Thyroid symptoms and conditions

So I made an appointment to have my mirena removed on Monday. However, i am scared now that my post symptoms are going to be far more worse than they are now but, it needs to be done. So, if you have had it removed can you please reply to this posting so i can have some idea as to what i could be facing?

MY STORY

My Mirena was removed on 29th May 2008.

I had the Mirena put in four years ago,I had terrible pain the day after, it was that bad I was going to go to the hospital Emergency to get the thing out but I put up(the worst thing I done in my life, Im paying for it now) with it and it and the pain got a bit better,had a lot of bleeding (spotting) for the first six months and then it finally went away. For the first year I thought Mirena was Great but then the problems started.I started to gain a lot of weight,facial hair,Very sore breasts, I also had a lump removed from my left breast a couple of years ago, but I didn't know until recently that it was most likely caused by Mirena. Some of the other problems I had, My stomach bloated, I look like I'm six months pregnant ,I have a cyst on my left ovary,dry skin,acne,strange depression,headaches,and the Worst of all I had to have my Thyroids REMOVED on 1st Nov 2006 and I'm pretty sure that was caused by Mirena as well, so now I have to take thyroid Medication for the rest of my life,I had the Mirena removed as soon as I done some searching on the internet for my unexplained medical problems, mainly my weight as I had weighed about the same my whole adult life and now I had put on a few stone and now I have to try and lose it,as for my thyroid I have trouble getting the Meds right its a real pain,blood tests all the time.I just don't feel I have much left in my life,depressed,sick all the time. I eat well as I have high cholesterol so its not that I over ate,I noticed you do feel a lot more like eating sweet things. I found a site called ****** and found out there are thousands of woman,girls with the same problems as myself and that there is a class action law suit going on to Sue. Its worth having a look at this site it helped me a lot.I feel so bad I don't go out anymore I don't see friends or family I'm to depressed about my weight now. I am in the process of trying to find out if there is a Class Action Law Suit in Australia.If anyone knows of a Class Action in Australia could they Please let me know. After having the Mirena removed about 6 weeks ago I thought I was doing ok only a bit of spotting,but about 3 weeks after having it removed I got my period and the pain was unbearable,I was in agony stomach cramps and I bleed so much I thought I was going to die from blood loss,also the scariest was the huge blood clots,very scary,must of been four years of period in 1 week I couldn't believe how bad it was, I felt really sick and weak,but thank goodness its eased off now after a week. I just hope now I might slowly start and feel like my old self. Im also on medication for heart palpitations,I get Heart palpitations (SVT) a few times a week,I had my heart palpitations just after my thyroid removal op and was put on ecg and my heart rate was 176 Beats per Minute I was rushed to Intensive Care and I had to have an injection called Impending Doom (It makes you feel you are going to die) to slow my heart rate,it worked and I was kept in intensive car for 3 days,very scary thing to go through I hope I never have to go through that again,my heart palpitations got worse while I was on Mirena and now I also take Magnesium to help control them as well as Metoprolol which I have been on for some years and I recently read that if you are on Mirena it increases the side effects of Metoprolol.

So if you have had any bad experiences with Mirena please let us know,it will help others with their problems, hopefully. I just wish I never got Mirena and my advice is DON'T its not Worth the risk,if the Doctors had of told me about the BAD side effects I would NEVER of had it put in. Sorry about going on so long, Good Luck to you all,

Thanks Net.

google mirena-side-effects.****** (a mirena help,info site)

UPDATE

I have had it out nearly 3 months now my painful breasts feel normal again,I haven't lost any weight yet, but will soon hopefully,I do feel a lot better but still get some of the symptoms back just before my period.

I get sooo mad when i think of what Mirena done to me and all the other women and how bad some of their side effects have been. I get mad when i read some of the other ladies stories and the terrible things they have gone through ,

Perforations,Miscarriages,IUD's lost in their body,

Hystorectomy,and the rest. I want to wish them all the best, and we WILL get Better and Bayer ,Mirena will PAY some day for what they have done to US..

