April 22th
2009
11:36 PM
Lumps under the skin all over my body and severe pain that feels like it is under my skin--like I've been skinned and the skin just laid back down raw and bruised feeling. I have to take time-released morphine for this pain and no doctor can explain the lumps other than to say it might be a side effect of the prednisone. I have never heard of anyone else having these lumps and skin pain, though. One post I read said their tongue was sore, which mine also gets when I take it.
One thing I want to emphasize is that the last time I read the printout that comes with an unopened new bottle of prednisone and that the pharmacists don't give you unless you ask, it said that the newest research suggests that you take the prednisone only EVERY OTHER DAY. Some symptoms may become a bit worse on the day off, but unless you are dealing with a potentially lethal disease, this keeps your body on its regular rhythm of making its own form of prednisone and thus prevents many of the side effects. I have been back on prednisone for 3 months now with the new one day on, one day off schedule, prescribed by my pulmonologist, and have much less of the side effects--no ravenous appetite and thus no weight gain, no swelling, no "moon face" and my lungs are still functioning much much better.
Please ask your doc about this or get the info sheet from the pharmacist (it is the very long one on tissue paper, not the one-page info sheet they are now giving us with each Rx.)
April 22th
2009
11:27 PM
I started taking prednisone along with Cytoxan, a chemotherapy drug 15 years ago when I was diagnosed with an undifferentiated connective tissue disorder that led to symptoms like idiopathic pulmonary fibrosis. After a couple of years, the inflammation cooled off and I no longer had increasing scar tissue in my lungs (IPF is almost always terminal) so I was glad of that. However, sometime in that first year or so I developed hardish lumps under my skin and severe pain that felt like it was "under my skin" but not my muscles, as in fibromyalgia. The lumps are even more painful, and the skin feels as if someone tried to "skin" me and then just llay the skin back down.
I have had to be on timed-release morphine for years in order to function with this pain, as it is especially painful if I brush up against something or sitting or lying down pressure is intense. Also the skin on my tongue gets so tender I have to use kids' toothpaste or it burns terribly.
After 15 years some of the lumps have gone away, but I've recently had to go back on the prednisone for my lung inflammation.
The last time I got a new prescription for prednisone I read the tissue-paper printout (not the short one you get with every Rx, the one written for professionals which includes all the new data, tests, side effects, etc.) What I want to point out, as I've not read one person saying this, is that to avoid a lot of the side effects and the harm to the glands which produce our own natural steroids, is that they are now recommending that it is taken only EVERY OTHER DAY. They say there may be some slight increase in symptoms on the "off" day, but that this keeps the natural cycle in place in bodies subjected to this drug and therefore reduces symptoms.
This is what my last pulmonologist prescribed for me and so far I have had minimal side effects--no ravenous appetite and weight gain, no "moon face" and it has still helped my symptoms.
Please ask your pharmacist for the flyer that comes with the new package and read this for yourself and then take it to your doctor. It may not work for those in dire need of the prednisone but could perhaps be tapered to this once the first lethal symptoms die down. ASK YOUR DOC--I cannot believe I have not heard more about this as it's right on the flyer--but docs are so busy, it's understandable. I'm grateful my doctor is up on the new research because I don't mind taking the prednisone this time, and I used to HATE it!
Good living to all and I wish you all the healthiest life possible.
January 13th
2008
8:04 PM
I have been on Warfarin for about 20 years now and have experienced all the symptoms described in all notes but I have one, my skin is just like tissue paper and it breaks in very bright red spots if it is scratched, my Dr says it is just age but if this is so then why is other older men not having this problem,, is it WARFARIN???
-- By poorme | Reply | (1) replies | Private Message me
May 14th
2003
6:49 AM
Was on levaquin 10 days for diverticulitis. Had vertigo,
joint & muscle pain, drowsiness & noted pieces of what appeared to be tissue paper-like membrane in my stool. Last dose was 3 days ago, joint & muscle pain still severe, still have the bowel sideceffect. The vertigo has disappeared.
October 14th
2009
7:10 PM
I was wondering if anyone has been having a problem with acne? I had the mirena inserted in May of this year, within two weeks I was having terrible mood swings, I was flying off the handle at the drop of a hat! Crazy! I went to my doctor to have it removed, he talked me into keeping it in a few months see if it changes. My moods are better but my face has become insanely greasy! I wash it twice a day, use face-wipes throughout the day to try to control it, I blot my oil away with the oil absorbing sheets. The problem is I am doing it all the time! I have even resorted to using the tissue paper toilet seat covers to blot my face, they work great in a pinch...but they are becoming part of my daily oil control routine! As an added bonus I now have acne! Never in my life have I had acne, nothing I do helps, I have all the creams and acne treatments, nothing has worked. I am just wondering if anyone else is having the same problem?
-- By lefttwolanes | Reply | (5) replies | Private Message me