April 13th
2008
10:18 AM
I had the Mirena coil removed a week and a half ago and let me tell you I have had the worst week ever!!
My reasons for getting it removed were the same as most people, very bad mood swings,always snapping at my boyfriend, depression, always bleeding, severe stomach cramps all the time, anxiety, hair loss, low libido and the list goes on... I never had any of this before the mirena.. I never realised the mirena could of been the cause until I decided to google it one day and found thousands of women had the same symptoms, everything then made sense...
I made the appointment to get it removed and immediately started taking Vit B6, Primrose oil and I have ordered 5HTP on the internet cos I cant find it anywhere... day 4 I started getting very bad anxiety and horrible suicidal thoughts, I have always been a happy person and couldnt understand what was happening to me... the whole week at work was a blur and each day was a struggle to get through.. I was continuously crying and I had these horrible thoughts in my mind that wouldnt go away!! it has been a nightmare.. its like they are stuck in my mind and I cant think of anything else but these horrible thoughts! (The weird thing is I had the same thoughts when I had the mirena inserted 2.5 years ago but they werent as bad as now and they eventually went away) I saw my doctor on Thursday morning and explained these problems and she prescribed me valium tablets to take away the anxiety... later that afternoon I had a anxiety attack and landed going back to the doctor because of these horrible suicidal thoughts in my mind... My doctor reffered me to a phyciatrist which I saw yesterday, I have never had to see anyone like this before so it was very scary for me... the shrink I saw said that there was no ways the mirena could be doing this to me.... she gave me more valium for my anxiety and now I have to see a special therapist once a week until these thoughts are cleared from my mind!
I find it very strange that all this started 4 days after my mirena was removed! I know this is all happening because of the mirena, the only thing that is keeping me going is reading everyones posts and knowing that this will go way once my hormones settle, I know im not going crazy even though it feels like I am!!
Every doctor I have spoken to will not agree that the mirena could cause any of these side effects! It makes me so mad that so many women are going through this and the doctors think the Mirena is the best thing since slice bread! How can they have no idea!!??
If anyone is thinking of getting the mirena.. DONT DO IT!!!!!!!!!!!
February 19th
2008
3:39 PM
Dear friends,
After being on the NuvaRing for nearly two years, I just took my last one out two weeks ago and haven't replaced it. This site made me realize I wasn't going crazy and there wasn't something wrong with me. I really liked the Ring for the first year because it was easy, convenient, and maintained the secrecy of being unmarried in my culture and having sex. I'm 27 years old and am in an amazing relationship with a great man who is really understanding. This was my first form of birth control and maybe my last.
Here are some side effects I experienced:
Numbness in the legs
Loss in desire to have sex
Pain while having sex
Sinus issues
Feeling sleepy and tired all the time
Anxiety and emotional problems
I know people react differently to medication and I was fine until year 2 but if you're taking this or considering it, please do all the research you can and also pay attention to your body. You're not going crazy and you have to know that so you don't medicate for all the symptoms caused by the Ring.
I saw a Neurologist for the pain in my legs. I had an MRI taken. I never took the prescribed medication but there are women on the Ring going through surgery and countless medication treating the very things caused by the Ring. It's an endless cycle.
I don't think there is any form of hormonal birth control that is safe and symptom free. Just be careful because it's not worth losing your loved ones, your work, or your sanity over.
I'm Ring free for 2 weeks and I'm afraid of what that will cause but hopefully one day my body will be back to normal and hormone free.
I'm still tired all the time and am experiencing some spotting. I hope that's the worst of the after effects.
Take care of yourselves....
