August 17th
2009
10:49 AM
My eldest son was diagnosed as a Severe Asthmatic at the age of 3. He was put on Flovent 110, 5mg of Zyrtec and Singulair. I cried thinking about my little guy having to be on daily meds for who knows how long. I decided that I would just try the Zyrtec and Flovent 110, it worked wonderfully. When my eldest was 4, my other son, 2, was put on Flovent 44. Never gave them to my youngest because I knew it was not asthma. I ended up lowering my eldest's dose to the 44 and giving him 1 puff a day with the Zyrtec, he is now 7 and is still under control. As for my younger son, he was not asthmatic, he had sleep apnea, had his tonsils and adenoids removed and is now perfect. Just be careful with these doctors, they seem to diagnose these little ones too quickly......most of the time they are not even right. My eldest went through many many doctors before he was finally diagnosed in the ER and sent to peds for 2 weeks. My youngest went through many doctors too, none would do anything, I had so many excuses as to why my son was such a heavy breather and why he had difficulty swallowing and sleeping. Sorry guys, I ran off here, just want you guys to know that all that are diagnosed with asthma do not necessarily have asthma and I believe way too many drugs are prescribed for these little ones.
-- By tweety111982 | Reply | (1) replies | Private Message me
June 5th
2009
9:57 AM
Hi all
I had my second mirena coil fitted 2 months ago. My first one that I had for 5 years I thought agreed with me - however now I am having second thoughts. My reasons for looking on this website were that I seem to have become very low, tired and have bouts of being very snappy and intolerant. A few of my friends have noticed the change in me. No idea where the placid happy go lucky J. has gone? My appetite has grown as have i a few pounds. I have also started become over anxious about things! If there were reasons for this I wouldn't be concerned but life is great at the moment!
I don't have any of the other side effects I have read about on this site, however over the years I get bouts of sore tonsils and a horrible metallic taste, at same time feel very drained. Had every test under the sun plus allergy tests all to no avail - Has this occurred with anyone else?
J.
-- By janeni2495 | Reply | (1) replies | Private Message me
May 8th
2009
10:53 PM
I'm very happy to have found this forum! I've had asthma for 25 years now. I was given Advair 250/50 when my Dr. noted that I'd been using my rescue inhaler way too much, about 5-7 times/day. That was 5 years ago. My asthma symptoms were immediately improved. I could take a deep breath for the first time in a year, and after a couple months was almost completely off the Albuterol. However... the last few years (especially the last year) have been not so good. My friend finally put 2 and 2 together after I was complaining (yet again) of feeling run down and having another throat infection (the fourth this year). She told me to check the info for the meds I'm currently on, which led me here. My symptoms are as follows: about 2-3 years ago, I experienced the hair loss and mood swings (severe) and anxiety. Then I started getting recurring tonsil infection, laryngitis, joint pain and constant "rundown" feeling. I've had full blown Pneumonia twice in the last three years. I never had any of this before I started taking Advair. I constantly have some sort of low-grade infection. I was considering removing my tonsils (which was why I was complaining to my friend). Now, I'm trying to figure out if I should try to just quit cold turkey or gradually. I know my asthma symptoms will return, but at this point-which is worse? The problem or the "solution".
-- By sickofbeingsick8 | Reply | (1) replies | Private Message me
January 17th
2009
1:10 AM
I had my mirena taken out today. I had it placed in Oct or Nov 2007, and I have been soooo tired every single day since then, and it's just gotten increasingly worse. I've tried antidepressants, I had my tonsils and adenoids out to help with breathing and obstructive sleep apnea, I've started vitamins, changed my diet, picked up a bike.... NOTHING will shake this fatigue.
I did some research on it and found hundreds of women posting online about the ill effects of mirena - including depression, weight gain, FATIGUE, back pain, headaches, symptoms similar to a thyroid problem... some things I didn't think could be the Mirena, but lo and behold, here's an army of women in the same boat as me.
I had to argue with my doc to get it taken out (I read that a lot of women had to do this), stating I felt better on the pill when my body could bleed properly and my hormone levels were a bit different. He maintained that the fatigue had nothing to do with the mirena and the pill just had more hormones, but I said, hey, what I do know is that sometimes, some things just don't work for some people, even if it doesn't follow logic. He pleaded with me to give me a second antidepressant, and I said, hey, I won't fight with you, but let's try it my way first. I promised to go back in a month, and, if the fatigue has not subsided, I will submit my body to thyroid tests and more antidepressants. You've got it, doc.
