July 19th
2009
11:02 PM
I have been on ortho tricyclin lo, and then tried Yaz, and now i have been on nuvaring for three months. The only weird thing that I have noticed is that there are times when I feel my mood completely change. My boyfriend even notices, asks me about it, and then I have sudden urges to cry. I am a nurse, and even cried on my way into work today. Not sure if this is because of the nuvaring. As for those that have no sex drive, I have one, and on the other pills was so dry. But with this, I actually noticed that it helped with the dryness. Anyone cry all the time like i do?
-- By cjenee23 | Reply | (1) replies | Private Message me
April 9th
2009
2:46 PM
I had Mirena placed in August 2007. My daughter was born in February of '07 but I waited a while before deciding on what type of bc I would use. I never imagined all the crap I've been through was because of this IUD. I've wondered why after taking a shower, there's still an odor down there. I've wondered why the stupid little things most husbands do really enrages me. I've wondered why I have felt depressed...and now I know. Those are only just a few things that I haven't been able to explain since our daughter was born. I honestly don't know if I can blame the weight gain on the Mirena, but it's worth taking it out to see if a diet will actually work for me. I'm glad this forum is here and I wish I had found something like this before having the Mirena placed. I've also had a lot of yeast infections for no good reason which is why I decided to look up side effects of the Mirena and found that so many women have had all the issues that I've been having. I guess I just shouldn't have messed with mother nature. My husband and I still don't know if we're going to have anymore kids so I don't want to do anything permanent and I can not, for the life of me, remember to take a pill. So I guess it's going to have to be condoms for us until we decide no more and then we'll decide on something permanent. I'm sorry all of you ladies experienced these problems but I'm glad you have shared them because it definitely sheds some light on things for me. I will be making an appointment very soon to have mine removed. Thank you, ladies.
-- By liliansmom | Reply | (1) replies | Private Message me
January 23th
2009
4:16 AM
i've had the mirena since sep 08 and i have about a month feeling dizzy and now i have a really bad itch down there. i have 0 sex drive, and now i'm realizing that i've been really moody and with no energy at all!!! i don't have energy even for the simple things as taking a shower. i have a 3 year old and a 1 year old, and i feel that i'm not as patient as i used to be when i have my first baby, i don't feel like playing with them... i feel really bad.
tomorrow morning i'm making the appointment to have this thing out.
November 10th
2008
11:12 PM
I just recently had the mirena iud inserted. Oct 30 2008. 3 months after having my first child under a normal vaginal delivery. When I have asked my doctor regarding any side affects he stated that women may have heavy bleeding the first 6 months/ and that after those 6 months that your periods will actually disappear.
The first week that I had the mirena in, I began bleeding almost instantly. Blood clots the size of my closed fist came out of my body from the uterine wall I suppose. I went through a super tampon/ and a pad in an hour and a half. ( I am one of those women who normally use a super tampon maybe once in a while/ normally a reg. size does the job) This bleeding has not stopped since the mirena was inserted.
Looking at a computer screen is part of my daily routine at work. It seems as though my eyes feel blurry through out the day as I am working. Towards the end of the day I can barely stand to look at it. This has never happened to me before. It is almost like I want to turn all lights off and sit in the dark, with no noise(headaches).
Of course sex drive is at the all time low. Who is in the mood to go for it when you are bleeding with a terrible headache?
The first few nights I had a horrible time falling asleep and staying asleep.
Well... at this point I have had headaches... all day for a week now. My head hurts like someone is pounding it against a wall. I have not had a headache in years. My stomach has been upset/ feeling as though I may have to throw up.
I am afraid that I may start seeing the other symptoms that ladies have talked about.
When you had the symptoms did they all happen at once or one at a time over different time periods?
October 31th
2008
1:15 PM
I started taking actonel one month ago, yesterday was my last pill. Today while taking a shower my hair started falling out in chunks. I'm here looking up if anyone else had this problem. I haven't even combed my hair I'm afraid it will all be gone by the time I finish combing my hair. Anyone else have this problems. I also started having sores in my mouth.
