November 5th
2009
7:20 PM
That's it!! I have had it. A couple of years ago, Dr prescribed Lisinopril HCTZ for my high blood pressure. 6 months later, 'Hey your cholesterol is really high.' So she prescribed Crestor. Then 6 months later, 'Oh Crestor can cause liver damage, we'll need to check your liver.' I know doctors mean well, but they seem to all be trained to simply prescribe a pill. The average senior citizen takes 12. Daily! I have had it. I refuse to take the lisinopril any more. Last night: zero sleep due to the cough. Hacking and coughing, trying to 'hock-up' the crap draining down my throat. The wheezing at the top of my bronchial tubes. Unable to inhale enough air to cough. Peeing in my pants. Disturbing everyone else in the house. This is just bullsh--. Hey, how about another tip: Did you know the HCTZ can cause artificial inflation in your cholesterol numbers?? Guess what: after switching 5 months ago to the lisinopril plain, not with the HCTZ... you got it cholesterol went down. Down by 80 points, too! I made no other change during that time, not in my diet, exercise or anything else. So effective today: (1) No lisinopril (I'll check my BP daily), (2) increase my Kelp and selenium for my thyroid, (3) stick on my insulin-resistant diet, (4) reduce my caffeine intake. I'll keep this site posted on my progress.
-- By vicarnes | Reply | (1) replies | Private Message me
November 5th
2009
2:26 PM
I am supposed to get it tomorrow...I have issues with mood and anxiety already as well as hair loss due to a thyroid disorder. I am re-thinking it now...
-- By againsca | Reply | Private Message me
November 2th
2009
6:59 AM
I am extremely sensitive to medications. That being said, even though my thyroid levels were normal, my doctor believed I had hypothyroidism. He put me on .25 mcg of the generic brand of synthroid. I could only take it for 5 days because during that time I developed feelings of "dread" and I was afraid to go to sleep at night. When I stopped the pills, I started to feel better but I believe the stuff was still in my system. Some stressful things happened right after, and it threw me into panic attacks with scary, racing thoughts, trembling, insomnia, etc. I'm slowly getting better. But after reading this, I feel even better now knowing that I'm not losing it and chances are great that it's the synthroid that's causing it.
-- By odie | Reply | Private Message me
October 28th
2009
9:18 PM
I am so annoyed that this medication is still on the market.
What is it going to take for it to be banned??? It took me almost one year to get my life back together. The side effects from this medication are horrible. Only the people who have gone through them know how severe it is. I had anxiety, insomnia, chills, numbing in the hands and feet, palpitations, vomiting, tremors, twitching, vision problems and the list goes on. My body was out of control. My blood tests were even coming back with all sort of problems thyroid, high blood sugar etc. When retested a few months later, everything was normal.
It took me lots of hard work to get myself back to normal. Thanks to Chinese medicine/acupuncture I now have my life back.
Please don't take Avelox!!!!!
October 24th
2009
10:07 PM
I was put on levoxyl at 14 because i had thyroid cancer and had lost 90 percent of my thyroid.
I myself have not had any serious side effects from the medication. When I forget to take it I feel completely empty, slow and my mood is irritable. I strongly suggest those of you who are having these problem to adjust your dosage. I have a fantastic doctor with a lot of experience, and he himself has had thyroid cancer and knows firsthand.
Too much will make you sick and too little will cause weight gain or weight loss, energy loss and etc.; all direct results of thyroid issues, not levoxyl
October 23th
2009
3:51 PM
HI there I took Prednisone for most of my life till 19 because of Asthma. I am now 33. At 22 I had Osteoporosis in my my back and leg. I have not been on prednisone for many years and have been asthma attack free for 10 yrs. I am now trying my best to get my bones in shape. I am fairly healthy despite depression, anxiety and low thyroid my weight is a slim 120lbs at 5'7. I don't regret taking prednisone from a child as I needed it. I do get dressed that my body is tired and aches but who knows if this is from prednisone or not. It saved my life many times.
