Terrifying experience symptoms and conditions

I have just taken my sixth and FINAL Lupron shot. I was unaware of many of the side effects, like IBS. I am a lot different than most women. I was born with a birth defect called cloacal exstrophy. I am 41 years old and have lived my life with no bladder or rectum, due to extreme reconstructive surgery at birth. I have a permanent Colostomy and urinary diversion (ileal conduit). I do not have a very large amount of intestine, which creates an absorption problem of certain things, one of them being Calcium. I have also had severe orthopedic reconstruction since birth.

In December of 2008 they found a mass on the right side of my abdomen along with a hydrosalpinx. The hydrosalpinx was drained and I was then urged to start a 6 month cycle of monthly Lupron shots. There is a long history of endo in my maternal family. I have been advised that because of existing scar tissue from so many past surgeries a hysterectomy was not possible. I can not even have a laproscopy to determine that the growth is actually endo.

3 months into the shots I started to suffer extreme diarrhea, lasting from 1 to 3 weeks at a time post the Lupron shot...it was blamed on overgrowth from past surgeries, etc. It has become a terrifying experience for me. Due to my inability to absorb calcium well I now have several calcium kidney stones that must be broken apart with a laser. I have no idea what will happen with the GI symptoms or if they will continue once the Lupron "wears off".

I have no concerns about fertility, since having children has NEVER been an option for me. My concerns are surviving my life longer without additional risk to it from taking this drug.

I have had the usual symptoms of sweating, night sweats, fatigue, Hair loss, loss of appetite and occasional insomnia. Again, the most concerning to me are the kidney stones and GI problems I have been experiencing, including "sludge" in my gallbladder.

I am severely disheartened by the lack of looking at the whole picture, at least midway through this treatment. This is compounded by the fact that my treatment stems from one of the country's "top 10 Hospitals", which is a direct affiliate of the Children's hospital that did an AMAZING job of successful reconstruction in 1968. It is 2009 and I have fewer options to improve this situation than I did the issues from the original reconstruction in 1968.

I feel I never should have been put on this medication and am deeply concerned about my survival from here. If I could go back 6 months, as informed as I am now.....this IS NOT the path I would have chosen. I no longer know which Doctor to trust, what decision is best for me or how much more I can take.

If there are any AMAZING Dr.s reading this, please feel free to contact me...I am desperate, I do not feel that this should affect my survival rate and am willing to listen to alternative solutions IN THEIR ENTIRETY.

Anyone with a shortened GI tract, absorption issues, or previous health conditions should WEIGH ALL OPTIONS and do AS MUCH RESEARCH AS POSSIBLE before agreeing to this treatment. I placed trust and confidence first, not one of my better decisions concerning my health. I will not continue treatment with Lupron.

Posting my experience again.

You are not alone and your children are NOT hypochondriacs (something tells me small children don't even know what that means).

My 5 year old son was diagnosed with mild asthma and put on Singulair. Within a few months he began having uncontrollable fits of rage, displayed self-loathing behavior, had night terrors, and was inconsolable during these episodes. He became very destructive and was a danger to himself and our family. He even talked about killing himself and would say things like "I don't want to be in this life anymore" and "I want to kill myself". He would threaten my wife and his siblings and told them he wanted to kill them. It was a truly terrifying experience. Our pediatrician was clueless to these side affects and recommended we have our child go through a psychological evaluation. I knew this was not my child's normal behavior so I searched the internet for Singulair side effects and found some message boards where parents just like me were telling their stories of their children's aggressive behavior. I immediately took my son off the drug and within a couple weeks he was back to his normal self. He told us that he no longer has "that feeling inside of him". Five year old children don't even know what suicide is and to see my son talk like this was extremely frightening. He is a sweet, intelligent, loving boy who had never exhibited behavior like this until he went on Singulair. We have not seen this behavior after taking him off the drug. Please use your best judgment and connect the dots for yourselves.

READ THIS:
I'm posting this again for the sanity of the concerned parents on this board to let you know you're not alone:

My 5 year old son was diagnosed with mild asthma and put on Singulair. Within a few months he began having uncontrollable fits of rage, displayed self-loathing behavior, had night terrors, and was inconsolable during these episodes. He became very destructive and was a danger to himself and our family. He even talked about killing himself and would say things like "I don''t want to be in this life anymore" and "I want to kill myself". He would threaten my wife and his siblings and told them he wanted to kill them. It was a truly terrifying experience. Our pediatrician was clueless to these side affects and recommended we have our child go through a psychological evaluation. I knew this was not my child''s normal behavior so I searched the internet for Singulair side affects and found some message boards where parents just like myself were telling their stories of their children''s aggressive behavior. I immediately took my son off the drug and within a couple days he was back to his normal self. He told us that he no longer has "that feeling inside of him". Five year old children don''t even know what suicide is and to see my son talk like this was extremely frightening. He is a sweet, intelligent, loving boy who had never exhibited behavior like this until he went on Singulair. We have not seen this behavior after taking him off the drug.

