October 6th
2009
5:55 PM
I am so relieved reading these messages. I thought I was going crazy alone by myself!!! I got my mirena in March 2009 and I was in love with it for a month. Shortly after around the end of April I started to feel crazy and go through these mood swings. I thought it was cause I have twin toddlers and im unemployed but the symptoms got progressively worse. Now its Oct my boyfriend is sick of me, the headaches and mood swings wont stop and I CANT sleep without Tylenol PMs. Im so excited that I have an answer now!!! Next step is trying to get it removed. Thank you ladies!!! Your voices have given me hope for mine and my family's future!!!
-- By saranie | Reply | Private Message me
August 26th
2009
8:19 PM
I was started on Bactrim 7 days ago. The first two days I felt fine, but the 3rd night I got cold...very cold and could not stop shaking for about two hours. My heart was racing and I was nauseated and couldn't focus. This went on for about 8 hours before going to the ER. Upon arrival I had elevated BP and pulse, but after a couple of hours it went down to normal. I saw a new doctor who said it sounded like I had a hypoglycemic attack!! I never had one of those before!! So, I'm figuring I'm getting sicker and maybe it is not from the Bactrim so I take it again and last night was another horrible night!! Racing heart, confusion, and urinating every 30 minutes. Thinking maybe I'm having another attack I get up and eat some applesauce and my husband gives me some sweet tea. I promptly threw up a few times and then we went to the computer to look for ourselves the side effects of this drug. Guess what? It causes hypoglycemia, racing heart, confusion and does something to your kidneys and makes you urinate too much and could be very dangerous!! That was it for me!! I didn't sleep the rest of the night but slept on and off during the day and felt like myself today for the first time since taking the drug. I don't know if it has done any permanent damage, but I will let everyone I know about this awful awful drug!!
-- By grandmotherof3 | Reply | (1) replies | Private Message me
August 18th
2009
3:45 PM
ive had mine in for about 3 yrs and having the same problems only until recently did i realize it could be my IUD well the migraines i knew about i could handle those but the mood swings,nausea,tiredness,back aches i dunno really thinking about getting the thing out i don't wanna get pregnant but i don't want permanent damage because of an IUD or to suffer from the side effects either thanks yall!!
-- By leabea1986 | Reply | (1) replies | Private Message me
July 7th
2009
12:36 PM
I am a 46 yr old woman. After developing 3 DVT's in my lower rt calf after major foot surgery, I was prescribed Coumadin/Warfarin. My doses have fluctuated between 1mg to 7.5mg (I have just lowered my dose from 6mg to 5mg as my INR yesterday was 3.9). I have noticed a lot of the symptoms listed above (others comments), but have bumbled along. The symptom that is bothering is my mouth! I can hardly eat or talk - my lower jaw especially aches constantly and even despite using an extra soft toddlers toothbrush, my gums bleed profusely. I only read of one other persons symptom regarding teeth/gums/mouth. I know it sounds melodramatic, but my mouth aches as though I had mouth cancer!!! I can't wait to get off this rat poison! Good luck to all.
-- By flickwee | Reply | Private Message me
May 8th
2009
3:39 PM
Has anyone noticed incontinence as a side effect in toddlers? My 3 year old has been potty trained for quite some time now but today he has wet himself 4 times. He's not had any accidents in months. This is also his third day on Omnicef. I'm hesitant to put a pull up on him because I don't want to set him back in his potty training.
-- By bklounger | Reply | Private Message me
April 10th
2009
10:28 PM
I had mirena inserted in Feb. 2008. Insertion was what I expected. I cramped for 1-2 days after, but it was well controlled with ibuprofen. I spotted for nearly 6 weeks after. The only thing I like about the iud is the lack of a monthly cycle and no cramps.
I am having a terrible time with the weight gain, mood swings and NO libido. Prior to getting the iud, I had been doing weight watcher for over 1 year and had lost 50+ lbs. Since about 2 mos after having it inserted, I have absolutely no control over my appetite and have gained 20+ lbs. The mood swings I am experiencing are terrible. I could cry almost every day. I have tried to convince myself that these things were not b/c of the mirena, but due to the stress of dealing with toddlers. After seeing the posts here, it looks like I'm not alone.