-- By cdvp1 | Reply | Private Message me
October 21th
2009
11:51 AM
i discovered that i had hyperthyroidism which was from grave's disease and grave's thyroid eye disease in jan. 2009. at the end of march i had my thyroid removed. never let anyone use the radiation treatment if it is in your eyes. my surgeon said if we had waited another week i would have been dead. they started me on 75 mcg of levoxyl. it made me mean, i prayed to God to let me die in my sleep every night. the dosage was changed to 88 mcg. my hair was falling out by the handfuls. i kept calling my dr. and being told it was normal. i lost 75% of my hair mass almost to non reversible. i have been on appearex and women's rogaine once a day and am using nioxin hair cleanser and conditioner for 2 months. i have new growth thank goodness. my toes almost froze off my feet, the headaches cannot even be described, i gained 40 lbs, this will be the 3rd time in 7 mos. they need to change my dosage to 100 mcg. my body cannot take it. today i am starting synthroid. until i found this site today i had no idea most of my agony was from levoxyl and it's side effects. thanks so much for all the information. good luck to everyone.
-- By gravesdisease | Reply | (2) replies | Private Message me
October 20th
2009
4:14 PM
Hi I am dumb struck by coming across this site i never dream it could be my mirena causing my unexplained symptoms but the more an more i read it i am fighting with my hospital to get it removed A.S.A.P. i have suffered severe dizzy spells,heavy legs,fatigue,sweats,headaches,loss of concentration,mood swings,bloating,thinning of hair,weight gain, depression,dont want to communicate,just fallen apart in the last 17 months,had number of tests all come back normal,i been back to hospital today to fight this corner an they need to see how many women this really affects as every doctor i have seen says no way can it be the mirena but reading all these this needs looking into.i am worried about the dizzy spells they are my most concern along with panic attacks that come out of the blue..makes me think it may be my mirena after all :( just want to be back to my old self again..i have been to A& E at least 9 times with same symptoms only to be put on diazepam which i don't like to take,i am so upset that i still got to wait 6 weeks+ to have it removed as i got to go under to have it done as they cant reach the threads they are up instead of down...i am hoping after my long wait that i have now found an answer to all my symptoms an the mirena needs to be looked into more.an after it is removed i hope i get better as i have also read it can have after affects.nightmare wish i never had it put in.....
-- By marylou2 | Reply | (1) replies | Private Message me
October 20th
2009
2:27 AM
My daughter received her second gardacil shot in August and has been steadily losing about a handful of hair each day. She has had bloodwork done and her thyroid checks out okay as does her complete blood count so we know she is not anemic. The doctor feels that her hair loss is stress related.There have been many other times in her life that have been stressful and she has never lost hair. I feel the gardacil vaccine plays an important role in her hair loss. I fear that she will become bald and that her hair may not regrow. If anyone has had a similar experience and your hair has grown back, please reply. Thanks. ******
-- By msurace | Reply | (1) replies | Private Message me
October 19th
2009
2:23 PM
I am a 52 year old female and my bad cholesterol is fine but my good cholesterol is low. I have been taking Lipitor now for a few years and have numb hands and feet to the elbows and knees. My feet are extremely sensitive, worse at night and now I'm getting sharp pains that feel like a bug just bit me. My tongue is also always numb and I do get migraines.I have insane stomach issues and food intolerance. I also take medication for high blood pressure, acid reflux, & thyroid. I have now been diagnosed with type 2 Diabetes but control that with diet so far. Until four years ago I had nothing wrong with me. I am slim and healthy. I had a lump in my thyroid which was removed and there was a trace of cancer. Then like dominos all the other conditions lined up. I have had MRIs and all the tests and doctors insist that I am not a severe enough diabetic to have neuropathy. I can hardly wear shoes now and it hurts when I wear runners while I walk and exercise. Does any of this sound familiar to anyone? I hate that my health has become so much a part of my daily life. Does anyone have neuropathy as a result of Lipitor and am I even taking the the right medication since I don't have high cholesterol?
-- By heatherdiane | Reply | (5) replies | Private Message me
October 19th
2009
1:11 PM
I started taking 5 mg of abilify a few weeks ago. Before that I was taking 2 mg for 3 to 4 months. I also take 400 mg of lamictal and 20 mg of prozac. The prozac was very recently added.
Anyway, I have tried many different medications and apparently my depression is treatment resistant. Abilify has made me a cold, emotionless person. I have not cried in months. It is terrible when you feel so sad inside and you can't even cry. I have also developed a twitch in my eyebrow which is very hard to control. Most recently I have discovered, on my own and with the help of my mother, that I have akathisia. Although I mentioned a lot of symptoms to my doctor before, she claimed it was just anxiety.
But this is so much worse than anxiety. This is extreme anxiety, being unable to sit or stand still, getting anxiety with just the thought of having to sit still, getting urges to kick, feeling terribly restless inside unlike anything I've felt before, feeling like something terrible is about to happen...
