Tremendous pain symptoms and conditions

Reading all this horrifies me since I have been on Remicade for almost 4 years for Crohn's and a still unidentified Inflammatory arthritis of some kind. I will pray for you all. But, on another note and by no means an attempt to diminish the severity of each account in this blog, I have had no such side effects and for the most part have had great success until recently. My Crohn's is and has been in complete remission since the beginning of the infusions. However, I have had increasing inflammatory issues in joints between infusions. I get 5 vials and they give me Solumedrol in the IV. I ended up in the ER last night because my joints were all frozen up and it was just unbearable. They gave me Solumedrol and Morphine, and I am 75% better today. The frequency and severity of the arthritis issues has gotten increasingly worse over the last 6-8 months. I get infusions every 8 weeks, and start to have severe joint pain after about 4 weeks. All that being said, it is appearing like Remicade is still working brilliantly for Crohn's but is having little to no effect on the inflammatory arthritis. The steroid they give during the infusion is what I think is doing the job for the joint pain since I was a 10 last night in the ER, and I am 3 this morning pain wise after getting the steroid. My case is unique and frustrating to the Rheumy b/c my sed rates and RA factures and C-Reactives are all relatively normal when I am in tremendous pain. So, they just ran alternate tests the other day to look into things like Myeloma and so on. I don't believe that Remicade has done any of this. I believe that Remicade's benefits for MOST people greatly outweigh the risks, especially when you are incapacitated with Crohn's etc. But in my case, it just does not seem to be working for my joint inflammation.

I took Levaquin for 20 days for a sinus infection. It wasn't until that last day that my right knee was in tremendous pain; I couldn't straighten it out or really move it. It's been almost 2 weeks since I stopped the Levaquin and my right knee is still painful. It feels really tight and if I turn my leg I get a sharp pain. I have to walk gingerly or I will have a shooting pain in my knee. I also have pain in my elbows and my right thumb, along with sporadic headaches. The pain seems to change daily. Does anyone have any experience as to whether this thing will go away -- every?

My experience with Lisinopril is brutal! I'm 37 years old and was prescribed this drug for high blood pressure. After 2 yrs. on a 10 mg. dose per day I started having numbness in both of my arms I also had sharp pain shooting down both arms at night to the point where I couldn't sleep.And when I did fall asleep I would just wake up an hour later in tremendous pain. Ive been to three doctors. They tested me for carpal tunnal and told me I had it. But didn't schedule any plan of action, so I thought with some rest it would go away but it didn't It got worse. Then I started to have severe back pain that went clear through to my So the doctor wanted me to get an ultrasound of my testicles to check for testicular cancer. The test was negative. Since the pain was on the right side in my lower ribcage area they then thought it may be my kidneys. They then sent me to a urologist who wanted to go up my penis to scope my bladder with a camera and check for bladder cancer. Which turned out to be a very very painful experience. There was nothing wrong he said. During this time the pain was as bad as ever. Then they wanted to do exploritory kidney surgery on my right kidney. I was thinking my god am I gonna die.....I went through the surgery and the doctor said there was nothing wrong.I could not believe I was in this much pain and they couldn't find anything wrong. I thought I was dying for real. Then I decided to go on web md and try to find out anything that it could possibly be. I couldn't find anything with all the symptoms that made any seance. A few months went by with no relief... I decided one day to google my medication (Lisinopril) and joint pain, w/ arm numbness well. This site popped up and I started reading and Im glad I did. I believe that for the past year that I thought I was dying and no one could tell me why is because of this toxic poisons pill Ive been taking for two years is the reason for all of it. Ive spent thousands of dollars, had two surgery's ,went through all this pain all because of a little poison pill for blood pressure. I have flushed my pills and I,m never taking the drug again. I warn anyone who has high blood pressure if your doctor mentions the word Lisinopril tell them no!!!!!!!!! It is poison for the body.I believe it would killed me if I hadn't stopped taking it and not one doctor mentioned it may be the pill I was taking everyday for my blood pressure.

Wow, this is so scary! My boyfriend, incredibly strong and physically fit was put on the antibiotic for a UTI and has used the antibiotic maybe 5 or 6 times over the past couple years. He noticed severe pain in his feet and went to his family doctor as well as an Orthopedic doctor, neither came to the conclusion that this drug was his problem. We just found all of this information that has answered so many questions as his tendons have been torn in both feet for quite a while now with no explanation. Does anyone know....IS THERE PERMANENT???? He is also having soreness in his biceps as well as in his shoulder area? He just stopped taking the drug and any information would be great! I believe that everyone should get together and sue these drug companies...this shocks me!

