Thyroid replacement symptoms and conditions

Does anyone here ever had any tingling issues? I had total thyroidectomy in Feb. 2009. Felt good the first month or two and have gone down from there! Some days are good, some are bad. Never know from day to day how Im going to feel! I started out for about a month and a 1/2 on 125 levothyroxin.....then my doc lowered it to 100.......as of July 14th, Im now taking .88. The tingling Im getting is all over my body, different places, here and there. Ive had some heart rate issues for a couple of months now too and finally had my regular doc send to me see a heart doctor.
Thought maybe the tingling could be from low calcium.....it was normal, CBC was normal, ECHO was normal.....waiting on the holter test results right now. The heart doc gave me a prescription for Toprol. I told him I wasn't going to take it cuz sometimes my heart feels like its barely beating and Im afraid it will make it worse. Im glad I didn't get it! Ive read of too many side effects.
Palpitations, kinda fast heart beat with pounding.....sometimes it feels likes its barely beating! Most of this occurs when first laying down......every now and then while sitting, etc. I do not exercise.....and should but just don't find the time. I switched jobs around the time I found out I had several nodes on each side of my thyroid. I was getting tired a lot and just thought i worked too much. I went from a physical job to a sit down, 12 hour, graveyard shift. Since the surgery, Ive felt it more. Im tired of feeling like crap all the time......I was already going thru some perimenopause stuff before all of this! Before I ever found out about my thyroid, I did have real light pounding of heart when laying down and tingling every blue moon, but very mild as well.
Now with no thyroid.......and medicines with all the side effects......IM GOING NUTS!!! Right now the moodiness and tingling are whats bothering me the most. Some days Im really tired, others Im ok. My body gets hot off and on, no fever. The past 3 days my calves, feet, and ankles have started to swell........never before! Plus I get some throbs and pains in my legs and arms and under my arms here and there. I probably need a new doc and I change of medicine......but Im afraid.
For one, Ive decided to go back to a physical job........and hopefully it wont screw with my heart rate even more. Ive read up on tingling........Im guessing maybe its from all the damn stress since my calcium was normal. Does anyone here have any suggestions?????

I had the shot 5 times because I didn't finish the first series. Since then, I've lost 20 lbs and may have to have thyroid replacement treatment for the rest of my life! I owe it to PrisonPlanet.tv and PrisonPlanet.com for helping me realize that Gardasil may be the cause of this condition. Visit these sites for more information...

I've had numerous side effects from Synthroid, but the ones that finally scared me off the drug were the thoughts of death, dying and suicide.

These thoughts came as casually as thoughts of what I'll wear tomorrow, which was more frightening. They also came unbidden. First, I was thinking about death generally. About a month later, I began thinking about dying, and the whole process of dying. Then, when I started thinking about just walking in front of a train, I got on the Internet and did some research.

Synthroid was the only medication I take daily, so I stopped taking it at once. And about a week later, the thoughts of death, dying and suicide stopped. My doctor refuses to prescribe natural thyroid, so I'm out of luck until I find a doctor who will help me.

I have always had and currently have the side of effect of extreme fatigue associated with the use of synthroid and now Armour thyroid replacement as well.
Whenever my tsh reaches normal levels I become increasingly fatigued. Now I an hardly stay out of the bed and yet my levels are normal.
I have Hashimoto's Disease and am menopausal with severe insomnia to cloud the issue. But the fatigue associated with thyroid replacement is longstanding and has occurred for about 15 yrs. For many years, I would stop taking the medication because of it. My doctors do not believe that the fatigue is related to Synthroid which I find utterly frustrating. Will be looking for another endocrinologist soon. Has anyone out there experienced this side effect of extreme fatigue?
Any input would be greatly appreciated.

