July 4th
2009
10:58 PM
I was told by my doctor to go to the ER for my severe migraine. I was given Reglan, Toradol, and a third drug that I cannot remember. The drug was given through an IV. About four or five minutes after the drug was given (I was in the room alone) I began to feel strangely. I wasn't warned about any strange side effects so I began to worry what was going on.
The side effects started by feeling a GREAT and inexplicable sense of urgency...like I needed to get up and run somewhere important RIGHT AWAY. Shortly after, like thirty seconds later I was forced to jump up out of the bed, it was literally painful to be sitting in the bed. I needed to move...and NOW! I was trying to rationalize my behavior. I felt as if I was given some kind of psychological drug that screwed with my mind. I began to feel a terror unlike any terror I have ever known.
I was trying to reason myself back to calmness and sanity, but I began to feel the rest of my body go into convulsions. I was standing on the side of the bed in my hospital room and I clutched on to the bed rails and started rocking and twitching and crying hysterically. I wanted to rip my IV out and run like crazy. I became claustrophobic and my heart was pounding out of my chest. I was covered in a cold sweat and I felt like a knife was going into my heart. I was convinced I was having a true heart attack.
My doctor happened to walk by my room and the curtain was half open. He saw me crying and writhing on the side of the bed. He laughed at me and asked me what was wrong. I politely reminded him that he was the one with the medical degree and that he should tell me what was going on. He smiled a Mr. Rogers kind of smile and said, "dystonia....that's all. So, just relax." He made me sit on the bed and that is when the full body convulsions started. I was flopping like a fish out of water on the bed and the nurse started getting short with me telling me I needed to "calm down." I politely told her that it was not my disposition that was causing the freak out, but the chemical that she pumped me full of.
I kept asking what was going on and what "dystonia" was. I was treated like an irrational child and the doctor sat smiling at me like I was crazy. I was convinced I was literally dying. The nurse put the blood pressure cuff back on me and she started freaking out saying that if I didn't control my heart and bring it back down to normal that I was going to have a heart attack. I told her that was my complaint from the beginning of the allergic reaction. I thought I was having a heart attack.
Reluctantly, (and after ten minutes of suffering the most painful and slow torture) the doctor prescribed some benadryl. I was begging him at this point to sedate me because the pain, panic, and body convulsions were beyond my tolerance...that and I was terrified and not getting any answers. The doctor held me down in the bed after the benadryl was administered and he kept insisting I go to sleep. How can you sleep when you are suffering those kinds of symptoms and convinced you are dying (without so much as an explanation as to what is happening to your body)?
I eventually fell asleep five or ten minutes later and woke up being wheeled to CT scan for my migraine. The worst part was that I was begging for my husband the whole time (who was just outside the room fighting with the billing department). The doctor told me that he was going to get my husband and then just left. I went through that whole trauma alone.
And when I was released from the hospital two hours later no one ever bothered to explain to me that the muscle spasms, heart pain, palpitations, and panic attacks would continue for some time as the drug worked its way out of my system. The side effects lasted on a much more mild scale for two days following this episode. I wouldn't wish this terror on the worst person on earth. Why is this drug even offered to people?
-- By smile_mara | Reply | Private Message me
February 19th
2009
5:07 PM
I just wish I could wear a sign that says: I'm sorry about the last 3 years. I have an excuse why I was a complaining bitch.
UPDATE:
I had mine removed 5 days ago. After 12 hours, I had a burst of energy... was still really achy, but mentally ecstatic.
The next day was not so good... the high was over, (and I was coming down with a cold), so very achy joints. I ate a lot of chocolate!
3rd day was so-so. I was in control of my emotions, but really achy. I found an old Rx for Toradol that worked well. Ate more chocolate.
Yesterday I felt fantastic, and today even better. I have had no cravings. My aches are 90% gone, without drugs, and I have not had any depression, anger, or feelings of despair. In fact, I found myself singing some goofy song from Dora The Explorer today, and my son looked at me really strangely and started giggling. I think I'm back!
June 24th
2008
5:37 AM
I have had so many shots of
Corticosteroids/NSAIDS/Steroids:
Triamcinolone Acetonide, Kenalog, Depo-Mardol, Lidocaine, Marvaine, Toradol, Epinephrine, Bextra, Xylocaine, Isovue.......on and on and now I do not walk hardly anymore.