I had my thyroid removed 16 months ago. I had nodules and biopsies, but the biopsies couldn't tell if the nodules were cancerous or not---so I had the whole thyroid removed at my doctor's advice. I have been taking Synthroid and increasing the dosage---now up to 200---and I have gained 37 pounds!! I can't stand myself any more, none of my clothes fit,and I am so unhappy. I had gastric bypass surgery 9 years ago and lost 123 lbs. I had gained 20 lbs, but was stable for 7 years. Then I had the tyroidectomy and -boom- I'm fat again. I am really panicked. I don't want to gain all my weight back. It seems like I get fatter every day. My endo doesn't take me seriously, he says my thryoid is at the right level. I don't know what to do!!!!

I am currently 58 years old and lead a very active, healthy lifestyle. I began taking 10mg of Zocor, along with 1000mg of niacin in the summer of 2004 to reduce cholesterol (251) and triglycerides (571). The therapy dramatically improved my blood tests, however, within 6 weeks, I began to experience minor chronic skin infections, both fungal and bacterial. They were easily controlled with topical over the counter type medications, but they were annoying. At no time was this new condition linked to the statin/niacin therapy by my doctor(s). The infections became progressively worse over the next 3 years, and evolved into chronic folliculitis in my scalp, neck, and face, cystic acne, and persistent fungal infections that were becoming more difficult to control. In addition, I began to get chronic eye infections. It was as if my immune system was becoming ineffective. I stopped taking niacin in December of 2007 and the symptoms immediately lessened. I stopped taking Zocor in March of 2008 and within 2 weeks, all the skin problems and eye infections completely ended. My health was restored completely and I am glad to have put that whole mess behind me! I have been taking Omega 3 supplements to control my cholesterol and triglycerides and have had results that equaled the Zocor and Niacin therapy, with cholesterol at 160, triglycerides at 91, and a favorable HDL/LDL ratio. My physician is skeptical, but I know that my body was not functioning correctly with the statin/niacin treatment. I have found anecdotal reports from others who seem to have experienced a change in their immune system, but no mention of this as a side effect by the medical establishment.

I have been on synthroid since 1982 after RAI to treat Graves. I had 1 child since then and was early 20's but around 30's started having weight gain and fatigue etc. I stopped the meds in 1992 on my own for several months then dr was very scolding and said never do that again. Ever since I went back on I have been gradually worse and worse. Went from 105 in 1982 to 192lbs now. I feel so helpless and lack of care from doctors in trwating me. 1996 had hysterectomy and both ovaries removed which has caused even greater imbalance of the estrogen and thyroid. I pray that I can find a cure that does not require medication like synthroid. Tried Armour in 2005 but did not get better. Lost a little weight but now I found it again and more. The only doctors in MN that I believe can help do not take insurance and I am single parent of 2 children and cannot afford to pay out of pocket expenses. I have already spent close to $1000 to the naturopaths but they sold me way too many supplements, I cannot even take all them its too much plus they both said lose weight. I have no energy or mind skills to implement a structured diet and exercise plan. Anyone know a doctor in twin cities, MN that takes insurance Preferred one that can help me with bio-hormones? Tmaya

Everyone here PLEASE LISTEN TO ME! Dr. Holtorf in Torrence, California is the only one who tests for REVERSE T-3 and 80% of people are not being treated properly for thyroid function. The Holtorf Medical Clinic is the ONLY way you will find the answers and people are experiencing miracles.

Hey everyone, I have had issues too. Mine started when I had my Mirena placed. I was 5 weeks post partum. Felt great before that. I had a c-section and still was ok.
About a month later I realized my legs were always sore. It felt like I wore 5" heels and walked 5 miles the night before. Even the bottom of my feet hurt.
I started to put 2 and 2 together and also noted my migraines, light headedness and extremely tired, not to mention my sex drive went from 8 to zero!

I called my OB and they said I have to see my primary doctor because they won't see me for leg cramps. I told the nurse it is b/c of the Mirena...blah blah blah.

I went to my Primary doctor who knows nothing about birth control (or not as much as an OB). He said post pregnancy will bring on things like anemia and thyroid issues.

