July 28th
2009
3:34 PM
Murdered by Levaquin.
This may be hard so bear with me. I need to give you a little background to show what an injustice (criminal you be the judge) happened to my soulmate. Her lifelong dream was a humble little spot in the wilderness and at 58 and on a disability we were able to make that happen; and she was happier than I'd seen her in years. Existing conditions included depression, anxiety, fibromyalga and chronic fatigue, and a thyroid condition that she got from over radiation for Graves disease many yrs. ago. Oct. 07 she came down with pnemonia and made a trip to ER. the Dr. saw something he didn't like so prescribed Levaquin. She left there sure she had lung cancer. Three days into a 10 day course her lower extremities became extremely painful and swollen, a call to her GP was never returned. We thought she was experiencing some effects of pneumonia or cancer. 2-3 wks. later a dr. appt. where she was in such bad shape she had to wear my shoes and be carried from car to wheelchair she could barely walk. An alternate dr. saw her. got xrays prescribed more levaquin and prescribed water pills for her swollen lower extremities. 2-3 weeks later side effects much worse has now traveled up to her midsection (peripheral neuropathy) she is now wheelchair bond going to dr. office and guess what lung hasn't cleared up yet so more levaquin with no solution or idea what is happening to her body ( she was terrified and in horrific pain. So she was prescribed 3 courses of levaquin and ignored the blatant side effects. The next several months at home were hell, the neuropathy continued up her body, she could no longer feed herself or hold anything in her hands. Every day the pain and frustration were unbearable and she cried for hours at a time. I couldn't get her to go to hospital as by now we knew what we were dealing with PN and it is irreversible and she knew she was dying and if she left she'd never see her dream home again. We finally got her to the hospital, they wouldn't accept my Achumes Razor and suggested numerous things conducted numerous tests including a Gallum scan and still no answers. She deteriated fast. She was within a week about 63 pounds and suffering severe sycosis with hallucinations. She experienced depersonalization. She had severe pain to the touch. I now know she is going to die and I'd promised her I'd never let her die in an institution but we could get no home care. They now wanted to kick her out of hospital after 3 months and suggested a hospice and although terminal she was undiagnosed so did not qualify. I have seen both parents a brother and numerous people die from a variety of ailments but this was truly a horror show esp. the psycosis and pain she was in. It scarred my heart and soul forever. No insurance so I am fighting to keep our dream home and keep her memory alive, made it a year but the future is uncertain. She died July 5 07, 2 days after she died the FDA put out a black box warning label so how come every time i insisted it was that poison they would not take me seriously. I now know what drives people over the edge to retaliate in some way. In Canada I don't think there is any class action happening, but in everybody that knew about it it would appear like gross negligence at least giving it to her 3 times after showing adverse reactions after first course. She was stolen away form me and her daughter just as she had reached peace and serenity. It breaks my heart continually and I don't know what to do with this rage I feel. It is now 13 months and no autopsy, apparently a hold up at pathology. Feel free to comment I really can't believe she's gone I haven't disposed of anything or even changed the house in any way.
M.
April 6th
2009
3:41 PM
I've been on levothyroxine 150mcg for about 3 months before that it was 100mcg and so on. I have gain lots of weight and tired all the time. depression also, headaches. I hate this gaining weight, sleepy all the time and depression is from gaining weight. I thought this med is to up boost my thryiode but it doesn't seem to be working. my dr. said I'm on the highest dose there is. I don't know what to do any more. I was thinking about taking myself off this but not sure what will happen if i do. I hope there is someone out there that might be able to let me know if they are going through the same things what they are doing and how they feel now.
-- By scooby_beth2002 | Reply | (9) replies | Private Message me
February 26th
2009
2:57 PM
I went to have my Mirena taken out today. I must admit I will not be looking forward to having a period and this coil did do what it said on the tin but at what cost.
I told the nurse all of my side effects in the hope that she would be sympathetic. She told me that my weight gain was not due to the coil. What about my heavy painful breasts?. Well yes they are a side effect. She told me I was depressed because I had gained weight and that my sex life had stopped. Who said it had stopped just didn't enjoy it as much. What about my tiredness. She then went off and got a doctor who came in and told me that my weight gain and tiredness was probably due to a thyroid condition. But I had my thyroid checked last year. I then said that I need to exercise and that I did not want to put on any more weight because my father died at 48 of a heart attack and she then told me that i needed councelling because I am obsessed with my weight. I am totally convinced that all of my side effects are from this coil and I no longer have it. Hoorah. I will let you know how I get on. I feel I have totally made the right decision. I never thought I would wish to have periods and PMS. Bring it on at least I will be normal. By the way I didn't feel it being removed and nothing now.