I am married, no sex whatsoever! I stayed away from my husband for 3 years almost, living at my apartment. I just moved out by Eviction March 2, 2008. I did not pay rent for one year. I applied for disability since 1995. Won ALJ decision September 2006. I appealed the case being opened back to 1995. I wanted it go go back futher. Just appealed it again in 2008.
Okay, I am a simpleton out here needing a HERO to Take A Stand and Advocate for me.
I do not live with my husband. I live at his mother's home so that he comes and takes cares of us at the same time. She is 90 now. Can you imagine this? I have been reduced to a cripple.
I am a prisoner laid to rest by the BIG DRUG COMPANIES MISLEADING ME, IN NOT KNOWING ABOUT THE DISEASES THAT WOULD ATTACK ME IN THE ONLY LIFE THAT I HAVE.
I wonder if my hip bones have collasped. I have terrible bone pain.
I waddle like a duck, side to side with extreme pain until I freeze up and fall, but mostly, I live with a cane at my side when going out and about.
I now need a wheelchair.
From 1980's, 1990's and now all the way to 2008. I have all medicals.
It was not until 2003-2004 that my life took a turn for the worse.
Hips pain, arms pain, shoulders pain, pain in the Thorasic area to the tail bone area, right groin pain/pubic area pain/gentials, stomach sores/cut out, pain on the scalp, calves feel hard in side/stiff at all times, hamstrings are short,open sores have been on my face, arms and neck lasting for 4-6 mths, low back pain....all of me has been injected with the above crap.
I was doing quite well in life until 2004 when this Orthopedic doctor had shot my left shoulder 3 times.
After this June 2004 event above, and by September 2004 I had walking problems, blamed only on Fibromyalgia, DX 1989.
They took one blood test for Polyrheumatica.
I was fed 20 something meds in 2004.
By 2005 I was devestated in life, health and even wanting to be alive. For one full year I lived on the pot, using Lidocaine up the butt 3-4 times a day for the pain.
Now, looking back at this part, no wonder I had extreme skin blisters, hives, rashes, extreme sweating....this Lidocaine for rectum pain was harming me and no one took me off of it. I finally had my pharmacy tell me this was so wrong to be using 134.00 a month for over one year for pain. I stopped!!!! he seemed to say that I was being harmed.
Suddenly, at my clinic, all of my primary doctors began to do trigger point injections weekly, monthly and for 4 years for my Fibromyalgia comlaint. DX in 1989.
Many NSAIDS for one year, 2003-2004.
In 2003 I had a new denture and a few teeth extracted so that I smiled great when got married April 2003.
By August 2003 I was off the State HMO, had housing city of salem voucher for 5 years at my apartment and was planning to move out and be at my husband's home, but...by September 2003 I was already in some medical exams, new meds and was being normal to a point.
By late 2003 to mid-2004 I was feeling strange about my health. I felt as if I was being sucked dry of any fluids, weird to say, but it felt as if...hard to explain.
I was dizzy, vertigo, some balance problems and like itching, sweating and extreme fatigue. I felt like i was melting. My muscles felt like jello. I had no ability to stay upward on my spine.
I did complain to my dentist and doctors that I was feeling numb on my face and gums by may 2003.
After 2 years, leaving room for a possible lawsuit on the dentist/OS, I filed, had one deposition and my lawyer walked.
I had laughing gas for teeth extractions/numbing shots.
I thought that GAS/SHOTS was to be blamed, maybe the tools they used, or the water and I worked this case to the bitter end, sad to say, that a Lawyer Walked On Me.
By 2004 I did not know what hit me with my health issues..dentists/new meds/new marriage/new doctors involved.
I was in a drug stupor, taking almost 30 drugs from this clinic in 2004.
Prescribed and the samples of Vioxx, Mobic, Celebrex and Bextra.
I had so many Toradol shots to my spine and hips at this clinic and thought they had crippled me.
This doctor humiliated me.
Told me that I was a nut.
I now needed long term counseling with all of the body ailments they all told me. My primary doctor told me many times that NONE OF THE SPECIALIST NEEDED OR WANTED TO SEE ME FOR ANYTHING.
Nothing was hardly affecting me when I got married April 2003. I was a knock out!
The Gastro doctor had me on his 3 drugs also, including that daily Lidocaine up my butt. He did the endoscopy and colonscopy, bloodwork and he said I had Atrophic Mucosa.