I was ok until I had this put in. I know my blood work will come back ok and that makes me so mad!

I go in Oct for my 6 mo checkup with the OB and I am having it removed. It is not worth how I feel. I don't want another baby right now but I guess it is back to the pill and calendar method.

I am a female and was diagnosed with Hashimoto's three years ago (looking at old childhood photos I've probably had this all my life) and have taken Levoxyl and Synthroid in escalating doses over time. Initially 25mcg for about a year and that was the endo plan until bloodwork indicated a need for more. I quit taking it after a year as it seemed I was gaining weight. After a few months went to a different endo and he started the treatment again with 25 (I weighed 160 at the time) and now has worked it to 100mcg (I now weigh 178!!!). I thought that with the higher dose I would have more of a weight loss effect (definitely not weight gain) and thought I'd have more energy, better brain function and happier outlook. I am experiencing the complete opposite. The last time I visited the endo and he looked at my weight gain he just said to "stop it". I work out almost every day for 45 minutes to 2 hours, have a job that at times requires arduous work, I eat a very healthy diet full of fiber, low in fat, low in carbs. I'm always hungry and feel like eating to make up for a lack of energy. I come home from work exhausted. This isn't living. I've had it with the Synthroid and any form of T-4 alone. I'm going to see a natural healthcare professional to try Armour because none of the medical doctors I've seen will prescribe it or synthetic T-3.

Ive been on synthroid since Saturday august 23rd and I noticed Im more nervous like I want to climb the walls and im sweating profusly. I have lost over 100 lbs since February and I had blood work done on tues august 19th and the doctor put me on 25 mg. Im suppose to go back in 6 weeks and get my level checked again but Im going to call the doctors office tomorrow and tell them what is happening. If this is what is going to happen Im not staying on it. Im only 42 and I am battling deg.disc disease which hurts enough and sciatia.

Hi ladies,

I just finished my last pack of Yasmin on Thursday because I felt I was pumped with hormones. I googled "coming off the pill Yasmin" and came across your comments.
I was originally put on Yasmin by my Doctor as I had put on a few pounds. I lost that weight with exercise (can't diet) but I have never lost my DD breasts (I was a C cup before Yasmin) and I've a tummy which when I bloat the week before my period, I look pregnant!
I've been experiencing a lot of the negative side effects of Yasmin over the last year and I was beginning to think I was going mad.
I suffer from very bad headaches, water retention, bloating and loss of sex drive.
In the last 2 or 3 months I'm now suffering with nausea, leg cramps, sore breasts, anxiety and feeling down.
As most of these symptoms have occurred in the last year, I just got fed up. I've been on the pill for 14 years (on and off), and on Yasmin for at least 6 years. I'm now 32, I'm married and would love a child.
I feel by coming off this pill, my body will settling into a routine before I hopefully conceive.
So glad I found your comments and I'm not alone in how my body feels.
Thank You.

i have been on the same med and am getting off made me feel nuts crying all the time, hot flashes, my body feels like its on fire very depressed tired panic and anxiety attacks never was like this before being weaned off and going the natural way going to take thyroid essentials and macafem i can't wait to get off this dam pill

Welcome to my hell!

If I could choose to have my thyroid back, I take it and take my chances with the cancer. Well lets see... I take .300mcg of Synthroid and generally feel good only when I forget to take my medication for a couple of days. After about 3 days, I start feeling tired and will eventually start crashing for 10 to 12 hours at a time. OH! Ive heard that it takes weeks to level out, but I can feel the difference in about 3 days. Of course, the doctor says that's not possible, but then - he is holding my thyroid hostage.

I have gained 30 lbs. Have headaches frequently, get moody, AND now I get bloated when I eat. Im ready to try the Armour thing that Ive read about. Cytomel makes my heart race.

Im pretty sure that smoking helps! I read that it lowers your TSH levels.

Im just tired of feeling like sh_t all the time.

