August 26th
2009
11:27 PM
I am a 36 year old woman, and I have taken Singulair for the past 8 months. I got a lung infection over the winter, and the clinic I went to put me on the 10mg Singulair. It helped my lungs and got me over the worst of the infection, but I never anticipated the side-effects. For several months, I attributed what I was feeling to hormones (like severe PMS) and the stress in my life. I started to have thoughts of death, especially at night. I also began to have a hard time leaving my house. I would have panic attacks, worrying that the window was left open, the stove was left on, and god forbid there was a dark cloud in the sky (I became convinced that a terrible storm would come). Several times, I nearly got in a car accident racing to get home after work. Then, I started to obsess over getting sick. I was convinced that I would get some terrible disease and die soon. The fears and anxiety got worse and worse until one day (a rainy day), I quit my job of twelve years. It was a good job. I was happy with my work, and I made more than enough money. I ended up moving across the country back in with my estranged husband, because here I would not have to work. I could stay home all the time, away from germs and storms and anything else bad. That was three months ago. Still on the Singulair, I began to obsess over death. The panic attacks were so severe that they triggered asthma attacks, and not being able to breathe triggered more anxiety. I stopped sleeping at night. In three months, I've slept four nights. I began to have nightmares that made me wake up screaming and violently lashing out. I had to urinate 5 or 6 times every night. I developed severe stomach pain and nausea. And I had leg pain (actually, I hurt everywhere, severe pain). I had headaches, dizziness, and fatigue. Slowly, I began to realize that it might be the medicine. I started to research, and yesterday, I took my last pill. Since then, I have not had one panic attack. I have not had one asthma attack. I slept last night with no bad dreams. I know what's happened now, and I'm so sad that I lost so much of my life because of this drug. I really had a good life...friends, a home, a great job... Now, I'm very tired. My body is very weak and still hurting. I'm shaky. But I believe in time, those effects, too, will go away. I feel like my body has been through a war. I'm grateful that I didn't kill myself. There were a couple of really bad days when the urge to be violent towards myself was overwhelming. One day, I punched a fence, making my knuckles bleed. I think I could've killed myself, and I know it was Singulair. It's going to be better now. Just as a note: what helped me withdraw without any major worsening of asthma was Advair 250/50 twice a day.
-- By autumnsparrow | Reply | (3) replies | Private Message me
July 13th
2009
2:39 PM
I've been on it for just over one year and I have had great success with Topamax for my chronic migraines! I am at 200mg a day. I use to wake up with migraines in the morning and that has been greatly reduced. I use to never know when they would hit me and now I can figure out when which is usually hormonal - during my period. Before we (my neurologist and I) settled on the right dosage, we kept bumping up in 25 mg at a time and i would have side effects ... unpleasant (smelly gas, tingling fingers, other stuff i don't remember anymore), but after a few weeks, the side effects would go away. Now I don't have any side effects. I did loose weight, but only 5 lbs. I made a conscience effort to eat right and drink plenty of water because I read the forums about the bad health effects of the drug. I do loose words sometimes, but its a small trade-off for the migraines. Now, if I could just find something that would tame the hormones... Cheers!
-- By sharon44 | Reply | Private Message me
November 22th
2008
2:12 PM
I was put on Lisinopril 10mg. tabs for borderline elevated blood pressure that became high blood pressure (151/82). I have taken them for a week and have experienced the following problems: sleeplessness, can't focus or remember things, nauseated, slight headache every day, jittery and edgy, depressed, no energy, I go through the day in a fog. The sleeplessness is the worst. I have trouble not only going to sleep, but staying asleep. My eyes fly open and I may as well get up because I am wide awake, but feel exhausted. I am stopping the Lisinopril today! I have read enough here to know I am going to consult with my physician on Monday! I'll try a low salt diet before I EVER take this medicine again!
-- By cher90 | Reply | (2) replies | Private Message me
September 25th
2008
5:11 PM
I have been put through the wringer with Crohn's. 15 surgeries, all of my terminal ileum removed, 1/3 of my large bowel removed, etc., etc,- Those with sever Crohn's know.
I spent years on high doses of Prednisone, Imuran, Sulfasizine and other drugs and nothing worked.
I was even retired from the US Air Force due to its severity.
Remicade has help tremendously. However, some of the side effects listed above, I have also been through. Some of them, have been explained through other factors and those attributed to the Remicade I take other meds to offset them.