I hate this. I don't know what to do. I'm seeing my doctor in a couple days and I'm just wondering what she will do. Will she take me off or will I get something even worse... will this go away..
-- By disquietude | Reply | (3) replies | Private Message me
October 15th
2009
10:44 AM
My daughter is 13. We put her on Loestrin to control her extreme cramping.
She was always nausea complained and lower back pain. But the most disturbing symptom was EXTREME exhaustion. She could barely make it through a day of school. She would come home and go to bed. I was having trouble getting her back up to go to practice. She would cry like a baby, unusual for her. She said she just felt so weak and tired. We went to the doctor who tested her for mono, anemia, thyroid, and anything else they could think of. All the test were negative. That is when I got on the internet and looked up Loestrin. It was the only medication that she was on. I had her stop the pill that very day. She was herself again in less than a week! I am now afraid to "try" another pill with her. I am just so glad we figured it out!
October 15th
2009
2:40 AM
I don't know if I can blame Zocor on my weak thighs--my doctor says that muscle weakness as a result of the drug should include all of my muscles. I've also developed an extremely itchy neck-also not sure if this is related. Weight keeps going up in spite of increased exercise and limiting daily caloric intake to below 1500 calories.
-- By raewill | Reply | (6) replies | Private Message me
October 15th
2009
1:09 AM
Ok, I have PCOS and had the Mirena put in 3 months after the birth of my last child in 2004 and thought it was great. No more fluctuations never knowing when or if I was getting a period...I just never had one, have not had one in 5 years years. The strings disappeared several years ago, had an U/S and they said it was still in place. I have had zero libido in that time, terrible mood swings, fluctuating weight and depression, thyroid problems, etc etc, all put down to depression. Well 6 months ago the headaches started, the vertigo... the ensuing DR trips have turned up an abnormal brain MRI and not much else no one has thought to think of the IUD. The MRI shows possible demyelination, vasculitis or sequelae to migraines...these are little white spots in my brain. If I find out these things are caused by this IUD there will be hell to pay. I am due to have it removed at the 5 yr mark in November..... I guess dig it out if they can find the strings. Will be interested to hear comments on this.
-- By kiwibaitnz | Reply | (1) replies | Private Message me
October 8th
2009
8:33 AM
Hi I am having the same side effects that I have read from others! My Mirena was inserted in 6/08. Slowly but surely all the side effects have appeared. Mood swings, oily skin, acne, weight gain, and the worse of all, the hair loss. I have always had thick long hair! My thyroid has always been a problem and my family doctor said my constant thyroid fluctuations may be the reason for my hair loss! It is now 1yr and 4mos. since I've had the Mirena inserted and I have lost over 50% of my hair! Balding diffusely, but majority on the crown of my head. It is to the point of severe depression I do not even want to go out anywhere, because of the embarrassment. I am scheduled to have the Mirena removed this coming Monday! I am worried that if this is the reason for my hair loss that it may not regrow! I've read that once the hair follicles die they do not rejuvenate. Has anyone gone through this same process, did your hair regrow? I'm am literally having anxiety attacks thinking about my outcome! Can't sleep, crying constantly, totally preoccupied with the thought! Driving my family nuts with constant lack of enthusiasm for life!
-- By tricia1 | Reply | Private Message me
October 1th
2009
10:53 PM
I have been on Levoxyl 0.112MG for about 18 years. I do have some of the symptoms described by others, hair loss, hot flashes, etc. , but I think the alternative to this is a lot worse. If I do not take it for long periods of time, it gets to the point where I am freezing cold and the bags that develop under my eyes are embarrassing. I think the problem with most of you that are having very bad side effects is the dosage. If the amount is off just a little bit you can feel like you were just run over by a truck. I went through this many years ago. I would suggest continuing to change the dosage until you get it right. I wish I did not have to take it but it is absolutely necessary in my case.
-- By jnphil1038 | Reply | (1) replies | Private Message me
October 1th
2009
7:22 PM
10-1-09 For the past year my husband has complained of severe headaches, muscle and stomach cramps, nausea, diarrhea, hot flashes weight gain and severe depression.(he takes anti depression meds) He sleeps 8 to 10 hrs during the day and all night. He has seen a stomach specialist and a neurologist. He has had numerous tests done by both Drs. He had his gallbladder removed in Dec.08 He had over 100 gallstones His thyroid is very low, (has been since diagnosis 6 yrs ago) his medication has been increased 2xs in the last 2mos. He is not any better. He will see an endocrine specialist 10-5-09. I have researched for hours on the internet for anything that will help the drs. find what is causing all of these complaints. He has so many symptoms, nothing matched and from head to toe. No luck until now. He has every symptom that you good people are describing. I will most certainly use this information and share these stories with his Dr. I have seen the LIFE being sucked out of my husband. None of these "Specialists" have ever suggested that perhaps the lisinopril might be the problem. I GUARANTEE YOU I WILL!!