I stumbled onto this site while trying to find a reason for these headaches I get sometimes for no" apparent" reason. Imagine my surprise to find your testimonies about your lives on warfarin sodium.At 38, I had surgery to repair a congenital defect of the aortic valve and had to have a hema-shield graph to repair an aneurysm of the aorta. That was in Oct.2002. Warfarin has been a part of my life since then. I was also put on anti-depressants because my family Dr. thought I was depressed since I repeatedly complained of not feeling well.(I took myself off the anti-depressants a couple of years ago.) Extreme fatigue , serious memory issues, thinning hair,dizzy spells and numerous other ailments continue to plague me.Add to that a large weight gain ...and, well, you get the picture. If anyone knows of an alternative to taking this "poison", PLEASE, PLEASE let me know. I just WANT MY LIFE BACK!!! I actually cried after reading this blog. As I explained to my husband, I suppose it was from the sheer relief of knowing I was not going insane!!!

I was started on Methimazole for Graves, 10 Mg daily. Three weeks after I started taking it, I broke out in hives all over my body - not little itchy spots, huge welts that had red edges and yellow centers. My endocrinologist said it was likely an allergic reaction and I should stop taking it.

I did stop, but four weeks later, I am still not well. I have mild itches and am weak, I have trouble sleeping and concentrating. I cannot walk for more than a few minutes without sitting down. The interesting part is that proprinal has a 50% chance of the same reaction.

We are back to monitoring labs and going nothing. I have never been so sick in my life, and I am now going to try non-traditional medicine to see if I can address the thyroid issues that way.

Just switched to synthroid 88 mcg after 8 yrs on Armour. My doctors found an ugly mass on my right thyroid and rushed me to surgery, certain it was Cancer: it was just an ugly goiter..now I have to take thyroid meds the rest of my life. :(

It took a year to get me regulated on Armour and I gained 30 #. 20:20 hindsite. I thought it was good and natural too... for 8 years

BUT here is an FYI: NOBODY TESTS THE PIGS. THERE IS NO QUALITY CONTROL TO SEE HOW MUCH THYROID WE ARE 'REALLY' GETTING.ANIMALS CAN BE HYPO AND HYPERTHYROID TOO.

Sooo... 7 weeks into a 90 day supply of my Armour and my pharmacy recalls it. I mention it to my doc who promply makes the connection and draws my labs, VOILA I am suddenly hyperthyroid AND now I can understand some of my crappy symptoms of late..

Lesson learned. Hoping to be feeling better soon. Hope you all find what works for you but these are all drugs and be aware.

My mother has been taking Effexor for about four months, now and is having a side-effect the doctor claims is not related to the drug. SHE IS LOSING HER HAIR IN HUGE CLUMPS. SHE HAS LARGE BALD SPOTS!!! The doctor ran some blood tests, reported to her the fact they were all okay and says that it is probably just stress. He also says he thinks it will grow back but if not she can always consider hair transplants....gee, thanks!!!! I mean, stress? Come on, the woman is 55 years old and has had plenty of stress before this.........I just want to help her so any info would be greatly appreciated!!!!!

Hi,
I am 50 years old. I was diagnosed with as hypo at age 39. My doctor prescribed Synthroid at 25mcg and I have (proudly-ha!) worked my way up to 125mcg. I was always one of the "lucky ones" who could eat any and everything and my weight stayed the same. I am a busy mom of two and a first grade teacher, so the 33 lbs. I have gained since age 39 has not been due to diet changes or sitting around with a bag of chips in front of a TV all day. I also questioned my doctor about this and he just brushed it off. Well, I am tired of not feeling good about myself. My life is in good order except for my weight. I want someone to take this seriously. Should I see a specialist rather than my regular internist?
Wow! I think I just lost a little weight telling you great people about this!
jf

