, they gave me Synthroid 25MCG for my Under Active Thyroid. After about 10 days of these medication plus LIPITOR, I had a recurrence of the same pain. I decided to research and came across this Website. I stopped the Lipitor and the next day my pain was subsiding. By this evening, my pain is almost completely gone. I am scheduled to have an Endoscopy in about a week from now and I am hesitant. Are the pharmaceuticals and physicians in cahoot with each other. I can't believe I was required to take all these tests and even more tests before the pain started (EKG, Heart Monitor, Nuclear Stress Test, Heart Scan and Angiography). Did I forget to mention I was diagnosed with High Blood Pressure and put on X-Forge a few months before all this started, but I was taken off it because of side effects (dizziness, lethargic, and so on). I did research on X-Forge and it said to NEVER use it as a first method of treatment for high blood pressure. I also was having pain under my right armpit. WHY DO WE HAVE TO SUFFER LIKE THIS BEFORE ACTION IS TAKEN TO PREVENT THIS FROM HAPPENING TO SOMEONE ELSE. Well, I guess it's just the price we have to pay before we decide to do things OUR WAY!! GOOD LUCK TO ALL OF YOU! THANKS FOR THE POST! PS. Can't wait to see what my Endocrinologist has to say about me next month $$$$$$$$$$$$$$$$$$$$.

I have been on Zocor 40mg for many years and doing fine with it, until my doctor thought it was not working that well, hence, switched me to Lipitor 10mg. After a few months I developed severe chest pain along with neck pain. It felt like it might have been a heart attack, but it lasted more than 24 hours. I was admitted to ER for 1 night in the hospital and released the following day. They checked my heart and found it was fine. They ran my blood work, chest x-rays, cat scan and checked my lungs. All O.K.!!! The next morning they told me I had Slight Diabetes and an Under Active Thyroid and thought Esophagus Spasms were the cause of my pain. OH yeah, I also told them it hurt more with each breath of air I took in rather than out. It did not matter to them. They gave me Protonix 40mg because they thought it would reduce acid reflux to the esophagus, thus reducing my pain. Furthermore, they gave me Synthroid 25MCG for my Under Active Thyroid. After about 10 days of these medication plus LIPITOR, I had a recurrence of the same pain. I decided to research and came across this Website. I stopped the Lipitor and the next day my pain was subsiding. By this evening, my pain is almost completely gone. I am scheduled to have an Endoscopy in about a week from now and I am hesitant. Are the pharmaceuticals and physicians in cahoot with each other. I can't believe I was required to take all these tests and even more tests before the pain started (EKG, Heart Monitor, Nuclear Stress Test, Heart Scan and Angiography). Did I forget to mention I was diagnosed with High Blood Pressure and put on X-Forge a few months before all this started, but I was taken off it because of side effects (dizziness, lethargic, and so on). I did research on X-Forge and it said to NEVER use it as a first method of treatment for high blood pressure. I also was having pain under my right armpit. WHY DO WE HAVE TO SUFFER LIKE THIS BEFORE ACTION IS TAKEN TO PREVENT THIS FROM HAPPENING TO SOMEONE ELSE. Well, I guess it's just the price we have to pay before we decide to do things OUR WAY!! GOOD LUCK TO ALL OF YOU! THANKS FOR THE POST! PS. Can't wait to see what my Endocrinologist has to say about me next month $$$$$$$$$$$$$$$$$$$$.

Hi,
I am 50 years old. I was diagnosed with as hypo at age 39. My doctor prescribed Synthroid at 25mcg and I have (proudly-ha!) worked my way up to 125mcg. I was always one of the "lucky ones" who could eat any and everything and my weight stayed the same. I am a busy mom of two and a first grade teacher, so the 33 lbs. I have gained since age 39 has not been due to diet changes or sitting around with a bag of chips in front of a TV all day. I also questioned my doctor about this and he just brushed it off. Well, I am tired of not feeling good about myself. My life is in good order except for my weight. I want someone to take this seriously. Should I see a specialist rather than my regular internist?
Wow! I think I just lost a little weight telling you great people about this!
jf

