April 23th
2009
10:09 AM
I have been on Topamax for four years. 25 mg in the am and 25 mg in the pm. I have experienced the weight loss and the migraines have completely gone away along with my wittiness and ability to remember why I am in the bathroom with my pants around my ankles. I have passed up my exit on the highway on my way home several times.... not really sure why or where I think I was going........ I have found myself on a freeway and had to search the signs to figure out which direction I was traveling and then realized I was going to moms.........don't even remember getting in the car but have stuff with me that I was bringing her. I have woken up in the middle of the night in a panic and always have the word right on the tip of my tongue. I feel like I have alzheimers. I am 34. I started out having severe ocular migraines when I was 17 (I don't have head pain) and ended them at 30 after spending weeks in bed, days in ERs and hours heaving into the toilet........ hours, straight, not even able to take a complete breath. I wouldn't even have the strength to hold my head up anymore and I would just lay on my side an heave in my bed, until I would pass out. The MRI showed brain damage and necrosis (dead brain tissue) of my brain from my migraines. I was originally diagnosed with strokes. Imitrex would raise my blood pressure so high the MD's and RNs would hold me out of fear I was going to stroke out. My life just stopped..... I couldn't even move.... ever, I couldn't look out a window, listen to a radio, watch T.V, have a conversation, smell food, perfume......... anything without getting sick. Topamax stopped it all. And yes, I got stupid with the meds....... I lost my train of thought, but I can go outside. I lost some weight, but I can eat, I have lost some, hair but I can work...............I feel like I have more of a life now than I did before. Anytime you introduce a drug to your body you are going to have effects........there are trade offs. If you had what I had, you will be willing to have the trade off. I had gotten to the point that I would have been better off dead, because I wasn't living. My migraines started off manageable and progressively got worse over time. I have to admit, I have tried to come off of the medication... who wants to be tethered to meds all of there life? But when the migraines came back, I quickly went back on the meds.....Drink plenty of water, stay off other stimulants, don't smoke!!!! titrate your doses and then don't miss them.
-- By yayalucas | Reply | Private Message me
January 5th
2009
8:10 PM
I take 200mg for partial seizures, added it to neurontin about 9 months ago.
At 300mg I lost the ability to type correctly and would forget what I was saying in the middle of a sentence. I forgot phone numbers and lost a ton of weight. My doctor said that meant I was on too much. I'm glad he put be back to 200 instead of upping the dose, which is what I see most people doing - adding more. I am taking as little as possible to keep the seizures away, and I feel pretty good on it.
My side effects currently are constant movement of my jaw and tongue, and my new side effect is a strange involuntary movement of my arms and legs. I especially notice it when I'm on the computer and I move the mouse, my arm jerks. (At least it jerks in the direction I want it to!!)
Overall, I am happy with it and feel lucky that I'm not having any terrible side effects. The jerking thing is a bit concerning since it is new and I hope it doesn't get worse.
I do think my skin has gotten messed up - not quite acne, but redness under the skin. No bumps though.
Oh - the tip of my tongue gets numb about 15 minutes after I take it. Weird.
-- By jocelynsuzanne | Reply | Private Message me
October 3th
2008
7:13 PM
I used this rinse for one month following oral surgery. I started having problems a couple of days before the prescribed period was over. It has been two months since I stopped rinsing with this medication. I still cannot taste anything on the tip of my tongue. The rest of my tongue is OK, but the tip seems to be permanently numb.
-- By paulwhite | Reply | Private Message me
June 3th
2008
11:52 AM
I began taking Lisinopril last week. First the lightheaded and dizziness arrived. Called doctor was told to take at night to lessen this. Now I am nauseous and have a strange taste in mouth and the tip of my tongue feels like I scalded it with hot liquid. Calling Doctor to find out when she can see me again.
-- By sgm | Reply | (6) replies | Private Message me
May 11th
2008
7:48 PM
Been on Advair only a few months. MY mouth is on fire and I awake to my tongue almost sticking to the roof of my mouth. I never really had asthma but I started with a cough after a bad case of bronchitis. I started with Albuterol and the advair next.
I'm going to try to stop this because I'm sure that this is why I feel the way I do?
Has anyone else had problems with their mouth. Doesn't look like Thrush but it sure hurts.
March 17th
2008
4:58 PM
I have had problems with kidney stones but thank god, no prostrate issues..
My first stone occurred in the fall of '05. My doctor at the time - the nastiest old bastard that ever graduated med school, prescribed Flomax to help the stone pass.....I took one or two and the stone passed in a few days..I don't recall any side effects from that instance.