Well, it's hard to tell so far if things have changed, since it's only been out for hours. One thing I noted was that my body did feel different - almost immediately younger, like my joints hurt less and whatnot. I'm a little tired now, but not as bad as I normally am. I also was not on my sleeping schedule today (went to bed two hours late and had split sleep).
Haven't had bad effects as a result of getting it taken out - I cramped a little this morning, but it was NOTHING compared to what I felt when I cramped on Mirena. Also, my cramps were in a little more normal area - more center. With Mirena, I cramped on my lower right abdomen, from hip to groin, every couple of weeks.
-- By themadmyth | Reply | (1) replies | Private Message me
January 7th
2009
11:44 PM
I just looked at this site to see what side effects people are experiencing with this medication. Here is my experience: I went to see my ENT doctor-this is a great practice and I still have full confidence in their abilities despite what happened to me. I have been having trouble with lots of sinus headaches, and my tonsils becoming infected. However, I have severe hay fever type allergies so most of the time I put up with my symptoms and they go away. However, I knew that I probably needed an antibiotic because my symptoms were getting worse and I had caught a flu-cold thing on top of it. When I went to the ENT she said she thinks that my tonsils may need to come out and prescribed 10 days of Avelox along with a sinus rinse (saline only) she was concerned because I am allergic to a lot of antibiotics (mostly I get hives) so she gave me Avelox. I did not read the side effects before taking it. The reason being I get nervous taking antibiotics as it is because of my allergies and tend to freak myself out. So I just read the part about drinking lots of water, no vitamins,etc.. Even though I had a cold-flu thing I did not take my Allegra or even Tylenol to ease my other symptoms and no vitamins (which I usually take) I only took the Avelox. I also chose to take it at night because on the bottle it warned of dizziness or drowsiness. I have small children to take care of so I couldn't be dizzy during the day! The first night I took it around 10:00-I had trouble falling asleep, felt kind of woozy and high. However, I didn't worry about it cause I knew it could happen. I fell asleep and woke in the night feeling totally freaked out. I kept thinking someone was going to break in the house, I felt really scared for no reason. I wanted to wake up my husband so bad but I didn't because he had the flu and needed some rest. After that I kept drifting in and out of sleep and my mouth kept watering and watering. The next morning I told him to go in the bathroom and read the side effects to HIMSELF-I only wanted to know if what I mentioned was in there. He said yes. I continued to take the drug the next night-this time I felt lots better like my infection was clearing and the woozy feeling was less than the night before which made me happy. But again during the night I felt freaked out and had trouble sleeping all night. The next day I got diarrhea. Again, I figured minor side effects, I need to stick with this and clear up my infection. I took the pill for 5 nights. There were several times during the day that I weird pains (but not super painful-more annoying) a pain in my thumb, my hand, my shoulder, my calf. It was only here or there-not too big of a deal but I thought it was weird. Then I had something happen with my daughter (a family type emergency) which led to lots of crying and drama the entire day. That night I took the drug again (This was actually last night-the 5th time taking it) Again, trouble sleeping but better than the nights before. I woke at 6 this morning to get my daughter ready for school and as soon as I got out of bed I almost fell down. My legs and arms felt SO heavy I can't even describe it. I could barely make it across the room, then the dizziness hit and I started to feel really bad, I started to black out. I laid down on the floor and started sweating, felt like a cold feeling through my body and then my body started going numb. At first I thought "Oh god, I am having an anxiety attack of some kind from all the stress the day before." but it just got worse and worse, I felt like I was having trouble breathing and swallowing. The worst part was if I even tried to LIFT my head off the floor I started to black out (my vision was closing around me and my ears were ringing like crazy) then my mind went crazy-am I having a heart attack (no it couldn't be I am 39!) then the weirdest thing happend my thumbs felt like the muscles were cramping and being drawn into the palms of my hands uncontrollably. That is when I started freaking out. I was yelling-my husband had to leap out of the shower.I kept telling him, something is really wrong get me to the hospital. At one point told him to call 911. I seriously thought "this might be it, the end and I am gonna die here cause my stupid husband keeps rubbing me and trying to calm me down instead of calling 911!" Then I think he got freaked out because it just wouldn't stop and every time he tried to lift me up slightly I would start to faint. Finally, the blacking out thing eased enough he could sit me up, then I finally worked me into standing. He got me to the car and we decided to go to the urgent care versus the ER. They turned us away and told us to go to my doctor because of the antibiotic They said they would see me if I wanted but they really thought I should see her because