Terrible thing symptoms and conditions

How can I describe my thanks to this site and everybody telling their stories? Thank you oh soooo much!!!

My not so short story: Im on my second Mirena, in total now for just over 8 years. The first Mirena was all joy, periods stopped, no side effects whatsoever. Then I got the second Mirena after I removed the first after over 5 years (my gyn recommended keeping it in for longer but I didn't want to take the risk).

And for the past 2 years my ACNE problems started, first only one or two cystic acne once a month or a couple of small ones here and there. Nothing major. But for the past year, my skin / face makes me feel like a freak. So I went to the derm, got put on Accutane, more meds with a yard long list of side affects. Had to go of Accutane cos my right eye's sight deteriorated so bad I couldn't drive home at night. Went to my house doctor, he wanted to take me of the Mirena asap and refered me to a new gyn, cos mine moved away and I was stuck. But the new gyn did not want to take it out, but rather put me on a retinoid cream, cos it wasn't the acne that caused the acne.... yea right. So 5 months I gave this retinoid cream... I feel like a freak with my face, both cheeks inflamed red bumps under the skin, large cystic acne everywhere... sigh.

But during this 5 months I found a web site acne.org and here I made friends and read stories and hoping and praying, even believing things are getting better, but they weren't. If I look at pics I took of myself 5 months ago and now... sadly things are worse. My self confidence is gone, and I don't even want to have sex with my husband with the light on!!! And then last week somebody posted on the acne site some posts regarding zinc supplements, and I read and researched more on zinc and acne and found that your skin needs zinc to be healthy and having no zinc could be because of to much copper or copper toxicity. So then I researched copper toxicity and found some web sites with references to birth control.... and a bright light went on... and I found this site...

I am glad to say I saw my normal trusted house doc again last night, and made an appointment to have the thing, Mirena, removed first thing Monday morning. I have stopped using any meds like the retinoid cream for my face and cant wait for Monday. I just hope my face returns to normal quickly.... time lines anyone? I had no trouble with acne ever until now.... and Im 35!!! Udult acne my @#$ :)

My right eye now needs laser surgery to remove a layer or something, Im seeing an eye specialist soon, and this was caused by the accutane drying up my eyes so much! :(

I will report back to let other ladies know how it went and how I am progressing... thinking of taking a daily photo of my skin for reference purposes.

Pray for me please, I really need it....

C.

Hello-
I am here to share my story about topamax in hopes that others may read this and not have to go through what I did. I went on topamax for the prevention of migraine headaches. It worked great to prevent my headaches but gradually I could not talk, I stuttered severely, and I have memory and other cognition problems. At my doctors recommendation I stayed on the medicine for about 6 months because he assured me that the stuttering would go away. I was in such awful pain that I agreed with him. Needless to say that 6 months was not me. I couldn't talk and I couldn't think. Now when I think back on it, I wish I had just endured the pain. When I went off of the medication I still stuttered. It was not quite as severe but it was bad. It effected my work, my personal life, and daily menial tasks. I could no longer communicate. I was devastated. My doctor was puzzled and said that he had never heard of this before. So to make a long story short I went to a speech clinic, bought casa futura techs small talk device, and tried some anti-stutter meds. My speech now, 2 years later, is much improved thanks to the smalltalk but guess what,? I still stutter. Manageable and not very noticeable to others at times but my speech has not returned to pre-topamax status. I looked into sueing the drug company to bring awareness about this issue but did not get much positive feedback from attorneys. IF YOU ARE ON TOPAMAX AND ARE STUTTERING, STOP TAKING IT. IT MAY NOT GO AWAY WHEN YOU DISCONTINUE THE MEDICINE. It is not worth it. You cannot put a price on speech. I don't care what the physicians desk reference says, what your doctor says, what the corrupt drug companies say. I know my experience and it has been a catastropohic effect from topamax. Find a different med if you have speech problems! Please, for your own sake. Thanks for letting me share my story.

My daughter is 5 years old and has been on Singulair for about 2 years now. I was at a loss concerning her behavior for the past 2 years. The anger, aggression, tics in her eyes and legs feeling tingling, unable to express herself, and truly not liking herself and thinking we don't like or love her. All this brought us to take her to therapy. And then all this information regarding side effects of Singulair come out. I brought this to her allergist and he like many others brushed it off. I think it is time the medical community looks very close at this drug concerning side effects with children. How many more parents have to come forward with all the same side effects for these educated doctors to realize there is a hugh psychological and neurological connection with this drug for some children. It has been two days now that my daughter stopped Singulair. Her nose is already starting to drip and her cough is back, but I would much rather deal with these side effects of allergies than watching her go though this mental anguish any longer. I have not seen any changes yet, but it had only been two days.

ive been using Yasmin for two months...and lately ive noticed that the pimples are coming out...experienced itch near my breast and most terrible thing that happened is i gained 20 pounds for just two month... if i stop taking the pill do you think everything will be back to normal??? please do help me...

