September 16th
2009
11:49 AM
I have been taking the generic equivalent of Wellbutrin for nearly a year. A few months ago I noticed my hair is thinning on top, in front. It has steadily become worse. I finally did a search on Wellbutrin, hair loss and found this site. I will start weaning myself off it now! Losing my hair will make me more depressed than I was to begin with. Can anyone tell me, does the hair grow back? How long does it take?
-- By chippy | Reply | (1) replies | Private Message me
September 8th
2009
3:36 PM
I was on Singulair while pregnant because my asthma got worse while pregnant. Postpartum I noticed my 2 month old breastfed baby was still sleeping way too much and very colicky. I tried cutting out dairy and other allergens but nothing made a difference. When I forgot to take my Singulair a couple days in a row, I noticed my mood was much improved and the anger/irritability went away. Finally, after noticing I was having vivid, bad dreams, I began to realize it might be all from the Singulair. I also had developed a stiff, tight neck and vision loss, which I now realize was also from being on Singulair.
I went off of it and must say, that was the worst week of my life. I never felt so horrible or out of control. Although I noticed the first few days, I was happy and feeling again (it made me emotionally numb) by the fourth day, I began having heart palpitations and bad headaches. I quickly got my thyroid levels checked and those were fine. Then I suddenly had severe panic attacks! I thought I was going crazy! This was mistakenly misdiagnosed as PPD, although I was never even depressed. I was given a script for Zoloft and took Ativan but that didn't take away the panic and the Zoloft seemed to make the panic worse!
I began researching and realized all of my symptoms were from Singulair withdrawals! Even my family noticed I became a mean and hateful person with this last pregnancy. This drug is an awful poison! I am slowly recovering and feeling better everyday. I'm using my fast acting inhaler for the time being. Instead of the therapy I thought I needed for PPD (mis dx'd obviously) I'm also using herbs to treat this homeopathically with a natural doctor since conventional ones still want to pass it off as something it is not due to ignorance that an asthma medicine can wreck this kind of havoc on a person! They just want to use more drugs to treat the side effects of another drug!
I am so angry I took this while pregnant and breastfeeding being told it was okay. It was not okay and I hope and pray there are no long term side effects to my child from this drug!
September 2th
2009
11:02 PM
I have been on Yasmin for 2 years now. It is the only BC I have ever been on and have LOVED it up until about 3 months ago. All of a sudden I started having heart palpitations, sever chest pains, extreme fatigue, very bloated in my stomach, low sex drive, pain and tingling in my arms and legs,dizziness, shortness of breath, trouble swallowing, weight gain and major mood swings! I went to the DR and they did an EKG (which was normal) Tested my blood (I now have a thyroid problem that I have never had before) and they did an ultrasound (Dr that I may have a murmur) on my heart and the results came back fine. So the DR prescribed me Synthroid for the thyroid problem and the DR said that should help me gain my energy back, loose some weight and would take care of the heart palpitations. The other symptoms he contributed to Stress (Panic Attacks) I have been on Synthroid for 5 weeks now and I don't feel any better in fact I feel worse!
This morning I seen a commercial for a lawsuit against Yaz or Yasmin. Well since I am non Yasmin I immediately did a search and came across this site. I have literally been sitting here all night reading all the comments from different women and now know what my problem is. My problem is YASMIN! I am not taking this anymore and have an appt with my Dr tomorrow to have them do whatever they need to do to see if I have any blockage or any other damage from using this pill. My chest pains and the tightness in my chest are so severe that it takes my breath away and I am only 24! I am not ready for children and don't want to deal with bad periods like I had before getting on the pill but I can not take this rise. PLEASE if you are on Yasmin please stop taking it immediately and call your doctor Your life could depend on it!! I am hoping like other people who have commented that after a few weeks of being off the pill that I will feel so much better. I hope I am getting off of it in time before I have done any further damage.