I was diagnosed with Hashimoto's Thyroiditis (hypothyroidism) about 9 years ago. My teenager was diagnosed 2 years ago. I have done a good amount of research and have also learned a lot through experience.
*The most critical thing is to NOT accept a generic brand of thyroid replacement. My GYN, family doctor, and my endo (who specializes in thyroid) have told me that generic pharms are only required to match the original drug's ingredients/strength by 75%. As my GYN said, if you're in the business of making a profit, and you can get away with putting in 25% less of the expensive (and unfortunately, the essential) ingredient, that's what you're going to do!
*Measuring T4 alone may not reveal hypothyroidism in the early stages, and it will probably not show everything that is going with your thyroid. I knew something was not right, but my old GYN (got rid of her) tested T4 only and said I was fine. I went to an endo who measures 1/2 dozen indicators, including antibodies and thyroid uptake, and I was correctly diagnosed. He also diagnosed my son early on, albeit, my son was exhibiting numerous symptoms. Which brings up another point -
*Everyone exhibits a different degree of different symptoms. So don't be surprised if your thyroid levels are higher or lower than you thought they would be based on your symptoms.
*Find a doctor that will work with you. I had a doctor that insisted my dosage was correct, even though I was still feeling very tired, had dry skin, etc. I finally found a doctor that acknowledged that there is a range of "normal" thyroid function. He upped my med a little, and I've felt much better.
*Know the signs of too high of a dosage - restlessness, eye and muscle twitches, trouble sleeping, etc. Our endo has us come in 1 month after prescribing a new dosage to make sure it is enough or not too much. If I was exhibiting hyper symptoms, I would not wait 1 month to be rechecked.
*Hormonal changes of any kind can wreck havoc on your thyroid - whether you're a male teenager or a peri-menopausal woman. Your thyroid levels can change quickly. If my son or I experience any new symptoms - fatigue, rapid weight gain, unusually dry skin, muscle aches/pains, etc. - I make an appointment w/ the endo. My son's thyroid had plummeted the last time I took him in, and the endo adjusted his med. Illnesses (flu, pneumonia, etc.) can effect your thyroid levels, as well as stress, so have your levels checked after going through a serious bout.
*Once you have your dosage correctly set - watch your appetite! Hypothyroidism can reduce your appetite, and once you've got that corrected, your appetite comes back. Keep a food journal to track your calorie intake.
*Have an annual thyroid ultrasound to make sure your thyroid is not enlarged and to look for nodules (very common w/ hypothyroidism.)
*TAKE YOUR THYROID 1ST THING IN THE MORNING BY ITSELF 1 hour before you eat. I had a friend who was taking her calcium supplement along with her thyroid every day and later found out the calcium was basically canceling the thyroid. Her doctor should have warned her about this, but I think they assume we know these things. Vitamins, herbs, cold medicines, certain foods, and other medicines/supplements can greatly interfere with your thyroid replacement.
*Women with hypothyroidism should take a calcium supplement (take one with magnesium for better absorption) because we are at greater risk for osteoporosis. I take mine at night, so it does not interfere w/ my thyroid replacement.

So basically this is my story.. I am 19 and have had severe asthma every\ since I can remember. I took prednisone up until I was 14, and from what I can remember I just stopped taking it around then. Then when I was about 18 I started up again because my asthma got worse. Between the time period of 14-18 I still had asthma, but started working out and became very active and healthy.I lost alot of weight had VERY THICK long hair. Then at 18 I got very sick and my doctor put me on prednisone knowing my asthma history. After being on it for a month my hair has become thin, I have gained weight, my face has rounded, my skin used to get tan very easily but now just flushes. I have headaches all the time, can't sleep at all during the night, then crash during the day. I am constantly depressed. I always have to pee. I can't be at the gym for more than 30 mins and then I just die im so tired. I can go on and on. I have tried so many time to get off but like I have read from the above comments,I become very sick and lazy I literally can't move. But what I need answers for, and what I was wondering, has anyone started to get hives/rash after coming off or being on prednisone. Every time I try to wean off of it I get them all over my legs!! NOTHING and I mean NOTHING makes them go away except when I start up prednisone again. My doctor thinks its okay and no other doctor can figure out why im getting these hives but its so obvious its from that because when I go back on it goes away. This is not a good medication to be on. I haven't seen hair loss as one of the major side effects but has that happened to anyone else. im praying to god i can wean of this drug if anyone knows anything pleaaaase let me knowwwwwww

I have been on synthroid for about 6 months now. Some of the side effects I have been experiencing are numerous.I have hair loss, sometimes I get so ill that no one can stand to be around me, my weight has gone up about 30 pounds, my cholesterol levels went sky high so now I'm taking Crestor, I'm bloated most times, I have episodes where my face flushes and gets so red that it feels like its on fire, and now I've just started experiencing burning and aching of the legs, I'm tired a lot too! My doctor said I would lose the weight but every time I go for check ups and get on the scale it just keeps going up. I would like to know if anyone else out there is experiencing the burning and achy legs because I have been tested for everything and they can't find out what is going on. They of course say it's not the medication.It seems to never be. Does anyone feel me??