Fast forward to Jan '08...I had another stone that made itself "known" to me for weeks before being diagnosed.......That after a trip to the ER.Lotsa' fun, everyone should go!.....I took Flomax about three times during that period and had some nasty side effects - reflecting many that have been previously published here. I got dizzy and nauseated at times.....I also suffer from panic/anxiety disorder.Flomax made me a basket case!......The "roaring" and "ringing"in the ears was and still is problem..... I passed that stone in early Feb.....
At the end of Feb the BIG ONE (1cm) decided to drop down the ol' ureter. My present urologist (Yeah the old buzzard finally retired!) gave me options, as stones of that size are real mothers to pass. Take pain pills, Uricit and Flomax......Or insert a stint and wait.....The final option was lithotrypsy. Lithotrypsy is an outpatient procedure that breaks up the stone into smaller pieces while still in the body via vibrational waves...
I had the procedure and most of the particles were flushed out.....I recommend this procedure for a quick but costly fix....
The doctor warned me that there would be smaller particles that might take weeks to work their way out........Well, that's what happened..Just when I was recovering from all the medication - Flomax included, I had another piece start working it's way down..It's still mocking me as I write this.
I took Flomax - out of desperation for three days for the purpose of flushing out this one last particle. My patience with this stone and it's aftermath was at an end! I wish I hadn't taken them.......The dreams, anxiety, rushing in the ears, dizziness..The whole thing! I had three capsules left and ground them up and threw them out today!
Flomax is hell on earth and I regret ever taking it. If I'd read this board on Sat I would have thrown them out then and just dealt with it, well I didn't and I'm suffering again.....Will it ever end?
Has anyone else experienced a bitter metallic taste in the mouth as well as an unpleasant smell to the urine as well? I also have this irritating urge to urinate but the flow is moderate........I was doing well without any medication when I got impatient and took the Flomax. How long will this be in my system I wonder.... Sex drive? I have none now.......Kidney stones really take it out of you, that mixed with the Flomax has put me on the sexual sidelines.....*sigh*.
Robert
January 5th
2008
1:02 AM
I've been on 160 mg at night for most of this year. When my doctor switched me to a different anti-psychotic (Invega), I started having suicidal thoughts, so I went back on Geodon. I feel like I am happier and starting to do more things, but I have horrible physical side effects like brain zaps, energy running through my face and teeth, pins and needles in my eyes and on the tip of my tongue...It also gives me horrible insomnia. I have to take 25 mg of Ambien and 6 mg of Ativan at night just to get to bed! and then it makes me tired in the morning, so I take Provigil to stay awake during the day. I am confused as to what to do because I feel more sane and am becoming less preoccupied with myself daily, but these physical sensations are freaking me out!
-- By bp1 | Reply | (3) replies | Private Message me
September 28th
2007
11:36 AM
I just started taking Topamax about 2 1/2 months ago -- am up to 50 mg now, and had hit 75 when the side effects became so bad that I went online and discovered that my neurologists had been pretty lax with their advice. They told me that Top. was "a great drug for migraines" and that I might "lose a few pounds," and have "some memory issues at first" but that was it. I believed them and so didn't research further.
20 pounds later (I HAD been on a diet, and thought I lost the weight myself) I started experiencing sore throat in the morning and stomach pain (acid from Topamax). I thought I had appendicitus. So I hit the boards. Weight loss was from theTopamax (and my diet coup goes out the window) Appendicitus --probably not. Oh, also I can't be relied on to remember words or sentences or thought structure; or how to move thoughts into words. And it's not like the words are on the tip of my tongue, etiher. They are gone, as if they never existed. The oddest thing! Professional hell. Hair has yet to fall out. I'm going to have to wean myself off, I suppose, and get ready to ream out the neurologists. If I can remember their names or where they practice....
-- By arilew | Reply | (1) replies | Private Message me
July 17th
2007
9:31 PM
Been on lisinopril for about a year for high bp. Seems to help. Don't have a cough and don't seem to be feeling weak or sluggish. Do have a burning sensation on the tip of my tongue and a couple of really sore bumps have come and gone on the last few weeks. Also, I am now developing may little red cherry like blood blisters on my body just about everywhere. I've had the dermatologist look at them and he called them some kind of skin cherry and nothing to worry about. I know they are somewhat genetic and my father has a few but I am getting hundreds of them and it has been within the last 6 months. I was told this medicine dialated the artery going into the kidneys to relieve pressure. Wonder if it is dialating capalaries in my skin causing these cherrys? Anybody else got 'em?
