November 29th
2008
6:42 PM
OH MY GOSH! I thought I was crazy until I found this site. Ok, I had my Mirena inserted January of 2007, and IMMEDIATELY experienced joint pain, pain in my hands and feet, and it's 22 months later.. the pain NEVER went away. I thought because I was a very hardcore athlete when I was younger, that this was par for the course, that I will be getting arthritis. I'm 34 years old. Crazy to say arthritis at 34? I think so. Well, I have been researching my symptoms for months and months online and gone to a few different doctors over this. My symptoms include chronic fatigue, headaches (on a good week 4 days out of the week), joint pain in my hands and feet, sensations in my hands and feet that feel like they are swollen (but they aren't), upper and lower back pain, heart palpitations, leg cramps, hair loss, ABSOLUTELY NO SEX DRIVE AT ALL, muscle fatigue, and I've gained 40 lbs since I had it put in... OUCH. NONE of this (except for headaches and some depression) was experienced before the Mirena. Funny, I never linked it to the Mirena. I've had my thyroid checked, been diagnosed with carpal tunnel (lol what about my feet? Good doc!) had blood sugar checked (nope, not diabetes!), well, now I'm on to getting checked for fibromyalgia. Kinda wondering though, if there is a link to fibromyalgia and Mirena, like it could induce it? Sounds like so many of you have the same symptoms, and many have thought the same things... fibro, diabetes, lupus, ms, hell, I even though lyme disease at one point. This is ridiculous... I'm having it out this week.
-- By smithbourne | Reply | (1) replies | Private Message me
September 17th
2008
11:00 AM
Hi everyone, i had the Marena fitted on 1st july 08, lasted 11 weeks and gave up, nothing but bleeding, cramps, weight gain, being bloated, pelvic pains too much too mention, i had it removed 11th September best thing i ever done, i have not felt this great since before i had it fit, yeah i admit after effects are not very nice, 2 days after removal i had chronic cramping and very heavy bleeding which has all stopped now. i Feel on top of the world, i think i will just go back to my Heavy bleeding and cramps which admit only lasted 2 days, better than that awful ALIEN
-- By minigirl | Reply | (1) replies | Private Message me
August 4th
2008
11:40 AM
my grandmother started prednisone the day after the fourth of july and that Sunday in the car she thought the radio was on, but when she went to turn it off it was off, she hears joy to the world all the time. Sometimes its louder than others but its always there. She started out on 40 mg a day for polymyalgia, now she is being tapered off of it but her doctor says shes not a typical patient and there is no way the prednisone triggered it. I think it has to be it cause it happened about three days after she started taking it. Anyone know anything about this kinda thing happening?******
-- By lindz82 | Reply | (1) replies | Private Message me
July 18th
2008
11:18 PM
I just got done reading a lot of this page, I was in tears. I'm a 23 year old female; I started taking Advair 250/50 (two times a day) about 3 1/2 years ago for COPD. Before my problems started I was working overtime every week, just financed a car a year previous, moved out of my parents and felt like I was on top of the world. Minus my general anxiety and clinical depression, I was only on 2 medications plus an albuterol inhahler.
I kept getting sick, was having trouble breathing, so I was put on Advair; at first It's like I read in almost all these forums...It's a miracle drug! I was able to breathe, but I noticed I was starting to feel pretty lazy, in 2 months I gained 30lbs. I kept taking it along with a lot of other medications for more problems that seemed to keep coming along. In late summer of 2005 I had a seizure while I was at work in a restaurant kitchen. I was opening and had passed out between 4 fryers and a flat-top grill; an ambulance picked me up. I kept getting dizzy spells and vertigo, I started having seizures a few times a week; I was released from my job on a long-term medical leave because of the hazard it was for me to work there. Things kept getting worse, It got to the point of averaging 17 pills a day because of medical problems. Before I got sick I weighed 131lbs, I currently weigh 170lbs. I was having seizures everyday, then every other day, and it slowly decreased over time. I went through so many tests, I'm still going through them. I started having really bad bowel problems which I'm still dealing with; It's sort of like IBS. I also deal with chronic daily stomach/abdominal pain; in a laproscopy, the doctor said that my small intestine looked like "a bag of snakes". Another daily pain that I'm still dealing with mouth/teeth/jaw pain. Although I rinsed my mouth out after each use, I believe Advair royally screwed my mouth up for life. My gums bled everyday, I had to use a kids toothbrush, my gums were peeling off; It was told to me that It's like a mouth yeast infection. The gums over my canines started receding and didn't stop until I quit taking advair. The nerves on my canines are exposed and partially rotted, other teeth have chips and are rotten around them. The gums above my canines are still raised and will still flare up from time to time. I haven't been able to work since August 2005. I've been denied disability twice. I have panic attacks when I'm around people. I'm scared to drive because I've had a seizure behind the wheel. I'm in so much pain everyday that I normally don't move unless It's to use the bathroom. I used to cook 80 hours a week, hang out with friends, and work out. Now, I can't work, can't be around people, and take enough medications to start a pharmacy. It's odd how it all seemed to start when I began Advair. One other thing, I'm constantly coughing up these weird mucas spheres. My advice if you're thinking about taking advair...well, I'll just say if I would have known that this is what it'd do to me, I would have chose bronchitis 4 times a year.