It took 3 years for me to be diagnosed with hypothyroidism and for a year I tried levethyroxine. This was a total waste of time. I was so exhausted the kids kept missing school, I kept walking into things, couldn't remember anything so I asked my doctor to let me try armour thyroid. This has apparently T4 T3 T2 and T1 and the T2 is the one that helps your metabolism (weight).
The change is nothing short of miraculous...I know it may not work for everyone but it is worth trying. I also had very extreme mood swings and the doctors were considering manic depression, but the latest thinking with that is to take your TSH levels higher before considering drugs such as lithium. I have just moved to Reading and my new doctor thought my T3 levels too high so reduced my armour dosage by half .....BIG mistake. Ended up in bed for days, couldn't remember which day it was, and the mood swings
!!!!!!! screaming, tearing my hair in frustration, punching my boyfriend. I staggered, literally, in tears back to the doctor who reinstated my original dosage of 2 grains one day 3 the next etc. For me my TSH has to be 0.1,
T4 around 14 and T3 around 8 to 9; basically on the high side but my blood pressure stays low as does my body temp and I feel alive again. It is worth trying different variations synthetic T4 AND T3, and don't rule out armour thyroid if nothing else is working after 6 months of use.

I have been on Levoxyl for about 9 years and have felt awful. I have had weight loss, dry hair, thinning hair,dry skin, muscle aches, migraines and the list goes on. I just got out of the hospital Monday after 4 days of testing of my heart and lungs. I was admitted for racing heart. The doctor's conclusion was anxiety! They said that Levoxyl has nothing to do with my rapid heart rate. The endocrinologist prescribed taking levoxyl .050 on day and .075 the next also a beta blocker, Xanax and Zoloft. I can not take any of these meds b/c they make it almost worse. I KNOW it is not Anxiety and it from the Levoxyl but what do I do?? I am a mess right now can not be in this condition with four young kids and a husband. None of the doctors would say it was the Levoxyl and instead prescribed more and told me to check up with blood work in 6 weeks. I took the .050 yesterday around noon and by 7:30pm my heart rate picked up again and continued until 4:30 this morning. I can not sleep more then 2 hours at a time and wakeup feeling like I am crawling out of my skin. PLEASE let me know of any solutions.

I was diagnosed with graves disease last year, I had a really acute case that turned me into a total nut job.
In October after going through several thyroid storms and the doctors not being able to keep me stable with medications, I had a full thyroidectomy in October.
I started on .100 mcg of levothyroxine and then the dosage was gradually decreased, I started having a lot of random body aches, mood swings, lots of muscular pains and no energy.
They ended up raising my dosage and detected that I had a large vitamin D deficiency, after several treatments of taking 50,000 units of vitamin D, and also adding my levothyroxine dosage I started feeling better. I still have mood swings here and there, and feel sad periodically, but the last month or so I've been feeling more fine than I have in a long time. They have me on .170 mcg of levothyroxine for two months now. Last week I started getting headaches more frequently, and one of the times I got this nose bleed.
This past weekend I got a headache, and then later that night I had another nose bleed.
I don't usually get nose bleeds or this many headaches so I'm a little concerned.
Also the last time I was getting headaches and constant nosebleeds was when I was really hyperthyroid.
As far as the doctors go, I'm in between insurances and quite honestly I've been frustrated with both my pcp and endocrinologist...

Re: Dosage Confusion- Synthroid

This simple of communicating dosage became confusioning. To prevent confusion synthroid is always discussed in terms of (mcg). That is, micrograms (mcg) vs. milligram (mg).

This is of tremendous value The conversion factor is 1000, for example a dose of Synthroid represented as 0.025mg, would be converted as
.025mg x 1000=25mcg. To fully understand this blogger’s statement feel comfortable to talk with your pharmacist or physician.

I've been on synthroid now for about a year. My dosage is VERY little (0.075). My doctor keeps running blood tests every 3 months and assures me I am within the "lower-end" of the norm, but I still feel tired, sleep deprived, wake up with night-sweats and I keep gaining weight...

I am only 24 and have just been told that I need to take this medication for the rest of my life, it\s pretty depressing. I keep asking if there are other ways to lose weight and feel more energized. He tells me that I need to keep taking this medication and has put me on a "sleep hygeine" routine where I go to bed and wake up at the same time every day.

Does this "disease" mean I will always be overweight and tired for the rest of my life? I would like to know if someone else with more experience with this medication can give any sort of advice? Feeling a little hopeless about it and not really interested in complaining to my doctor anymore.