-- By linzilooloo | Reply | Private Message me
February 3th
2009
10:46 PM
Hi Everyone,
My experience with Mirena is still causing me distress, and I had it taken out on 9/1/08. I've been Mirena free for 5 months now, and still waiting for my hair to grow back. I do see some small, short hairs around my hairline, and I'm hoping that it's growing back, but maybe it's breakage? Any thoughts?
Here's my story: I have always had very heavy periods, so after one botched ablation two years ago, my doctor suggested Mirena. I had it placed in June, 2008. Almost exactly 3 months later, I figured out why my hair was falling out. Every time I brushed my teeth, I noticed how thin my hair had suddenly become. You could see each individual hair from the front of my hairline backward about 2 inches - each individual hair surrounded by lots of space! There was hair loss at the temples as well. I had my thyroid checked first, because my mother has a thyroid problem. My bloodwork was fine. I thought maybe my last highlight/foil might have caused it...but it was not breakage, it was an all-over thinning out. I finally realized that the only thing different was the Mirena, so I insisted it come out immediately. My doctor told me that at 45, I should expect thinning hair, which was probably the cause, not the Mirena. I told him to JUST GET IT OUT!
I really wish I had researched the matter beforehand, but am thankful that I put two-and-two together in a matter of months.
If anyone else has experienced hair loss, please post. We have to get the word out!
October 20th
2008
1:56 PM
Don't take Yaz! My girlfriend has a cousin who was taking YAZ! She was doing great until one day she had to be rushed to the hospital! She had severe bleeding in her brain and also a blood clot that no surgeon would agree to operate on. Since she had to be on medications she had to stop all other meds, except Yaz! She kept getting sick and having severe issues that seemed life threatening! The doctors said she could go any day! And she is in her early 30's. Finally she just stopped taking Yaz! It has been a few months since she stopped taking Yaz the nightmare drug! Knock on wood she is now about 80% better. She ihas a lawyer and is in the process of suing! Please post here if you have heard of similar situations caused by YAZ! The product while it helps some people with the cramps, and a few other things, is not good!!!
-- By yazsucks | Reply | (1) replies | Private Message me
April 6th
2008
9:25 AM
I have just gone back onto Yasmin after an absolutely horrifying experience trying to come off it.
I have taken Yasmin for 3 years with minimal problems. My skin was fantastic - never a blemish. I actually LOST weight while on it and went up a up a breast cup size. I got lighter periods which was a godsend. I did get a few problems though - gas and stomach bloating as well as headaches sometimes shortly after taking it and occasionally break-through bleeding. But for me the pros outweighed the cons.
I came off it recently as I'm no longer in a long term relatonship and it was just awfull. My skin broke out, I got very oily hair and skin and felt like I was going through puberty again. The worst problem was that in just 3 weeks I blew up like a baloon. I literally stacked on weight every day and my family all made suggestive comments like "been enjoying the cake lately?" I was so angry since I'm such a healthy eater and excersize every single day!!!!! I have never had a problem wth my weight before and the only change I made in my lifestyle was coming of Yasmin. I was so upset with my appearance I have actually gone back on the Yasmin. However its ridiculus to stay on it for beauty's sake.
Has anyone ever experiecend this before??? If so what did you do????
-- By eriana | Reply | (4) replies | Private Message me
March 6th
2008
8:50 AM
Wow. I am so relieved to find people like me ! I got the IUD when my son was 6 weeks old and It has been over a year and a half. ( I cannot take regular birth control because it affects my blood pressure)I thought everything was great with it at first- no period- no fuss. but when you have a new baby you are just exhausted and your body does weird stuff anyway. Most of the symptoms I noticed started in the last 2 months. I did not contribute them to the IUD because I have hypothyroidism and I thought my meds needed adjusted. I have not been able to lose weight despite trying- VERY FRUSTRATING! I was exhausted a lot of the time- sleeping 9 or 10 hours a night and still tired. My hair was falling out but not an extreme amount- I started having dizzy spells- No Sex drive- yuck! and I had spotting for over 2 weeks. So I had my thyroid checked and all was well and all I could think was " what the heck is wrong with me?!?!?!" and I found this site. Luckily I had the IUD removed 2 days ago because we are going to try again for a baby- I have felt ok- the first day I was still tired and I had an extreme nosebleed which I have never had before?!?!?! You know I think it is just safest to use natural methods of birth control cause all this medication can really mess you up!