-- By jnp84 | Reply | (2) replies | Private Message me
June 24th
2009
5:37 PM
I am a 48 year old woman, 5'1" (now 145 pounds). I had Mirena inserted almost exactly 5 years ago, and am scheduled to have it removed in 2 weeks. I gained 25 pounds over the course of the last three years; prior to that, my maximum weight for my whole (non pregnant) life was 123 (I was at 120 when Mirena was inserted, four years after the birth of my second child). I have always been very healthy, never abnormal blood tests except during my two pregnancies was tested as pre-gestational diabetic and had to watch my carbs.
I never put it together with Mirena until just recently, when I started doing research on hypothyroidism after a friend told me that my symptoms could be due to that problem. Depression, hair loss, acne on my back, and the terrible weight gain. I went to see my G.P. who referred me for blood work. I hoped to see evidence of low thyroid function (actual TSH value, 3.12 -- I was told this is normal on a range of .4 to 4.5). I also discovered that I now have high cholesterol (269 triglycerides, 251 total cholesterol, 46 HDL, and 151 LDL). My fasting (14 hours) glucose # is 99 (I was told this is normal on a range of 65-99 mg/dL), and my vitamin D, 25-OH is 21 (also was told this is still normal but low on a range of 20-100 ng/mL). I tried to give blood six months ago, and was turned down because of anemia, so I've been eating a lot of spinach, greens, and more red meat than I normally would, so I was interested to see if I am still anemic -- the red blood cell count is 3.8 (told it was normal on a range of 3.8-5.1 mill/uL). I mention these specific results because although I was told they were normal (except for cholesterol), when I physically went to the doctor's office and requested a copy of the results and did some research online I see that my thyroid IS actually low-functioning -- according to guidelines revised six years ago, anything over 3.0 is considered hypothyroid and should be treated. Plus, isn't a fasting glucose of 99 pretty high? Yet my doctor's only suggestion: diet and exercise. Good grief, I've been on a diet since I had my first child, 13 years ago. True, I don't exercise regularly (I'm a teacher and mom of 2; I never seem to have the me time.) I guess I have an excuse to get a gym membership now.
Also, for the last year I've had increasing pain in my shoulder (I couldn't lay on my side, for example, and lately I can't reach behind me or over my head). An x-ray turned up mild bone degeneration, but not enough to cause the pain I've been having. I was referred to an orthopedist, who today diagnosed a shoulder rotator cuff injury (I've had no injury; he says it is a common degenerative complaint in the over-40 crowd). He gave me a cortisone injection and I'll be on PT for a while to see if the pain goes away. If not, I'll have to have an MRI and surgery to correct the tear.
I'm posting all of this in case it might be useful to someone out there who might be going through the same thing. I had a thyroid test done about six years ago at my OB/GYN, and it was normal then (though I don't have the number; I'll get it in 2 weeks at the OB/GYN). It will be interesting to learn whether my thyroid level has gone up since Mirena. Also, although my research suggests that the effects of these synthetic hormones do not wear off for some time, possibly even years, I will finally feel like there may be hope if my symptoms improve over the next few months when Mirena is gone. If so, I will share it with you.
If you are reading this, perhaps you have a similar story. I wish I had been more aggressive about checking out the possible causes of my many symptoms, but I let them go for years because, I guess, I just figured I'm a healthy woman who is no longer young. (Oh, one more thing: for the first year or even two years that I had Mirena, I had incredibly heavy periods. The blood flow was similar to that during the day or two after the vaginal births of my daughters. Don't know if that's significant, but it took a couple of years for my periods to get fairly normal on Mirena.)