-- By austin | Reply | Private Message me
June 16th
2008
6:26 PM
I am 30 years old and have been put on Depo Lupron after a laproscopy to help with endometriosis. I am 2 months into a 6 month course (one shot every 3 months) of Depo Lupron and my life has drastically changed. I started feeling life altering hot flashes and night sweats two days after the first shot and nearly drown myself in sweat 24 hours a day. I experienced a little postpardum depression after giving birth 6 years ago but have found myself sunk into a sinking hole of depression and anger like I've never felt before. I bawl at McDonald's commercials and become enraged if the dishwasher isn't loaded properly! I am ecstatic one minute and severely depressed the next. I have even had thought of suicide since being on this shot. I am normally a very outgoing, athletic, cheerful, happy person - but since taking this shot, I have become a stanger in my own head. I tell my family all the time that I need to "go stick my head in the freezer" to cool off because of the horrific hot flashes. I have to carry a handheld fan with me 24 hours a day and sleep with ice packs to keep cool. Since the shot started 2 months ago, I have lost all sexual drive, am thoroughly exhausted by 9am and find myself crying at my desk at work by late afternoon because I am so tired. My family thinks I am going crazy and I've never fought more with my husband. My daughter has gone to grandma's for awhile because I'm just so tired and irritable that I feel like an awful mother. Migraines have also come full circle since the onset of the shot as well as blurred vision and shaky hands. I'm a little achy throughout the as well. I know that everyone responds to medication differently, but I'm finding a lot of people with the same side effects as myself and have to wonder why the doctors don't warn patients about these types of problems before prescribing medications such as Depo Lupron. I don't think I'll be going back for the second shot. Could it get any worse?
-- By rmjtweety | Reply | (10) replies | Private Message me
May 11th
2008
3:25 PM
I was just placed on Cellecept last week- 500 Mg 4 times a day-
for my autoimmune muscular myopathy- I was a body builder 6 months ago- now I can barely make it across the Target parking lot.
I am sure the myopathy is Statin induced as I was on Lipitor-)rather than Prednisone as my doctor said less side effects.
He said I should see improvement in about 6 weeks- is any body taking Cellcept for autoimmune disease?
Thank you.
PS; So far- side effects seem to be weakness- more shakiness-
April 14th
2008
3:06 PM
I have been taking Norvasc for about 40 days. I have absolutely no strength anymore, I am dizzy, and I can see my heart beating when I look at something with solid color, it is like my eyes are flashing as my heart beats. My legs are hard to move when I first get up, and it is hard to get up off my knees unless there is something near by to hold on to. I was having trouble going down stairs until thursday of last week when I could go down them fairly fast. This made me feel like I was getting better, then the very next day I was taking a shower at home after working a full day and I almost collapsed. I barely made it out of the shower to sit on the toilet. My legs were like the legs of a parapalegic for about 1 minute.
-- By gdub | Reply | Private Message me
March 21th
2008
3:16 AM
So I started taking YASMIN in December 07. I switched to YAZ in January 08 and just quit a week ago. So about 4 months of bc. A week ago, I broke out in hives and rashes. I would itch one spot and then others would form. The areas get hot and the welts raise up my skin. It started when I was out in the sun but it couldn't have been sun poisoning because I never got burnt. I am diagnosing myself rather than a doctor because they do NOT know everything. After reading into the YAZ and YASMIN side effects, I am not risking anymore problems. Oh and I got an upper respitory infection along with the rash. This lingering cough has a weaze and phligmy sound. My friends are concerned with it too. I have never been the type of person to suffer from any major sickness or skin problem. I am tough skinned and have never gotten any kind of food allergy. I am 24, 5'6'' and in semi-athletic shape. I am an actor and model and I cannot afford to get rashes and a bad horsey cough! YAZ was great for 2 months and now bam! Downfall happening. Temporary relief-cortozone cream and antihistamines like benadryl.
YAZ benefit-clear skin, no PMS
YAZ side effect-rash, no sex drive/libido loss, difficult/no orgasm, appetite like a hog! Food #1 thought. Packed on pounds quick.
YASMIN benefit-clear skin, lost weight quick
YASMIN side effect- a little loopy, speech impediment, no sex drive/libido loss, no orgasm, couldn't even fake an orgasm!
