July 24th
2009
2:56 AM
Hi I have been on syn for about 5 years now and it's made my life a living hell. I had so much hair shed it was insane. I finally saw a hormone therapist and she put me on synthetic t3s it worked ok but I started breaking out and I was still very tired and hair was still shedding. So now I'm going to finally go on armour and pray this is the final and last med that will help me and my hair. Can I switch from syn straight to armour right away?? Or do I have to let the syn get out of my system. Do you know why the synthetic T3's didn't work?? Please email me at ******
Also wanted to add that those on syn have to take iodine too
-- By rebekah246 | Reply | Private Message me
March 16th
2009
12:28 PM
I have only been on Synthroid for 2 months, but my appetite is out of control. I read that gaining weight might be a side effect of Synthroid. You would think that you would lose weight with it since it makes your thyroid run more efficiently. My TSH is 4.3, still normal, so I don't guess I really need it yet. I am going off of it and going to the health food store and take Thyroid support.
-- By lyndy27 | Reply | (2) replies | Private Message me
March 6th
2009
10:54 AM
I have been on synthyroid for at least 7 years, and I still constantly battle fatigue and mood swings. All the doctors thought it was in my head and the last one suggested anti-depressants which I wouldn't go for. I feel depressed because I wake up tired almost every day or at least after 2 hours of being awake I can still just lie down and sleep! It's awful when just the thought of having to walk a block takes huge effort. I used to go to the gym every day but now it takes so much effort to do the smallest thing. I finally have a new doctor who has started to additionally give me Liothyronine (T3) which has given me new hope. I seem to feel better. We are still tweaking the dosage, first it was too low, now too high, but I am hopeful with the right "combo" we can get it right, if not I am considering going to a homeopathic doctor or just going off the stuff entirely, except I am not sure whether that will be worse.....If anyone has any advice or comments, please reply!!!!
-- By anniegirl | Reply | (1) replies | Private Message me
February 4th
2009
12:59 AM
Levoxyl makes me Tired and fatigue.
Does anyone get tired and crash 2 to 3 hours later after taking any thyroid medication? I get tired need to lay down, I crash my body lays in the bed and this tired feeling goes away after a hour. It used to last 2 hours. I feel like I took a sleeping pill. This is probably due to adrenals from what I read. I have tried all the armour and t3 that I think adds to the tiredness.
January 28th
2009
8:53 PM
I was on LIPITOR for 5 weeks. Am fit 60 year old Nurse. I had pain in my heel like a spasm and also near my Hip. Tiredness, Lack of concentration blurred vision and a level of deafness. I stopped taking Lipitor 1 week ago and energy levels returned to normal already. No more spasm pain. However still have blurred vision and the deafness. Anyone know how long this may take to improve?
I am on Oroxine for low thyroid function and maybe this is a contributing factor.
January 13th
2009
11:09 PM
Hello, I have been on synthroid since 1999. I am hypothyroid with hashimotos. Endr. docs couldn't seem to get any levels right so I went to my Intergretted doctor . and he put me on 1/4 grain armour so I took anywhere from 50mcg to 100mcg of synthroid in the AM and 1 armour at night. It worked but after a short while I felt terrible. Then I had to start taking high blood pressure presc., it was about 170/116 after I had some shots in my back for pain, never had hp. before these shots. In Sept. of this year I stopped the Topralxl because I felt my heart was pounding out of my chest which I was in hospital for they said I was having a heart attack, had anigram, but I didn't have a heart attack and and angigram came out good. Then this summer they put me on 2 Topralxl. My heart was pounding with 4 extra beats so with a ultra sound{echo]of my heart and 24 hour halter it was all good, so I figured it had to be something I am taking. So that lead up to the stop of Topralxl which I researched and took a few things from Health Food store and got my pressure down to 140/80. My heart quit racing and beating so hard, but still felt depressed, puffed up, confused, teeth felt loose, urinated a lot, gained weight, rashy