I was put on synthroid a year ago, due to a tsh level of 87. I pretty much felt better right away after taking it. First I took 50mcg and then it was upped to 100mcg. Everything went well until I had my latest tsh test. The level was going up again (tsh 5.4) so the doctor decided to put me on 125mcg. After about a week I began feeling like crap. Slugglishness, tiredness, muscle pain, joint pain, and it became progressively worse. I have an appointment coming up thank god. In the mean time I read 3 books on thyroid and it was mentioned that most people don't benefit from just taking T4 (ie. synthroid), despite the fact that the pharmac. and some docs say that body breaks t4 down into t3.
Some people's body cannot successfully break it down enough, some are cellular resistant to thyroid hormones, and those people absolutely need t3 in order to not develop Hypometablolism. The cell need the T3 to function. But unfortunately one can be hypo and still have good TSH levels, because this particular test only tests if there is enough T4 in the body.
Unfortunately, it's so hard to explain that to mainstream doctors.
One doctor I read about said it right: Don't just treat the test results but also the bodily symptoms, for everybody is different anyways. Just like our finger prints are unique, so is our hormonal metabolism.
I'm going to try to talk to my doc about this, but if he doesn't listen I will look for another doc until I found one that will. Good luck to all in this hormone jungle.

Hi all,

I had originally posted on 6/29/08, 6 days after having my Mirena removed. I had it for 15 months.

It is now two weeks later. I want to re-iterate that my fatigue is totally gone. My acne has totally gone away. I've not had one bout of dizziness and my appetite has subsided tremendously. The bloating has significantly decreased. The numbness I had in one of my feet has not returned at all. My insomnia has decreased. Eight hours of sleep feels refreshing and enough! I am not exhausted, nor do I have unexplained muscle fatigue just doing simple tasks like folding laundry! I have not had any PMS'y mood swings as I had noted before, which were totally unpredictable on Mirena. (BTW, I was not a moody PMS'r prior!!) I also had a slight case of sinusitis during the last month I had Mirena and never attributed it to it, but perhaps it was now that I've read more of the posts!

I have as yet to go to the lab and get the "thyroid test" the doctor ordered due to the symptoms I reported the day I had it removed, because I am absolutely convinced that Mirena was the cause. I will have it done regardless just to be on the safe side.... but I waited on purpose so my body could get somewhat back to normal.....

I could always "feel" MIrena inside of me when I would lean over to tie my shoes, sometimes during exercise... etc.... and it is so nice to know that thing isn't in me anymore, and I can lean over without fear of poking a hole in my own uterus inadvertently!

So.... I'm still VERY glad I had it removed. I'm feeling more my normal "self" every day. I know it will take my body a while to get back on it's routine but if it took a while for my body to feel that crappy I assume it will take a while to get back on track!!

PS - to those women who said it hurt having the Mirena placed.... I had a hard time with it as well. The removal did hurt, but not as bad as having it placed. The removal is a faster process than placement. I would suggest asking your doctor for a little pain medicine or to take something prior to your appointment to have it removed if you have a low tolerance for pain.

I've been on 300 mg's of Lamcital since last December. Great drug, really helps my mania get under control. Lithium wasn't cutting it for me with my depression, in fact the side effects were making me even more depressed. My pdoc decided to try out Geodon (at 100 mg's). In the most part, it has been great. I feel alive and like myself again for the first time in years. But...
I wonder if making me so stable has also given my mind way to much time to over- analyze what I see and do. I see things out of the corner of my eye all of the time. I had something appear right in front of me the other day. I can no longer sleep past seven in the morning. And I have three facial twitches: my lower lip, the arc in my left eyebrow and the very top of my forehead where the first of my hair follicles start on my widow's peak. Those drive me nuts.
I am also on 40 mg's of Propranolol (Anderall) and Cytomel for my thyroid. For having such a severe case of BP, it's nice to be on so few medications. Geodon has been a lifesaver and has given me back my creativity and my marriage. I'll take seeing things and facial twitches any day for those.

Hi Ladies,
I am 31 with 3 beautiful children. I have had the mirena since July 2007. I now have a thyroid disorder called Hashimoto's thyroids. No personal or family history of any type of thyroid diseases. I am having mine removed in 4 days. Of course my family practice MD claims there is absolutely no connection between the mirena and my new onset of thyroid disorder. Just FYI for all of you ladies out there, the symptoms most commonly reported by a majority of you, take a look at the symptoms of hypothyroidism.
Symptoms of Hypothyroidism