My 5 year old son was diagnosed with mild asthma and put on Singulair. Within a few months he began having uncontrollable fits of rage, displayed self-loathing behavior, had night terrors, and was inconsolable during these episodes. He became very destructive and was a danger to himself and our family. He even talked about killing himself and would say things like "I don''t want to be in this life anymore" and "I want to kill myself". He would threaten my wife and his siblings and told them he wanted to kill them. It was a truly terrifying experience. Our pediatrician was clueless to these side affects and recommended we have our child go through a psychological evaluation. I knew this was not my child''s normal behavior so I searched the internet for Singulair side affects and found some message boards where parents just like myself were telling their stories of their children''s aggressive behavior. I immediately took my son off the drug and within a couple days he was back to his normal self. He told us that he no longer has "that feeling inside of him". Five year old children don''t even know what suicide is and to see my son talk like this was extremely frightening. He is a sweet, intelligent, loving boy who had never exhibited behavior like this until he went on Singulair. We have not seen this behavior after taking him off the drug.

My daughter was put on this drug in an attempt to control a mystery condition (aka the doctors have NO idea what on earth is going on). She was on a half dose for the first week and started having trouble getting to sleep. It slowly got worse during that week. When the dose doubled in the second week all hell broke loose. By the end of the third week she hadn't slept for 4 days/nights AT ALL. I got no response from the doctor when I called (took him a week to ph me back) so I decided to take her off it. It took 4 weeks until she returned to normal. It was a terrifying experience. The doctor's comment was "Well it's not a KNOWN side effect" Guess what? I fired him.

I went into Leighton hospital for a simple hernia operation as a day case and before the operation I told the nurse I didn’t want my knickers removed. She said as I was 21st they were not in the way and that was fine I also told her I didn’t want a suppository. I was taken into the anesthetic room and given a massive dose of Midazolam 10mg all in one go according to my medical records.
I then started having a terrifying dream of being gang raped I was in a room full of people and they were removing my knickers in the most dirty, vile filthy and perverted way I feared for my life. I was unable to stop them doing these vile things to me and I was totally humiliated being stripped in public in this way it was the most terrifying experience of my life.

Midazolam is know to enhance sexual feeling and lots of cases of people having these feeling that's why it popular as a date rape drug. My knickers were removed for none medical reasons they claim so they wouldn’t get stained. Any women would prefer to loose a 50p pair of knickers instead of being forcible striped by complete strangers. I don’t know if it was done so people could look at my private parts in order to get sexual pleasure or what. As it’s a criminal offense of Assault and Battery which can have a 6 months custodial sentence I wouldn’t think anyone would do it without they got pleasure out of it. To ask a women while awake to remove her own knickers is one thing but to forcibly strip someone is a totally different thing As I was coming around from the operation I was awake when a nurse lifted my legs and buggered me.

Both the things were done totally without my consent and expressly against my wishes I don’t care how good a reason you had you did it totally without consent and for that reason its sexual assault.

It has now been nearly 2 years since this happened and I still wake in the night from horrendous nightmares screaming and trying to cover my self from the sexual assault my heart rate goes through the roof and I cant breath. My life has changed I am dirty and can never be clean again I have been sexually abused just the same as if I had been raped but its worse than that as I was helpless and had no way of stopping the attack, I couldn’t even fight back. I cant have any sort of sexual relations as I am unclean and cant stand the thought of anyone touching me. I have been buggered and deeply humiliated without my consent has taken place and once again I was unable to stop this happening to me. I feel that some perverted women has had her wicked way with me and once again it was done against my wishes and without my consent.

What makes this worse is the hospital refuse to sack this woman or name her so she can be brought to justice. She has no excuse for what she did its her job to ensure she obtains consent before she touches anyone and simply asking if its ok and explaining what she wanted to do is all it took but she didn’t do any of these things just simply buggered me. As she didn’t seek consent I can only conclude that she is a lesbian and obtains great sexual pleasure from this act of sexual abuse. No decant caring nurse would do this terrible thing without first obtaining consent.

In the last 2 years I have lost over 11st in weight due to this incident. If I go out and see a group of people it can bring on panic attacks were I think they are going to strip me again my heart races and I cant get my breath. The attacks can happen watching television if there is anything similar to what happened to me. My life is a total mess I am depressed and often go into a world of my own for a week at a time. I cant talk about what happened without getting flash backs.

The hospitals attitude is once you give consent to an operation they can do what the fucking hell they like to you. For senior management to refuse to give the names of the perverts that did this is unbelievable. The senior management at the hospital refuse to answer any emails and have not bother to even apologize for the sexual assault they claim it was all done above board but if you bugger someone and remove their underwear without consent there is no great area its assault. The GMC have ruled that these things were done without consent so there is no doubt that in the eyes of the law a crime has been committed but still the hospital refuse to name or discipline the nurses who have done this to me.