-- By wishidknown | Reply | (3) replies | Private Message me
June 18th
2009
8:58 AM
I was put on Yasmin several years ago to control symptoms caused by ovarian cysts. I was told this was pretty much the only solution. Against my better judgment, I went on it. Things were ok for a few months but I started having mild side effects. I didn't feel like myself and my sex drive was definitely gone. Two years ago I had my thyroid levels checked and found out my TSH level was very high. After doing some research, I found that birth control can affect thyroid levels. I contacted my general doctor and he confirmed my findings. I took Synthroid to control my thyroid for two weeks and had to get off of it. I was like a zombie. I called my general doctor back and asked about stopping everything. He said to contact my ob/gyn and if she ok'd it, then it was fine by him. They agreed but also said there is no connection with the pill and thyroid. Red flag #1. After being off of the pill, my sex drive has not returned. It has been two years now. I asked my ob/gyn to do a hormone profile and they said I was too young to be having any problems like that. Red flag #2. I was tired all the time and had no energy at all. My general doctor gave me pills for depression (which the main side effect is extreme drowsiness). I was so disgusted at this point, I went to a Homeopathic doctor. I was told I had adrenal fatigue (which can be caused by the pill). I have been on a course of natural supplements for a few months and have felt better than I have in a long time. However, the sex drive is still gone and due to the pill, may never return. This has been a horrible strain on my relationship. It's upsetting when you know you should be feeling a certain way and you just don't. I have given up on traditional medicine and the idea of pills being given out without knowing long-term side effects and causing even greater problems. Ladies, if you are experiencing problems on or off the pill, see your doctor. If they offer no help, find another doctor! Also, after looking up Yasmin in a pharmaceutical book, it is listed as one of the WORST pills and listed under definite do not take. Use this pill at your own risk.
-- By starchild7 | Reply | Private Message me
June 15th
2009
6:28 PM
Just want to survey everyone and ask for responses for the following 3 questions:
1. how long did you keep your Mirena and if you no longer have it, why did you have it removed?
2. how many of you had your thyroid checked? who's came back abnormal? what were the levels?
(I'm a medical student doing research on this one since I believe the levonorgestrel affects our thyroid hormone. My TSH was elevated to 5.2 which is considered "subclinical HYPOthyroidism". This was mid cycle when my natural progesterone AND synthetic progestin were cumulatively high. When I had it rechecked 6 weeks later (around my period when any natural progesterone level is gone) it was normalized at 1.5. So I think that the P+P screws up our thyroid and can throw us into a high TSH and "hypothyroid state". The opposite effect may be true during menstruation and we can become HYPERthyroid for a few days... hence the really bad anxiety?!)
3. where is everyone from? perhaps we can have support group meetings?
-- By ameigh | Reply | (11) replies | Private Message me
May 10th
2009
10:54 AM
I'm 23 years old and had the Mirena put in 6 weeks after our first daughter was born. The first 2 weeks of having it were fine... other than a little struggle implanting it all was going well. Exactly at the 2 week mark I wound up in the ER with what I thought were a bladder infection, hemorrhoids, and swollen lymph nodes in my hip-flexors. Now none of this has been linked to the Mirena, so it could be a fluke, but none of the doctors could figure anything out! My urine sample was clean, my pap was normal, they couldn't find hemorrhoids, and it was a frustrating un-diagnosis. The doc sent me home with pain meds and a local numbing cream, but using the bathroom hurt so bad I had to bite down on a towel to pee! Taking a poop... HA... I've been putting it off for days because I feel like my rectum will tear open! Has anyone else had any of these things? Maybe I'm just ill with a strange disease, but this site has me curious if it isn't the Mirena!