February 22th
2008
4:48 PM
This is my 3rd day on Bactrim. The side effects are horrible. I am taking 1 pill 2x per day for an ear infection. I am experiencing extreme fatigue, gastrointestinal upset, agitation and insomnia. I don't know how much longer I can put up with these side effects. I feel like staying in bed all day and just taking a shower and getting dressed makes me exhausted. I am 23 years old and thought I was really sick, so I ran a search on Bactrim. I would not recommend this drug to people. Ask your doctor for something else instead. The side effects with this drug are pretty bad.
-- By upwinger1 | Reply | Private Message me
February 2th
2008
11:30 AM
Hi all! I just began taking YAZ two weeks ago and things were fine up until two days ago. I started experiencing itching on several parts of my boy an last night, realized I had hives on my waist at my back, near my underarms and have serious itching all over the rest of my body including the palms of my hands. Please, please, please if anyone reads this an has had similar side effects, please let me know. Furthermore, I did not take the pill last night as I knew this could be the only thing causing these issues. Does anyone know the reprecution of stopping the pill mid month? Please let me know and thanks for your help!
-- By understandingyaz | Reply | (36) replies | Private Message me
January 18th
2008
12:05 PM
I have been on this pill for 11 months now and it has almost gotten to the point of ruining my life. I've experienced weird symptoms and I thought it was just from some mild changes in my life (just graduated from college, moved away from home, got my first job). But now that I have read all of these comments, I realize that ever weird symptom was from this pill! I have a non-existent sex drive (which almost ruined my engagement to my fiance), I've experience weird hives on my legs, arms, hands and feet. I'm constantly tired. I can concentrate (which has been detrimental to my home and work life). I've gained 11 lbs in 2 months. Hair loss, which is super scary for a 22 year old! I was taking a shower one day, washing my hair, and 2 big clumps of hair just fell out. I was scared to death. I've even experienced an increased heart rate. The scariest time was when I woke up one morning, had a horrible migraine, and my heart was racing. I took a shower and collapsed shortly afterwards. I was rushed to the ER and they did a TON of tests: cat scans, xrays, blood test. All the test results came back normal. I am convinced now, after reading these posts, that it was due to Yasmin! I've never experienced these symptoms on other birth control pills that I've taken. I am stopping this pill immediately & I am looking forward to starting my life, back on track again.
The worst part is that these symptoms that thousands of womens have experienced these symptoms & it is not warned on the label or website of Yasmin! The only side effects they list are the normal ones that are experienced with other BC pills: Headaches, Nausea, Bloating, Bleeding between periods, Breast tenderness, etc.. BUT NOTHING as severe as what we have experienced!
Is there a class action suit against Yasmin? I mean, for all the doctor's visits, ER visit, vitamins, how it has hurt my relationships, work-life & home-life, extra hours of exercising, many months of weight watcher membership fees, the list goes on and on.... I should be reimbursed for this! I could not afford to live like this any longer.
-- By har134 | Reply | (1) replies | Private Message me
November 3th
2007
9:05 PM
Hey...I got my mirena put in about 6 weeks ago..And so far im not happy with it.I have been bleeding ever since i got it,my cramps are much worse and the hair loss is inbelievable.I was taking a shower tonight and i pulled about 4 chunks of my hair.I seen on other pages that its slight hair loss.However thats not my case.Foe a second i was really worried thikning something wrongs with me then i read this site and see in not the only one.However my sex drive has increased but i do notice the dryness.I thought that i didnt want to hassle with taking a pill every morning but now that dont sound like a bad idea.I dont reccommend it.And if you want problem after problem...Be my guest and get it..youll regreat it...Tracy From AZ
-- By princesswuggles | Reply | (1) replies | Private Message me
September 17th
2007
9:11 PM
Have been on Diovan for only afew week.Things are already bad can't get up all I want to do is sleep.Taking a shower has become a chore.My blood pressure has dropped but I'm missing out on life .Headaches,dizzy,fatigue,bloating and depressing has taken it over.