I want all doctors and nurse to read this and I hope they will then think before they do anything to a patient without first obtaining consent they must remember that people are not just pieces of meat but have feelings and fears and are very vulnerable. Maybe reading this they will understand what effect their actions can have on someone. To them removing underwear is nothing but to many this has the effects that I have described. Many modern women might not mind but there are thousands who feel like I do.

I noticed my time in hospital that most don’t ask consent or explain what they intend to do they think they are gods better than the rest of us and can abuse patients and get away with it. I believe that most of the violent attacks on staff are because they don’t explain what they are doing and don’t seek consent. It take a second to say I want to take some blood is that ok.

I do accept that the whole incident was done for all the right reasons and nothing untoward happened but this doesn't make any difference to what I felt and what I still feel a lot of the feeling I believe are enhanced by the drug Midazolam that they used and it show they have considered the side effects of this drug. Midazolam can lead to the patient experiencing daydreams with a sexual content.

Lupron has been a terrifying experience for me. It was recommended as a last approach prior to a hysterectomy. I am 29 years old with two children. I have an incredible amount of scar tissue as a result of infections. I experience incredible hot flashes, confusion, extreme insomnia, joint pain, sharp pains in my back and abdomen, extreme vile nausea and dizziness. Vision issues, you name it. It was wonderful to see feedback from everyone to know that I am not alone. My doctor says that all of this is a figment of my imagination. The most terrifying of all is the fact that I cannot seem to think straight. I was an incredibly technical person before I started on the lupron injections (i'm on my 2nd and last 3 month shot), and I now feel like I've been reduced to nothing. I cannot manage to do things that would have been extremely simplistic before. Sometimes the cramping is so bad that I cannot move. I cannot wait until this is over.

I am so thankful that I found this site. Usually I wouldn't post something like this but I have found that it is so important for people to realize that it was the Yasmin because of what it did to me.

I started on Yasmin about 9 months ago and it was great. I had no side effects but only mild moodiness which I just attributed to my ultra sensitive personality. But all of a sudden a month ago things got really bad. I suffered the worst depression and I honestly thought that something was seriously wrong with me because I had never had issues with any sort of depression in the past. I would cry every day, I would not want to talk to anybody (including friends) except my mother to whom I would cry nonstop. I had anxiety and my heart would race. I also could not seem to control my mind. I was petrified because my mind would race and I would be paranoid and worried about the most ridiculous things and I simply could not get under control. I lost 10 pounds in a month because my appetite became non-existent so that I would eat maybe once a day, and not much at that. I would wake up 3 or 4 hours earlier than usual and not be able to get back to sleep no matter how hard I tried due to the anxiety and heart palpitations I was having. Honestly, for all of this to hit you all at once out of nowhere is a terrifying experience, and I was so embarrased that I didn't want to say anything to anybody.

When I found this site it was like one thousand pounds were lifted off of my back. I realized that it was a hormonal imbalance and that I needed to get off Yasmin right away. I threw away the pill pack right in the middle. It took 2 weeks, but like magic, 2 weeks to the day that I stopped taking it I was miraculously a new person. I had never been so happy, partially because this burden was lifted off of me, and also because I didn't feel like I couldn't control how I felt anymore. I realized all of my friends who I had alienated because of my behavior that at the time I didn't care about.

This took a huge toll on me, and thankfully I figured out that it was the Yasmin before it continued for much longer. Thanks you to all of you who posted and for those of you reading, nobody deserves to feel this way and you are not crazy. Thanks again!

I am a 62 year old healthy male. About two months ago I was prescribed 500 mg. Levaquin by my urologist for a suspected prostate infection. Within the first 24 hours I experienced strange visual effects and extreme fatigue. By the third day on the medication I began to notice motor coordination problems. On the fourth day I awoke with chills, major hand tremors, and extreme motor coordination difficulties in my hands (I was unable to pick up a coffee cup with only one hand). I stopped taking it at this point, of course, and the symptoms gradually declined. It was a terrifying experience.

About one month later I had a relapse of the original symptoms and immediately arranged an appointment with my regular physician, who ordered a brain MRI and a prescription for a beta blocker to relieve the tremors. The MRI was negative. My symptoms improved markedly, almost immediately, and have not returned, even though I am no longer taking the beta blocker (after one month of regular dosage). I have my fingers crossed for the future.

I learned that my sister had similar reactions to Levaqui, suggesting that there might be a genetic predisposition to such an extreme reaction. From now on I will indicate to medical personnel that I cannot tolerate any member of the fluoroquinalone family of antibiotics.

As a side note, it turned out that I did not have a prostate infection after all but rather that a sudden upward jump in a PSA reading led the urologist to suspect the infection. A retest showed that the reading was anomalous, completely out of line with my history of lab tests for PSA. The worrisome part of this experience is the physician's willingness to prescribe such a powerful drug without clear indication of an infection.