-- By fowble | Reply | (3) replies | Private Message me
February 21th
2008
1:50 AM
Help me! I have stopped taking Yasmin for about 4 or 5 months because my husband and I want to conceive. I AM STARTING TO LOSE MY HAIR! I am so worried about this as I am losing at least double the normal amount everyday and this has been happening for about a week now. I have noticed the difference as my hair is not very thick. My husband has noticed. My friend says she can't tell, but if you look in my bathroom and my comb you would think I was undertaking radiotherapy. I went to my doctor two days ago and she thinks it could be thyroid or iron problems. She thinks it could be ceasing the pill but is unsure......PLEASE, is there ANYONE who has experienced this? And if so will it stop? I am so distressed about it.
-- By misformelly | Reply | (8) replies | Private Message me
February 17th
2008
2:11 PM
I have taken Paxil for several years for Fibro and Neuropathy. Since I am in constant pain, I get very agitated easily so I was given Paxil to help take the edge off my days. Yes it has helped.
But I have a terrible sweating problem. It has been going on for several years also and no one has ever mentioned it could be caused from the Paxil. I am embarrassed to even go out anymore because I have sweat rolling down my face and my hair gets wet. I know people are starring at me.
After reading all the side effects, which I have many but always just associated them to my other problems, I think I may also try to get off this drug and just see if the sweating stops. If I could go a day, out in public, without this sweating, it would be the happiest day in my life. I am almost to the point of being a recluse now. So keep your fingers crossed for me and a prayer wouldn't hurt also!
Thanks
February 16th
2008
3:15 AM
I am a 49 year old women, who has been taking Lipitor 10mg for about 2 years at first I was told by my Pharmacist to take before going to bed because this is when the cholesterol is released in our body's. I also took synthroid for a thyroid condition,& Blood pressure medicine, but always took these in the morning, so at first I would forget to take the Lipitor on a regular bases. I am being helped with my prescriptions by a program that sends me my medications directly from the Pharmaceutical companies at no charge to me. I was receiving 3months worth at a time and the were piling up so I thought I really should take these regularly since heart disease runs in our family. In these past 2 years I have been experiencing progressive muscle weakness ,restless legs and feet at night so much that I can't sleep I toss a urn so much I most of the time cannot sleep in the same bed as my husband. in this last 8 months things have gotten so bad I know something is not right I have been going to Dr. having x-ray MRI, P.T, I have told my Doctor my pain is gotten to the point that I needed something strong for pain because I have to work to survive and it was getting to the point the every movement I made was very Painful almost like a deep burning pain. I am now getting spasms in almost every major muscle in my body.At night I gett cramps in my legs and feet that seem to move all over my leg muscle with the painful "cramps " I have ever experienced and they are brought on by just the muscle strength it takes to turn in your bed, they always last for 20min. or more. I work as a nursing assistant for an 84 year old women who has Parkinson's Disease I take her to all of her P.T appointment and exercises along side of her she is 84 and I can only lift 10lbs more than her we joke about it to the effect that she is doing great, but in reality I am the one who isn"t doing so well.The past 4months I have been looking for answers myself because I am in pain 24/7and I know that just because I'm turning 50 next month doesn't mean I should have less strength the the 84 year old I care for daily, These past 2 weeks I have started experiencing extreme nausea and stomach and back muscles going into spasms. drinking fluids are what always are coming back up and since I sweat a lot when showering my patients, I have been starting to see signs of dehydration and being very thirsty if I don't sip it it has been coming right back up my appetite is also decreasing because of the nausea. I am so thankful I found this website. Because I do not need any more proof to know that I have a least 90% of the symptoms other have explained I am quiting Lipitor immediately. Good Luck to everyone taking this medication.
-- By robinson | Reply | (2) replies | Private Message me
January 20th
2008
5:57 PM
I have been on synthroid for about 6 months now. Some of the side effects I have been experiencing are numerous.I have hair loss, sometimes I get so ill that no one can stand to be around me, my weight has gone up about 30 pounds, my cholesterol levels went sky high so now I'm taking Crestor, I'm bloated most times, I have episodes where my face flushes and gets so red that it feels like its on fire, and now I've just started experiencing burning and aching of the legs, I'm tired a lot too! My doctor said I would lose the weight but every time I go for check ups and get on the scale it just keeps going up. I would like to know if anyone else out there is experiencing the burning and achy legs because I have been tested for everything and they can't find out what is going on. They of course say it's not the medication.It seems to never be. Does anyone feel me??