Thanks to all of you for sharing your stories, GOD BLESS EACH AND EVERYONE OF YOU. A. A.
September 30th
2009
5:28 PM
Reply to jackclavey. The same compound a healthy thyroid makes? Not even close. Even the FDA doesn't say that. They call it a "Synthetic" compound.
I'm really glad you can take levoxyl if you need it without any side effects but it's highly arrogant of you to assume the rest of us have systems that react to these chemicals like yours does. If that were the case there would be no need for 90% of the medicine we have on the market. With your comment you are basically calling all of us dimwitted and delusional. It must be nice in your world but in mine one size drug does NOT fit all.
-- By debbie220 | Reply | (1) replies | Private Message me
September 30th
2009
4:02 PM
Hi...I had my the Mirena place in 8/08. I have noticed an increased amount of hair loss over the last 6 months( patchy areas). I have always had healthy hair and never experienced hair loss such as this. I thought maybe it was related to stress and pregnancy. My hair dresser recommends taking vitamins and eating healthy and that it is normal to shed hair daily...but not like this! After reading the posted reviews, I am now convinced that it must be the Mirena. My thyroid hormone level was normal in 6/09. Has anyone had the Mirena removed and noticed any change in the loss of hair?
Thanks...worried!
-- By rabbit325 | Reply | Private Message me
September 29th
2009
6:30 AM
I have been on this drug for years, there is absolutely no side effects from this med. For gods sake, one of the women below says she was diagnosed Hyper and her doctor put her on this!
People, this is the same chemical compound a healthy thyroid produces! You people would have side effects from water!
-- By jackclavey | Reply | (1) replies | Private Message me
September 28th
2009
2:27 PM
i was told i was hypothyroid,but i felt fine! dr. put me on 88 mcg's of levoxyl and i all of a sudden came down with the worst case of acid reflux,which i did not have b4.also,heart palpitations.i choked down this med for 3 years,experiencing hours of burning after my daily pill.i could not take it any more! i put myself on a trial month without levoxyl ,and the burning and acid feelings are gone! i feel gr8! i dread being scolded by my doctor for going off it,but i could not take that burning anymore.ive been to 2 gastroenterologists,plus my general practitioner,all of whom said it was impossible for levoxyl to cause g.i distress.if that is so,why has the burning gone now that i stopped taking it?if u have experienced burning with levoxyl,could u kindly email me/i want to know-am i crazy,or is heartburn an issue for other levoxyl users also/plus,i never felt/looked ill in the first place,so even tho my thyroid functioning may not be optimal,did i really need medication yet?maybe someday i might,but i feel fine,i have long thick hair,decent fingernails,full of energy and not cold all the time-so why do i need meds at this point?(if i ever have overt hypo symptoms,i will have to take something,but why fix what is not broken?) ps-my b/p and cholesterol all very good too,altho apparently ive been hypo about 5 years.
-- By buffy2929 | Reply | Private Message me
September 27th
2009
2:37 PM
I had a baby in May.I had the mirena inserted in the beginning of August. I began having night sweats and noticing a lot of hair loss at the beginning of Sept. I went to my Ob/gyn who said it couldn't be the mirena causing the symptoms. So I thought that maybe I had a thyroid issue.(After my last pregnancy I had post-partum thyroiditis, which caused my hair to fall out and night sweats). I had my levels checked, and sure enough my t4 levels were high. So, now I am waiting for my t4 levels to go back to normal and hope that's what was causing my symptoms, not the mirena. I have also read that the mirena can cause thyroid problems, so who knows what is REALLY causing my symptoms. My most recent symptom is numbness and pain in my wrist/hand. I'm thinking it is possibly carpal tunnel syndrome which can be caused by hypothyroidism. If you just had a baby and are having the night sweats, hair loss, heart palpitations, weight gain etc.... I would recommend getting your thyroid checked.