Fatigue
Weakness
Weight gain or increased difficulty losing weight
Coarse, dry hair
Dry, rough pale skin
Hair loss
Cold intolerance (can't tolerate the cold like those around you)
Muscle cramps and frequent muscle aches
Constipation
Depression
Irritability
Memory loss
Abnormal menstrual cycles
Decreased libido

Any of these sound familiar??? All of my labs including my thyroid (TSH) levels came back normal. Except one. PTO, the test for thyroid antibodies. My immune system is literally attacking my thyroid. Thyroid levels under 3.0 are looked at for many women with infertility and miscarriage. Mine was 2.44, which is within normal range, but I am also on the verge of hypothyroidism. 3 weeks ago I noticed a lump on the left side of my thyroid, I just found the infertility information late last night, and that's how I wound up here. Mirena is doing its job, but it is also messing with your metabolism. Just because your thyroid levels are within normal range does not necessarily mean you are not having thyroid issues or it may be early enough where your levels are not "concerning" yet. No connection between thyroid and Mirena, huh???? Good Luck to all of you.

I was taking YAZ for 6 months. The first few months I felt very anxious, had headaches, and no sex drive at all. Periods weren't right the first two months. The second 2 months I was still feeling very tired all the time, anxious, major headaches, numbness in arms/hands, blurred vision at times, and I was an emotional wreck, but my periods were normal. The last two months were horrible! I was having all the symptoms I wrote about above, having two week long periods, major head pressure/headaches, I noticed my hair was falling out more, and my period was lasting 2 weeks both months. I went to the Doctor, and she tested my thyroid, which came back normal. Now she is going to put me on Lo-Ovral. Hope it helps.

I have hashimotos thyroid syndrome andi have been on Levoxyl for about 5 years, now the medication is .088 mg's. I do not get anxiety depression. i really wouldn't know what normal is because im only 19 and iv been diagnosed for so long. My sex drive is completely there, the only thing that is wrong is that i CAN NOT wake up in the morning. i must find out what will happen if i get off levoxyl to go to the coast guard. please let me know.

Exhaustion, joint pain, headache, ankle swelling, shortness of breath, persistent (cold) sores in my nose…

I am 52 years old and have taken Lisinopril for approximately 7-8 months. During the past two weeks, the majority of my joints have suddenly begun to ache. My fingers, especially index fingers, and one wrist are extremely uncomfortable. Other than the side effects listed in the comments on these pages, has anyone lost their eye brows? Sounds crazy doesn’t it but I first thought it was a side effect of hormone replacement therapy. I gradually stopped taking the HRT (ugh!) but continued to lose my eyebrows and now I notice my eyelashes are thinning. After trips to two dermatologists, neither had an explanation and both denied the HRT drug would cause the hair loss. I was and am extremely frustrated. I am not sure what made me research side effects for Lisinopril again but I finally saw something on an internet site saying that ONE percent of people could suffer hair loss. I’m sure my doc will be disappointed that I want off this medication. The only meds I take regularly are Lisinopril and Dyzaide (low dose). I have taken the Dyzaide for several years.

Hi Ladies,

I had mine fitted may 06, i had heavy BLEEDING ND CRAMPING and no other contraception was suiting my body, so i got Mirena. Yes it helped to a certain extent. Later that year, i was still having some lil health issues, turned out i had some food allergies, too much estrogen and no real progesterone and thyroid problem. So this helped. My doctor put me on a natural progesterone cream, which was great, my skin started clearing up and my bleeding started getting some regularity, as i was pretty much bleeding every 2 weeks.

My health this year has gotten worse, excess Odema, acne, tiredness, mood swings, no sex drive, nausea which has always been contant, swelling around my belly etc. I feel horrible, now i also have adrenal fatigue however, I have given lots of thought and am going to get the Mirena removed. My weight is just going up, and all i want to do is be healthy, i exercise and eat well about 80%, so i am hoping that with this being removed, my doc said then i can go back onto my progesterone cream and help regulate my cycle. And also the lack of cycle, constant cramping, then a i get heavy or the odd light cycle. I just want to be happy.

Let me know if anyone else is feeling this way. And with having it removed, how i might feel.
By the way, i am 26 years old, and have no children as yet

xx

Sarah