This site has been a god send. I had mine placed 2 weeks ago and its been horrible. I've been telling myself that everything is going to be fine, but its hard to believe that. Getting it put in put me in tremendous pain. I could barely walk and i had to work a 10 hour shift an hour later. After 2 days the pain went away but i started to notice random bouts of depression. Ive been a totally different person, Im happy and laughing one minute and the next im in tears over nothing! What made things worse was I was starting to feel nervous and shaky on top of wanting to cry all the time. I figured it had to do with Mirena because ive felt this way once before and that was when i tried the depo shot. Within the last few days ive noticed an unusual discharge and itching. Ive been thinking it might be a yeast infection but i have never had one. Its just one more thing im contributing to Mirena. I dont want to get it removed because its nice not worrying about pills or condoms but at the same time I think Mirena is making me crazy. Reading these posts really helped me regain some of my sanity. Ive also heard from many people who used to have an IUD that as soon as they had theirs removed they got pregnant. I know to use condoms but i dont trust them, accidents happen.

I was prescribed Levaquin in Feb./March for 30 days. I have had tremendous pain in my heels since then. I am walking slower as every joint and muscle in my body hurts. I can barely stoop down and it is getting worse. I can not sleep. I thought I was just going through some depression and stress until I started reading about it in the WSJ and now realize I fit many of the symptoms being discussed.
We all need to take some action as this is only going to get worse for everyone.
FDA?????????????????

Many strange things have been happening to me for the last year and a half, that I did not ever experience before. I just turned 38 years old. I am now suspecting these are side effects from the MIRENA. I want to get opinions about what I'm experiencing and what happens when it's removed.

The most profound thing is the feeling of being in a mental bubble. Even though I'm aware of it and I try to be alert, I feel cloudy minded and can't even rely on myself to remember things or commit to things because I never know how I will feel when I wake up each day. Some days are okay while others are completely LOST because I may have struggled to sleep the night before, sweating and soaking my pillow case and waking up with a rapid heart beat, panicking for no apparent reason right out of sleeping. Or, I'm irritable due to discomfort which takes several forms like these:
- major moodiness, like feeling totally peaceful one minute and then something small triggers me and I'm angry for hours, later realizing that I was overreacting
- visibly shaking hands, especially when I drink just 1/2 cup coffee.
- increased oily skin and acne on face, back, shoulders and even in ears, along with thinning hair around face
- fatigue and stiffness in the morning, so it takes me forever to get out of bed
- off and on fatigue that has me uncontrollably dozing off during the day
- bloated tummy (visible), gas and menstrual cramps in no predicable pattern, but I never go more than a week without these things
- strange libido, one day I wouldn't care if I ever had sex again, the next night wake up horny as heck at 2 am
- ears ringing, jaw pain, mystery pains in back and joints regularly

All along I've been assuming these odd things were stress and age related but the more I think about it, there's just too many things, and these things don't necessarily represent the stress of a typical stay at home mom.
Sure, I have had stress and anxiety in the past, but they could always be connected to something large going on in my life. Now, the anxiety and moodiness hit unpredictably and indiscriminately, it seems. For a long time now I feel like I'm a total mess physically and mentally, even more so because I realize something is wrong
I am pretty sure as of right now that I should get this removed. If the symptoms go away I'll then know what caused them in the first place.
I am wondering what happens upon removal, will it also be a roller coaster of physical and mental anguish???????? How long will it last?

Hi, I've posted before, but I'm back with a few new symptoms....
I have been taking Yasmin since I don't know when. I was one of the first at my OB/GYN office to get on it when it first came out. Egad, what a crappy, painful life Yasmin produces.
I seriously do not think that I have felt "well" since I have been on it. I have constant body aches, nausea, bowel problems, abdominal pain, tremendous pain in the gall bladder area which resulted in surgery that probably wasn't totally needed, leg pain and cramping (feels like a shin-splint...without having worked out), constant emotional outbursts, facial hair growth, absolutely NO sex drive, and migraines that I had never, ever had before...basically I feel like an ogre with a really bad case of the flu.
My newest "problem" is that my periods all of the sudden only last two days and are very light. I know that some people would be happy with that symptom, but this is NOT normal. One box of "Lite" tampons will last me 3 months. I think that this is the LAST STRAW with me and Yasmin. I just started a new pack, but I took the last one I will ever take this morning. I would rather enjoy having sex with my finance(I'm sure he would like that too because I just don't want to do it EVER right now), not bark at people or cry for no reason, have less body pain, and maybe...for once in many years...FEEL GOOD.
I really feel that if I continue on this crap...I'll either never be able to have children (which I do want), or I will end up killing myself or possibly my finance because I cannot control my emotions. For those of you who tout the wonders of Yasmin...I used to think it was great too before I figured out that I didn't feel this way before taking it. Feeling like shit every day of your life changes your outlook. I'll take menstrual cramps and ovarian cysts over all of this any day.