melche

i do believe this is the most horrific form of birth control ever created. i had this suggested as a birth control option after giving birth to my 3rd child. after having a bad experience in labor there was no way i wanted anymore. i would love to have a hysterectomy. hrt. i could probably cope with a lot better than being put through hell asnd back every month.
mine was suggested my my gynecologist and i do suffer strange reactions to anaesthesia so seemed to be a good idea to have this put in to see if it worked. how wrong was i. i was a very very angry person. i never ever suffered any nervous conditions before so this was new to me when i completely lost the plot. i was put on beta blockers and i thought i was having a heart attack on them. i suffered worse periods . cramps fatigue . headaches . my skin is still spotty. i always had a lovely complexion before this. my immune system isn't what it used to be. the list went on and on. i didn't like it at all. i asked for removal and they said i had to wait for another gynecology appointment. i knew all the side effects were off this thing in me. i had to wait for an appointment to get it removed./ said 9 months was the normal wait. i think they get paid to test run this contraception. and at what cost? our health

i will voice my opinion about this as its disgusting how much these fat cat pharmaceutical companies profit on what should be free to British citizens.its getting so bad in the nhs we are told to get seen quicker we have to pay. but 20 or 30 years ago people would have laughed at that.

has any real tests ever been carried out on what is in these devices and how it affects so many women in a really bad way.

my problem was when i finally got a sympathetic locum doctor at my gp surgery to agree to remove it. she asked me to give a sample for pregnancy. can you imagine how hysterical i was . yes i was pregnant. so much for the 99.9 % effectiveness. that meant i couldn't have it removed. one idiotic nurse congratulated me

i screamed are you insane woman . congratulations!! what is wrong with you? do i look happy?

the doctor was more sympathetic. everything was a daze at first. she explained chances are i will either miscarry or have the baby and dispel it in childbirth. on my own again. i had a miscarriage 2 days later. not impressed with this at all. i then had to wait 2 weeks for an emergency scan as chances were it came away complete.

how did i feel .angry. empty. physically and mentally drained. i think if i could have i would have ripped that thing right out of me

so i had the scan. luckily it had came away. i begged them to take it out. sent me back to the doctors a week later. and they removed it. i refused to do another pregnancy test said , please just get on with it.
two hours later i was feeling a lot calmer.

i so thoroughly enjoyed having that thing removed for good . never again would i have that in me. or any other coil.

however this is the beginning of a very upsetting case of long term side effects at there worst.

i decided to get sterilized after all this . understandable as being highly fertile sex was a big issue and i wouldn't meet anyone let alone sleep with a man. fear was the biggest thing. getting pregnant was a big no no.

i got sterilized. this is where the problems start for 3 months periods would be getting worse. horrific migraines. couldn't fathom it. my cramp was bad before but god this was like hell. about 6 months passed and steadily was getting worse each month. no amount of painkillers would help. and i could see in myself my skin getting worse. spots. my eyes feeling tired. red sometimes. itchy and dry. feeling sick and tired. then unable to get any sleep on a night. catch 22 . cant sleep then cant get up .i could sleep all day and night no doubt if it was possible . mood swings very bad depression. so much so i had a breakdown in December 07. i took 6 weeks off work and it helped somewhat .but still the periods and bad painsdwere getting worse. i am not a whimsy sort of person. cramp is tolerable this is so bad i cry and cry and wonder why i have to be suffering like this every 3 weeks. i nearly pass out with the pain. i do not like going to see my gp as i find them no use at times. feel like a conveyor belt and you lucky to get ten minutes as the norm is 5. i finally went up to the doctors July 08 and he gave me lots of pills and said i shouldn't mess with mother nature and get sterilized. i don't think he got that right. i still blame that coil. my depression is quite bad at times. my pain is a constant dull ache in my abdomen still. i feel like its on fire when i have my period. i have to work out when i am due on my period and take a week off work. its really bad. i end up in bed. due to the fact i cannot stand upright. it is so bad it feels like labor. but its excruciating. i feel ive aged a lot in the last yr too. i cry most days as i am so tired and feel myself dreading the next one. i try to remain positive and think it will last a week and then i will have two weeks where its not so bad. but my cycle is so messed up that i suffer headaches a week after the bleeding and i am still suffering occasional contractions. if anyone has any experience like this i would be grateful of some sort of assistance be it advise or medical. i don't mind any sort of critical opinion either. i have a very open mind to all sorts of issues so will take any advise on board. i may see an end to my battle of suffering. i am waiting for another hospital appointment to see my gynecologist and hopefully it will be very soon.

tracy.