-- By kdesai1 | Reply | (1) replies | Private Message me
August 6th
2007
12:06 PM
Lauren- May 2005 through August 3, 2007: The following is my daughter’s story which I put on paper so that she could bring it with her to the gynecologist in case I couldn’t be with her. I didn’t want her to forget anything. Someone suggested that I post it to a website:
The most recent issue seems to have started when she first went away to college in the fall of 2005. She came home one weekend with a stomach virus (vomiting, nausea), but it seemed to never completely go away. She was taken to the ER a few times, just to be treated for dehydration and sent home because there was 'nothing wrong with her'...Over the next few months she seemed to constantly feel sick, nauseous, fatigued, and get a lot of headaches. We took her to her primary care doctor, who did blood work and treated her for heartburn, acid reflux, etc.. During this time, she actually had appendicitis and had her appendix removed. After that she continued to feel sick. So we moved on to the gastroenterologist who ran many tests: cat scan endoscopies, more blood work, and were told that they couldn't find anything wrong. Then we started with a nutritionist to help her eat healthier and hopefully reduce the nausea which subsided occasionally but never let up. Nothing there helped. Then it was back to another gastroenterologist with no results. Over this time, anxiety was hitting her big time. She was finishing up finals in her first year of college and was constantly skipping classes because she was too nauseous to get out of bed for her 8:00 classes. Home for the summer - no relief. She decides she couldn't go back to her college for her 2nd year so she enrolled in community college - not exactly the plan, but at least she was on course with her classes and doing well. Still stressed and nauseous, we started with the neurologist who prescribed many medicines and ordered an MRI, which showed nothing (no problems, not no brain!). Back to the primary care doctor who finally diagnosed her with Irritable Bowel Syndrome, which fit the current symptoms of nausea, severe diarrhea while vomiting and the finale: passing out. So, back to the state college for 2nd semester of sophomore year. But the medication for IBS was making her too sleepy to get through the day, so she discontinued it. The symptoms had subsided a bit but towards the end of the school year got worse again - just in time for finals, again. During that semester at school, she sought counseling at school which seemed to help her stress level, but she still had daily ‘melt-downs’, so the therapist sent her to a psychiatrist for meds. The doctor started her on the lowest dose (25mg) of Zoloft. As she started to feel a bit better, they increased the Zoloft over the next few months until she was at 100 mg. Home for the summer, the symptoms came and went, but about 2 weeks after she started the 100 mg, she confided in me that she was feeling depressed and actually had thought of 'not caring if she died'. We immediately took her to the psychiatrist upstate who had treated her at school and whom she had seen once since she left school. (She had also continued with the cognitive therapy at the college.) The doctor told her to start weaning off the Zoloft, but start Seraquel (another seratonin-based drug). She also said she was going on vacation and Lauren needed to be seen often as she switched medications, so she advised us to find another psychiatrist closer to home to monitor her progress. So the new doctor put her on Wellbutrin, continued to wean her off Zoloft, and continued her on the Seraquel. He also ordered blood work and a fasting glucose-tolerance test (all of which came back normal/negative). The symptoms got severely worse over the next 2 weeks: constant nausea, vomiting, dizziness, weakness, fainting. On Monday, she spoke with the psychiatrist and he told her to stop all meds. We continued to believe that the recent symptoms were caused by either the psychotic meds themselves, still in her system or the withdrawal of the meds. By Tuesday night, she had been vomiting for almost 24 hours and I had to take her to the ER, not because I thought they could figure out what was wrong, but to re-hydrate her because she was becoming dehydrated. After 7 hours, and more blood work, x-ray, EKG, she was released and proceeded to get nauseous on the way home at 4AM. BUT, a very nice nurse came in while Lauren had fallen asleep and asked me why my daughter was on so many meds. I basically told her the above story and she asked me when Lauren started on birth control pills. I told her that I took her to my gyn. in May of 2005, before she was going off to college and we told him about the terrible menstrual cycle (heavy bleeding and 1 day a month home with cramps all through high school) and he put her on Ortho-tricycline low. At her 3 month check, she told him she was losing large amounts of hair. He changed her contraceptive to 'Ov-con 35'. In November, she complained of nausea and he switched her to Yasmin. She has been on it ever since. The nurse asked me if I was aware that every symptom that Lauren has had since October of 2005 could be a side effect of oral contraceptives!! She told me about a book to buy, written by Dr. John Lee about hormones and imbalances. She told me not to stop the b.c. pills abruptly, because since they are synthetic hormones, and with what her body was going through, it might put her into an hormonal chaos, similar to a full-blown menopause! So we are now reading the book, waiting to do saliva- testing and trying to see a gyn. to help us. Her own gyn. has a personal family emergency and is on a temporary leave of absence (as we found out when his office canceled her yearly check-up twice in the last 10 days). We are trying to get her in with one of the other doctors. She cannot start a 3rd year of college still feeling ill!
Added to the above is the fact that my husband’s sister called to see what was going on with Lauren after she got a phone call from her mother. It turns out that my niece, Heather (age 23), has been making the rounds with the doctors and having testing done (MRI, blood work, etc.,) because she has been nauseous and passing out. Guess what medicine she is taking…..Yasmin!