-- By ksmom | Reply | (3) replies | Private Message me
March 13th
2009
4:35 AM
Wow! Let me tell you my story: I was first diagnosed with HBP (170/140) during a high school sports physical in the beginning of 8th grade (I was about 14 years old). I was in top shape and a very healthy eater. I had probably (from what I remember) every test done to see what was the cause of this hypertension - and the only thing found was that my kidney's produce too much rennin (the hormone that increases BP). I was then put on Lisinopril 10mg. Everything continued well for about 6 years - I also stayed in shape and ate healthy. However, throughout those 6 years, I did notice my curly hair turning straight and my incredibly (can't do nothing with) thick hair started to thin and become style able. Now...I do know this is my fault, but in the past 2 years my healthy eating habits have slipped, I've gained weight and started smoking - plus have a sit down, don't move kind of job. However, about 1 year ago, I had a slight spike in my pressure and my doctor added a diuretic (HCTZ 12.5mg) to my lisinopril. Ok, that brought the pressure down and all seemed well. Then..... In December 2008, not long ago, I started not feeling well. Thinking I was sick, I went to the doctor's to find my blood pressure to be 190/140. Immediately, my does was increased to 30-12.5mg. That brought a quick drop in my BP down to 110/66 - I was so darn dizzy I could barely function. I was also but on short-term disability because all this caused me to be off work for so long. Unfortunately, when my dose was adjusted to 20-12.5mg and the dizziness stopped I went back to work. Now, I can't go back on S.T.D. for many, many weeks. And....... The past month has been complete HELL!! My hands (mainly fingers) and toes are almost always cold, I've been dieting for over a month and am struggling to lose weight, my hands and feet go numb more often than usual - I never used to find myself waking up in the middle of the night because of pins/needles feeling, my hair is thinner than ever and stick straight - I'm afraid I'm not going to have any left, I have UNBEARABLE headaches (sometimes all I want to do is sleep and sometimes, like tonight -it's 4:12am- I can't sleep), I have acne like a teenager - mind you, I never had more than 1 to 2 pimples at a time growing up, and that was rare (I was lucky)... Thank god for FMLA or I would have lost my job since I've spent so much time home since I thought all was good and went back to work. Only wish I could make a dollar again. Now to top it off...I was referred to a nephrologist (kidney specialist) who after seeing me only once for about 30min and reviewing blood work from the end of January (I had a high calcium level as well as some others that deal with the kidneys) wants to take away the diuretic (HCTZ) part of my medication (hopefully to reduce the calcium level) BUT DOUBLE MY MG OF LISINOPRIL. HE WANTS ME TO TAKE 20MG TWO TIMES A DAY. I was starting to think all these new symptoms that came on so quick were a result from the increase of lisinopril - now I think I'm sure. I'm not changing my medications until I can talk this over with my PCP - I'm going to ask we try a medication change. Does anyone have any suggestions? Or any suggestions why a 20-year-old has blood pressure as high as 190/140 with no family history of HBP or really any health problems? Any suggestions why the kidneys are producing too much rennin? Any meds that drop the pressure and we don't get headaches - I can live with cold limbs and numbness - it's the headaches that are rendering this 24-year-old helpless :(
-- By alyssa07 | Reply | (2) replies | Private Message me
February 21th
2009
9:47 AM
2/21/09
I have had my Mirena in for two weeks now. I have been having abdominal pain, I thought perhaps the Mirena had bruised my ovaries. The insertion was extremely painful. I had a two week check up and now I have multiple cysts on my ovaries.
I have a 6 year old and 22 month old twins. I have always had heavy, long periods. After having the twins I began experience extreme cramping 2 weeks prior to even having my period, lower back pain, and mood swings. I have never been a fan of contraceptives but felt if the Mirena could stop me from feeling crampy all month long it could finally be the relief I have been looking for.
Now I am in more constant pain because of the cysts and after reading this site wonderf if I should have my thyroid checked again. Before the Mirena I was positive for Hashimoto's disease and have had a nodule removed (non-cancerous). I wonder if the Mirena is going to push my horomones so that I will have to begin taking medicine for my Hashimoto's.
I wonder what releif is out there since the pill is still a hormone.
When I spoke to my OBGYN she said the Mirena had nothing to do with the cysts. I don't know if it is because there are a couple on each ovary?
So far my side effects include ovarian cysts, facial hair, acne, swelling in ankles.
Thanks for having this page and I hope we can all find some relief.
January 27th
2009
4:09 PM
I was diagnosed with Hashimoto's Thyroiditis (hypothyroidism) about 9 years ago. My teenager was diagnosed 2 years ago. I have done a good amount of research and have also learned a lot through experience.