-- By bloodworth | Reply | (2) replies | Private Message me
September 5th
2006
11:38 PM
It has been a year ago since I had my reaction to Levaquin. On Feb. 11, 2005; I suffered an anaphexia reaction and had to be put on the vent for 3 days. I remained in CCU for 6 of the 7 days I was in the hospital. I took Levaquin about 5pm that evening and all of a sudden I became very tired. I went to lay down and 20 minutes later I woke with my ears on fire. I went to the bathroom and looked at my ears and they were both bright red with a rash on both of them. Then these red marks began to go down my neck, down my arms and it was covering my whole body. I went immediately to the emergency room. The triage nurse asked me some questions and my lips began to turn blue and my tongue was swelling even bigger. The nurse put me back in the Urgent care where I was left. I was not put on any monitors or seen by any doctor. Then within 5 minutes a nurse showed up, didn't check my arm band to see if it was me and gave me a shot of ephirenephrine in my stomach and walked away. As she turned the corner, I was laying down on my back telling my daughter to go get a "real" doctor, something was wrong. The next thing I knew, I was being surrounded by a bunch of people and being told they were about to put me out and put me on the vent. I just wanted to go away. I did. I lost 3 days of my life. Now, it has been over a year since this happened. I am extremely hypersensitive. Now I am experiencing allergic reactions to everything I eat. It starts with the very tip of my tongue going numb and tingling. Then it goes to the middle of my tongue, which makes my tongue thick, then it goes to my Uvala and down my throat. My hands get real red and I become very thrusty. But it hasn't bothered my breathing at all. Does anyone out there have these same symptoms? If so, what is it called? and do you know how to get rid of it? Thanks.
-- By scooby42 | Reply | Private Message me
February 9th
2006
7:34 AM
I am on now 400mg of Topamax a day. I take it for epilepsy. I have some halluciations but I ignore them. I lost over 30 lbs. The weight loss was needed because of a seond medication I am still currently on that made me gain weight. The Topamax gives my legs and neck the worst pain and mucsle achs... I get blurred vision. I will be trying to talk and my speech will start to slur or I forget words that I will need help remembering that are right on the tip of my tongue. My short term memory, that is not so good, I forget things most of the time. The medicine is for migrane relief but since I have been on it I have had the worst headaches ever! Along with the rest of you I do have gas problems also......The only reason I do not get off this stuff is that I have tried over 10 different medicines that didn't control my seizures, this does. I have had all the tests, Just went in for an MRI, what else can we do?
-- By babybleus | Reply | Private Message me
September 15th
2005
5:06 PM
My family doctor gave this to me, to heal sores inside my mouth. The medication I got is Lidex gel. It does heal canker sores, if they are on the inside of my mouth or else my gums.
Unfortunately, when I tried applying it to a sore on my tongue, it inflamed my entire tip of my tongue. Still very good for healing sores elsewhere in mouth or on skin.
-- By lizz8 | Reply | Private Message me
March 21th
2005
1:01 PM
A day after taking this medication, I developed an unusual, painless rash on my lower body. I experienced vivid nightmares, and actually ended up waking up in the middle of the night and crying. Towards the end of my medication, I developed a sore throat, and an unusual pain on the tip of my tongue.
-- By yanni_the_shocker | Reply | Private Message me
March 22th
2003
10:11 AM
I was diagnosed with bronchitis on 3-10-03. Prescribed a Zpac and phenergan/codeine syrup. 3-18-03 no better. Was prescribed Levaquin 500mg along with the syrup. Had taken levaquin before, only problem recalled was a dull constant headache. This time is different, however. On the 3rd day of taking the levaquin, I developed a sore (blister?) on the tip of my tongue. Thought it might be from eating an orange a day through this for the vitamin C. The 4th day I had 2 more places come up on the inside of my bottom lip and gum. Today would have been the 5th pill. I got up this morning to find my tongue, gums, and the inside of my mouth had 10 or so more sores. I called my doctor. I told him of this and of eating an orange a day. He told me to stop the levaquin and to come in on Monday. My question is this: If I had it before and didn't experince this, is it the levaquin? I eat oranges and never experienced this either. Also, I am constipated, my guess is from the phenergan/codeine syrup.
-- By djmajors | Reply | Private Message me
Topamax (3) Lisinopril (3) Levaquin (2) Lamictal (1) Sulfamethoxazole (1) Lidex (1) Flomax (1) Periogard (1) Advair HFA (1) Geodon (1)
August 22th
2009
10:22 AM
Funny, I've been on Lisinopril for 4 yrs. & just noticed the tip of my tongue felt numb & with a weird taste. I thought it was from the Hysterectomy I had ungone a month ago. Nope it's due to the Lisinopril. So is the depression. WOW, I think it may be time to change BP Meds.
-- By trueheart14225 | Reply | (2) replies | Private Message me