November 6th
2008
12:14 AM
I am a 21 year old female and have been on Topamax since October of 2006. I am up to taking 250mgs a day having a constant headache and getting a migraine about every week. I have had such a range of side effects and symptoms that I can't tell the difference nor know where to begin. The most recent is muscle spasms in my eye lid and leg that won't go away. I have spasms infrequently all over, but these have been pretty constant. I also tire very easily though I always get 8 hours of sleep a night. Though those are not always 8 full hours of sleep, because I do have boughts of insomnia. I have also dealt with the intestinal problems to the point of thinking that I had appendicitis. I have had multiple trips to the hospital for abdominal pain and severe migraines. I have had the vision problems - blurred, dizziness, vertigo, and the weird one were my eyes jerk back and forth. I rarely have all at once and they have come and gone throughout the 2 years, but they have come back
I think the most mysterious one of all are the lypomahs - these little painful nodules under the skin that just appeared. They are mostly on my abdomen, but have found them on my chest as well. Any one else heard of this?
-- By jloesing | Reply | (1) replies | Private Message me
April 22th
2008
5:25 PM
I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464
-- By sherrie77 | Reply | (4) replies | Private Message me
April 8th
2008
12:49 PM
Thank you so much for all the information! My son was prescribed Singulair pills this fall. He has been taking them for seasonal allergies and we had no problems. These were the sample chewable kind. Then came the pills... Unfortunately I did not see the news or read the article about the side affects of Singulair. Within 4 days my happy well adjusted 10 year old had serious sleeping problems along with stomach aches. He will wake up screaming and crying and cannot tell me what is wrong. He said he had a nightmare but doesn't remember what it was about.
My husband was away on a business trip when I started him on the medicine. He came back to a very unhappy and sleepy child. I asked my son what he was scared of and he asked me to tell daddy that he does not feel safe while he is out of town. He can't sleep unless he is by one of us. He's not safe. His bedroom is 15' from our bedroom! He loves his doctor and begged that I call Dr. Becky so he can talk to her.
I could not take this anymore and started thinking about what was wrong. I went through all his activities, friends he's played with, school problems, anything! Then it hit me, effects of Singulair!
Wow, what an eye opener. Fortunately my husband did not have him take it this morning. He will not be going back to this medication. Ever!
Thank you for the information once again. I hope everyone's child gets better. Everyone wants a happy well child. No child should have to go through this. They have enough pressure as it is without the meds making things worse.
Maeri
-- By mar7 | Reply | (7) replies | Private Message me
January 18th
2008
5:06 AM
I'm a woman, about to turn 50.....and have been experimenting with the statins for about two months(not by choice either). I tried Zocor and had a stop that after 10 days because of massive hair loss. Once stopped....the hair loss stopped immediately. Just a ill more than a month later I started on Lipitor. All seemed to be going ok. NO hair loss. BUT.......mannnnn I don't sleep hardly at all. I'm tired beyond all belief......and its that bone deep OMG I'm sooooo exhausted type tired. I often times don't eat an evening meal after work because I seriously don't think I cant stand long enough to make anything. My legs feel as though they cannot move another inch. I have horrible cramps in my fingers.....the calf of both legs and now in my rib area. Ive had horrible horrible blurred vision.....my attention span is about as long as a gnat!!!!! I seem to have an all over bone deep body ache. It gets to the point that if MOVING A MUSCLE would save my life........Id have to die sitting still....I cant do it. The every day you wake up in the morning headache is way beyond OLD. I also notice I'm nauseous and or have a gut ache almost all the time. Its effectively killing my appetite so maybe I'll lose weight, but damn..is this the way to do it?
WHY wont the doctors believe that this damn drug is responsible?