When a class action lawsuit is filed, let me know....this drug should be taken of off the market immediately. We started all of this with an OB/GYN that prescribed this “miracle pill” and now have had to go not only to our primary doctor, but also a psychiatrist, gastrenologist, college campus counselors, psychologists, psychiatrist, and the campus medical doctors; All the while, accumulating enormous doctor bills. All the doctors say, "No, Yasmin won't cause those problems" (except the college campus doctors..wonder why? Hmm.. could it be that they are not in private practice?)....well, I beg to differ. Everyone needs to give this website to their doctor so the doctors can hear from the patients that have taken this drug, and not listen to the pharmaceutical companies that are pushing this drug to be the "miracle pill". Maybe if enough people complain and go to the media, we can get rid of this drug!
My daughter who is 18 was put on Yasmin because of irregular periods, hormonal imbalance, etc. We were told it was the new “miracle pill”. It will make you loose weight, regulate your periods, clear up acne, you name it, it will fix it. Yeah, right.
She started taking this pill in March 2007. She was off at college but called to tell me she was experiencing horrible headaches, behind the eyes. She complained about her stomach hurting, but we just figured it was the stress of freshman year at college. Then she said she got where she couldn’t eat when she went to a restaurant. When she came home in May for the summer, I noticed a total personality change. For example, she was always a neat freak, and now she wouldn’t clean her room. The first day when she drove home, she started crying she was so mad about the traffic. Yes, she has always had a little road rage, but this was ridiculous.
By June, not only could she not be in crowds, like at a restaurant, but now she is having full blown panic attacks and IBS. We called the OBGYN and they said, “Yasmin won’t cause this, go see your primary doctor”. I knew that the only thing that had changed with her was taking the YASMINE. I knew it had something to do with all of this so I “Googled Yasmin” and this website (http://www.medications.com/se/yasmin) was the first one I looked at. All of her symptoms matched everyone else’s! I am so glad we found this website, it explained everything and I had her to stop Yasmin immediately.
So we went to the primary doctor, explained about the Yasmin and how we thought it was the culprit of everything. Of course this doctor also says, “Yasmin won’t cause that”. We told him to look it up on the internet and see how there are over 3000 complaints on this drug, more than any of the other drugs on the market.
Besides the emotional problems she starting having, her pulse and blood pressure was sky high, so he puts her on medicine for that, and puts her on an anxiety medicine and sends her to a psychiatrist. She is very thirsty all the time, and develops IBS. She can’t eat without having pains in her stomach. So, now we’ve have gone from having just irregular periods, to all of the above, plus a psychiatrist.
The psychiatrist doubles her medicine (and puts her Pamine for the IBS) because the panic attacks are gone, but she still is having a lot of nervousness, anxiety, can’t sleep at night, crazy thoughts, worrying all the time, etc. A month later he changes her medicine again, to Effexor. The first 2 weeks, she does okay, but the packet doubles the strength after 2 weeks. It takes 4 weeks for it to take full effect. Right after she doubles this medicine, it is like her senses are on hyper-mode. She can taste everything that is in her food (chili powder, seasonings, etc…), taste the metal in water, and she can hear someone’s phone vibrating, in another room.
Then she goes back to college at the end of August 2007, and it’s horrible. The Effexor is having bad, bad side effects. We called the psychiatrist that she was using at home and he doubled the dose. That was the worse thing they could’ve done. The side effects were worse than ever. I had her to immediately go to a psychiatrist on campus. She told him the whole story and he believed her! Needless to say we switched doctors. He then lowered her dose back down to ½ a dose and hopefully can slowly get her off of all this medicine.
The newest thing she has developed is being hypoglycemic. The campus psychiatrist sent her to a campus medical doctor and he told her that they would get to the bottom of this. He tested her for everything under the sun. Low blood sugar is the only thing they found. But, she hasn’t taken the Yasmin since May. No telling what the results would have came back like if it was done at the time she was taking Yasmin.
Thank goodness she has counselors and doctors there at the campus that believes that Yasmin can cause all of these problems, and are working with her. From what I have read from the people that have used this medicine, although most doctors do not agree, Yasmin takes like 6 months to get out of your system. I think I am going to believe the testimonials of the people who take this medicine, over a doctor who prescribes it.
If everyone goes to the media, their doctors, the FDA, congressmen, and make them aware of these horrible effects, surely we can get this drug off of the market! Does anyone know a class action lawyer that would pursue this? For my child to have to go through all of this is ridiculous, not to mention costly. What do we know of the long term effects this drug will have if it is doing all of this when you first start taking it?
If you have the same concerns as me about this drug, and would be interested in looking into a class action lawsuit, please email: ****** I would be interested to see how many would want to pursue this.