As a nurse, I try to believe that the mirena shouldn't cause such adverse reactions, but I have never felt like I feel now. I want to have it removed, but not until my husband has a vasectomy. I don't want to have it taken out just to have to start back on pills. We are done having children, and I want to be done with birth control.
Everyone reacts differently to medications/treatments, so the mirena may be just what some women are looking for, but I don't think it is for me.
-- By sec820 | Reply | Private Message me
February 12th
2009
9:47 AM
I just wan to say thank you so much to all of you who posted your comments on this site. I am a mother of 2 toddlers, I had Mirena inserted in April, 2008. And since then my life has changed for the worse. I too suffer from the acne, which I never had before (ok I had the odd zit here and there), it hurts. The bloating that makes me look pregnant, the unexplained weight gain ( I was 135lbs before Mirena, and now I am 144lbs).It doesn't make sense because I exercise regularly. The feeling of being anxious all of the time. But the worst part for me is the mood swings and depression. I cry all of the time. I go in fits of rage. It makes me feel like a horrible wife and mother when I see my children and husband looking at me like what is wrong with you. I have a great life, and before I stared on Mirena I was very happy, self confident, kind, caring, I was a totally a different person then who I am today. I went to the doctors last night and finally had it TAKEN OUT. Because I want my life back and I want to fell in control of my life again. If it wasn't for this site I would have thought I was losing my mind. I will give you an update in a week or two to tell you how I feel since it has been out. So once again thank you all for sharing your stories and helping me realize that I wasn't alone. C. G.
-- By candygratz | Reply | Private Message me
January 16th
2009
4:49 PM
I am 34 years old. I am a pharmacy tech. I have asthma and allergies. I have taken singulair pretty much every day since it came out on the market. I've had asthma since i was about 10 years old. I took theophylline as a kid. Steriods on and off especially during times when my allergies are bad. I still use Advair during the fall and spring. Every drug has a side effect. However breathing is pretty good damn thing. Do I have days when I feel low? Yeah. Do I sometimes have nightmares? Yup. Are "natural" products the answer. Not always. The fish oil that some of the posters are touting can also cause GI problems. Some of the natural products contain herbs and other plant derivatives that can be harmful for a child that suffers from allergies. Not proactively treating asthma can be deadly. Some of the parents are suggesting steriods as the answer - those can cause weight gain, growth suppression and can lead to a worsening of asthma.
Singulair has never made me feel like I've wanted to kill myself. I was more depressed and angry as kid when my asthma did not allow me to partipate in normal childhood things. I was sad and hated life when I couldn't keep up with friends at recces because I was having trouble breathing. You have to outweigh the costs with the benefits. I am more irritable when I have asthma flareup then I am on a normal day. For me, I choose to breathe. And singulair has been helping me for almost a decade.
I'm not saying the medication isn't causing these symptoms but maybe there is an underlying cause to your child's depression.
Any drug has a side effect. But without medical research and the medications that come with them - people would still be dying of simple diseases and we wouldn't have vaccinations. As a society, as a whole, we are a culture that looks to someone else to fix things and then blames the people who try to fix it. We need to stop being the "hot McDonald's coffee'" society.