*The most critical thing is to NOT accept a generic brand of thyroid replacement. My GYN, family doctor, and my endo (who specializes in thyroid) have told me that generic pharms are only required to match the original drug's ingredients/strength by 75%. As my GYN said, if you're in the business of making a profit, and you can get away with putting in 25% less of the expensive (and unfortunately, the essential) ingredient, that's what you're going to do!
*Measuring T4 alone may not reveal hypothyroidism in the early stages, and it will probably not show everything that is going with your thyroid. I knew something was not right, but my old GYN (got rid of her) tested T4 only and said I was fine. I went to an endo who measures 1/2 dozen indicators, including antibodies and thyroid uptake, and I was correctly diagnosed. He also diagnosed my son early on, albeit, my son was exhibiting numerous symptoms. Which brings up another point -
*Everyone exhibits a different degree of different symptoms. So don't be surprised if your thyroid levels are higher or lower than you thought they would be based on your symptoms.
*Find a doctor that will work with you. I had a doctor that insisted my dosage was correct, even though I was still feeling very tired, had dry skin, etc. I finally found a doctor that acknowledged that there is a range of "normal" thyroid function. He upped my med a little, and I've felt much better.
*Know the signs of too high of a dosage - restlessness, eye and muscle twitches, trouble sleeping, etc. Our endo has us come in 1 month after prescribing a new dosage to make sure it is enough or not too much. If I was exhibiting hyper symptoms, I would not wait 1 month to be rechecked.
*Hormonal changes of any kind can wreck havoc on your thyroid - whether you're a male teenager or a peri-menopausal woman. Your thyroid levels can change quickly. If my son or I experience any new symptoms - fatigue, rapid weight gain, unusually dry skin, muscle aches/pains, etc. - I make an appointment w/ the endo. My son's thyroid had plummeted the last time I took him in, and the endo adjusted his med. Illnesses (flu, pneumonia, etc.) can effect your thyroid levels, as well as stress, so have your levels checked after going through a serious bout.
*Once you have your dosage correctly set - watch your appetite! Hypothyroidism can reduce your appetite, and once you've got that corrected, your appetite comes back. Keep a food journal to track your calorie intake.
*Have an annual thyroid ultrasound to make sure your thyroid is not enlarged and to look for nodules (very common w/ hypothyroidism.)
*TAKE YOUR THYROID 1ST THING IN THE MORNING BY ITSELF 1 hour before you eat. I had a friend who was taking her calcium supplement along with her thyroid every day and later found out the calcium was basically canceling the thyroid. Her doctor should have warned her about this, but I think they assume we know these things. Vitamins, herbs, cold medicines, certain foods, and other medicines/supplements can greatly interfere with your thyroid replacement.
*Women with hypothyroidism should take a calcium supplement (take one with magnesium for better absorption) because we are at greater risk for osteoporosis. I take mine at night, so it does not interfere w/ my thyroid replacement.
December 28th
2008
8:51 PM
I am so miserable. I had the mirena inserted at 6 wks post partem in June 2008. My doctor told me I'd bleed for about 3-6 months initially until my body "stabilized". I spotted on and off for 4 mths, and had my first yeast infection ever within that 4 months! I also began to become very moody, weepy, tired all the time, experienced terrible constipation, bad headaches and had the most irritating acne. I even went to my regular doc about being tired to get my thyroid levels checked and they were fine. I didn't even think that it could be the mirena b/c I didn't do the research on it before hand! I wish I would have! I have also experienced another yeast infection-and think I may have another now! That makes 3 since I've had this thing-in a 6 month period! Then in early October I began having hives on my extremities, and since have it on and off all over-no change in soaps or lotions or anything like that. I have no reason for them...except for the mirena. This past week I've had terrible abdominal cramps and painful intercourse. So I went to check for the placement of my strings...and...they're not hanging out anymore! So I will definately be calling my OB in the morning and having this thing removed...hopefully no damage has occured!