-- By resty | Reply | (2) replies | Private Message me
November 9th
2007
11:15 PM
I am a 65 year old man in reasonably good health. I had never experienced BP issues until recently, and when I found it was elevated, went to my internist about 2 months ago for that, and a general wellness assessment. After many tests, he determined that excess weight, and the BP should be addressed, so I was prescribed a fluid pill Chlorothalidone 25 mg and lisinopril 10 mg. After a week or so, I noticed a marked effect regarding the taste of food. Things I always ate ceased to appeal to me. Otherwise, I was feeling decent. About 3 weeks ago, I went back in for a checkup, and my BP was not responding to suit him, so he increased the lisinopril dosage to 20mg per day. Within 2 days or so, I began having trouble sleeping, tossing and turning, and having spazzed out dreams to the point of halucinations, and was up and down all hours of the night. More significantly, it felt like my guts were being blasted by a flame thrower, or for a better description, a leprechaun slinging a chain mace around in my insides 24/7. During this process, I have experienced momentary vertigo, and have lost what I feel is 75 percent of my energy. I am not a couch potato, and work 5 days a week. I am sluggish in the morning, and by 1 or 2 in the afternoon, could lay down on my office floor and go sound to sleep. I now have chills and flu-like symptoms off and on throughout the day. I have taken every conceivable antacid, pepto, milk of magnesia(which oddly seems to help) where nothing else does. The bottom line for me is that I feel this drug has transposed a fairly healthy person into a virtual zombie within about 6 weeks. My wife found this site on the internet, and after reading these responses of so many of you, having absorbed your comments, with the exception of the cough and shortness of breath, I am suffering identical effects. I will not be taking this medication again, and also will not take a brush-off from my physician. I have determined, because of these increasingly debilitating side effects, it would be far better to live with high BP or switch to another medication, and and at least drop dead in peace and comfort in a relatively high degree of normalcy, rather that what I have been going through. It has been rather easy for me to be able to tie my symptoms to this medication, given the information I now have on it, because in all my life, I have never experienced what has been happening to me in the last 5 or 6 weeks, described best in my mind as having constant influenza. I have taken my last lisinopril, and will see the internist next week in this regard.
-- By rebelcav1 | Reply | (2) replies | Private Message me
September 5th
2007
8:32 AM
I have had the mirena for almost 2 1/2 years, it was not too bad to begin with although I did develop a bartholins cyst which I was told could have been due to this coil being fitted, not very pleasant I can tell you! Anyway, apart from feeling a bit tired and nauseus every 3 months or so it was not too bad for the first year, but since then my symptoms just seem to be there almost all the time. I even tested for pregnancy earlier this week because I feel so nauseus particularly on waking up in the morning, I also feel lethargic, have lower abdominal pain, difficulty concentrating, dizzy spells, constant discharge, very sore breasts, hot flushes at night and cold spells at any time of the day, I could go on. I eat healthily, train at karate 4 times per week, had my blood pressure taken in Asda this week 112/83 which I am told is good. So, I have come to the conclusion that with time this coil is making me feel unwell, I could never take the pill as it made me feel awful and I tried the injection which made me feel even worse. Nothing else for it, I have 4 children already, I can't have any more, it would not be practical or fair to my family, so I am going to be sterilised (if I can get my doctor to agree). I also need to get my doctor to agree to remove this coil, I am not taking no for an answer, I know my body and I am 99.9% sure that it is the Mirena that is causing the problems.
-- By morgan | Reply | (1) replies | Private Message me
March 15th
2007
3:38 PM
I am so glad I found this forum for this pill that has changed my life for the worse since I started taking it. I have been to the ER because I fainted at work and had a very rapid heart beat. My PMS has been the worst I have ever experienced since I started Yasmin. In addition to that - I have experienced the following since starting Yasmin in November 2006: Rapid heart beat, vertigo, breast tenderness all the time, sleepness nights, bouts of drepression, nausea any time of the day, my eyes burn after all day and are extremely dry, shakiness in my hands. I thought I was going crazy at first or that something was seriously wrong with me medically but looling back - all this started about a month after I started my first Yasmin pack. I took my last pill yesterday after discovering this site and all the other women out there who are experiencing exactly the same thing. I hope to see an improvement in my mood and personality soon.
-- By lynn12 | Reply | Private Message me
December 29th
2006
7:09 AM
After taking amoxicillin I noticed that i always had nasusea no matter what time of the day it was or when i took the pill. Out of the blew I would just feel like throwing up.
-- By yasairavargas | Reply | (1) replies | Private Message me
November 24th
2006
11:47 PM
I AM SO GLAD TO HAVE DISCOVERED THIS WEBSITE! I HAVE BEEN ON LISINOPRIL 10mg NOW FOR NEARLY 2 YEARS AND FOR MOST OF THAT TIME I HAVE HAD THE MOST HORRIBLE, CROUPY COUGH.