-- By sassyjones76 | Reply | Private Message me
August 28th
2007
2:31 AM
Oh thank you people. I just signed in here today, at the advice of my husband- to check out Toprol- and see if any one else has had similar side effect. OMG, Everyone is saying the same thing- dizziness- dullness- no motivation, no energy- heart palpitations- some one mentioned their older mother has had vivid dreams, and you thought it might be Alzheimers- NO! I have had vivid extremely busy, cunfusing dreams, like I'm running from place to place-talking to all sorts of people- and it makes me wonder if that's why I also feel so exhausted and achy from head to toe every day- and never have left my house once all summer- which is so unlike me. I ,too thought I was in a depression- but after reading everyone else's replies- I see we are all in the same boat. I am 72- worked in the nursing profession, until I ruptured two discs in my spine and got nerve damage in my right leg- so I do know quite a bit about medical care. This med was given to me by a past Doctor which I did not trust- and finally changed Doctors- I just decided today- I am D.C.ing this med. Which is what the Dr. says when he wants it discontinued!! I will see my new Cardiologist-internist, and will advise him I can not take this any longer. Has anyone else had excessive itchiness, and flaming redness of the skin after taking this at night? I have severel times- and was taking a shower at 3 in the morning, I was itching and scratching and red all over- and clawing myself bloody- so I showered and used this OLAY CREME RIBBONS, WHICH LEAVES A SORT OF CREAMY LOTION ON THE SKING- IT HELPED SOME WHAT! Didn't mean to capitalize- I have no stock in Olay- Hah! I hope to fe4el much better in the morning by not taking my Toprol tonight- and maybe I won't have such radically busy, busy dreams. Thanks for listening. Ms Nannerbananner
-- By msnannerbananner | Reply | Private Message me
January 2th
2007
9:29 AM
I took Neo 12 hour twice in the prescribed 24 hour period. I noticed the next morning that my heart rate was elevated upon rising, and while taking a shower, noticed that I was having lots of palpitations or "skipped beats" followed by a refreshing feeling...you know, the feeling you get after you hold your breath for a minute and then let it out and take a deep breath. I didn't think the episode was due to the Neo 12 hour, but changed to the Neo 4 hour because I wanted the stuffy head/nose to clear up sooner than 12 hours. I wanted to know if the Neo could interact with Sudafed or not, and if so, could it cause this problem to be worse than just one of these meds by itself?
-- By accentmobile | Reply | Private Message me
December 15th
2006
4:03 PM
About 2 months ago, I was prescribed Sulfameth/Trimethoprim 800/160 tabs for an inflamed, swollen nose which extended to puffiness and an apparent fluid sac under my left eye -- the actual cause for this infection has not been determined.
The doctor prescribed a 14-day supply (1 tablet, twice daily), and said I could stop taking it after 10 days if I wanted, or finish out the supply if I so desired. After about 5 days, the swelling had pretty much subsided, particularly under the eye, but I continued taking the medication through the 13th day. During the first 12 days, I did not notice any adverse reactions.
However, on the 13th day, just after getting out of the shower, I noticed red welts on my chest and back, purple splotches on the underside of my upper arms, and generalized redness across the rest of my body and limbs. I did not immediately associate these symptoms with the antibiotic, because the first 12 days had not caused me any problems.
However, a friend theorized that it might be an allergic reaction to the antibiotic, and suggested I stop taking it to see if the symptoms subsided. Since I had only two tablets left, I decided to heed the suggestion, and the redness did go away after about 2 days. I resolved to tell the doctor about this reaction on my next visit, but have not been back there yet.
Earlier this week, I experienced the beginnings of similar tenderness and swelling on the left side of my nose, and still do not know what might be the cause for this. I decided on Wednesday morning to take one of the remaining two tablets of Sulfameth/Trimethoprim, and within an hour or two began to itch a lot -- primarily on the back but also on the arms. I thought that taking a shower might relieve the symptoms, and it did somewhat.
Around dinner time, I took the second (my last one) remaining tablet, and about an hour later went out to join some friends. I had a slight headache and took an Ibuprofin tablet just before going out. Within the second hour, I began to feel chills (even though I was wearing ample layers of clothing), and the headache had not diminished -- so I took another Ibuprofin. The symptoms seemed indicative of a low-grade fever.
After excusing myself and going home, I laid down to watch TV, and the chills got so bad that I was obliged to curl up under a blanket, even after turning up the central heat. The headache got so intense, I had to hold an icepack against my temples and forehead for some relief. Later, when I took my temperature, the fever had progressed to 102 degrees; still later, it had climbed to 104. This worried me, since I have read that brain damage can occur at 105 degrees.