the antibiotic is really strong and could be the problem. I thought they were crazy and I got really pissed off thinking "What the hell? I could be dying here and they want me to see my freaking ENT?!" My husband talked me into leaving because my ENT was in the next door building. Their office was just opening. They took my blood pressure, it was good, my pulse was good, they checked my ear pressure to see if it had to do with the dizziness and I argued my ears are fine! This is different from dizziness I had from past ear infections I was almost blacking out! But, alas one of my ears was off, and had inflammation. Then they gave me a steroid shot. They said that my infection looked gone in my tonsils but they are still concerned about my sinuses and what is going on there. I have to have a CT scan next week. They said they felt what happened to me was a combo of my ear swelling and a reaction to the antibiotic. They did not give me another antibiotic because they said 5 days was sufficient time to kill the infection. I came home today and tried to rest but it was hard because I had the kids. All day it was an effort to move or walk but thank god the other symptoms were going away. Now it is about 11:30 at night, I can't sleep and I was lying here freaking out about my legs being so screwed up. I have stairs and it is all I can do to walk up or down them. I started thinking the doctor may be nuts and that something really horrible is wrong with me (can you say paranoid?!) so I got on my lap top while my husband is asleep next to me. I found this site. Thank god. Now I can calm down and try to get some sleep! I am not dying of some freaky ailment-it IS the Avelox making me feel this way. While mentally I feel so much better and I am going to stop writing this book-I am still pretty concerned about how long the side effects with my legs are going to last. I am also a little freaked about going to the gym even after I do feel better. I will try to write later to let everyone know when my legs get back to normal. If anyone is experiencing the same symptoms I did. Stop taking this medicine and call your doctor right away. I felt so stupid complaining about all this weird stuff-my husband acted like I might be a little nuts! Now I know its the meds!! :)
-- By freakedoutinflorida1 | Reply | Private Message me
October 9th
2008
10:32 PM
I had been diagnosed with strep throat, i could see a lot of white spots covering my tonsils and it was hard to swallow. Doctor said rapid strep test came back weak positive but that he would still give me antibiotic. I've been on Biaxin for 3 days now. I never have heartburn, but i am experiencing it now. Diarrhea. Dry sore throat making it hard to swallow. A ton of pressure in my ears. Also, i woke up this morning and my heart was racing a mile a minute and it felt like someone was sitting on my chest making it hard to breathe. I thought i was just being stupid to look on the internet to see if an antibiotic could cause these kind of side effects. This is ridiculous!! You feel bad and have an infection, go to the doctor to get an antibiotic and then you end up feeling even crappier!!!
-- By pinklady | Reply | Private Message me
September 29th
2008
12:04 AM
I am a loving mother of a 5 1/2 year old boy. He has been on Singulair for over 3 years. In this past 3 years my son has suffered in an unspeakable amount. He came down with Rota Virus and was hospitalized at 2. He then came in contact with Pneumonia in the hospital while he was there. They automatically put him on Singulair, Zyrtec, Prednisone, and antibiotics to treat the pneumonia. Since that day, my son has gone though more tests than I have in my entire life. He has had asthma, sinusitis, leg cramping ( to the point he cannot walk for 2 years), IBS, Acid reflux,(they gave him laxatives for a year that made things worse and addicted to them also), stomach pain, constipation and diarrhea back and forth. He also got Erythema Mulitforme TWICE, while on this drug. All of which the doctors said could NOT be caused by Singulair. He has had several Upper GI's and CT scans. Along with Barium enemas, several hundreds of blood tests, and many many pokes and prodded that were not necessary. All since he has been on Singulair. He now has frequent bathroom trips, depression, confusion, and anger outbursts. He also has to go to the restroom every 5 minutes. He has had genital swelling, and many other aches and pains. None of which his "doctor" ever said could be a result of Singulair. I am 100% sure it was!!!! He currently has anxiety and emotional sporadic issues causing problems in school The teachers and counselors say that it is so strange because there is no TRIGGER and the outbursts are completely inconsistent. His preschool teacher and director are sure he has ADHD. Well, we had him tested and he does not have any part of it. He has no learning disability what-so-ever. So that brought me back to square one. He is in a positive loving enviroment. How could he be depressed and want to hurt everyone around him? He cannot sit still. He cries and says he is 'stupid" and "can't think" like the other boys. He has nightmares and cannot sleep alone. He is scared of everyone and everything. So, as I sit here crying, I realized that this has all been a reaction of his "medicine" Singulair. He never should have gone through all of those painful tests, only to prove they couldn't find anything. So many treatments and sound full advice speeches from his doctors. How could they be so naive and selfish in the life of my son?