I have been on Paxil off and on now for about 5 years.... the current length of treatment for the past 1 1/2 years. I need to be on it ( or something for that matter ) for my panic disorder. I am a 36 year old nurse/ manager and some days was almost debilitated by panic attacks. Depression was part of it, but not nearly as much as panic. I must say, that I have been experiencing memory loss now for about a year.... I thought maybe it was due to overwork/ stress...which I do understand it COULD be. However, I find it interesting that I am seeing so many more people with memory loss than I imagined. Is it due to stress in this type of people's lives, or is it in fact, the drug Paxil?
Keep in mind this is an SSRI ( Serotonin Reuptake Inhibitor ) ~~ even though there is no solid evidence (YET!) this is a side effect of the drug, I would bet my license on the fact that that it is!
I have tried time and time again to wean myself off of Paxil.. ( with and without my Dr's advice )--- I did succeed for a few years to be without the medicine, however being on a slew of other meds in the interim did not help as much for the panic as does the Paxil. Paxil, honestly, scares the hell out of me!
Besides the "numb emotions", memory loss, sexual appetite decrease, yawning, lack of sleep, etc... the side effects of coming off of it are worse! As I read earlier, it IS addictive, indeed! The brain gets used to the drug being there ( as with any addiction ), and the "surges" of dizziness, sweats, and out-of-body-like experiences I experience coming off of the drug are excruciatingly harder to bare than the depression itself. Those above symptoms of withdrawal are just that....withdrawal!
Once your body is "allowed" to reuptake serotonin (as it is supposed to), this is when those symptoms raise their head...sometimes for weeks or months until they subside.
I would welcome anyone with help on this matter---is there another Drug out there that can help with anxiety/depression symptoms, and not cause the plethora of side effects we have all discussed here?
Diane

i have been off the evil device for 2 months and last night i finally had my sex drive back!! my husband was so excited! i felt like i did before i had kids. I still am loosing weight slowly. my acne is gone. i have more energy. I am a happier person. all i really have to say is that my life is falling back into place and i am happy to have this terrible thing out of me!

Help me! I have stopped taking Yasmin for about 4 or 5 months because my husband and I want to conceive. I AM STARTING TO LOSE MY HAIR! I am so worried about this as I am losing at least double the normal amount everyday and this has been happening for about a week now. I have noticed the difference as my hair is not very thick. My husband has noticed. My friend says she can't tell, but if you look in my bathroom and my comb you would think I was undertaking radiotherapy. I went to my doctor two days ago and she thinks it could be thyroid or iron problems. She thinks it could be ceasing the pill but is unsure......PLEASE, is there ANYONE who has experienced this? And if so will it stop? I am so distressed about it.

I've been taking Yasmin for 4 months now and in that 4 months I've had 3 bladder infections; before that I had one almost 27 yrs ago when I was very young. I have also found myself crying at the drop of a hat and being really depressed for no reason. I started taking them when I began dating someone seriously so I assumed the UTI's were related to an increase in sexual activity (although UTI's had never been a problem before when I had an increase in sexual activity). I started researching the cause for frequent UTI's and BC is one of the possible causes. I have stopped taking this pill and I'm anxious to see how things change. I'm also going to see a urologist to be on the safe side.

I just went onto: http://www.drugs.com/yasmin.html just to see what they had to say about Yaz, (I am no-longer on the terrible thing, see my previous post) but I saw something really scarey on the site, namely: "This medication can cause birth defects in an unborn baby", now I'm sure they are referring to falling pregnant whilst taking the medication, but my concern is that it appears to take a number of month for the drug to leave your system competely once you have stopped taking it, so when is it safe to get pregnant after coming off it??? this is a very very scarey!!!! des anyone have an answer???

Mom is 80 and was always a go getter. Now her life has been in shambles with taking the Lisinopril. This drug is made from Brazilian poisonous snake venom. Hard to believe that this is being out to treat folks. Anyway, Mom went down after three months on this stuff. Her mind was always good and her memory sharp until her Physician put her on this stuff. Now, her hands go numb, mainly at night. Her breathing is hard and extreme fatigue. We almost lost her last week from a spike in her blood pressure, she was still on the Lisinopril by the way. 911 was called and they worked to get her blood pressure down. She was hauled to the hospital twice. The doctor could not find a thing. Ha ha. They never once thought to take her off the Lisinopril, even though it showed no effectiveness against the blood pressure spikes. She is scared to get off this mess. They now have upped the dose double and put her on an additional blood pressure patch, dizzy pills and an anti anxiety drug. All this due to this venom that she is ingesting. Has anyone had stroke like symptoms with this medicine? Also, her hands go numb and she cannot sleep. She has had hallucinations of people sitting and talking during the night. What a terrible thing for the FDA to approve!

My son is 6 years old. He has been on this for two years. This year the teacher thinks he had Adhd. We had an eeg yesterday. It showed he was fine. When we filled out the papers on Adhd it showed alot of the symtoms. So today I came on this site and was shocked to here all the side effects the kids have . They all sound just like my son. On Monday I took him off of it on Monday. By thursday the teacher said she didn"t what I had done to him. He set still for the first and listened.
Thank you for posting to help me get through all this terrible thing they thought my child had.

I was on Zometa for a couple of years. I ended up with what they call Dead Jaw. I have had 2 surgerys on my jaw . The bone in my mouth will never be the same ever again.I have a big dip in my lower jaw bone now. It was very painful and has really ruin my mouth.I can no longer eat some of the things i used to if they hard.I is a terrible thing to go threw. I hope i dont have to go threw anymore surgery. It was cause from the Zometa. Thank you, Denise