Thanks:)

After being on Synthroid for a few years and getting NOTHING from it, I was switched to Levoxyl for several more years, and got NOTHING for it either. They are some of the most useless medications ever made, and all they do is put money in the pockets of the maker. Armour is what made a HUGE difference in my hypothyroid. ******

Glad I took the time to read the noncommercial posts! During my thyroid check last year bloodwork showed high cholesterol. I was put on Crestor in addition to having my Synthroid dose adjusted. A few weeks later I was absolutely miserable. Couldn't get out of bed. Everything hurt. My doctor thought I was "depressed" and asked if I wanted anti-depressants. Not needing to add another pill to my daily repertoire - I declined. Six weeks later I am feeling worse and just want to lay down and cry. The doctor had no idea why I would be feeling that way and was convinced it was either depression or thyroid issue. I was getting ready to leave for a trip to Mexico that had been planned a year in advance and was non-refundable - and I didn't have the strength to even pack the stupid suitcase. The trip was a bust - I laid in a pool chair just feeling crappy. What a waste!

Funny thing - nobody stopped to consider I've had a thyroid problem for 20 years and this horrid nightmare just started after I started taking Crestor! A few weeks later I stopped the Crestor entirely and after a couple of months I felt back to normal. Now, three years later - I've been talked into taking Lipitor. In my naivety (because I explained to the doctor that Crestor made me ill) I trusted that it would be different. It's taken three weeks for me to put two and two together - but here I am again - muscle aches - can't get out of bed. Everything just hurts. My knees, arms, mostly shoulders and in between. With all that is an overall lethargic feeling. Lipitor stops today -and if the pattern continues and I feel better in a few weeks - it's no statins for me ever again. I'll just have to eat like I'm supposed to and hope for the best!

I have been on synthyroid for the past 4 months and my doses have been increased from .75 to .112 which I am currently on. I weigh 92 pounds, which is my normal weight, but it seems this new increased dose has increased my appetite (I always had a fast metabolism) given my palpitations, flushing, sweating, high and low blood pressure and generally feeling overstimulated. It's been two weeks since my dose was increased and I felt better with the lower doses. My endocrinologist keeps increasing my dose since my TSH levels are still not in the right numbers, but this new dose is making me sicker than I was before. Could this new dose be too high for me.

I have Hashi's and have been on Synthroid for about 2 years. I was recently on 75 mcg and was teetering on the brink of being hypo again so my doctor increased my dosage to 88 mcg last week. Ever since I have been on the new dosage, I have had the worst insomnia. I wake up covered in sweat (in air conditioning) and I feel caffeinated all the time ( I don't consume caffeine). I feel strung out! Is my body just getting used to the new dosage or am I being over medicated? I don't want to complain yet to my doctor if this is just my body getting used to the new dosage but this really is terrible.

Hello To All,

I too am on this med, I have been on it for 1 year as of July 2008-

35 pounds, brain fog, headaches, eye sight for reading, chest pain and fluttering heart beat. My doctor who is my friend has told me that he will up my dose... "Dear God" any more and I will go nuts. Does anyone know of any study done in a medical journal that theu could forward to me so I can show my doctor.

Please email me at ****** I would be so very thankful.

Thanks to all and be healthy.

I am a 34 y/o male who started taking 10mg/day of lisinopril on May 15th. My blood pressure at the time was 140/118, pretty high I guess! I was feeling it too in the form of headaches. The doc wrote the script for me and I filled it that night. I should also mention that this is not the first time I have taken Lisinopril. I stopped taking it back in March because the script ran out. I don't seem to recall any kind of side-effects the first time, but I could be wrong. Anyway, I also take Levoxyl for my hypothyroidism, and it is a pretty hefty dose, 225mcg a day.

So, for the first week, I was doing pretty good on it. No coughing, or any of the listed side effects listed for the med. Then, about a week into it, I started having numbness in the right three toes on my right foot. When I say numb, I don't mean I could not feel anything, it was like touching your skin with a t-shirt over it. I could feel it, just kind of topically numb. I had a 'patch' of this numb skin right behind those same three toes and several other areas up the front and back of my right calve. I delt with this for a few days, thinking it was my shoes I was wearing at work. They were pretty worn out on the outer edges. I got new shoes on Monday, June 2nd. I wore them to work on the next day. At the end of the day, my calves felt kind of tired. The next day, they felt kind of tired still. I found this sort of weird. From that point on, my high anxiety really kicked in. I don't want to mention the thoughts I am having about what it could be that is causing this. I forgot to mention that I have not been sleeping well lately either since I started taking the Lisinppril again. I guess overall, I feel exhausted and weak. More so in my legs. To add to it, my lower back hurts like mad. I have two herniated discs and mild arthritis in it from damage from years ago. Also, for the past week, a pain has been developing in my left shoulder blade in my back. It is worse in the morning, and had gradually been getting worse for about a week. Today, it was awful.