During this time, I decided to switch (from Ibuprofin) to taking three aspirins, to see if that might be more effective in reducing the fever, but it persisted at 104 degrees for all of the night and into the next morning. I made a point of drinking lots of fluids (water & juice) and tried sleeping, but woke up about every two hours.
On Thursday, about mid-day, the fever finally began to subside -- though I noticed a fatigue and soreness in my calf muscles, most pronounced if I stood in one position for more than a minute or so. The only relief was to move about, or to sit down.
By evening, my temperature was back to normal and I felt well enough to visit with some friends again. However, several hours after returning home, I felt dehydrated and had another headache; my temperature was back at 102 degrees. I drank more fluids, took aspirins, and had another night of fitful sleep.
By Friday afternoon, my temperature had reduced to about 100 degrees, and my calf muscles still displayed the same symptoms of soreness, as though I had over-exercised them. It's a very uncomfortable feeling.
Lesson learned: I will be asking my doctor to note in my file that I am allergic to sulfa-based meds, and hope that normalcy returns over the next few days. I have also gained a deeper appreciation for the manner in which the human body fights off foreign substances! ;-)
-- By jbw | Reply | Private Message me
June 16th
2006
10:25 AM
i have really been concerned about my hair loss for couple of months. to the point that am seeing thinning hair all over my body. i just read this forum online and started to realize that i have been on singulair for about 1 and 1/2 year. i have noticed excessive hiar loss since last year july. I first thought that i was just stressed out ut reading all you guys's comments on singulair i am starting to think that it could be the reason. i have noticed that i have to unclog drain a couple of times while taking a shower. I am horrified. My eyelashes have started thinning and it is noticeable. I am having mood swing and sudden outburst of uncontrollable anger. Is there any one else having similar hair loss problem. i am going to talk to my primary physician in july but i am not sure that i should quit taking it until then or go ahead and ask physician at my appointmemt. please somebody help me if you know any more information about singulair and hair loss?
-- By shah | Reply | Private Message me
March 11th
2006
3:52 PM
Received free sample from dematologist for possible ringworm on legs and midsection. Had extreme burning and itching when taking a shower with warm water. Soap made burning worse. Doctor advised & discontinued use. New perscription was issued for Ketaconazole Cream 2%.
-- By sherryn1953 | Reply | Private Message me
February 11th
2006
10:17 AM
Hi guys, just wanted to give an update. I'm on my fourth day not being off Yasmin. I was feeling better, however this morning I woke up with pins and needles in my face, arm and leg. Then while I was taking a shower I got really dizzy and almost fell over. I was driving and, I had some sort of an anxiety attack and had to pull my car over. I almost went home, but after I got off the freeway I started to feel better so I got back on. I'm still really dizzy, I had a banana hoping that would help me out. Anyone had these things happen to them, either while on Yasmin or post? Thanks, it's kinda freaking me out.
-- By hill | Reply | Private Message me
October 28th
2005
6:21 AM
to the last poster:
<>
Well, your post couldn't have come at a better time... I'm sitting here after taking a shower and crying because of my still very bloated "After-Yasmin-Body" which I never had before in my life!! I always was very healthy and slim (I'm a singer and so a good figure ist very important for me; it's not nice look like a water ton if you are on stage...). And now there's only bloating and feelings like I'm going to explode the next few days...... It feels like even my skin was too tight for all that body mass, or should I better say water mass??!! I feel so desperate!!!
My hormones are not back in balance again at all, I had only one regular period since coming off this horrible stuff and that one was on easter this year!!! I don't know what else I could do. I'm careful about what I'm eating, I'm drinking lots of water and tea (without any sugar!) and so on. Well, I'm not able to workout so far, because I'M still suffering on muscle fatigue and breathlessness (although it has gotten VERY MUCH better than during taking Yasmin!!!) which both was brought on by the wonder drug Yasmin... So I'm sitting here, getting bigger and bigger without anything I could do against that!!!! I'M so afraid. When will that stop???
I'm so scared if I look into a mirror, I don't want even my husband to see me naked because I'm so ashamed about what he would see.... It has been 20 kg (maybe you say 40 pounds in America??) of weight gain after stopping Yasmin within 3 MONTHS (!!) WITHOUT eating more than before or doing anything else different than before!!!! It was just like I was pumped full with water by someone, every hour, every day a little bit more. I don't know if you can imagine how horrible that feels...