on my neck, tired all day, did not sleep good, eyes were always red and watery, skin and hair dry, blemishes on my face{ I am'56 yrs. old] just didn't feel good and the list goes on. Came across this site and read them all. Realized so much from you all. Sythroid only has T4 which your cells should be able to covert T3 out of that. T4 stores in your body and T3 is used up as the day goes on. But some peoples bodies don't convert the T3. Several people have talked about TSH which is your thyroid stimulating hormone which comes from your Pituitary Gland. When you thyroid or your meds. don't give you enough thyroid of what you need the Pituitary kicks in there to tell your thyroid gland to to produce more. It's not good for your TSH to be high so Docs. put you on a higher dose of Sythroid or whatever you take for the pituitary to stop producing TSH. So I want to say I am not a doc. but have felt so terrible and researching what I could I quit my Synthroid on the 29 of Dec. and started taking my armour thyroid 1 AM, 1 late afternoon and 1 PM on my own cause I figured I am still getting my T4 and T3. I went to my Endr. Doc. yesterday and told him I went off my Synthroid and just taking Armour. and told him I felt so terrible, after stopping the Topral heart felt great but the rest of me felt drugged, I just felt desperate and horrible. So again it had to be something I was taking. Well I have to say that I feel 100% better than I was. I am much more alert with my surroundings and whatever i am doing, sleep so good, teeth feel good, no rash, urinate normal, not confused, face cleared up, eyes not red or watery, pretty much I already feel normal again. Working at my job is not exhausting, my neck, which I didn't mention before quit hurting. In a whole it was the right thing for me but maybe not for everyone. I just felt that it was slowing taking me out. Blood Pressure, Thyroid issues are to be concerned about but seems like a person should feel better not worse with the meds. So this is the information I have learned and I'm sure there is much more. So good luck to you all and listen to your body and talk to your doc.about how you feel. It can be very scary when you are diagnosed with something but we are all different in what our body needs and our side effects.
-- By debbie56 | Reply | Private Message me
December 23th
2008
7:57 AM
I had kenalog 80 mg injected in t2 - t3 for a nerve block and it has worked terrific. I had a slight reaction of contacted dermatitus for a couple weeks and that was it.
This is my second injection . the first stopped the pain fro 5 to 6 months.
-- By markstevens | Reply | Private Message me
October 13th
2008
2:43 PM
Oh My Gosh - as I sit here with abdominal cramps typing my experience - I can see the light at the end of the tunnel. I started taking Lisinopril in late April 2008. On May 2 I had severe abdominal cramps and massive vomiting for 8 hours. Finally got myself to ER after I sent my family on to our vacation (I joined 2 days later). The ER attributed it to food poisoning. Lo and behold, I had another "attack" on May 9th. Back to ER I went (my husband witnessed my attack and insisted I go). They took X-rays and MRI - found intestinal inflammation but didn't know why. My internest send me to gastro dr. Third attack hit on June 5th and gastro doctor sent me to major hospital ER. They, too, did MRI & blood work. Looked at gall bladder, pancreas, stomach, intestines, etc. They found intestinal inflammation. Gastro Dr. took more blood and did more test (CT, MRI, Colonoscopy, Endoscopy). He couldn't find anything so he sent me to rheumatologist. She did add'l blood work and genetic testing. She though I had an auto-immune disorder - like Mediterranean Familial Fever! Please...! But all her tests came back negative. She too had no answers, only treatment for symptoms - Colchicine and Prednisone. Yuk. After having my 8th debilitating attack yesterday (since May), I've had enough. I went to the Web and found this wonderful site - along with some others with helpful info. I don't have confirmation that the lisinopril is causing this - but it sure sounds like it. I am a 49 yr old female and I've had no "life changing" events in my life (except for this nastiness) and have been on no other meds. I find it interesting that out of all the doctors I've seen - and all knew of the lisinopril - that none suspected this as a side effect.