I have ready a lot of the messages about the side effects different people are having. My question is, has anyone ever been on the lisinopril, gone off of it for whatever reason, having had no bad side effects, then gone back on it only to start having these bad side effects that you did not have before?

I have stopped taking the lisinopril on the 5th and have a doctor's appointment on the 9th to find out what is going on. I don't feel good at all. Can anyone relate?

I am a diabetic with hashi. I had been taking synthroid longer than metformin and had been on both for at least a year now. Recently I have been to ER due to heart palpitation and shortness of breath, so I had stopped my synthroid .1 for one day and felt better. So I stopped taking synthroid altogether, After 3 weeks I took it again because I was afraid not to follow my doctors order. 3 days into it, I was back to a high pulse, shortness of breath, chest pin and palpitation. I went to a different doctor,
and he agreed that we experiment on the dosage and try a generic brand.
I took .25 this time and I had the same reaction as taking synthroid .1.
I have now stopped completely, I am hoping to that my doctor will listen to me and will give something else other than synthroid.

Like many posts describing side effects, I was not sure that all the new little health-related issues I've been noticing were connected to taking Zocor. I'm thinking that perhaps my issues are related to the drug, especially since the only other drug I take is Levothyroxine (for hypo-active thyroid). I have been on the generic for two months. (I'm a 39 year old female.)

In the first month, my total cholesterol score was 278. After taking it for one month with no change in diet or physical activity, it reduced to 207. So, the drug does work! Now I need to determine if the cost is worth it.

In the past week, I've noticed several of the side effects listed in some of the posts: sharp pain in knee (feels like there is a paring knife in it!); lower back pain; joints creaking and popping; skin on tips, sides, and underneath of fingers kind of blistering-hardening and peeling off; brain fog in the morning; difficulty maintaining a deep sleep; crazy dreams; general increase in skin blemishes; heartburn; loose bowel movements; and increased sinus congestion.

Wow! So glad and sad to find other sufferers. I wish our doctors would listen to us and take us seriously! Why are they stuck on forcing Synthroid on us? At this point, I think I'd rather not take any Synthroid. I stumbled upon this site while looking for something I might take to counteract the effects of Synthroid. I had to halve my 112 mg pills because of the side effects: frequents headaches, bloating, weight gain, irritability and anxiety, dry mucus membranes (eyes, nose, throat, etc.), allergies, muscle fatigue, achy joints. Of course, my doctor is slowly upping the dosage again, because my TSH is chronically high, but I feel like sh*t, physically and mentally. I used to feel so much more normal and like myself before I was diagnosed and "forced" to take Synthroid.

Hi,

I just found this site, as I am looking for an explanation for the extreme joint pain that I am having, along with swollen ankles/feet. I have been dealing with some type of chronic contact dermatitis that no one has been able to solve, since last July. I have been on numerous steroids, then on Cyclosporine, for several months, which can play havoc with your kidneys. I also started taking Singulair for the itching, which is one of the few things that has really helped. Since November, I was taking Singulair on and off. But, as I recall, I began taking it daily since around late January. Around late February, I began having joint pain, which still continues, and lately, is becoming excruciating! When it first began, I blamed it on the Cyclosporine and kidney breakdown. But, since I have been off that, the pain has continued to worsen. Then I thought it may have something to do with the Doxepin, which I also take at night for the itching. I stopped taking that two nights ago, but the pain continues to worsen.

Now, from what I am reading, these blogs make me believe it could be the Singulair. Can anyone tell me how long it takes for the pain to go away once you stop taking the Singulair????? I will gladly stop taking it if this pain will go away. In fact I will be thrilled, because I was suppose to begin testing next weak for possible Lupus, because it doesn't seem that the Physicians who prescribe Singulair, are well aware of these issues.

