June 20th
2008
12:54 PM
Hello all!
I am so happy I found this site and so is my husband. I'm 44 and was suffering with all that "pre pre menopausal" period. I had my tubes tied when I was 30. After an ultrasound showed very small section of overlie left. My doctor decided to put me on birth control pills (I'm a smoker) on once a day everyday cycle. My menses stopped and some things got better and some worse. After a year, my doctor then felt this iud would help everything. He found out yesterday that this morning he was taking this thing out of me or else. (9 hard months)
I had my iud removed this morning, so I'm only 2 hours out.
Sept 2007 I scheduled for insertion. Since my doctor told me it was 5 minutes in the office, I went on my lunch hour. I never made it back to work. This was on a Friday, so I had the rest of the weekend to rest. This 5 minute insertion hurt more than dilation pain in child birth. I actually cried out! The "measuring" portion felt like my dr poked a hole in me. Sharp hot pain. Then the device, when he said it would "cramp" for a bit, but it actually felt like he was trying to shove it into my left tube or wall but a too small place with painful pressure and a hard pinch. I asked if it had sharp edges. It felt hot, like a hot pin. After I cried out, he said ok ok it's in, Thats it.
I had tears in my eyes it was that painful. I was totally not prepared for there to be this much pain. My doctor told me that I might be a little crampy but that would be it. What I actually felt was so much burning stomach pain where it was hanging on to me with what felt like claw like hands. I could not stand totally straight up or I would get a fast, sharp, hard pain in the left side on my stomach where all the pain I felt at insertion. This lasted everyday for 2 months then happened less and less until now a few times a month. Mostly when I over do it by stretching, exercise and vigorous sex. I always have to slouch a bit or I get those pains now.
I get cramps on and off and it would usually follow a cycle, but I was not mensing at all. Only spotted a few times. The other side effects were making me crazy and my family worried and upset. Mood swings are horrible. They can be quick and fast abnd very dark, mad and angry. I would never have acted this way before insertion.
I get depressed on and off, mostly on, in most often 3 week cycles. Crazy super anxiety over the smallest thing. I have gained weight, feel totally fed up with my appearance. I feel suspicious of everything (my husband keeps saying I'm paranoid about everything and everyone, I didn't see that of course). My mind constantly races and have found myself confused, or forgetful. The worse moment when I was filling out a form and couldn't remember how to write my last name and spell it. I could see it but not write it down, I was unable to spell it out loud for too long not to really scare me into thinking what the heck was going on. I have had almost every side effect everyone has posted except the acne. I see more pimples now and ones sort of under the skin, but not often enough to see a dr about and nausea I haven't a problem with yet.
I will list the rest but there are more if I think about it I have. Now I want to see how long it takes for them to go away.
, Headaches and/or migraines everyday, constant stomach and vagina issues including: aches, full feeling, and sharp shooting hot pains, terrible moods that can come on instantly, feeling depressed, angry and mean, weight gain, fast graying hair, some hair loss, bloated breast that feel real full all the time, breast tenderness and sharp sudden pains, numbness at times in arms and hands, chest pain, anxiety, paranoia, racing thought, some slurred speech on occasion, confusion, memory loss, leg pains and aches, low libido, painful sex, painful orgasm.
I hope someone steps in and has this product taken off the market!
-- By spicyaqua | Reply | (1) replies | Private Message me
July 15th
2007
11:40 AM
I too have nothing new to add just wanted to share my experience. I had severe bylateral ear infections accompanied by a sinus infection. My dr. gave me 10 days of augmentumn (sp?) it didn't work so she then prescribed 10 days of Levaquin (poison!) my insurance company didn't approve it at first so the pharmacy put a call into my dr.'s office and was waiting for an alternative. I was in so much pain from the ear infections that I did the single worst thing that I regret in my life. I called my insurance company and had them overide the rejection and approve the medicine, I wish to God I didn't. I did ask them if it was a controversial medication and they said no, just that it needs to be approved. Well, I started on Monday July 2nd and by Wednesday July 5th my knees started to ache really bad, just thought I walked a little too much on the 4th (nothing out of the ordinary I walk all the time and swim) well I thought it would subside and NEVER ever ONCE thought it was due to an antibiotic (aka levaquin/poison). I experienced sleeplessness and nauseau and didn't think anything of it, I know most antibiotics can make you nausiated. Well, by Sunday I could barely walk and when I had to crouch down to get something, I had tears in my eyes trying to stand up, the burning in my knees was unbearable and I still didn't relate it to the medicine, I had NO idea! Well, by Tuesday I took my 9th dose and my ears had felt better but my knees were getting worse, so I woke up on Wednesay and didn't take the medicine and then called the dr.'s. I asked if this could be related to the medication because it's not getting better, and the nurse said, I've never heard of that before, but hold on. She came back and stated "it says a side effect can be tendonitis and she said I needed to come in right away" I saw the dr. and she said, yes it's a side effect but it happens mostly in teenagers, but she was a little concerned that I was still having severe joint pain more than 24 hours after stopping the medication and that she wanted to do a lyme test. She told me that even if the lyme came back negative she was going to put me on dicylomine (sp?) for 3 weeks as a precaution because lyme tests can produce false negatives. She said wait another 24 hours and if I'm still in pain then she will prescribe the lyme meds. Well, 24 hours past and I got the lyme back, negative, my knees were killing, my muscles started to shake in my upper thighs and I was getting vibrating sensation along with muscle contractions. I called them back and on Friday and stated that I did some research on Levaquin and this is a side effect of the medication and I am NOT taking another antibiotic for a disease that I don't have! They asked me if I could wait until Tuesday to come see the dr because she was on vacation and I agreed hoping that my pain would subside with the prescription motrin and some ice. By Saturday (yesterday) it was moving down to my left shin and both the back of my ankles were killing like they were stiffl. I called and they said to put warm heat packs on and take the motrin and they would see me tomorrow if necessary. Well, the trembling in my legs were so bad that I had to take a diazapam to calm them down (which I didn't want to because I wanted to measure the pain, but couldn't stand it any longer) and put heat packs all day. I got some sleep last night (most likely due to the diazapam) I think the ice is worse for this but it feels better at the time. I am NOT getting any better, what is going on with me? I cannot believe this company has not been put out of business! I am going to see the dr's on Tuesday and am treating my condition as if it's tendonitits, I am now experiencing the muscle contractions in my arms. I am drinking water like it's my job and trying to stay off my legs with just a bit of stretching. I do pilates and go to the gym but have not gone since the 2nd of July the day I started the medication and am getting frustrated because I need to go for my back (arthritis of the spine with some herniated discs which are killing me now because I haven't been able to excersie or stretch). I am SO furious that this drug is on the market, the nurse said that it was a serious but RARE side effect to the drug and that she has never heard of anyone having it, well I don't think it's as rare as they would like to think and would like to do something about getting it taken off the market!
PLEASE tell me PLEASE has anyone just ONE person recovered from this HORRIBLE nighmarish pain and anguish? I am looking for that one beacon of hope that others have recovered and are feeling better, please anyone. I have children and I need to take care of them but I can't move my legs without excruciating pain going through them, especially the burning of the top of my knees. ANY help on how you took care of yourself would be great help to me. Thank you all!
-- By lazacka | Reply | (8) replies | Private Message me
December 13th
2008
9:24 PM
My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child.
Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!!
Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...).
There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it.
BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)
-- By nomeds2 | Reply | (5) replies | Private Message me