When I called my pediatrician of 5 years, she told me that " parents that have children with behavioral problems will LOOK for something to blame their problems on." She also said "drug companies only put side effects on their labels to PROTECT the drug companies. (as she laughed at me) They are not always valid". Then she said "if you take you child off of Singulair you will be playing Russian Roulette in his life." Then she said that all children around 5 or 6 go though this emotional time in their lives." She told me that if I take my child off of Singulair that she would no longer be a part of his health regimen for his asthma. She told me to see a Pulmonologist for further treatment.
Who is paying who? This is my son's life???????? I decided to go with my mother-gut instinct and get him off of this medicine. No matter what. He has been a different person since. He is currently going though a lot of side effects and withdrawals (leg pain, insomnia, hic-ups, emotional distress) but every day is getting better. How can the drug companies say that this is a "wonder drug?" There are more reported side effected patients then clinical studied patients! How can a "medication" that stimulates the brain not be connected to other problems? This "medication" interferes with the bio synthesis and action of LTs and has been marketed as NOVEL medication against asthma and allergic rhinitis. Who the hell is playing God here??? The pocket books of Merck or our over PAID "doctors?" Who pays the price? Our children? Or us. Thank god I found this before it was too late. I would not be able to withstand the pain of losing my son due to their lack of scientific evidence. They are lucky I am one of the smart ones. I will not settle for less than Justice for the drug companies and their paid "doctors?" You all end up in the same place. HELL
There are 18 million people on this drug. Most of them are children. Please save a life if not your own child's life. Thank You
-- By daisydookes | Reply | (14) replies | Private Message me
September 28th
2008
8:06 PM
I was injected with Kenalog in Mid July 2008 to reduce the swelling in my tonsils (I had a bad case of tonsillitis). I was asked if I have allergic reactions to steroid injections, and to my knowledge, I don't. So I was given a shot in my upper right buttock on Thursday (mid July). On the following Friday I was no better (still mid July). I was still not able to swallow my own spit, let alone eat or drink, so I went back Friday morning. I got another shot in the same location of Kelanog. I was not told of side effects; I was told the swelling would go down in my tonsils/throat. Again, no results.
That Friday afternoon I was admitted into the hospital for care. A weekend of fluids and other drugs got the infection out. I stayed infection free for two weeks. It hurt for a week afterwards on my right buttock, but no bruising. I healed up, had my tonsillectomy (sp), and healed fine after that.
I noticed nothing wrong with my upper right buttock until about two weeks ago. I am in the process of getting a large rib/hip tattoo piece finished, and about two weeks ago I noticed a spot that looked like a small bruise a few inches from my tattoo in the spot where I was administered the Kenalog shots. I didn't put it together then. Two weeks later (This past Thursday, September 25, 2008), my tattoo artist was about to work on me and said, "You have a dent in your butt, what happened?" I had no idea it was even a dent. The "bruise" like mark now looked like a burn scar, red, and smooth and deep--dented.
The red mark is still dented and the same color. It's about the size of an inch from one side to the other. However, each day since it has been dented, the dented area has expanded fairly rapidly. The dent is now not only in that red area (the injection site), but also along my hip/upper thigh. It's getting deeper and traveling outside the red area, and the red area is the same color. This discoloration just started. I heard this is called Tissue Atrophy due to a misadministered Kenalog injection.
Does this dent go away or stop "spreading" by itself? How will I know if it will stop spreading; is it different for everyone? How can it be properly diagnosed as well? Can a biopsy be done to prove that this it what it is? Does anyone have any insight?
Also, it's been 2 1/2 months before I saw any of these effects...why does it seem like my effects came later than others? Is that possible?
Thanks.
-- By ta2dstars | Reply | (2) replies | Private Message me
September 7th
2008
6:47 PM
I have not had any of the side effects yet, but after being raped my doctor highly recommended that I get the shot, so without even considering it more my Mom agreed to it. I've completed the cycle, receiving my final shot a little under a month ago, I believe that it was the 20th or 21st of August. My first shot was sometime in February '08 shortly before my seventeenth birthday.
I did have pneumonia in April, and I'm not sure if that's connected to the vaccine in anyway, but I was usually sick quite frequently with sore throats and a little nausea before I got the shot.