July 12th
2008
11:47 PM
I'm sorry to hear all the bad side effects you all had with lamictal. I was on lamictal for depression for about a month and a half. I started low, 25mg. But when I got up to 100mg I started to itch! No rash, just itch, about a half hour after I took it! I was in denial, of course, because I had been feeling on top of the world! I had a loss of appetite, which I needed due to the fact my migraine meds had me gain 40 lbs over the last 2 yrs and NOTHING would take it off. My energy level had come back....something the Abilify had taken away a year ago....I'm getting off that very soon. I hate it. It takes away mania for bipolar disorder, so they say, but I'm slightly different....borderline bipolar II,so it takes away my personality, my get up and go, my motivation, you name it. I'm only on 5mg. When I was on 10mg, it knocked me out....I'd get the kids to school, come home and sleep, and be in and out like a drug addict all day til it wore off in the afternoon. Anyway.....lamictal.....I'm back on it.........starting at 12.5mg a day, then 12.5mg 2x a day, etc up to about 50 or 75mg, no more than that. It was a great help to me so I'm not going to let myself get those darn itches again. I did notice a little bit of intestinal irritation in the beginning last time, but that was only for a few days. I take Wellbutrin and also take Topamax 250mg.....and have a ton of hair falling out....and acne, so i feel for those of you with those symptoms. And yes, I still get migraines and still am depressed. But life goes on....I have kids to raise. I just cry in the shower and in the car. The best to all of you....good luck with your meds! Keep on trying!
-- By robin43 | Reply | (1) replies | Private Message me
February 29th
2008
12:33 PM
I have been on and off BC for almost 7 years. I started taking the Pill when I was only 16. From then on I fluctuated between a normal teenager and young woman to a crazy, depressed, bloated she-monster. I went off all hormones for about 11/2 years, and I tell you, it was like someone had lifted a veil. I had the sex drive of a 13 year old boy. I ran two marathons and felt like i was on top of the world. Recently, with a new boyfriend, I had a pregnancy scare and so I decided I'd jump on the BC bandwagon again. WRONG IDEA!! The instant I started the pill, those old depressed crazies came back. So, what did my doctor do? Told me to go on the NuvaRing. HAHA!! Not even three days into it, I'm already feeling exhausted, limited sexually and I have a rash on my face. Enough is enough..Hormones are the worst things to mess with, especially when you are so young. This country needs to stop being chained to the pharmaceutical companies and start opening up their eyes. There are reports of animals being affected by BC. Seriously, check it out. It's scary!! I'm going to go to my doctor and demand a change. I'm looking into IUD's. Take a look for yourself. And not Mirena...that still has hormones. I'm talking the old fashioned piece of plastic "T" that will last for 10 years!!! Ladies, do what's best for you, but honestly enough is enough. Don't be a slave to the worst group of people since the Railroad Barons of the 1800's!!!
-- By bwarethechair | Reply | Private Message me
February 12th
2008
8:42 PM
This is my second course of Prednisone after several UC flare-ups. First time I was on 40mg for 2 weeks, then tapered down for two weeks. My first few days on Prednisone were great. I finally had energy, I was in a great mood and finally felt like I was living again. After 4-5 days, the weight/bloating began. My fingers and ankles began to swell, then my face. I no longer felt "alive" anymore, more slovenly. None of my clothes were fitting either. I developed a very noticeable "muffin-top" that made buttoning my pants difficult and wearing and snug t-shirts embarrassing. I returned to my doctor after my two week course (prior to tapering) and found that not only did I gain 12 pounds in two weeks, but my blood pressure had increased dramatically. I was assured that once I quit the Prednisone, my weight should return to what it was, as well as my blood pressure. Sure enough, they did.
I would have to say the very worse part of taking this medicine, for me, was not the two weeks that I was on my 40mg course, nor was it the two week taper, but the two weeks after stopping the medication. My energy level was completely zapped, but I couldn't sleep. I also had the worse headaches and mood swings. I would snap at my family for the smallest of reasons. This medicine introduced a side of myself that I never want to meet again.
Unfortunately, here it is 2 months later and I have been prescribed another course of Prednisone due to another colitis flare-up. I thought I was prepared for what this medicine will do to me since I experienced it once before. However, this time is nothing like the last. Unlike last time, I have yet to feel "on top of the world". My bloat came on quicker this time, as did my mood swings. I am depressed and really hating what I have become. Fortunately, I have enough sense to realize a lot of my depressive thoughts and mood swings are a result of the Prednisone, but it doesn't make it easier. My vision is blurred and for the first time I understand what others are talking about when they speak of foggy brain. I am physically present, but definitely not coherent. I just want this medicine out of my system. I would rather deal with the intense cramping and bloody stools from my colitis, then have to ever go on this medicine again.
-- By thewhiterabbit | Reply | (1) replies | Private Message me
January 21th
2008
1:31 AM
Dear Users,
At first I thought it was just my imagination seeing that I have recently undergone angioplasty with stenting I should be feeling on top of the world but then I started developing breathlessness and muscle aches with the occasional sleepless nights which my specialist could not explained and attributed it to my genes as my elder sister had the same experience. However, now it has gotten worse with sudden piercing pan to both my shoulder blades right to my finger tips. I am in a way glad to have found this site and know that others have the same problems as myself. It would be a good thing if all patients are warned of these side effects.
Mirena (3) PredniSONE (2) NuvaRing (1) Lamictal (1) Lipitor (1) Advair Diskus (1)
November 17th
2009
4:33 PM
I have had Mirena in since May of 2008 and have not felt the same since. In the beginning the headaches and fatigue that occurred was constant. I decided to give it time to see if my body got used to the progesterone and to also figure out whether or not it's having three small kids. Over the last year I've noticed when I have spotting, which usually occurs once or twice a month, I feel downright awful. One day I'll be on top of the world and energized...my normal self. The next day I'm spotting and the extreme body fatigue, leg an hip pain, foggy head, and depression occurs. EVERY time it is linked to the spotting. Which makes me believe that it has something to do with the IUD. I am scheduling an appointment to get it removed asap. I'd rather have my body go through it's natural processes and rely on that process than to feel this bad unexpectedly. Can't wait to remove the IUD!
-- By ckroeger | Reply | Private Message me