IT STARTS AS A TICKLE IN THE THROAT, THEN I AM AWARE OF PHLEGM IN THE THROAT AND THE COUGHING THAT FOLLOWS COULD BE DESCRIBED AS 'VIOLENT'AND NOT A LITTLE SCARY! THIS CAN HAPPEN AT ANY TIME OF THE DAY; I CAN BE SUDDENLY WOKEN UP BY COUGHING IN THE MIDDLE OF THE NIGHT, PRODUCING A LARGE AMOUNT OF PHLEGM AND EXPERIENCING A DREADFUL WRACKING, CHOKING SENSATION AND SOMETIMES THIS WILL TAKE MINUTES TO CLEAR.
I SELDOM AM ABLE TO SPEAK ON THE PHONE WITHOUT THE CONVERSATION BEING LIBERALLY PEPPERED WITH APOLOGETIC, RASPY COUGHS.
THE SEVERITY AND FREQUENCY OF THE COUGH IS ALWAYS WORSE TOWARDS THE END OF THE DAY, AND OFTEN LEADS TO A TIGHT, SORE FEELING IN THE CHEST.
I HAVE TWICE BEEN TO SEE THE DR WITH THESE SYMPTOMS, AND HAVE BEEN SENT FOR CHEST X-RAYS AND GIVEN ANTIBIOTICS. THE FINDINGS ARE ALWAYS NEGATIVE AND THE SYMPTOMS HAVE NEVER BEEN ATTRIBUTED TO LISINOPRIL. HAVING READ OF THE SYMPTOMS OTHER LISINOPRIL USERS ARE EXPERIENCING, I AM CONVINCED THAT IN MY CASE AT LEAST, LISINOPRIL IS THE CAUSE OF THIS DREADFUL COUGH, AND TO A LESSER EXTENT, ACHY LIMBS.
I PLAN TO SEE THE DR YET WITHIN THE NEXT FEW DAYS AND WILL MENTION THIS WEBSITE AND THE SIMILARITIES OTHER PATIENTS ON LISINOPRIL HAVE EXPERIENCED.
SO GLAD I'M NOT THE ONLY ONE! I WILL BE REQUESTING A CHANGE OF MEDICATION PDQ!
October 11th
2006
12:36 PM
I have MS and was put on this medication for an episode I was having, severe vertigo. The veritgo would hit while driving on the freeway or at any other time of the day or night; therefore, the doctor felt the best action would be to take massive doses of Prednisone in hopes it would stop the vertigo. With all the side-effects I had from taking this drug it may have been better dealing with the vertigo!
I was NOT informed to check my blood sugars, I am a Type-2 diabetic, but was instructed to eat every 4 hours with each dose I took. I ended up in the emergency room with blood sugars over 600. My vision was effected to the point I didn't need my prescription lenses to see. I had insomnia. Couldn't stop drinking water, nor going to the bathroom (not sure if that was blood suger related, the drug, or both). I was delusional (and not normally so). I had the acid/reflux so bad that it was difficult to swallow food every 4 hours which lead to early tappering off the drug. I developed acne over my face and chest. I ached everywhere and felt like I would die.
The positive experiences I got from my Prednisone was the bond I developed through sharing my side-effects with another person who had also had bad experiences with the drug. I could see the leaves on the trees yards away without my glasses. My sight returned to "normal" about 2 weeks to a month after the treatment ended. The vertigo stopped and the loss of the use in my right hand and arm (MS related) came back 100%. I appreciate the life I have been given and am greatful for my health.
-- By notarose | Reply | Private Message me
September 19th
2005
1:05 AM
I have been taking 20mg of Lisinopril for about 6 months. At first my blood pressure came down to an acceptable level, but now seems to be creeping up again. I know this means a higher dosage, but I am reluctant to take it as I have developed ....not a cough as such, but when I go to bed especially, it feels like I have a lump of mucus in my throat and have to keep swollowing, but it doesn't go away. This is accompanied by a burning in my throat which I get any time of the day. Last night I had terrible chest pains together with all the other stuff I didn't sleep a wink! when I reported these symptoms to my doctor she said I has asthma and gave me an inhaler to use, but this has not got rid of my symptoms. I am sure it is the lisinopril.