I've had tonsillitis as well and just had my tonsils removed, so I'm really starting to hope even more so than before that I do not get any side effects from this drug.
My heart truly goes out to all of you who have lost someone due to this drug or has someone close to them with brain disorders. You'll definitely be in my prayers.
BOTTOM LINE: DON'T ALLOW YOUR CHILDREN OR ANYONE YOU KNOW TO GET THIS DRUG UNTIL IT HAS BEEN 110% PERFECTED!
-- By unspell | Reply | Private Message me
September 2th
2008
8:12 PM
I think some of the severe symptoms reported here are just that.. severe, and as advised on the drug information insert they can happen, and should be reported to your doctor. We are led to believe our doctors will stop the meds and try something else. If they are not willing to do that, or try to convince us it's all in our heads then... we should stop the meds ourselves and find another dr. These side effects are real, and scary. I've stopped cholesterol meds for that reason. I don't need a dr. to tell me to stop... I know my body, and how I feel and know when something isn't right.
I've been on Lisinopril for two weeks now. I was initially on the diuretic Hydrochlorothiazide, but had so much arrhythmia that I thought my heart would jump out of my throat. The dr. discontinued that after less than a week, and put me on Lisinopril. I am a bit dizzy sometimes, and do have a mild cough, but I had the cough before the meds so I can't really blame it on that. However, for all those with the problem of coughing and headaches... I read at drugs.com that you should take this medication with a full glass of water, and drink lots of water throughout the day. This tip was not in the drug handout and I thought that odd. Something so easy, and yet left out. Luckily, I drink water at my desk all day at work. This weekend while home I didn't drink water and had a horrible headache the entire time. I never connected it until I read that you should drink lots of water. Back to work today and drinking water and my headache is gone. It's worth a try, it might help. My husband is on Lisinopril/HCTZ combo, has been for at least 3-4 years with no adverse side effects.
We are all different, medication effects all of us in different ways. I hope I never experience the kinds of side effects I'm reading about here. If so, I'll be off the drug in short order. My dr. told me there are loads of other medications we can try. While there are side effects to everything we take, mild is ok but no one should put up with life altering and/or life threatening side effects like what I am reading here.
-- By laurel08 | Reply | (5) replies | Private Message me
August 25th
2008
3:39 PM
I have a 17 and 9 year old and I'm 37. I figured this would work better for me than the pills. I had it "installed" in May...at least that's what it felt like!!! It was HORRIBLE for me to have it inserted. I swear they actually put it in my tonsils and not my uterus. I had severe cramping for a week and I almost went to the ER. After that, I have had an occasional quick cramp here and there and a day of what makes me think of "old period". Light enough for just a liner, not a pad.
I have had NO side effects with the Mirena, THANK GOD! It was a great choice for me. Other than the horribly painful insertion, everything else has been great!
-- By javamama | Reply | Private Message me
August 19th
2008
4:44 PM
I am the mother of a 23 year old who has been on Yasmin for 5 months.
Her dermatologist prescribed it for her without blood tests for acne. She went to a gynecologist who did a blood panel and said her testosterone levels were four times the normal level and agreed with having her put on Yasmin. We as her parents were totally against this decision.
Since she has been on Yasmin she has suffered severe abdominal pain with periods. She had an ultra sound and nothing was found. She then developed an infection in one eye. Very red and itchy. Took steroid cream for that. Then in July came down with strep throat. Antibiotics for that.
Since then she has had 3 bouts of strep. Every time she gets off
antibiotics she comes down with another bout within a week and a half.
She has also had a lynph node in her neck swell up to a huge size you
could easily see. Doctor said it was a byproduct of her strep.
She is now contemplating having her tonsils taken out. I am at my wits
end. I know all this chaos is from this pill and am trying to get her to get
off it. It is so sad and exhausting watching my previously healthy daughter go through this. And she still isn't convinced all this is due to Yasmin.
I have read so much on this pill. The doctor's hand it out like candy. Anyone got any words I might use to convince her to get off this killer?
Thanks.
July 28th
2008
9:42 PM
I was prescribed Adderall 30mg tablets 3X's daily. Right from the beginning I found that the Adderall caused a very very annoying agitation to my throat. The only way I know how to describe the sensation is that it feels almost like I have phlemgm stuck in my throat,it causes me to almost continuously cough and gag so that I can clear my throat,but, nothing ever comes up!?? I'm wondering, could the Adderall be causing minor swelling or inflammation causing my throat to feel this way. If so, does anyone know of anything that would counteract this reaction?? I would hate to have to discontinue this medication as it helps me so much as far as staying focused. If anyone has any idea as to what I could do to make this bad reaction go away or to at least make it subside somewhat, I would be so grateful!!!!