-- By vabenavidez | Reply | (23) replies | Private Message me
October 23th
2008
6:59 PM
I am a mom of twin boys who are 3 1/2. They were 9 weeks premature so we battled RSV for the first two years of their life. Allergies are also an issue therefore, they were put on Singulair at 10 months old. It really seemed to work for them and things seemed to be going okay but once they turned 1 1/2, their behavior started to change. They were constantly throwing toys at each other, sippy cups at people across the room, screaming for no reason, etc. Some may say it was normal behavior for little toddlers. Then the "terrible two's" set in. They started biting, pushing, screaming over anyone who talks to get attention, not listening and for two kids that slept through the night....all of a sudden that stopped too! My husband and I mentioned it to the pediatrician and also tried to going through the state (developmental clinic because of being premature) thinking that we would get some answers and everyone seemed to think it is a combination of their age and the fact there are two of them....sibling rivalry. We now deal with two kids that use to sleep through the night, now end up in our bed every night to fall asleep because they don't like their room and their erratic behavior is stressing my husband and myself out. When they are good, they are great but when it gets bad....it is a nightmare! I even find it hard to get people to watch the kids because they are too much to handle! After reading these postings I realize I am not the only one with kids going through this and that the common link is SINGULAIR! I am not giving this to my boys ever again and I already put a call into the pediatrician to discuss my findings. I have a sense of relief to know that it is not only my children who's behavior is like this but I am scared because I pray that there is not any long term effects that can not be corrected once this drug is out of their system. I just want my boys to be healthy and okay!
-- By jennchick | Reply | (1) replies | Private Message me
October 13th
2008
4:57 PM
I have a daughter who is almost 3 yrs. old. Her pediatrician prescribed her Singulair when she was 18 months so she's been on it for a little over a year. She has suffered from allergies since she was an infant although we've lived in Atlanta and Cincinnati since her birth - two of the worst cities in the US for allergies and air quality!! I cannot tell you how disturbing yet reassuring it is to read all of your posted side effects..I can relate to so many of your experiences! Its so ironic though b/c the initial reason our last pediatrician put her on Singulair was b/c she was feeling so badly from her allergies...but since she began taking it, she has had SO many more issues with not only her health but mental state. She has had serious aggression issues - taking it out physically on other children, her peers and our poor dogs and cat. She has tons of trouble falling asleep at night, is a very picky eater and has unexplained bouts of anger. When it started, we thought it was b/c like so many toddlers, she couldn't express herself. But she began talking at 18 months and could also sign and always seemed to communicate to us in her own way prior to that so that didn't add up. We've had a lot of external changes in our lives in the past year so everyone I've talked to about her issues has assured me that it was due to these and to keep on trying everything we could; that it was only a "phase". But the one thing I keep thinking about is how different she was prior to taking Singulair and how her mental well being changed so drastically from that point on. She was such a sweet, lovable child who was sleeping throughout the night (since she was 8 months old). She had a great appetite and loved trying new foods. She never had any aggression issues AT ALL before that. I even asked her previous caregiver abt. any aggression issues she had while watching her (which was up until 2 months before she started taking Singulair) and she said she never had ANY issues. In all, like so many of you posted abt. your children, she was a completely different child!! After going to her doctor this morning to have her checked for what I suspected was a sinus infection, he told me to absolutely continue giving her Singulair year-round in addition to 10 mg of Claritin (which is twice as much as children ages 4 to 6 are supposed to take!) and Nosenex spray for the next few weeks. It seemed like an awful lot to give a 2 yr. old so I started researching and came across this site. I am going to stop giving her Singulair today and look into some non-prescription alternatives. I take Oil of Oregano for my allergies since I can't handle the side effects of over-the-counter drugs so maybe my daughter can take this as well? I am so scared of how this drug has affected my child and hope that there hasn't been any permanent damage. I feel terrible that I trusted both of her doctors before researching this drug. I am SO thankful for finding this site and for reading your stories and will report back in a few weeks to update you on my little one's condition.
-- By rseidel | Reply | (2) replies | Private Message me
October 10th
2008
1:30 PM
I was given this med. and within a few hours the Uti was better but I felt like I had the flu, disoriented, increased appetite then no appetite, I felt like I was in someone elses body looking out and I got severely anxious and annoyed with my 2 toddlers antics that I usually find amusing and adorable. I couldn't sleep till the wee hours of the morning 2 nights in a row and finally I realized what is going on and came online to look up the meds thinking i was crazy for thinking they were affecting me and found this site. I just chucked the bottle of em in the garbage, deep down so my kids cant get a hole of them. I pray these don't have lasting effects on my body. Im so glad my daughter was weaned from Nursing 2 weeks ago, cant imagine what they would do to a baby. Thanks for listening. So glad I found this site. ITS NOT JUST ME.