-- By sharone | Reply | (23) replies | Private Message me
September 24th
2007
5:25 AM
Hello,
I read about how YAZ birth control pill affects the body and psych and I am now scared. This is my 2nd day of YAZ (I've never been on birth control pills ever and I am 27 years old), it's all new to me but after reading all these negative posts about Yaz I don't know what to do. Before the birth control pills, I was depressed, annoying, serious weight problems - 210 lbs :~~((, low energy, low libido, always tired, terrible migraines every 2nd day, ridiculously increased appetite and excessive hunger, hair where it shouldn't be, menstrual blood clots, excessive cramping etc
I have all these problems for 3 years now and now that the family doc. put me on YAZ birth control pill I am even more scared - mainly of more weight gain, it would be a tragedy for me, I am fat enough already and what's worse I can't lose the weight, exercise doesn't help, diet doesn't help, NOTHING. Will YAZ birth control pill worsen my already tragic condition? I just don't know what to do and what to believe ... I appreciate any advice or help you can give me ... Thank You to all!
June 26th
2007
7:39 PM
i've been on synthroid for 9 years. started at some low dose and gradually went up to112 mg. get extreme itching all day everyday if i don't take allegra for that.not a rash just itching. that doesn't bother me as much as the fatique. every joint in my body aches all the time. sure there are better days but fo rthe most part it's bad. tried physical therapy and chiripratic care but no avail. they ended my sessions. my legs get sooo weak and my feet burn lower back really aches. sometimes muscle cramps. i'm very negative towards my loving family and it hurts me to do so. can't seem to keep upbeat. soo tired all the time.
is it the syntroid? i used to be very energenic and a doer. now i have spurts of activity in the morning , but then i just can't get motivated. help me any suggestions?
April 19th
2007
4:57 PM
I am so glad I found this site. I have been experiencing severe joint pain and constant edema. I never even thought it could possibly be the toprol xl 50 mg I have been on for over a year now. I have had extensive blood work to find out why I have such joint pain and everything has been coming out normal! I am in pain EVERY day...and it has been getting worse. I do have a thyroid condition (which was also recently checked and all the blood work was fine), because I got terrible joint pain as a symptom of Hashimoto's thyroiditis (an auto-immune disorder) way back in 1999 when I was first diagnosed. So, when this terrible joint pain returned, I was sure it was the thyroid and that my medication for THAT would have to be adjusted. Needless to say, I was shocked and concerned that my thyroid numbers are all normal.
I cried today over this pain...I am only 44 years old and I feel like I'm 90 years old. Maybe fate led me here tonight. It may or may not be the toprol causing all of this pain, but at least I have some hope now. I am scared because since I do have an "auto-immune" disease, I am apparantly at a much higher risk of developing other auto-immune diseases....so perhaps it is not the toprol. I HOPE IT IS THOUGH...
January 23th
2007
11:13 PM
butterflym28, #36464
Sounds like your husband may be on aspartame too. Does he use Nutrasweet products or diet drinks? If so go to www.sweetpoison.com and check out Dr.Janet Starr Hull's own almost surgery from a thyroid condition she had until she figured out what was killing her.
I do take Lisinopril and have severe itching on my arms.
Patsy
-- By patsy712 | Reply | Private Message me
September 22th
2006
9:14 PM
I have been taking 40 mg of simvastatin for two weeks and I am experiencing terrible pain and stiffness in my hips from the time I get out of bed or if I have been sitting for any length of time. I also just started taking Levothroid for a thyroid condition at the same time so I don't know if that contributes anything to my symtoms.