-- By frogger1979 | Reply | (2) replies | Private Message me
July 18th
2008
8:38 AM
My son has been taking Singular as well as Advair and Zyrtec and Nasonix for the past 6 months. He is doing so well. He has not had to go to emergency, he has not been sick, and he has not had mood swings. If you look at the prescription information that comes with Singular, you can see what the side effects can be. My recommendation is to take your child off of them if they have a side effect. I contacted my Dr. and Merck is studying only 1 case with a child that had side effects, but they did not say if this child was on other Psych medicine at the same time. The 2 psych meds that have shown a bad interaction with Singular are Phenobarbital and Rifanpin (spelling may be wrong). With all the posts I have read, very few people indicate if they are taking other medications at the same time as Singular. My suggestion is that you consult your Dr. and then send your case to Merck for more studies. If all you are doing is posting on the web, you are not solving this issue with the makers of the medication.
-- By motherbird | Reply | (4) replies | Private Message me
July 7th
2008
4:55 PM
I had the same steroid injection for tonsillitis this past January in both cheeks. I now too have noticed a large indentation in my right butt cheek. I was never informed of this possible side effect either. I would definitely be interested in pursuing a class action regarding the disfigurement of my previously favorite body-part. Had I been informed of such, I would have just had my tonsils removed!!
-- By pahoral | Reply | (5) replies | Private Message me
June 30th
2008
11:53 AM
Concerned citizen!!!
Just had to share the news! 3 months after stopping singulair and taking omega 3 (for last 3 months) has resulted in my 6yrs olds cholesterol going down from 236 to 202! Absolutely no diet change, in fact he has been eating worse due to throat condition/tonsils. Makes me go HMMMMM!!!
June 26th
2008
1:35 PM
Update. The count down is on. Next week on Tues my 6yr old son will be having his tonsils removed. Only 5 months after the adenoids were removed. I am hoping once this is over the improvements I have seen will just get better! His sinus drained in April, 9 days after coming off Singulair after battling sinus infections for entire year or more actually. When his sinus drained the infection went right into the tonsils and he has had tonsillitis ever since. One thing I wanted to share is that around the same time he came off singulair we started omega 3 supplement. Both my son and I stopped Singulair the same day. We both started the Omega 3. Last week I had to stop his dose because of the upcoming surgery because it can thin the blood. I noticed this last week his nasal allergies kicked in. He did pretty good through this allergy season and wasn't on any meds a lot of the days. I hardly had to take allergy meds this time around also. Im allergic to trees/grass and this is usually my bad time. I really feel the omega 3 has helped a lot!!! I am also waiting to get the results of his blood tests to see if his cholesterol has gone down. Just wanted to share!
-- By sp2008 | Reply | (6) replies | Private Message me
June 10th
2008
5:55 PM
PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.
Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.
Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.
So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).
We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.
I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.
-- By calebsmom | Reply | (4) replies | Private Message me
June 6th
2008
3:17 PM
WOW!!! I am glad I came across this website. I have twin boys that will be 7 this month. One has been on Singulair for about 3 years for allergy induced asthma and my other son has been on it for 9 months for allergies. I am taking them both off of it today. The son that is taking the medicine for 3 years has become increasingly angry and gets upset over small things. Over Memorial weekend, he lost a game he was playing on the wii and exploded. He was banging his head and then started to hit me. NEVER in my life have I seen him attack anyone. A few days later he threw rocks at his friend because he wanted the wagon. Over the past 3 years I have noticed some change in him and just took it as growing pains. He has always been a strong will child. However, over the past 3 years he has gotten worse and since he has physically attacked me and his friend, I have decided to send him to counseling. Now I firmly believe it is the Singulair.
My other son has been on it since August. He started to have anxiety within a month of taking it. His behavior has been stressed, depressed and not wanting to play with other kids. He was biting his nails to a nub, licking his hands, not talking to anyone at school and rubbing his head. I have also noticed he does like to look at the person he is talking too. Of course I thought the worse and thought he was being molested. I went to his Teacher and she has worked very hard with him, but he is still a loner. If you knew him before, he played with everyone and enjoyed life. I was told by his Ped. that he had anxiety and to have him see a shrink.