-- By pastrouhal | Reply | (6) replies | Private Message me
September 26th
2008
11:06 PM
I have been on Topamax since Jan of 08 for complex partial seizures. I was very pleased with it at first but started having
some more unpleasant symptoms. My hair recently started falling out about two months ago in massive handfuls! I was
and am very upset about it. I did have the tingling in the hands and feet when I first started taking it and I don't drink sodas
at all which I did all the time before. I did not lose weight at first but did a couple of months ago when I got very ill with a GI
problem. I actually lost about 20 lbs in about a month. This is when my hair started falling out. I have had a lot of labs
drawn and my TSH was undetectable but my thyroid levels (T3 and T4 are normal) and my antibodies are normal as well so,
there is no telling what is going on?? I just want off of this medication before I am bald!!
September 26th
2008
5:03 PM
Hello Ladies....I am 56 and diaged Hashimotos disease 3 years ago.At the moment on 112mcg of synthroid....dosage started off low and have gradually worked up....So angry with drs...was seeing endo, but moved and using family practice...so frustrated with weight gain approx 25lbs since diag. Also does the word sweat ....mmmm perspire for all us ladies, mean anything? I can't even wash dishes without breaking out in to a sweat...mmm beads of perspiration....Dry skin, I own stock in Aveeno....Also....does anyone get "boil type" skin eruptions in the nether region...butt, inner thighs etc? Does anyone or has anyone done any serious research on Iodine? I try to eat as well as I can, was doing Weight Watchers and gained weight do ya hear me? I am questioning my idodine intake or lack of....Presently take mulit vit with 150mcg. Considering uping it and dc ing my synthroid...cuz docs have been useless....eat less, (how much more less?) exercise more...I swim so much I look like a freaking prune....Any comments?
-- By bboyzgram | Reply | (6) replies | Private Message me
September 10th
2008
8:48 PM
Why is it OK with the DR. if synthroid makes us gain weight?!!! I've been hyperthroid before and lost weight...why does the med make us GAIN weight...I've tried EVERYTHING....We must demand they do more research..something just isn't right..but what do they care as long as our blood work LOOKS right! We should have the same rights to meds that work as the rest of the population.
-- By fatandsassy | Reply | (2) replies | Private Message me
August 25th
2008
6:52 PM
Everyone here PLEASE LISTEN TO ME! Dr. Holtorf in Torrence, California is the only one who tests for REVERSE T-3 and 80% of people are not being treated properly for thyroid function. The Holtorf Medical Clinic is the ONLY way you will find the answers and people are experiencing miracles.
-- By wholehealth | Reply | (1) replies | Private Message me
June 17th
2008
7:08 AM
I have Hashi's and have been on Synthroid for about 2 years. I was recently on 75 mcg and was teetering on the brink of being hypo again so my doctor increased my dosage to 88 mcg last week. Ever since I have been on the new dosage, I have had the worst insomnia. I wake up covered in sweat (in air conditioning) and I feel caffeinated all the time ( I don't consume caffeine). I feel strung out! Is my body just getting used to the new dosage or am I being over medicated? I don't want to complain yet to my doctor if this is just my body getting used to the new dosage but this really is terrible.
-- By msv | Reply | (2) replies | Private Message me
June 10th
2008
3:23 AM
Hello To All,
I too am on this med, I have been on it for 1 year as of July 2008-
35 pounds, brain fog, headaches, eye sight for reading, chest pain and fluttering heart beat. My doctor who is my friend has told me that he will up my dose... "Dear God" any more and I will go nuts. Does anyone know of any study done in a medical journal that theu could forward to me so I can show my doctor.
Please email me at ****** I would be so very thankful.
Thanks to all and be healthy.
-- By n2quality888 | Reply | (7) replies | Private Message me
June 5th
2008
5:56 AM
I am 43 and have been taking eltroxin for a couple of years now and apart from feeling the cold more than anyone else and the odd fatigue I have felt fine. I recently hurt my back and asked for a bone density scan. The results were that I had the beginning of osteoporosis After a little research I found that Eltroxin can effect bone density, so now am looking for a natural substance to treat my hashimotos disease.