-- By queenkathy | Reply | Private Message me
September 3th
2008
5:23 PM
OMG. I guess I am lucky that this is the first site i found! I am 22 years old and i have had Mirena since may of 2007 since i delivered my youngest son. I stopped having a period (which is great) but i started having some symptoms that were completely out of the ordinary for me. I started what felt like panic attacks, it feels like tightness in my chest with pain high in my chest. I'm having heart palpitations very often, and sometimes when my heart palpitates (it feels like it stops for a second) i partially black out. i have been attributing it all to stress because i am a full time college student with 2 toddlers and a house to run but now after reading all of these comments i'm not too sure. I have a really hard time focusing, it's like my eyes slide out of focus and i just stare into the distance. I've been having sleep trouble as well... i'm always fatigued but i have a really hard time falling asleep. My mood swings have inreased tenfold. i get so angry at the littlest things and i just can't help myself. the last and most important side effect (at least in the eyes of my husband) is that i have absolutely no sexual appetite. I find myself dreading sleeping with him because i just don't feel like it anymore. I love him dearly and I really think it's not normal for an otherwise healthy 22 year old to have zero sexual interest.
-- By lavenderinscence | Reply | (3) replies | Private Message me
August 10th
2008
5:52 PM
In June 07 I rushed into having the coil fitted, having had a double rollover with two beautiful babies successively, only 13 months apart. No 2 baby had his first birthday end-Mar 08 and as I was no longer breastfeeding I suppose I began to stop making "new baby" excuses for my moods, brain fog, lower back pain, extreme fatigue, irritability if not getting a nap in the day even though had good 8 hrs sleep on night and weight gain (dress size).
Over the last few months I have gone on to experience severe PMS symptoms (which I didn't have prior to coil), clearly a build up within the body for not being able to bleed regularly. These included crying spells (for no reason), feeling very flat/exhausted almost like "out of body" old woman (I'm 33) and feeling bloated/pregnant - they would last roughly two weeks and then I would get a day's bleed which explained the cause. I even took a pregnancy test although it was negative. For me the final straw has been the onset of migraines (a year on) lasting several days and just being constant.
Having two energetic toddlers and little family support, I simply didn't have the luxury of continuing with these symptoms and could no longer tolerate the thing inside me. Luckily, my hubbie agreed and so had coil removed on Friday (total of 14 months) . Already, 2 days on, the bloating and brain fog have eased off. The migraines are still present but am assuming it will take a while for body to sort itself out. I'm so looking forward to feeling like "me" again with and getting fruity with the hubbie.
Additionally, have had nose bleeds over last few months and a yeast infection - not sure if these are linked in!
-- By jbourner | Reply | Private Message me
August 7th
2008
1:07 AM
It has been a little over 2 months now since I had the Mirena removed. I am doing a lot better. My dizzy bouts are few and far between now. I have been dizzy today and yesterday but I hadn't been dizzy for weeks before yesterday. The dizziness isn't severe anymore either. I still have fatigue but not nearly what I had when I had the Mirena. I think the fatigue I have now is the kind that the doctors kept saying I had from being a mother of toddlers. Much different fatigue than before. It was so annoying to have them tell me it was from the toddlers because I knew my kids weren't taxing me so much that I couldn't get off the couch. Well the fatigue now is different, I don't have to take two naps a day anymore and I can keep up with normal duties. I hope everyone on here that is struggling gets better soon. Mirena is terrible!!!
-- By mjplower | Reply | Private Message me
April 7th
2008
9:49 PM
I think that I can get my head around certain things and try to explain to you that medications do not work for all people or affect all people the same way. Well, that sounds simple enough to say - DUH. But, it is actually quite complicated chemically. Human beings are not chemically the same because we have variations in our genes. Would you be surprised to learn that about 60% of adverse drug reactions involve certain chemicals (in some cases enzymes) that we already know what these chemicals or enzymes are and what the variants are among populations groups? Some times we can predict who would have an adverse reaction to what medications if we knew what gene subgroup the patient was part of. We could also predict whether the patient would metabolize a drug at the same speed as others or not. Metabolize means utilize the drug and then discard the by-products--mostly the liver is the recycling center of chemical waste. Anything that the liver cannot re-use, the kidneys gets rid of in the urine. Speed of metabolism is a very important thing because people who are slow metabolizers might actually experience over-dose. There are other differences caused by genes that can cause different reactions according to the individual person.