I am hoping that after taking them both off this medicine, I will see improvement.
-- By nradovcich | Reply | (2) replies | Private Message me
June 5th
2008
9:55 AM
Update.... well my 6yr old son came off Singulair on 3-29. His sinuses drained finally (only waiting past year for that to happen) 9 days after coming off. His sinus problems have been gradually going away. He is now only taking claritin and sudafed when absolutely needed. BUT he started with sore throats. He never had a problem with tonsils only adenoids which they took out in Feb. Now since stopping the Singulair his tonsils have become constantly infected and twice the size so he will be having them removed in July. Some of the antibiotic don't seem to be working as he has been on them so much over past year. Im wondering if the Singulair was hiding the fact there was a problem with the tonsils as well.
-- By sp2008 | Reply | (3) replies | Private Message me
May 30th
2008
1:13 PM
Reading these postings have brought me some comfort. At least I know it is not all in my head and that Mothers Intuition is still a strong powerful gift! My 4 and 6 year old were given Singulair. My 4 year old daughter came down with her first ever case of swollen glands. She could not eat any food and spent the next 2 months drinking from a straw. All tests came back negative, antibiotics didn't work, steriods didn't work and the ENT said I should remove her tonsils. After 2 months of being on all kinds of meds and her steriod treatment was done I decided to take her off Singulair. I just thought her body should be drug free for awhile! Within 2 days she was completely "healed". I will never give her Singulair again.
My son is 7 and I have just decided to stop his treatment of Singulair also. He has constant complaints of belly aches, grey stool, trouble sleeping and sudden tears. I just thought it was stress with school work, peers, etc. but I don't think so anymore. We seem to try to "understand" why our kids are having certain stress like symptoms but I think we need to look at our medicine cabinets first. They are small people on strong meds and I just don't think their systems can handle it. I think I am going to visit a nutritionist not pediatrician the next time I need help!
-- By fullcircleof5 | Reply | Private Message me
May 14th
2008
9:36 PM
My baby is 3. She had strep throat from Jan to April. I'm talking off the antibotic for max 4 days and the fever would return along with swollen glands, difficulty swallowing and just plain miserable. Took me 2 ENT referrals for someone to finally agree with me that this is not normal and something needs to be done. We scheduled a T & A for April 18th. The surgeon told me that she had a severe sinus infection as well (surgery day). He recommended that we start Singulair 4mg at night along with Nasonex to possibly help with her constant sinus congestion. I gave it to her and noticed nearly an immediate a change in her disposition.(looking back now) At the time I simply chalked it up to having her tonsils out. She was on the medication until Friday May 9th. Her babysitter said that she was seeing what I was at home...only I hadn't shared my dgtrs behavior at home with her...call it guilt for being a single mom who works...I just thought she was having trouble adjusting from a week at home with mom from the surgery recovery to getting back into the "norm" routine. At home she would cry at the drop of a hat. Not just wimper or whine....but tears and screams for nearly an hour. I would ask her why she was crying and she'd simply reply "I don't know Mommy." One minute we'd be playing and she's be laughing and the next she was angry and anxious. She would complain of "tingles in her feet"...I thought she had just been sitting on her legs and her foot had fallen asleep. She would deliberately instigate her older sister...totally not her. She became fearful of her room at nighttime...and took for ever to get to sleep. A co worker had mentioned that a little boy she worked with had his medicine changed b/c the dr said one of his meds may contribute to his behavior issues. Being a nurse I asked what med...SINGULAIR. I immediately went to the web and googled singulair. I found this site...and began to read parents horror stories of their experiences. She has not had another singulair nor will any of my children - EVER. I feel guilty that I didn't take the time to research it before I put her on it. I feel blessed that I was in the right place at the right time to find out about this site. I thought that my kind and sweet little girl had turned into. I know it's only 5 days off the med but she's back to her sweet self about 75%. I am blessed that my experience was not even a month long...but losing your child to a medication that no one warns you about even for a day is WRONG. I think I would be more "forgiving" if anyone along the line of me picking up the med had said ANYTHING...but no one said a thing. My prayers are with those who were not as lucky as I was to stop this med so quickly. I hope your children return to their pre singluair selfs quickly and permanently.