This is the list of most of the medicines (besides the 3 oral contraceptives) that she has been on during the last 27 months because of the side effects of Yasmin, and no doctor suggests she stop her oral contraceptive pills for a few months!
Prochloroperaz (5mg), Topamax (25mg), Prevacid (30mg), Zofran (4mg), Omeprazole (20mg), Amitriptyline (25mg), Amitriptyline (50mg), Inderal (60mg), Propranolol (10mg), Amitriptyline (10mg), Sertraline (Zoloft) (25mg), Sertraline (Zoloft) (50mg), Metoclopramide (5mg), Sertraline (Zoloft) (100mg), Seroquel (25mg), Wellbutrin (150mg), Dicyclomine (10mg), Compazine (severe reaction: Extrapyramidal), and other anti-nausea meds in 4 trips to the ER (one due to the reaction to Compazine!)
September 7th
2005
2:21 PM
Here's my story. Been on Lisinopril (or dirivitives of it) for about 15 years. Original RX was to help stop or even reverse Left Ventricular Hypertrophy.
With the diurectic, the dose was 20/12.5 (called Zestorectic).
About 5 years ago, my PCP doubled this dose to try to bring my high bp down. So, I was taking 40 mg/day of the Lisinopril. After about 3 weeks, when I was on a business trip to Santa Rosa, I got real dizzy and dang near fainted. I immediately put two and two together and stopped the 2nd pill per day. Dizziness disappeared.
Recently I had an emergency where I thought I was having a heart attack and I couldn't breath at all. Rushed to ER and spent 5 days in CCU. Diagnosis was a condition called Aortic Insufficiency (leaky aortic valve) and mild pulmonary hypertension. This all supposedly resulted in fluid on the lungs for which they gave me heavy doses of diuretics. Put me on seperate pills of Lisinopril (20 mg) and Bumex (1 mg). I was still quite short of breath when leaving the hospital, but began walking in the evenings again and had gotten up to about 1.5 miles. However, my cardiologist doubled the dose of Lisinopril to 40 mg/ day to try to bring my bp back down. Stupid me had forgotten all about my dizziness of 5 years prior, so like a dummy I allowed him to do it. Well, ever since I've been going downhill. I developed a nagging cough - not terrible -- just nagging. I have mild nausea. I am extremely tired and extremely weak all the time. Insomnia big time. Anxiety, for which I am taking another med. Dizziness has returned. AND the big enchalada -- my shortness of breath gets worse each day to the point now where I can only walk about 10 yards before I have to literally stop, hold onto something, and rest for a couple of minutes. I stopped the Lisinopril almost 48 hours ago and the doc has put me on a new bp drug called Cozaar. Listed side effects are not as bad - I hope.
Anyway, I am hoping that the Lisinopril is the culprit behind my very bad shortness of breath, because my other diagnosed conditions of AI and PH are not severe enough to supposedly cause me these problems. When I posed this to my cardio - he sounded skeptical that Lisinopril would do this. I am also now hoping -- after reading so many of these posts - that I haven't somehow done some permanent, irreversible damage to my respiratory system.
Sloop
Topamax (1) NuvaRing (1) Wellbutrin (1) Mirena (1) Lisinopril (1) Yasmin (1)
April 18th
2008
1:42 PM
After taking Topamax for six months, I found my self different person.... I started feeling this way just in the first few weeks after I started the medication, but the simptoms incleased with the time....Anxiety, nervousness, panick attacks, negative thinking and depression....crying, making up problems from nothing, hair loss also....I decided to stop it, slowly and without any concequences I thought I am out of it....But just a couple weeks I stop it is I noticed some red spots on my skin on the lower legs, soon they became more and stronger..... Two months later I was in abnormal stress that I am going to be sick from a terrible desease... Read so much on Internet.... I can explain how terrible I felt and even though I did blood tests (everything was in normal range!!) and spoke with so many doctors, nobody could tell me what exactly is wron with me. One Dermatologist named the skin problem as Progressive Pigmentary purpura and gave me a cream for that. Thanks a lot for that because the spots started desapearing, but it may come again.... nobody knows for sure.... I think this is another side effect of Topamax, that nobody had before..... Please tell me if somebody else had the same situation... I will feel much more relieved....
-- By nellyiliev | Reply | (3) replies | Private Message me