If there is anybody out there, who had been suffering from weight gain after getting of Yasmin or any other bcp and is doing better now, PLEASE answer and give some pep talk to me and many other women out there, suffering the same way... It would be so important to hear from women who perhaps lost all that "After-Yasmin-weight" after a couple of weeks, months or even years, not to loose hope completely!!!
Please help!!
Greetings
Silke
September 4th
2005
11:03 AM
i have been taking zyrtec for a week now because i had an allergic reaction to a spider bite. since i started taking it i have had a bad pain up the back of my neck and head....and just yesterday the left side of my face is sagging and numb. not sure what to do, but it is hard to eat and drink right now, and while taking a shower i got soap in my eyes because my left eye will not close tightly like the right one. any input from anyone will be great.
-- By sahughes22 | Reply | Private Message me
December 18th
2004
1:46 PM
I have been taking Prilosec and Omeprazole for more than 5 years. I have had trouble with itching, dizziness, and now, tinnitus. The itching which was intense on my calves was solved by washing with a wash cloth and not taking a shower or bath, as my doctor recommended.
The dizziness comes and goes. The tinnitus is new. My pharmacist said that tinnitus usually starts immediately upon introduction of the drug, but it is possible for it to occur at any time. Over the years I have identified the foods which cause distress (most food), and I am extremely careful. One bite of, let's say, pizza, will cause a great deal of gastro distress for days.
I also feel like I am completely dependent on the Omeprozole, because I get ill within 1 to 2 days if I do not take it every day.
-- By sirius1 | Reply | Private Message me
June 6th
2004
7:15 PM
I started lipitor 10mg about 3 years ago, then went to 20 mg. I began having knee pain, hip pain and low back pain. Doctors said it was arthritis, put me on celebrex, but nothing worked. I was put on 40 mg lipitor about 6 mths ago, then began to have dizzy spells, low back pain so bad I cannot walk unless I am on walker or pushing shopping cart in store. No one believes I am in the pain I have. I am now having so much pain I can hardly get out of bed and taking a shower is the hardest part of my day. I also had a heart attack about 3 months ago. HELP I knew nothing of the side effects of lipitor until today when I accidently happened upon this web site. I plan to quit taking lipitor today. Even if it ends my life I will be out of pain
-- By thrasherp | Reply | (1) replies | Private Message me
Yasmin (5) Mirena (4) Toprol-XL (2) Bactrim (1) Actonel (1) Singulair (1) Diovan (1) NuvaRing (1) Norvasc (1) Omeprazole (1) Lipitor (1) Neo-Synephrine (1) Zyrtec (1) Luxiq (1) CellCept (1) Sulfamethoxazole (1) Lupron (1)
July 23th
2009
10:31 PM
A year ago I was misdiagnosed with Sinus Tachy. I did have HBP though and did not know it. We just moved across country, looking for a house to buy, living in a hotel until we closed on the house, and then moved in and started renovating it. Lots of stress...on top of that i was not eating right. i went to a new doctor in our new town. I had an echo, stress test, and holter. the only test she used to diagnose me with tachy was 1 time of having a heart rate of 148 for a second or two. after being put on toprol i started having crazy symptoms. i changed doctors and the new doctor sent me to a cardio. i had a catheter done. the cardio didn't find anything that he said was alarming and wished his heart was like mine. the results were sent to my primary doc. my new doctor sort of listened to me and when i took the results of the initially holter that showed the tachy, i asked him if i indeed had sinus tachy. he looked at the results and said NO. i asked him if i can get off toprol xl...and he was hesitant. after telling him my symptoms he relented. he told me to go to 75 mg and then check with my cardiologist in a month and see if he wanted me to go down further. my bp and hr prior to lowering the dose averaged 100/110- 55/72 with hr averaging 65-70. July 5 was my first day of tapering my 100 mg tablet to 75 mg tablet. the first couple of days were pretty rough. my heart rate would spike to 110 with activity (taking a shower and walking very slowly around the house) and during an "episode" while sitting down would be 75-90. the BP spikes would go up to 140/90 during the "episodes" but would come back down with lots of deep breathing. i had chest discomfort, weird headaches and just an overall feeling of like i might die of a heart attack. around the 5 and 6 days...i was able to slowly move around without the above mentioned symptoms being less severe and by the day 7 and onward my heart rate had re-stabilized back down to around 105/118 over 65/80 with h.rate hovering