-- By angelaozturk | Reply | Private Message me
August 31th
2005
3:48 AM
I am seventy years old, and have been on advair 250/50 for about a year. I have a bad cough since starting Advair, thick phlem, thrush in my throat. insomnia, terrible bone pain in both legs, cramps in my feet at any time of the day,chest pain, and just recently a compression fracture. I am taking Fosamax to help build bone, but the insert for Advair says,"may cause bone loss" I'm fighting a losing battle. Am now on 100/50 once a day. Hope to get off of Advair soon!!
-- By cherrymod | Reply | Private Message me
April 21th
2004
12:20 AM
I just started this pill after being on a multi level pill due to my ovarian cysts. My period came sooner and lasted a lot longer. The pain was unbearable, but who knows if that has bearing on this pill or my cyst. It was heavier. Thank goodness I haven't gained any weight as of yet, I excersize 4 times a week and have a very restricted diet as it is! But I have noticed something unusual. I have post nasal drip. If I bend over at any time of the day or night, there goes my nose...drip, drip, drip. I've been on the pill for the past 16 years...only since I've been on this one do I experience this.
-- By salsaqueennv | Reply | Private Message me
Lisinopril (3) Mirena (2) Synthroid (1) Advair HFA (1) Yasmin (1) Cymbalta (1) Lamictal (1) GlipiZIDE (1) Ovcon (1) PredniSONE (1) Singulair (1) Lipitor (1) Santyl (1) Amoxicillin (1) Topamax (1)
May 29th
2009
4:40 PM
Thank you so much for all your posts guys!! I just googled Mirena side effects today just trying to check ANYTHING that would explain my recent experiences. I sat her bawling while calling my doctor to insist it's removed immediately.
I had it inserted in December after having baby #3 in October. I finally got my girl after 2 boys and a few miscarriages and wasn't certain what to expect. I am only 25 and didn't want something permanent or really any drugs put into me on a consistent basis. When the doctor pushed Mirena I happily said okay! Sounded like a god send. I have extremely high blood pressure and his strong sale point would be that it would remove the need for meds. Liar! My regular doctor flipped out when she found that he had removed me and of course, I went back on meds a few weeks after having it inserted, after 4 readings 200+/110+... amazing he didn't cause me a stroke. That should have been red flag #1 but I figured it was just an error in judgment on his part.
I felt no pain with it going in and didn't cramp at all.. spotted for a few hours then it was over.. My first cycle lasted 2 1/2 weeks and the next started a week later.. All side effects I was warned of so didn't really concern myself.
I started having phantom kicks (uterus contractions) and stabbing labor pains back in February which I figure was it doing its job trying to get my system on track. I had numbness and pain down my left side and would constantly find myself hunched over in pain.. The bleeding had slowed down so much that I was so grateful and just kept popping pain pills like candy hoping it would go away soon.
These last few days have been a flu from hell. Can't leave bed, can't speak, constantly throwing up, loose stools followed by extreme constipation, achy muscle tingling skin.. you name it!! Went to the bathroom earlier and when I wiped, had a small bout of black blood.. Old blood that sometimes you will find at the end of your cycle! I checked the calendar and had indeed finally skipped a cycle.. The cramps and pains have been there as though I was going to start, but no bleeding for a week now.. So apparently to skip a cycle I'm going to be bed ridden with the flu.. I have a 5 year old, a 2 year old and a 7 month old who can't have mommy sick. This has been hell..
I too have experienced
terrible headaches, stomach pains, DEPRESSION, short fused tantrums, sitting and crying for hours on end, no passion for life, numbness of limbs, tingling skin, sinus infections, yeast infections, temporary blindness and now spots in my eyes which aren't regaining vision, 5 months ago I dyed my hair and it came out by the chunks, now that the dye is gone, I'm still losing hair and have bawling spots which I blamed on the dye.. Now I wonder..I also look like I'm about 6 months pregnant and people keep asking.. I HATE IT!! its been devastating to my self esteem. I lost so much weight after my boys so I blamed the weight gain on having a girl.. Now I wonder about that too.. The weight is only about 10 pounds but ALL in my belly..
I wonder so much..
I got about 5 posts into this horrified before I called to insist it will come out.. I have to wait 4 weeks.. but I can't wait to find me again.. I'm gonna just stick with condoms until I get my body back.
Thank you so much for speaking out on this.. I know the doctor is going to insist that it's not to blame.. but I now know better.. Thank you so much for helping me find answers.
-- By mommyof3beautys | Reply | (1) replies | Private Message me