I am interesting in following this site because I am wondering if the concept is flawed meaning that other parts of the body were ignored at the expense of controlling asthma and allergies of the nasal passages and lungs. OR - is there just a problem that relates to genetic differences in something such as enzymes and certain populations groups do just fine on Singulair with no problems and other people have some awful problems?
This isn't my area. But, sadly, if I can spend two weeks looking at this and come up with at least a road map of what I am looking for to answer some important questions then people who do this for Merck already know the answers. Why do I say that? Because, the adverse side effects (major categories) correspond to important areas of leukotriene receptor location and activity. Maybe not necessarily this receptor but part of a chemical process that involves this receptor.
The bottom line is that Singulair is the wrong medication for anyone that has adverse reactions. OR, there is a problem regarding the dosage that involves how fast the patient metabolizes the medication. Considering that there is a link to psychiatric adverse drugs reactions in Singulair and some medications for depression are linked to differences in metabolism due to enzymes, then there could be possibly something important to be learned from Singulair adverse drug reactions.
The biggest problem is that pharmaceutical companies are not properly communicating with the doctors who prescribe their medications. Why not communicate to doctors to look out for side effects and be aware that there are gene variations among people that are directly linked to how the patient might respond to the medication?
What happens if the patient belongs to the gene group that will have problems? If the pharm company does not tell the doctor to be on the alert, then the doctor tells the patient that it is not the drug that is causing the problem. Then the gene groups with the problems, go on the war path.
-- By concernedcitizen | Reply | (2) replies | Private Message me
March 30th
2008
3:33 PM
My son started Singulair in the 7th grade and his personality changed but I never attributed it an asthma medication. He was on it and off of it for the next five years. On it again last year, he committed suicide on October 2nd, 2007. I consider his suicide a "side effect."
-- By kate60 | Reply | (4) replies | Private Message me
March 18th
2008
10:32 PM
I started taking has two weeks ago and I feel like crap I've never been so tired in my life, I do not recommend this pill if you have toddlers running around I have huge headaches and I've had my period for a grand total of ten days something doesn't feel right ladies listen to your bodies if it doesn't feel right most likely it is not good for your well being this tax pack is going in the trash.
-- By gmota25 | Reply | (3) replies | Private Message me
Mirena (8) Singulair (5) Sulfamethoxazole-Trimethoprim DS (1) Omnicef (1) Dyazide (1) Warfarin Sodium (1) Bactrim (1)
October 12th
2009
8:41 PM
Hello Everyone,
I've been doing some research on Mirena IUD side effects, and I'm so glad to come across these testimonials. I had Mirena placed in June of 2008, which hurt badly - something my doctor didn't tell me of until the procedure. Everything was fine most of 2008 but since January 2009 I have been extremely emotional and even was put on anti-anxiety/anti-depressant medication at one point. I have gained over 15 pounds in a year and can not get below a certain weight no matter how hard I try. My weight also fluctuates, which it never has before. I'm constantly gaining/losing 5-10 lbs, on a weekly basis. I have never weighed this much in my life, besides when I was pregnant, and it is really starting to bother me.
I've attributed most of my moods and "hormones" to being a single mom of two toddlers, financial stress, relationship stress with my ex and with my mother. I eat healthy and get exercise a few times a week. I'm definitely thinking removing the IUD would help my situation and make me feel like "me" again.
My question goes to the ladies that have had the Mirena IUD and have had it removed. Have you noticed a considerable difference, and if so, how long does it take for you to notice side effects starting to dissipate?
Thanks.
-- By laken208 | Reply | (2) replies | Private Message me