-- By angelag_123 | Reply | (1) replies | Private Message me
May 13th
2008
12:32 PM
I have been on Levoxyl 125 mcg for about two months after my thyroid was "killed" with the radioactive pill. Ever since I have been on this medication, I have constant headaches and feel sick on my stomach all the time. I had to go to the ER the past week because of the intense vomiting. The doctors tell me it's not related to my thyroid or the medication. How can this be? I didn't feel this bad when I was hyperactive thyroid. My wife has had to take care of our 18 month old all by herself ever since I have been taking this medicine. I feel like I am missing out on my life! This is terrible!!
-- By bry6009 | Reply | (2) replies | Private Message me
May 12th
2008
2:41 PM
5-12-08 Was put on 25mcg in Mar. 08. because of Hashimoto Disease &
Hypothyroidism. At first had more energy & no symptoms. After a month
severe pain in joints especially in hands & left wrist. Muscle spasms in
thighs, calves & shoulders. Neck & back pain. Also headaches. Am
bloated all the time and can't seem to lose weight. Force myself to stay
active, but difficult to do. Irritable because of pain. Oh yes, on l-7-08 my
TSH was 4.270 & 4-29-08 my TSH was 4.430 & Dr. doubled my Levothyroxine to 50mcg & after that above symptoms doubled to
excruciating. After reading this web site no one mentioned extreme dry
mouth, throat & nose with a metallic taste in their mouth as I have. Let
me know if anyone has had this problem. Thank God for this site & thank
all of you that confirmed my problems was not in my head like doctors
want you to think. Thanks M.
April 30th
2008
2:39 PM
I have had Hashi now since 2000, i got it when I was still in high school. They though that was rare that this would occur at such a young age. No one in my family had it, well not quite yet. I was the first to get diagnosed. My gyn mentioned that there is a link between autoimmune and preeclampsia. I had a terrible preg. I take synthroid now well the generic. And I do not feel much better at all. But people who use Armour should be careful. My endocrinologist strongly disapproved to this. It is Pig tyroid. This is from a site "The prevailing opinion is that everyone converts all the T4 needed into T3 automatically, and that drugs such as Armour and Thyrolar are outdated and old-fashioned at best." Also does not mention much on Hasimoto patients like myself. I would like to try it though to feel better. The side effects are higher as well. Esp long term.
Unfortantly, what works for one, does not always work for another person. So though some have problems with there synthroid others do not. Also it takes a while for you to notice a difference with this. IF you take it regularly at the same time and follow instructions on eating as well as not take it with vitC then you should be experiencing something. If not then you really need to get a new endocrinologist. Regular doctors are not made to deal with these issues, though they try, you need to see a specialist. Just remember that you know how you feel and if Synthroid is not working for out then change.
April 14th
2008
3:14 PM
i HAVE SO MUCH COMPASSION FOR ALL OF US SUFFERING ..I have been on 300 mcg of levoxl and i am always filling with fluid,feel like i cant think straight or remember simple things....I have gained 150 lbs in 8 years and its not due to food increase...Myskin is dry and I am exhausted all the time..Hashimotos is what they say I have ..i am sure that this medicine is causing this,but what is the alternative?When i went off it years ago my thyroid tsh level went up to 13!....yet I lost weight!I think new testing has to be done on thyroid and the meds we are using...right after i take my med in the am I get really hungry..thats the only time i get hungry..my digestion is so slow!...Its a terrible way to live being fat when you arent eating like a pig..
-- By longvalleygirl | Reply | (2) replies | Private Message me
March 28th
2008
3:35 PM
I have been on Synthroid for about 15 years for hypothyroidism. A few months after starting on it, I became sluggish with just no energy and my once thick hair was getting thinner and thinner. I told my doctor but she shrugged it off saying it was just my age (which at the time I was 45). She being the doctor, I assumed she was right. But awhile ago I started doing research and found in The New England Journal of Medicine that they were finding that Synthroid caused hair loss "in some people". It suggested using a thyroid hormone that used both T3 and T4 rather than the single one that Synthroid is. I went back to the doctor and she put me on Armour Thyroid. I have been on it now for 3 months, and my energy levels are way up, no longer sleeping my life away. My hair has not started growing back in yet, maybe it never will after all this time, but just feeling better is such a plus! (Of course I would feel a LOT better if my hair would thicken up again).