For example, Head aches. I figured the head aches were from allergies that I have had for some time. I attributed some of the headaches to the Remicade. The head aches are very sever after my infusions and decrease to a dull roar after that. I take four aspirin and Sudifed PE and this leaves me with a dull roar shortly after the infusions and does away with them till the next infusion - perhaps this will help some of you.
The muscle soreness is horrible and I take aspirin or Tylenol, but that barely takes the edge off.
I started get those little red dots. Then the dots turn to blisters. I get these on my hands, feet and scalp. My GI Doctor said it wasn't the Remicade, but a Dermatologist showed me a recent article that should Remicade could cause Psoriasis. I take Clobetasol Propionate for these and it has cleared them up.
I took the Remicade years ago and then it was stopped - it was the way it was done then - not constant, just three doses spread out over three months.
I got the tingling fingers during those. A neurologist attributed it to the Steroids I had been on. The nerve damage is permanent.
A few years later, they started the infusions again and I experienced no muscle soreness, headaches, etc. and it did not help the Crohn's as it had before. When I talked to my GI doctor he showed me a study that people build anti-bodies to the Remicade over time. They doubled the dose and it started working again. For those who are experiencing the Remicade not working - perhaps this is what has happened to you.
I get the mood swings, but had never considered it might be the Remicade. I will talk to my doctor about this one.
I have the blood pressure decrease during my infusions, but it has not been sever.
More recently, my joints have begun to ache and initially the Remicade had helped to stop the minor joint pains I already had. Come to find out, I have had bone thinning due to the Crohn's.
The one symptom I have started getting this week is random, sever pain in odd locations - not joints.. They have been deep and feel like they are in the bone. One midway up on my shine, one midway down on my foreman and one in my right thumb. Has anyone experienced this. The pain has been horrible and it does scare me.
I also suffer from depression, but have had it for years prior to the Remicade treatments.
September 13th
2008
10:56 AM
I started taking thyroxine about 6 weeks ago - i went to the doc with tingling fingers, bloods showed tsh 34 so doc gave me 50mg thyroxine. Felt awful within a few days i was getting palpitations and felt like my skin was crawling. I couldn't bear even the slightest noise. I had diarrhea (cant spell) fast heart rate, the shakes and couldn't handle lots of people in a room. I am a teacher so it became difficult for me to work. I went up to 100 it got worse, until in the end I decided to stop them.
I am going to wait and see but I would rather be hypo than have these symptoms, my doc said you will feel great soon, pah what a load of c%%%
August 4th
2008
11:44 PM
After daily pounding migraines for ten months, the side effects of the tingling fingers, tongue, lips and toes; the inability to find words, the weird way certain foods taste, are all very do-able. What does worry me is the way I can get incredibly depressed, but the anti-depressant (Wellbutrin) I've been taking for more than ten years just suddenly started making me worse. I just keep telling myself that at least I don't have a headache. It definitely makes it worth it. The headaches were so bad, and thanks to the topamax, they're gone.
-- By myers | Reply | Private Message me
February 17th
2007
6:24 PM
I've been on Topamax (for seizures) for almost 2 years now, gradually increasing my dosage from 150 mg/day to 400 mg/day when I learned that 150mg is a migraine sufferer's dosage and not a Epilepsy dosage. I mention that because at 150mg, the side effects were present, but tolerable. I had the tingling fingers, eye twitching that was only behind my right eye (seems everyone only has it behind their right eye...why is that?), I can't find the right words in conversation, memory loss , constant sleepiness, backaches, depression, etc. At 400mg, I was an emotional wreck...I could not handle my emotions anymore. I would cry hysterically when talking for no reason, I couldn't concentrate on my work as an analyst, I had to read and re-read instructions in order to understand them, and sometimes read them out loud....and this is the kicker...sometimes when I'm buying something and at the check-out, it'll take forever to do something as simple to count out change. I have given the wrong change to cashiers a few times and then told them something to cover up my embarrassment like "Oh, I thought I gave you a quarter!", when in all actuality, I thought I gave them the correct change.
I feel like a moron pretty much all of the time. I used to pride myself on my intelligence and speaking ability but on Topamax, that is seriously diminished.
I don't know if this is related, but because of my inability to concentrate, I lost my job in Nov. '06. I thought I lost my insurance too, so I made the decision to stop my seizure meds, thinking that I was "cured". Well, I had another seizure in Jan '07 and am back on Topamax...depressed, twitching eye, the whole gamut. But you know what? The entire month of January, before my seizure...before Topamax...was the happiest I've been in sooo long. It's not worth losing a few pounds for.