My doctor prescribed Armour Thyroid to me to help me lose weight; he did this without taking a blood test. My thyroid was perfectly fine when I began taking it. I took it for three weeks, but didn't like the palpitations and weird things happening to my heart so I stopped. Since then, about two weeks ago, I have had horrible muscle cramps in my upper back, neck and shoulders. I also have pain in my right arm which I am assuming is a pinched nerve from the muscles. Any ideas what to do?? I can't take the pain much longer.

I have just come across this site, while looking to find out why I have been experiencing heart palpitations for the past two months - out of the blue!!! and usually "exercise" induced. I had some tests and have been told they are Premature Atrial Contractions "PACs". I started taking Yasmin in April, after having tried others over the past year (tri-cyclen lo and alesse) which did not work for me as the progestin was not strong enough. I am in my 40s and never took the pill before. Yasmin was great, it significantly reduced my "physical" pms (severe inflamation, severe bloating, severe sore breasts) which I experience for 2-3 weeks a month. However, sometime in mid to late June, I started getting palpitations/tremors out of the blue. The first episode freaked me out and lasted for about two weeks. At first I thought it was allergy medication mixed with my thyroid med, which can happen - but I cut out the allergy meds and still got them. They seem to come about 6hrs to a day after I fexercise/figure skate and they last from 2 to 5 five days. It's very irritating and nerve wracking, and I feel very agitated. I am also out of breath more than usual when walking up stairs, a little light headed and have some tightness in the chest. My legs also are weak, which makes no sense given my exercise regimen. I then lowered my thyroid replacement from .125 synthroid to .100 - too much thyroid med can cause some palpitations. Anyone who has mistakenly taken a second thyroid pill having forgotten that they already took one will understand. Even with the lower dose I am still getting the palpilations. I am totally at a loss as to why all of a sudden this is happening to me (perhaps perimenopause??). I have had the odd flutter here and there in my live, but nothing like this. It just doesn't make any sense ag ll. Can one's health just change like this overnight?. I am otherwise healthy, slim, have "lower" blood pressure (apprx 100-90/70-60)I skate 3 to 5 times a week, I have a full time job and yes I do push myself, but this is getting ridiculous. The only thing I can attribute it to is the Yasmin, ... but my symptoms only started after a few months not instantly, whereas it would seem that most of the the women here noticed the side effects faster. I hate to stop the Yasmin because I will have to return to pms "hell", but I suppose I will give it a try to see if the palpitations subside. At this point, I have been offered a low dose "beta blocker" and have refused. I am stunned to think that all of a sudden I have heart issues, especially since my Dr has always kidded me my that I will never have heart problems with my blood pressure. I will stop the Yasmin tonight and post another message in a few weeks one it is out my system. Here's hoping it is the Yasmin.
KarenSkaterGirl

I just finished week 2 of Yasmin and the side effects hit me hard about 3 days ago! Anxiety, heart palpitations, moody, tired, nauseous, headache, did I say moody? My appetite is out of control too! I will not be continuing with this pill. Thank goodness I found this site, as well as another forum - Otherwise, I would have chalked it up to stress in general (I'm a SAHM of 3 children). It got so bad today, I thought about going to the ER!

I would like to know if there is any relationship between taking Thyroid replacement hormones and essential tremors.

My husband started with the lupron in July 2003 (he gets a shot every 4 months) for prostate cancer. Happpy to report that the tumor has reduced and his PSA count is now normal, but the side affects of lupron are numerous. He is always hot, and we have a batttle of the covers at night, constant muscle pain in legs and back, very moody and its not natural to see a man cry so easily, because he had 90% of his thyroid removed and is taking thyroid replacement therapy (snythroid), for some reason he is so off balance, which seemed to have improved when he first started taking snythroid. He can't remember anything and is very unsteady on his feet. We live in NY City and his lawyer's office is in the city right across from Macy's Dept. Store in Herald Square. He gets really paranoid when we go to the city and holds onto me like a three year old. I am thankful that the lupron is helping him as far as the cancer is concerned but the side affects of taking this drug are numerous. My husband's breast are almost as large as mine and he complains constantly of soreness. He is just a mess to say the least. The doctor says he has to continue the shot until there is no trace of the cancer and the tumor is completely gone. This does not sound good to either of us. Our lives has changed so dramatically.