Throes symptoms and conditions

I am 26 yrs old and had the Mirena inserted when my son was 2mos old in Feb 08. I still have a very light period, however I have major discharge all the time, tons before my period. My cramps are similar to the beginning throes of labor as my back and hips hurt extremely bad. I have NO SEX DRIVE, I am moody and feel distant to my husband. I am typically a very high strung person, yet now I want to sleep all afternoon when I get home from work. I keep migraines to the point of having to visit a neurologist...have the appt scheduled but haven't been yet. I don't feel depressed, just distant. I have dizzy spells. I want this thing gone.

PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.

Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.

Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.

So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).

We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.

I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.

I had a fever of 100+ degrees for 7 days and went in to the ER to see what was going on with my body. Anyway they said I must be getting over a virus and that they usually last about a week or so. On the 14th day of continual fevers I went to see my doctor as I was getting angry with not knowing what was wrong with me. Blood work was done and I was put on 750 mg of Levaquin for 7 days in the event I had a bacterial infection. My temps spiked to 104.1 and again I went to the ER and had more blood work done. On day 21 my fevers reduced and I had more blood work done. Apparently I had CMV a virus that 80% of the population has or had. Needless to say I have been off the Levaquin for a couple weeks now. I have pain in my right arm the entire length of my arm between the elbow and shoulder and if I extend my arm the wrong way the pain is so bad that I cannot breath and almost throw up. The pain is a true 10 out of 10 and I am beginning to feel soreness in my thighs. I will be contacting my doctor tomorrow morning as the pain will not go away as I was hoping it would. This is bad.

Wow! I am shocked. I have taken Levaquin on several occasions in the last two years for various infections - cellulitis, pneumonia and UTI. Over time my legs, knees and right hip have become so painful that I have actually checked the terms of my life insurance policy because I did not think I could go on. I have been attributing my severe pain, which is not helped by narcotic pain medication to any significant degree, to an old fall injury, new over-use injuries, being overweight, not being fit, etc. I never thought for a minute that my only available antibiotic choice, Levaquin, could be the culprit. I was just researching severe leg pain on the net (again) and stumbled on this site. I have had unusual headaches, loss of appetite, and of course severe leg, knee and hip pain, as well as weird visual perceptions (I keep thinking the light is too low) and horrible muscle pain in my right thigh and calf. I had a trip and fall accident and now have lymphedema in the right thigh and have had many other complications since '92. When I went back to my doctor last Monday, he told me to take a second course of Levaquin for cellulitis in the thigh when I complained about the horrible pain in my thigh muscle, knee and hip. Does he really have no idea that Levaquin has these serious side effects being reported? I am now terrified that these painful conditions are going to persist for a long time to come. I can barely walk at this point and I have chronic severe pain and I have missed many days of work since taking these last three rounds of Levaquin (500 mg. x 10 days each) since September. Again, wow!