-- By mmk8705 | Reply | Private Message me
December 8th
2008
3:39 AM
So basically this is my story.. I am 19 and have had severe asthma every\ since I can remember. I took prednisone up until I was 14, and from what I can remember I just stopped taking it around then. Then when I was about 18 I started up again because my asthma got worse. Between the time period of 14-18 I still had asthma, but started working out and became very active and healthy.I lost alot of weight had VERY THICK long hair. Then at 18 I got very sick and my doctor put me on prednisone knowing my asthma history. After being on it for a month my hair has become thin, I have gained weight, my face has rounded, my skin used to get tan very easily but now just flushes. I have headaches all the time, can't sleep at all during the night, then crash during the day. I am constantly depressed. I always have to pee. I can't be at the gym for more than 30 mins and then I just die im so tired. I can go on and on. I have tried so many time to get off but like I have read from the above comments,I become very sick and lazy I literally can't move. But what I need answers for, and what I was wondering, has anyone started to get hives/rash after coming off or being on prednisone. Every time I try to wean off of it I get them all over my legs!! NOTHING and I mean NOTHING makes them go away except when I start up prednisone again. My doctor thinks its okay and no other doctor can figure out why im getting these hives but its so obvious its from that because when I go back on it goes away. This is not a good medication to be on. I haven't seen hair loss as one of the major side effects but has that happened to anyone else. im praying to god i can wean of this drug if anyone knows anything pleaaaase let me knowwwwwww
-- By rileyb1989 | Reply | (6) replies | Private Message me
October 28th
2008
8:52 PM
I AM SO GLAD TO KNOW THAT MOST OF YOU HAVE THE SAME SYMPTOMS. I am 25 yrs old and I went from 117-162 in about 4 years. I have been miserable!!!!! I was diag. in Aug. and have been taking SYNTHRIOD ever since when I first started taking it I took the medicine in the morning like the bottle and the doctor recommends, but I felt just like all of you. So I tried taking it in the afternoon for kicks and giggles to see if it would help at all. After about a week taking it at about 2pm I started feeling like a champ so I continued and now a month later I have lost 10 pounds. Just a suggestion......... The one question I do have is that I recently noticed that I have actually been ovulating and I am convinced that I haven;t in years hince why I have no kids I guess... Could your thyroid levels mess you up that bad to where you spend years not ovulating or should I go through the expensive process to see a fertility specialists. This is a question that I asked my doctor and of course they want to do 1000 $$$$$$$ tests to find out. Which I have no problems with in the future if worse comes to worse but I would like some advise from my fellow hypo sufferers and see if anyone was in the same boat as mee before being diag.
-- By cherrybit | Reply | (2) replies | Private Message me
October 4th
2008
3:00 PM
As a Doctor myself I think drugs are NEVER the answer except in EMERGENT issues in Heroic life saving... YOU however and all individuals are and should be MORE accountable for your own health and STOP DEMANDING the Drugs and look to LIFESTYLE changes in DIET and EXERCISE to achieve the GOALS so necessary for quality and quantity of life.... The tools are at your fingertips ... The almighty internet ... And your OWN imaginative mentation is your TRUE limitation... So TAKE control of yourself and BE accountable .... Sorry so blunt but MORE tough love and Educating people is whats needed.... NOT more drugs....
MDG
-- By traumaerdoc | Reply | (28) replies | Private Message me
September 26th
2008
11:06 PM
I have been on Topamax since Jan of 08 for complex partial seizures. I was very pleased with it at first but started having
some more unpleasant symptoms. My hair recently started falling out about two months ago in massive handfuls! I was
and am very upset about it. I did have the tingling in the hands and feet when I first started taking it and I don't drink sodas
at all which I did all the time before. I did not lose weight at first but did a couple of months ago when I got very ill with a GI
problem. I actually lost about 20 lbs in about a month. This is when my hair started falling out. I have had a lot of labs
drawn and my TSH was undetectable but my thyroid levels (T3 and T4 are normal) and my antibodies are normal as well so,
there is no telling what is going on?? I just want off of this medication before I am bald!!
