March 15th
2009
8:57 PM
This post is directed to anyone who has contacted me regarding a possible class action lawsuit, which I was trying to initiate, as stated in my Oct 17th, 2008 post.
After contacting as many as 10 law firms, from NY to San Francisco, I have virtually "thrown in the towel". In essence, what they are saying is, this will be too expensive to litigate. The pharmaceutical companies have "teams" of lawyers, and I believe they are reluctant to go up against them.
I find it diabolical that this drug Kenalog is causing so much suffering, some emotional, some esthetic and some, like myself, sheer physical pain...but nothing can be done about it.
For all of you who have emailed me and I was unable to return your ems, I apologize....but I have been waiting to hear something positive feedback to relay. Unfortunately, that was not the case. If anything does develop I have stored your information and will get back to you. I would hope you would do the same.
-- By tricia38 | Reply | (5) replies | Private Message me
March 13th
2008
2:52 AM
My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona
August 5th
2007
4:56 PM
I am losing my toenails and wondering if this could be a side effect of using Kerasal
-- By lurie | Reply | Private Message me
May 5th
2007
7:06 PM
I have been taking adderall 30mg immediate release twice a day for a little over 2 years now.
My hair won't grow. I have gone from a size 12 in women's to a size 0 in juniors. I am 36 years old and the bones in my face and body show through my skin.
I get very dizzy and I get anxiety really bad.
My toenails are paper thin as are my fingernails.
I have pushed everyone in my family away. I don't even play with my children anymore.
I am currently seeing a counselor once a week to help me with issues, which I hope will help me get off of this medication.
PLEASE DO NOT BEGIN TAKING THIS AS IT IS SO HARD TO GET OFF OF IT.
As another person stated, people I work with think I am on crack!
November 10th
2004
6:31 AM
I am amazed! I have dry skin, hands and scalp, Skin bruises on arms and now starting on my chest in small spots, muscle and joint pain in feet. I wake up every morning stiff and bent over going to the bathroom, chronic sinus problems, going to see ENT (thought I had polyps) Dr. on the 30th of November, huge stomach, due to having twins 3 years ago, large pannus and excessive weight gain in stomach area which I think is due to advair, lost hair in crown area of scalp and my scalp STAYS flaky,hair thinning out, night sweats which I thought was premenopausal (I'm 40). Floaters in eyes which are more pronounced now than ever and sometimes flashes of white spots in peripheal vision. Toenails are dry, big toe is dry and dark and they look very unhealthy.
-- By ababybull | Reply | Private Message me
April 29th
2004
12:01 PM
I have been on pred for 2 years off and on for Temporal Arteritis that the doctors at long last have decided that I don't have. They started me out on 60 mm and now they are taking me off at 1mm every other week. I am down to 11mm now. I have experienced all the side effects except the acne and problems with periods. I gained 40 pounds and have such bad pains in my lower back that I can't stay on my feet for long. And I'm always hungry though I try to control it. My main withdrawal symptom is extreme itching from my neck to my wrists and thighs. especially where there is any pressure on the body such as waist bands etc. I tried to get off it once but it was at a faster rate and that is when the itching started. I will gladly put up with the itching as long as I can get off this "Satans curse" of a medicine. I also have jerking in my hands and a general feeling of shakiness. I was glad to read that someone else had painful sensitive teeth I didn't know it was connected to the pred. I too wonder if I will be able to lose all this weight after I'm off the pred. I do know that the moon face goes away because it did the one time I came off the pred then had to get back on it. I also have weakness in my thighs and arms. and my arms are always getting big ugly bruises or torn skin on them to the point that I have to wear long sleeves in hot weather.feel free to email me with your story. Especially if you are off of it so I can have some idea what might happen to me
-- By iraynbo | Reply | (4) replies | Private Message me
Kenalog (2) Mirena (1) PredniSONE (1) Advair HFA (1) Kerasal (1) Urea Nailstik (1) Adderall (1)
April 9th
2009
11:53 PM
I received my first shot on Kenalog three weeks ago, for a bulging disc in L5, and it took me from a 8 out of 10 pain scale, to a 2. After two weeks , I received my second shot, and now I feel about 98% better. As an added bonus, my Psoriasis of 15 years, that no Doctor could seem to control, has all but disappeared! Also a severe pain in my r/foot under 2nd tow area, has completely gone away, after 10 years of misery! I also am seeing my two toenails, and one fingernail restoring themselves to normal again(the nails had fallen off years ago, like a fungus, but it was not fungus). My dermatologist told me it had no cure and that I would have to deal with it! Kenalog benefits have FAR outweighed the negative effects so far... I have lost about 5lbs in 3 weeks, and anxiety is a mild issue, as is mild night sweats, but for me, this is a small price to pay for pain relief that was making my life miserable!
-- By mgc1966 | Reply | Private Message me