He was in direct conflict with my Neurologist who did his own work and he claimed that I was Gluten sensitive, a Celiac now. He gave B12 shots and Folic Acid on top of all the other crap that I was taking.
The Hospital did a spinal tap and may tests.
The pain specialist did his epidurals 2 times.
I have had every NSAID they prescribed me.
I had sleeping pills.
I had anti-depressants.
I had Vicodin to Percacets and then they tried to get me on Methadone. One week on that crap was all.
I notice that Depo-Medrol, Marcaine, Lidocaine was mostly used thru out my life.
The pain specialist above that I used in 2006, also shot me with the epidurals 2 times before 2006, and the O.H.S.U. also shot me with all the above when they DX me with Fibromyalgia 1989.
Then many Toradol and Kenalog shots.
I live with daily diarrhea since 2005-2008.
My legs are always red every day with any walking, sleeping, sitting, balance is off, waddling gait.
My feet pain is as if I walk on glass or rocks....sharp pain now for 4 months.
Arachnoiditis fits me well. I have spoken with the doctor/expert that can test me.
I have been searching since early 2004.
I have no way to know who or what to blame.
I even thought that the MRI's Contrast Agents harmed me starting from the past to now.
I left the clinic that stole my life from me and now have a new doctor at Kaiser Permanente.
I am scared of all doctors now.
I have 4-5 meds right now.
Not one doctor or specialist will DX me. I have a thought below...
I fought the medical community WORLD WIDE back in 2002-2003 with the President Dr. Richard Willner, of Retired Association of Physcians and Surgeons. My two other sisters were in this heated debate.
I was told to expect danger at any time after this online 30 page cruel attack by the doctors on my wrongful death of my mother by her doctors/nursing home/hospital.
I proved this case.
The lawyer in Portland, Or. Judy Snyder told me I did extremely well proving this death was murder...but the Medical Consultant who did the summary of this death was hushed up!!! Later on, after another summary by Medical Consultant, she told me that we would be lucky to get $10,000 for a Nusiance Claim. I tried to get one Lawyer before the statues ran, but no luck. I heard that the Elder Abuse Statues ran for 7 years and to try for that. Oh well, I tried.
Joanie K.
-- By killthepatients | Reply | (1) replies | Private Message me
October 31th
2007
12:21 PM
I first posted about 6 weeks ago when I began taking Topamax at 25mg a day. I'm now up to 100mg a day, 50mg am/pm and surprisingly it seems that most of my side effects have subsided. I have the tingling in my fingertips and feet now that I didn't have before, but it is rare and not something that keeps me from any normal activity. Sodas still taste flat but I've adjusted to that, beer is something that also tastes flat and that is rather disappointing. The only thing I've noticed is that I tend to have a slight headache most of the time that taking Advil will cure. I don't know if this is caused by the Topamax. When I do feel a migraine coming on, it seems to take days and never fully matriculates and I have to get a shot of Toradol. All in all, this is much better than the weekly migraines I was having.
-- By kirbe380 | Reply | Private Message me
August 1th
2007
9:12 AM
I had a shot of Imitrex in the hospital for a migraine and it made me feel like my head was on fire!!! I hated it so much. They gave it to me as a perscription in pill from the next day so I thought maybe since the other one was a shot this wouldn't be so bad. I took it with my husband home because I was afraid to take it alone. I felt fine for the first 10 min then my head started to burn and my whole body started to ache and I could not fall asleep it was horrible!! It got rid of my headache but I rather have the head ache than having my body feel like its dying!!
-- By tiffany13 | Reply | (1) replies | Private Message me
Toradol (5) Mirena (2) Toradol IV/IM (2) Toradol IM (2) Imitrex (1) Topamax (1) Kenalog (1) Reglan (1) Dilaudid (1)
September 25th
2009
9:29 AM
Well I had Mirena inserted yesterday and immediately after I was in the worse pain ever. I suffer from dysmenorrhea and it felt one of my worst days I was in the doctors office for 2 hrs. I finally got a shot of Toradol for the pain which made my right numb.About an hr after i threw up and was still in pain. I slept collectively for about 15 hrs and had to take 2 aleve when I woke this morning. Hopefully I won't have any of the above mentioned symptoms. I am so scared to have this thing taken out.
-- By blu8ice | Reply | Private Message me