-- By beepskie | Reply | Private Message me
September 25th
2009
5:43 PM
I am 24yrs old i've had my mirena for 3 1/2 years and for the past year i have had severe acne,weight gain, mood swings, depression and fluttering feeling. recently ive been nauseated and really tired. When the acne started i went to my obgyn and she put me on tetracycline, when i reported the weight gain she sent me for blood work and a thyroid scan. when i said i think its the birth control she said noooooooooooooooooo there is no weight gain with the mirena and said i should try a diet. Mood swings she suggested i was under stress and may be i should make an appointment to talk to someone. After reading all the blogs and post this thing has to come out NOW !!!
-- By lmiller317 | Reply | Private Message me
September 24th
2009
4:56 PM
Wow, what an eye opening experience it is to read all these posts! I was just about at the end of my rope thinking something was horribly wrong with me. Now I firmly believe it's the Levoxyl that is wrong.
I went on thyroid meds about a year and half ago for just slightly under active thyroid. I was actually lulled into it because the Doctor assured me it was a completely safe medicine and taking it would help me lose weight. Always a welcome thing. So I started on 50 mcg. I noticed some degree of improvement. I was sleeping better and having more energy during the day. Next checkup, the levels are in the normal range but just barely. So he doubled the dose. Two weeks later I broke out in a horrible itchy rash. I actually thought about the meds but then I didn't change meds, I was just taking more. I called the doctor and he said, "No this medication won't do that." So I change detergent, soap, everything I could think of and nothing worked. Finally I said, enough and I skipped a dose. During the day the rash got a lot better. Next morning I took another one and within and hour I was itching like crazy again. I stopped taking them, waited a week and called the doctor again and told them. His reaction was "You have to take this." I said, No, I don't and I won't. He actually argued with me that the rash could not be caused by the meds. Now I realize at that point I should have called another doctor but he's in my town, convenient, yada, yada, yada. Anyway he called me in another med which he said was the same active ingredient but different brand. Enter Levoxyl. I've been on 100 mcg for 3 months during which time I have felt progressively worse. Most of these things I didn't attribute to Levoxyl until later. Initially I noticed I was having the hot/cold flash thing. I have no comfort zone. I'm either flushed and sweating or chilled so my nights are spent constantly either searching for cover or kicking it off. Next thing I noticed is that my breasts would swell. Naturally that was a concern but about the time I would decide I needed to see about it, they would be normal for a few days. Sleep? What's that? Tired all the time. Started having confusion and forgetfulness. I even told my co-worker I thought I was losing my edge. I was all of a sudden forgetting things I had done automatically for over 15 years. Then the really scary stuff started. I would wake up in the middle of the night with my heart racing and feeling like I was in a fight for my life. I was afraid to go back to sleep. Joint aches and pains across my upper back, my knee. Tingling in my feet. It just keep getting worse and worse. Still didn't think of Levoxyl. Then Monday of this week I didn't have a pill to take. I forgot to get it refilled. Monday at lunch I told my husband I felt better than I'd felt in months. Tuesday took the regular dose. By noon the mental fog was back, back was hurting and I just felt like crap. Tuesday night went to bed early because I was so tired. 11:40 woke up with the worse anxiety attack I've ever had. Heart was pounding and I was breathless. Wednesday morning I got up and the light came on. I did not take the pill. Entered Levoxyl in google and found this site. I am so angry at my doctor I can hardly stand it. I even went to the official Levoxyl website and all these side effects are listed except for the swelling breasts and confusion but I've noticed several posts here that list those. During those two days I didn't take the freakin' pill both problems improved greatly. This morning, I reluctantly took half a pill. I plan to to that every other day for a few days then skip two days, then three, until I'm off of it. I don't know at this point what I'll do about my thyroid but I won't take this stuff and I won't ignore feeling like crap again. This is crazy. Where is the FDA? Oh yeah, being entertained by the drug companies. What a shame.
Thanks to everyone who has taken the time to post here. It is a sad commentary when we can't rely on our doctors to take care of us but we sure can't. If he had just told me about the bone loss, I would never have started this drug in the first place. My Mother suffered with that and that is something I would not trade for a few lost pounds and a little more energy. No thanks.
-- By debbie220 | Reply | (2) replies | Private Message me
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November 7th
2009
2:42 AM
I have been taking Armour for a couple of weeks now and although I feel better my hair and eyelashes are falling out in massive amounts. I read side effects online and it said this should stop after awhile. Does my hair grow back normal then or is it permanently thinner?
-- By badkitty92 | Reply | (2) replies | Private Message me