around 70-80. after 2 weeks on 75 mg...i decided to lower it even further, down to 50 mg. the first 2 days of 50mg, there didn't seem to be any serious things happening but on the 3rd day it hit me. my pulse upon getting out of bed was 100-105 bpm. when i walked around slowly around my house, it stayed elevated..high 90's. it sort of settled in between high 80's and low 90's. my BP was now hovering around 118/125 over 79-89...sometimes spiking as high as 132/90 a couple of times. after the day progressed, the heart rate settled back down to around 80 ish and was in the upper 60's and 70's when i was reading in bed last night. my blood pressure last night was 116/78 with pulse at 66. i thought ...not too bad. Well this morning at 4am i woke up feeling hot and scared. i checked my BP and it was 109/74. a few minutes later i checked it again and it shot up to 126/83 pulse ranging anywhere in the 110-135 range. it finally settled around upper 80's. this spike occurred with me still lying in bed...not moving a muscle. i had my husband to get my toprol 50 mg tablet and a banana and once i took this my blood pressure lowered a little with occasional spikes along with erratic pulse as well. my blood pressure today has been ok....anywhere from 123/75 down to 108/69. my pulse on the other hand if hovering around upper 80's at rest (rest meaning sitting down on computer or driving) and it shoots up to mid to upper 90's while moving around..like going to the bathroom or walking from room to room. while i was making lunch it was in the low 100's. I guess all this to say that this is a roller coaster ride. i want off this med. once i have realized how potent it is, makes me more determined to get off....it is scary though. last night i swear i thought i was having a heart attack. my chest started constricting and my right leg became heavy...like it was losing blood flow...weird.. i know. i know that its rebound effects will occur, but when they are happening, i begin to think ...ok...do i need to stay on this med???? what i found interesting is that when i dropped the first 25 mg the rebound symptoms would occur around 11 am and last until 4 or 5pm. I attributed this to when i take my med...i take it right after breakfast around 8am. when i was on the full 100 mg these were the times i would feel the MOST fatigued....like a walking dead person going thru the motions of life..pretending to be ok. And im a homeschool mom so you can imagine how hard it was to pretend. i wasn't that surprised to find that my rebound effects occurred during this time. This last drop in dosage was different. The first 2 days i did not have the mid day rebound effects...they seemed to be elevated continuously throughout the day with the less rebound effects being right before bed. What was even more alarming was the middle of the night scare that woke me up..... i just wanted to share my current experience with withdrawing/tapering from Toprol Xl 100 mg down to 75 and then now currently at 50. i see my cardiologist in a few weeks and don't think i will taper down anymore until then. he is going to redo all the heart tests...and if i have a green light then i will continue to taper down until im off. For the record, my side effects while on the 100mg XL tab were......frequent...and i mean frequent urination, hair loss, (i have long very thick curly hair that i wear in a ponytail and i had to figure out how to hide the side bald patches..im only 38) seeing spots and floatys daily that i thought i kept seeing spiders move across my floor or walls, upper back/should pain that was very debilitating, vision focus problems, ankle joint pain...(i would wake up with a limp cuz the pain in my ankle joint was bad then the next day it would be gone only to return a few days later), hands and feet tingly all the time. i have also had thyroid tests... Weight gain or stubborn pounds that would not budge...even with daily exercise and a diet that consisted of fish 3-5 times a week cooked without oil or fats and eating only sauteed veggies and fruit. i have not had a piece of bread or processed carb in months relying on an occasional small baked potato with no condiments. i have calculated my nutrition so precise that i making sure i consumed 4500 mg in potassium, 2-300 mg magnesium, less than 600 mg sodium daily, 1200-1300 calories with 50-80 grams of protein and less than 30 grams of fat. all this and my weight would not budge. after dropping my dosage down to 75mg from 100, i lost 4 pounds in a week without changing a thing..I was even sitting a lot due to the crazy spikes in BP and HR. During that second week of 75 mg...i lost 1 pound. now that i have dropped down to 50mg i have lost 2 pounds and its only been 4 days. I would like to know anyone else's experience with withdrawing from toprol xl.
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