September 29th
2006
4:08 PM
I have the tingling fingers and feet and face tingles too. My skin feel slimy and so does the inside of my mouth. I feel like my breath stinks and I have acid reflux I also seem to be the only person who seems to feel bloated and water retentive and has GAINED weight even though I don't have an appetite. I agree that I am moody, but I don't feel well Last night I had the worst night. I didn't sleep at all and I just hated everyone. I never felt so angry in my life and just wanted to yell and scream all night.Yet I was able to pull myself out of it and realize that I was irrational,thank goodness. I had a migraine to boot so the pain seemed intense and all the suffering with the side effects of the Topamax futile. I have never felt so depressed. I don't know if I should pack it in and go back to Elavil. 8 years of that. I am so tired of pain and pain management that just doesn't seem to work. Any answers out there.
-- By flykim2 | Reply | Private Message me
June 11th
2006
3:30 PM
began taking 25 mg about 3 wks ago for headaches. stepped up to 50 when headaches didn't cease and, eventually, 100 b/c I still felt a slight tinge of one (though certainly not that bad). I've been at 100 now for about 1 week and will probably step back down to 50 mg b/c I am starting to get the negative symptoms such as tingling fingers and face, slight pain in the legs, dehydration and "floaty brain."
I most certainly intend on staying w/this med. b/c, 1. it got rid of my headaches, 2. I've lost 9 - 10 lbs. so far and no longer eat everything in sight, 3. I SLEEP again, THANK GOD!!! 4. I have NO mood swings
It should be noted that I take no other meds - not even over-the-counter! (Might want to see what the doctor suggests for menstral cramps. My normal dose of excederin (sp?) did not work - I was in agony. Not sure if this was a result of Topamax or not. )
Oh, and be very careful when consuming alcoholic beverages. If you begin to feel abnormally agitated, stop. Be sure to drink plenty of water so as not to get dehydrated!
-- By jessicahollyeasley | Reply | Private Message me
May 28th
2006
3:24 PM
I've had exhaustion, nausea, and now tingling fingers. Can't wait to get off of this!
-- By tanjaalexia | Reply | Private Message me
August 2th
2005
10:16 PM
I have been having temporal lobe partial complex seizures since I was 5. Was put on Topamax as solo therapy for use also for migraines in 1999. Controlled both well. Gradually I developed severe depression. It was so subtle I was not aware it was my medicine. I did tell my neuro. and he added different antidepressents to the regime to no avail. My life continued to deteriorate. I also had the tingling fingers, toes, twitches on my face, confusion, could not remember anything. I finally became suicidal and a regular MD decided told me to switch neuro and get off the meds in 2005. 1 month after coming off the med I was my old self again. My memory everything came back. I felt like i had lost all those years.
-- By itsmet | Reply | Private Message me
July 23th
2005
11:16 PM
36 year old male. Only been taking Lipitor for one month. Stopped taking it one week ago after feeling strange side effects. Shoulder pain, tingling fingers, heart racing at night, left arm pain. Feel clumsy when I normally have excellent hand eye coordination. Tendons feel funny in arm when clenching stuff.
Still feeling some side effects but not as bad now. Before kept waking up from sleep with pain in left shoulder and tingling in left hand, but now not so bad.
Any alternatives?
Would appreciate it. Dr's do not seem to know what they are talking about. Said that the lipitor would not be causing my problems. I just got told to stretch and it would go away as I do not exercise enough. What a load of crap, can't they stop going by their scientific approach to everything and look at the big picture?
-- By brianbero | Reply | Private Message me
Topamax (7) Singulair (1) Remicade (1) Lipitor (1) Doxycycline Hyclate (1) Lisinopril (1) Cortisone Acetate (1) Levoxyl (1)
November 21th
2009
1:13 AM
I had a cortisone shot in my left shoulder this morning and don't have to tell you how painful the shot is and my shoulder is still extremely in pain now. had the high blood pressure and flushing, but added is my numb feeling arm all the way down to my figers tingling. I can grip light objects with my fingers and lift, but as soon as I start to lower them my arm flops straight down. It's now 12 hours later ans my fingers are feeling 50% better. My arm still falls, but at a lower level. I feel a little nausea. I have had shots before and never had a numbing reaction. (2) other areas. This is NOT from sleeping on it. I can't even lay on that side. Only saw one other with tingling fingers side effect. Mine is the full arm. Hope it goes away by tomorrow. Of course this is a weekend. Lucky I'm 62 and no kids to pick up. I am still worried.
-- By ltemple | Reply | (1) replies | Private Message me