-- By anita920 | Reply | Private Message me
June 23th
2006
2:10 PM
I took Levaquin for a sinus infection about 8 months ago. While taking the course I began having heart palpatations, tremors, restlessness, muscle spasms, pain in my neck/throat and seriously strange hallucinations. I called my doctor and asked if this was a common reaction to the antibiotic and he said no but thought it may be a thyroid condition. I spent time exploring metabolic possibilities etc. and the blood work came up normal. Most of the side effects disappeared but my eye sight never recovered (I became super sensitive to light) and I occasionally suffer from heart palpatations, tremors, migraines... all of which I never had prior to treatment. Recently I had a sinusitus flare up and was prescribed Levaquin again... after the FIRST dose my tongue swelled, tremors, heart palpatations, hallucinations PLUS the entire left side of my body went numb. I knew immediately to discontinue when I researched it myself and found most of the CNS complaints/side effects were mine as well. It has been over 6 weeks since the last exposure and I still am suffering from heart arhythmia, head aches and my sight is a major concern. I would love to know if there was some way to treat these symptoms/effects efficiently since it seems most last for quite some time?
-- By yoga_emma | Reply | Private Message me
February 28th
2005
10:31 AM
I have been on Atenolol for about 7 years now - 25mg. At first I found it made me feel tired and slowed me down too much, however, I decided to cut it in 1/2 and take 1/2 in the am and 1/2 in the pm and this seems to work much better.
In fact, when I told my doctor, he said it was a better idea since instead of getting a larger dose all at once, and having it wear off later in the day, the dosage would be more constant in my blood stream all day.
Thankfully, I really can't say I have any negative side affects from it and I do not take any drug I really don't need because I do not tolerate medications very well. The only other medication I take is Synthroid because 9 years ago I had radioactive iodine for my thyroid condition.
-- By dee2142 | Reply | Private Message me
August 2th
2003
12:20 PM
I have taken Levoxyl for over 2 years and am still having big problems with hair loss. I have complained to my doctor numerous times, but she always says that it is the thyroid condition not the drug (I had no problems wtih hair loss until I started taking Levoxyl). I can't believe there are so many people with this problem. I thought I was just sensitive.
Has anyone found a solution? I hate going off it, because before taking Levoxyl, I was always tired.
-- By nsoule | Reply | (1) replies | Private Message me
Mirena (4) Synthroid (3) Yasmin (3) Levoxyl (2) Levaquin (2) Lisinopril (2) Toprol-XL (1) Lipitor (1) Yaz (1) Atenolol (1) Paxil (1) Zocor (1) Singulair (1)
August 17th
2009
11:59 PM
Hello, I had the Mirena inserted in May 2008 and have just had it removed, August 2009. I do not have any children and was 25 at the time insertion. It was a terribly painful experience. The doctor gave me multiple pain shots inside of my uterus, tremendous cramping, bleeding, etc. and, when she was cutting the strings, accidentally snipped the inside of my vagina. Needless to say, the thought of going through that experience alone was enough to deter me from wanting to have the Mirena removed.
Over the next year, I went through a significant lifestyle change (SF to LA). I attributed many of the symptoms associated with hormones to this shift: weight gain, depression, anxiety, aggression, fatigue, joint pain. I always had some cramping pressure in my uterus and my periods became cramping events that took me out for a few days each month.
In the spring of 2009, I became concerned that these experiences were not just a change in environment. In addition to the Mirena, I have a congenital autoimmune thyroid condition (currently hypo), that I monitor 2-4x a year. I took multiple tests and started exercising and adjusting my diet in an attempt to balance things out. Regardless of the exercise and diet changes, I kept on putting on weight. I have suffered from the flux's of thyroid my entire life, but was flustered by my inability to effect any positive change.
I didn't associate the Mirena to these challenges until I began to do research on the internet. I believe that an IUD may aggravate thyroid and autoimmune symptoms (foreign object in the body). I also think that it is compounding my weight gain tendencies. After a three week late period, terrible joint pain, extreme bloating, cramping, and blister like acne, I went to the doctor today and he removed the IUD without any question. (This is NOT the same doctor who inserted the device). He was extremely supportive and sympathetic. I simply told him that I did not feel well and he suggested the Mirena's removal and did it IMMEDIATELY.
Unlike the insertion, removal was a breeze and I was amazed that my uterus instantly felt relieved. My body has been relaxing since then...a little sporadic cramping, a bit of a headache and nausea, but nothing significant. Emotionally, I feel much more grounded (though I'm sure this will shift ...as always!). For birth control, I am going to be taking Yaz for now, starting immediately. He recommended not having sex for a few days and using a secondary BC method for a month.
I am going to start cleansing my body through increasing my water intake and sweating (exercise and sauna). I am also going to see a homeopathic specialist next week to help with the hormonal shifts. I will check back in and share my Mirena removal experience. Take care, and listen to your body.
-- By cdceaser | Reply | Private Message me