-- By rhondajrowles | Reply | (1) replies | Private Message me
March 31th
2008
2:27 PM
I have been taking Singulair since it has been on the market. At first along with Advair (that's another disappointment) and now with Loratadine. I have had huge problems with depression, suicide thoughts and horrific mood swings since starting Singulair. It has affected my job performance as I have no motivation to do the work. I have lost interest in being around other people and just want to stay home. I have headaches like no other headaches I ever had; experience anxiety and anger for no apparent reason; sinus problems and troubles with my tonsils getting hard, hurting and producing much crypt fluid. I really don't feel at all like me and this has caused me real concern and diminished my "friend pool" and respect among colleagues because I am erraditic in moods, avoid contact and my anxiety and lack of confidence anymore induces incessant talking. I have read many of the posts and feel so sorry that children have suffered so much taking this drug. I have been in cognitive behavioral therapy and my family physician has a real concern for my well-being and really tries to remedy my depression. I have stopped taking Singulair for 2 days and I know it is awfully soon to make any sound conclusions, but I feel stronger today and better able to cope with people. Being a teacher, I should hope so. I would have never believed that a drug for asthma/allergies would have such untoward effects. Singulair along with Advair should be removed from the market or at least only given to those who show no apparent emotional effects, it's not worth losing a life over.
-- By moosiegirl | Reply | Private Message me
March 29th
2008
10:57 AM
WOW! I just came upon this site after hearing about the singulair warnings from my dad. I have an 8 year old daughter on singulair, zyrtec, and advair for asthma since she was 5. Thursday night we came back from a meeting with a psychologist for an educational evaluation (recommended by the school). She has had problems with concentration and learning at school since first grade (she started singulair just before entering 1st grade). Prior to that, there was never any issue, in fact she was tested as a very bright girl by a different psychologist (at age 4 for admission into private school). The current psychologist diagnosed her as ADHD-NOS and recommended medication and suggested a speech therapist for a minor speech problem. The ADHD-NOS is because she feels she has ADHD without all the hyperactivity or true attention problems (no "classic" ADHD symptoms). Since we were having her evaluated, we also mentioned her horrible mood changes and temper. She falls apart over little things and gets very angry with her siblings, yelling about how she hates her life and wishing she didn't have a younger brother. Along with this, we were having her evaluated by an ENT for her sleep problems (very restless sleep, falling asleep during the day when others don't- she already has had her tonsils and adenoids removed). My daughter also has a poor appetite (she used to complain on stomach pains). This was just not the same, happy, energetic child I had a few years ago.
The next morning, I called the pediatrician and told him that I wanted to take her off all the meds. I felt they were causing her all these problems and he agreed that they may be. We have decided to take it one step at a time. The pediatrician feels it may be all interrelated. I am so shocked to see the number of kids with the same problems! I wonder how many of these kids are being diagnosed as ADD/ADHD because of these meds? It never occurred to us that these meds could be causing her so many problems over the years. As parents, we assumed her problems were just because of sibling rivalry, a picky eater, boredom at school, etc. It all makes sense now. My husband is a cardiologist trained at Hopkins and Harvard and it never occured to him that these meds could do this to a child until Thursday night when we were told to give MORE meds to our daughter. Hopefully, we will see improvement in our child and that no long lasting damage has been done.
Singulair (18) Kenalog (3) Mirena (3) Levaquin (3) PredniSONE (2) Avelox (2) Lisinopril (2) Zyrtec (2) Mivacron (1) Zithromax Z-Pak (1) Yasmin (1) Sulfamethoxazole (1) Advair HFA (1) Gardasil (1) Amoxicillin (1) Adderall XR (1) Advair Diskus (1) Anectine (1) Biaxin (1) Prevacid SoluTab (1) Doxycycline Hyclate (1)
November 7th
2009
3:47 PM
500mg 3 times a day for 10 days, vomited once, have had a horrible headache that started day b4 yesterday, still kinda have it, comes in waves, sux real bad lol
i have Sinusitis, Bronchitis, and a severe respiratory infection.
i see some guy on here mad cuz the doctor didn't tell him he would have bad headaches, like the doctor was going to know in advance he would. this anti-biotic affects different ppl different ways, its really not his responsibility to go over every single side-effect this very common anti-biotic is going to have, thats why the pharmacy gives you a huge pamphlet informing you on the medication, if you would had read it then you would see that headache, diarrhea, and constipation are all common side-effects
i didn't read it however, until i came here and read what i read, which is comforting really cuz at least i know why i have the headache so bad, and why i lost my lunch yesterday, was actually worried maybe i had an infection in my brain and thats why i had it, i know, sounds dumb, but what can i say, im paranoid lol
-- By rattle | Reply | (2) replies | Private Message me