-- By fishrgal | Reply | Private Message me
December 27th
2007
5:19 PM
I have being taking thyroid medicine since 1994. I was diagnosed with Hyperthyroidism and prescribed Synthroid. It didn't work. Instruct to take radioactive pill. Now, diagnoses change to Hypothyroidism. Prescribe Levoxyl. Endocrinologist said I would lose weight, but instead I have gone from a size 8 to 16. I feel really bad when I miss my doses. Really anxious when I take it every day. I am noticing that I have moles growing out and spreading all over my body. Switch back to Synthroid three months ago. That when start experiencing a great deal of hair loss. Decide to switch back to Levoxyl but a lower dose. The hair loss has slowed down a little. But, hair is growing slowly. I am having problems focusing and some memory loss. I really don't know what to do. I have change endocrinologist twice. I really think that Levoxyl and Synthroid have bad side effects on human after long term usage. I am miserable because I can't control my weight. I know that it has something to do with this medicine. If anyone know of some other medicine that would Hypothyroidism in check without all of the side effects that I mention. Please share it with me.
-- By c4d2b6g911 | Reply | (6) replies | Private Message me
November 9th
2007
2:40 AM
My doctor prescribed Armour Thyroid to me to help me lose weight; he did this without taking a blood test. My thyroid was perfectly fine when I began taking it. I took it for three weeks, but didn't like the palpitations and weird things happening to my heart so I stopped. Since then, about two weeks ago, I have had horrible muscle cramps in my upper back, neck and shoulders. I also have pain in my right arm which I am assuming is a pinched nerve from the muscles. Any ideas what to do?? I can't take the pain much longer.
-- By cjzam | Reply | (3) replies | Private Message me
October 16th
2007
6:34 PM
I have been on Singulair for about 2-3 years during which time I have lost a considerable amount of hair. It is quite noticeable. My hair hairdresser said "this is not good" the last time I got a haircut. I also have bad dreams, fatigue and irritability. I want to try something to replace the sinulair for asthma, but am trying to avoid steroids. Any suggestions? Would appreciate any information on a class action suit if the hair loss is not reversible when discontinuing product..
-- By waynanburks | Reply | (1) replies | Private Message me
October 10th
2007
11:38 AM
Through relentless pursuits in trying to stop my hairloss, tiredness, inability to lose weight and increase metabolism, my doctor agreed to allow me for 6 months to take a natural T3 supplement from a local apothecary. I FELT GREAT. The hair loss and tiredness stopped. However my body temperature still was low. 6 months later I agreed to a blood test and the "numbers" revealed I was out balance. Mr Dr. would not OK another Rx for the T3 supplement. Now that a few months have passed, again the hair loss and tiredness is returning. I am going to transfer to a Dr. who supports the T3 supplement. Did you know that there is no T3 in synthroid. However Armour has both T3 and T4.
There is a syndrome called Wilson's Temperature Syndrome. Search it out. A small group of endocrinologists are treating the body temperature (symptoms) rather than the numbers.
Synthroid (19) Levoxyl (8) Yasmin (4) Lipitor (1) Cytomel (1) Eltroxin (1) Lisinopril (1) Singulair (1) Topamax (1) Kenalog (1) Ephedrine (1) Armour Thyroid (1)
July 28th
2009
6:21 PM
I've had numerous side effects from Synthroid, but the ones that finally scared me off the drug were the thoughts of death, dying and suicide.
These thoughts came as casually as thoughts of what I'll wear tomorrow, which was more frightening. They also came unbidden. First, I was thinking about death generally. About a month later, I began thinking about dying, and the whole process of dying. Then, when I started thinking about just walking in front of a train, I got on the Internet and did some research.
Synthroid was the only medication I take daily, so I stopped taking it at once. And about a week later, the thoughts of death, dying and suicide stopped. My doctor refuses to prescribe natural thyroid, so I'm out of luck until I find a doctor who will help me.
-- By kittywellington | Reply | (6) replies | Private Message me