I would appreciate anyone who can give information as to how long it takes for the side effects to subside. Thank you!!!
(In pain in Boca Raton, FL)

This medicine is horrible for me! I gave it a long while to give it a chance. Rapid weight gain, hair loss (ongoing), terrible aches and pains, hives, dead tired, terribly hot, irritable...the list goes on and on. After getting pro-active with my health care provider, I have now changed to Armour and now I'm remembering what 'normal' feels like again. I've lost all the weight I gained, my hair and skin feel much softer. I can't believe the amount of people that feel bad on this drug. It seems to be bad-mouthed all over the internet. I guess as long as the major drug companies retain it as the 2nd or 3rd best selling drug in the States and continue to fund, wine and dine and court physicians, we're never going to get rid of it. I chose to dispose of every single one of those evil pills. Armour stepped in to change my life for the better as Synthroid was slowly destroying me.

I have been on Levoxyl 125 mcg for about two months after my thyroid was "killed" with the radioactive pill. Ever since I have been on this medication, I have constant headaches and feel sick on my stomach all the time. I had to go to the ER the past week because of the intense vomiting. The doctors tell me it's not related to my thyroid or the medication. How can this be? I didn't feel this bad when I was hyperactive thyroid. My wife has had to take care of our 18 month old all by herself ever since I have been taking this medicine. I feel like I am missing out on my life! This is terrible!!

I had always used the generic form of synthroid & then the generic form Levoxyl. The beginning of April 08' my endo prescribed me the brand name Levoxyl. I take 175mg. everyday. After several weeks I began to have terrible insomnia. It was weird because I initially fell asleep easily but began to wake up every hour of the night for no reason. This went on for weeks. I even tried taking Tylenol PM to help me sleep & I still would wake up every hour if not every other hour & I had very vivid dreams that I would remember. I began waking up in the mornings feeling exhausted from all the dreaming & all the waking up. I believe I became more depressed because I was so tired. Then I read on-line that someone else experienced this while taking Levoxyl. I switched back to the generic Levoxyl & now I can sleep through the night again. I still experience fatigue & have problems losing weight. None of that changed when I switched to the brand name anyway.

I have had a total thyroidectomy due to thyroid carcinoma about 2.5 -3 years ago. I have been on synthroid and levoxyl and both have caused tingling and numbness in my hands and feet, what I call a general fog (hard to concentrate or think, sometimes talk). I have been tested for neuropathy since endo said radiation may have caused issues. Only to be cleared by neurologist. Now endo switched does lower after rebout of cancer from 300mcg to 274mcg and have knee joints now going numb I want to sleep all the time, general weakness and now low testosterone levels.

I took Topamax for 6 months. I am a control freak by nature and really liked the drug at the start when I took 25 mg.; however, like most people who take Topamax know, you increase the dosage until you get to 100 mg. By the time I got to 75 mg. I was a basket case. I did lose weight and I was really calm; however, I thought I had Alzheimer's. My short term memory was shot and was slowly effecting my long term memory. I was constantly at a loss for words and stuttering all the time. For someone like me who is extreme control freak this was very debilitating. I also had constant tingling on my nose (I know weird) and my fingers. My husband begged me to stop taking Topamax because he could see the difference in me. Like everyone else my Migraines completely went away and so I thought the benefits outweighed the side effects.. The doctor said that maybe 75 mg. was to high so he put me back to 50 mg. It didn't change. Finally after 6 months I was almost a vegetable. I stopped talking which is extremely unusual for me. I stopped hanging around my friends and family and wouldn't deal with my kids. My daughter finally came up to me and said I don't know who you are, but I want my mommy back. That was all I needed. I weened myself off and within 2 months was back to normal. Unfortunately, my migraines came back full force 4 days a week. The good news is that about a year later I was having a physical and the doctor said that my thyroid was off and needed to start taking Synthroid. I have to say I couldn't believe it, but ever since I started taking Synthroid my migraines have completely gone away. From having them 4 days a week to maybe have 1 or 2 a year since being on Synthroid. I have been basically Migraine free for almost 2 years. I highly recommend that people, especially women, talk to their doctor to see if their thyroid could possibly be causing migraines. I have had migraines since I was in college 20 years ago.

One thing I do have to say is that the company that manuf. Topamax listed all the side effects. It did say that Topamax could possibly cause Neuropathy, loss of memory, weight loss, etc... It also stated that the symptoms should disappear after 6 weeks; however, it some cases they didn't. I respect that they were honest with their research and were very clear in the side-effects. I have many friends who use Topamax and thank g-d for it everyday. They had no side effects from the drug and have been living happy lives.

A couple of other symptoms I didn't mention before are I still get cold a lot and ibuprofen is my best friend because of all the aches and pains. But running on 3-5 hours of sleep a night with the occasional 7 hours has definitely diminished the quality of my life.