August 28th
2008
12:40 AM
I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik
August 16th
2008
4:20 AM
Hi ladies,
I just finished my last pack of Yasmin on Thursday because I felt I was pumped with hormones. I googled "coming off the pill Yasmin" and came across your comments.
I was originally put on Yasmin by my Doctor as I had put on a few pounds. I lost that weight with exercise (can't diet) but I have never lost my DD breasts (I was a C cup before Yasmin) and I've a tummy which when I bloat the week before my period, I look pregnant!
I've been experiencing a lot of the negative side effects of Yasmin over the last year and I was beginning to think I was going mad.
I suffer from very bad headaches, water retention, bloating and loss of sex drive.
In the last 2 or 3 months I'm now suffering with nausea, leg cramps, sore breasts, anxiety and feeling down.
As most of these symptoms have occurred in the last year, I just got fed up. I've been on the pill for 14 years (on and off), and on Yasmin for at least 6 years. I'm now 32, I'm married and would love a child.
I feel by coming off this pill, my body will settling into a routine before I hopefully conceive.
So glad I found your comments and I'm not alone in how my body feels.
Thank You.
August 1th
2008
11:24 PM
Hi Ladies,
I am 31 with 3 beautiful children. I have had the mirena since July 2007. I now have a thyroid disorder called Hashimoto's thyroids. No personal or family history of any type of thyroid diseases. I am having mine removed in 4 days. Of course my family practice MD claims there is absolutely no connection between the mirena and my new onset of thyroid disorder. Just FYI for all of you ladies out there, the symptoms most commonly reported by a majority of you, take a look at the symptoms of hypothyroidism.
Symptoms of Hypothyroidism
Fatigue
Weakness
Weight gain or increased difficulty losing weight
Coarse, dry hair
Dry, rough pale skin
Hair loss
Cold intolerance (can't tolerate the cold like those around you)
Muscle cramps and frequent muscle aches
Constipation
Depression
Irritability
Memory loss
Abnormal menstrual cycles
Decreased libido
Any of these sound familiar??? All of my labs including my thyroid (TSH) levels came back normal. Except one. PTO, the test for thyroid antibodies. My immune system is literally attacking my thyroid. Thyroid levels under 3.0 are looked at for many women with infertility and miscarriage. Mine was 2.44, which is within normal range, but I am also on the verge of hypothyroidism. 3 weeks ago I noticed a lump on the left side of my thyroid, I just found the infertility information late last night, and that's how I wound up here. Mirena is doing its job, but it is also messing with your metabolism. Just because your thyroid levels are within normal range does not necessarily mean you are not having thyroid issues or it may be early enough where your levels are not "concerning" yet. No connection between thyroid and Mirena, huh???? Good Luck to all of you.
-- By thyroiddisorder | Reply | (2) replies | Private Message me
June 17th
2008
7:08 AM
I have Hashi's and have been on Synthroid for about 2 years. I was recently on 75 mcg and was teetering on the brink of being hypo again so my doctor increased my dosage to 88 mcg last week. Ever since I have been on the new dosage, I have had the worst insomnia. I wake up covered in sweat (in air conditioning) and I feel caffeinated all the time ( I don't consume caffeine). I feel strung out! Is my body just getting used to the new dosage or am I being over medicated? I don't want to complain yet to my doctor if this is just my body getting used to the new dosage but this really is terrible.
-- By msv | Reply | (2) replies | Private Message me
April 24th
2008
6:57 AM
I have been reading about the side effects of lipitor for several days now and am scared silly! I have been taking it for nearly 5 years now. My doc warned me about the muscle weakness/pain when I began taking it, but I didn't have any problems and it definitely provided good results for my cholesterol level. During the past several months though, I've begun to have severe symptoms. Actually, looking back, I realize I've had some of these symptoms for awhile but they were so easily attributable to other causes that I didn't pay close enough attention. I am weak to the point of not being able to walk a city block without being tired; my breathing is so labored sometimes just moving around my apartment is a problem. My knees and lower legs are painful, especially after walking. I get frequent, painful spasms in my lower arms and wrists. My speech has become slurred (I sound drunk) and my voice very hoarse - both so much so that people have trouble understanding me. I have trouble concentrating, am forgetful and am often dizzy and light-headed. I take medication for GERD, hypothyroidism, depression and asthma. But in case you think these symptoms could be from one of those (as I did!), I can assure you that I have had multiple tests which determined my thyroid levels are good, my BP is excellent, I have no signs of cardiac disease or diabetes, no sign of any type of stroke, no signs of any type of cancer or blood disease, no sign of pulmonary problems (other than asthma). I stopped taking Lipitor four days ago after consulting my doc. But I got to tell you, I am scared to death that I've been on this drug so long these symptoms won't go away. Any advice or suggestions would be most welcome.
-- By cdsmafp52 | Reply | (3) replies | Private Message me
April 22th
2008
10:17 PM
I have been on nuvaring for two months and have had numerous side effects never thinking to attribute them to the ring. I have complained to all my friends that there is something weird going on with me and I didn't feel right. I thought maybe my thyroid levels were off. I am 43 and started using it at the recommendation of my gyn for pms symptoms. I have gained weight around my middle despite being very active and eating well. I have always had a flat stomach until recently. all my clothes are tight and I feel bloated all the time. I have also had terrible pelvic pain, decreased libido, vaginal dryness, difficulty with orgasms, depression, irritability, stomach discomfort and headaches. I just took it out and am looking forward to being myself again.
-- By smoky1019 | Reply | Private Message me
April 22th
2008
5:25 PM
I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464
-- By sherrie77 | Reply | (4) replies | Private Message me
March 13th
2008
2:52 AM
My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona
March 12th
2008
11:35 PM
I love it. I've had it for a week now. Very little spotting, minimal cramps, and no discharge. I was told of the side effects, and knew all of this before I got it. Hormones act differently to some people. I did not react well with the patch or pill. So far, so good with Mirena. I don't think a lawsuit or complaint is exactly the way to go. You should start with talking to your doctor more and seeing if they give out pamphlets or just did not tell you everything you were supposed to know. I also believe not everyone's symptoms should be blamed on Mirean. People usually "feel" things they don't really have, esp. after coming on here and reading things. You can make your body feel that stuff. The insertion was not comfortable by any means, but it also wasn't a pain that I would ever cry or scream over. I'm 21, relatively healthy, and never had children. I work in healthcare and see people react like this all the time-no tolerance to pain, and just wanting an excuse as to where some of their "pains" come from.
-- By brandnewb4u | Reply | (9) replies | Private Message me
Synthroid (10) Yasmin (10) Mirena (9) Levoxyl (5) Levothyroxine Sodium (1) Levothroid (1) PredniSONE (1) NuvaRing (1) Singulair (1) Wellbutrin (1) Lipitor (1) Lyrica (1) Lisinopril (1) Toprol-XL (1) Topamax (1) Lamictal (1) Advair HFA (1) Warfarin Sodium (1) 5-Aminosalicylic Acid (1)
November 2th
2009
6:59 AM
I am extremely sensitive to medications. That being said, even though my thyroid levels were normal, my doctor believed I had hypothyroidism. He put me on .25 mcg of the generic brand of synthroid. I could only take it for 5 days because during that time I developed feelings of "dread" and I was afraid to go to sleep at night. When I stopped the pills, I started to feel better but I believe the stuff was still in my system. Some stressful things happened right after, and it threw me into panic attacks with scary, racing thoughts, trembling, insomnia, etc. I'm slowly getting better. But after reading this, I feel even better now knowing that I'm not losing it and chances are great that it's the synthroid that's causing it.
-- By odie | Reply | Private Message me