To flowerbabies,

thanks for your response. the pain I felt was more like all-over tremendous pain so much that even the shower water on them was painful and so much pain that I wish I could have removed them. It has since desisted though I haven't gone back to the shower but it was following two last days of this terrible aching/pain under my left breast -and while it feels like it is coming from my heart (under my left breast), I don't have a diagnosis for that?

"left atrial abnormality,incomplete right bundle block..... i have no idea what all that means,came across something that mentioned heart disease and also another report that mentionion arrythmia"...

I am absolutely confused about how so many of the Doctors are advising these physical results are all caused from Anxiety? Is that possible? How is it then that the Doctor doesn't explain more to you about what it means? What was the test that they conducted?

Would someone be willing to provide an overview of what the Linden Method offers?

I have had moderate to severe pain in my hip due to joint deformity and subsequent deterioration and arthritis. I am unable to take even one dose of any NSAIDs as they cause stomach bleeding. Ten months ago a doctor prescribed Ultracet for me and it has provided tremendous pain relief for me. However, one of the side effects that I first noticed was it aggravated neck pain that I had from a couple of degenerated disks. I couldn't figure that out until a few months later when I read the Ultracet could cause muscle tightness. That explained that, and that finally subsided in the last few months. I had some of the side effects others described the first couple of days but then they subsided. I find that if I stick with just one tablet nstead of the two prescribed, I don't have all of the central nervous system reaction that some describe...nerve twitching, itching, sleeplessness and agitation, but if I take 2 at a time, I have all of the above. I always take one in the morning and usually don't have to take another the rest of the day unless I overdo. Sometimes I will need to take more doses but I take it knowing that I will be itching and agitated. I have had a couple of doctors since that have had bad experiences with Ultracet personally, and they always try to switch me to a narcotic. I have not had any decrease in effectiveness or increased need or dependency, but I also figure that if I only take my one in the morning on a normal basis, and only supplement as needed, I won't have problems with addiction.

My 16 yr. old daughter is being treated for severe endometriosis with the Nuvaring. Started wearing it after first surgery, last May. She wears 3 rings over nine weeks, then has a period for a week. She started having lower back paing that interferred with her life in July or August. By her second surgery in Feb.'06, back pain was debilitating and she had to leave school and switch to home school because she is mostly bed ridden. Every movement causes her tremendous pain. She is currently taking five meds for pain, including morphine. She can bearly walk. Doc (GYN) says it's not related to anything in his department, yet MRI, bone scan, x-rays, blood test are all negative. While we are pursuing further testing, I believe that the ring may be responsible for this. So far there are no other explanations, and the research I have done so far is pointing in that direction. My once vibrant, active happy, college-bound teen is now 25lbs lighter, severely depressed and in constant pain. I hope it is something as simple as discontinuing the ring, and I hope that little ring hasn't been the source of her suffering all this time.

Tremendous pain and pressure in eyes. Broken ankle feeling. Sprained wrist feeling. Unnatural headache. Less frequent peeing. Insomnia. Severe fatigue. Depression. Detachment. Anxiety. Crying fits. Nightmares. Manic episodes. Saying wrong words and dropping things from my hand very easily. Confusion while driving in my own neighborhood. Calf pain, as though it were going to split wide open, and at other times as though on the edge of a charley horse, lasting for several hours. Extremely DEEP shoulder pain. Funny taste in mouth. Substantial decrease of appetite. Misc deep and quite disturbing pains in fingers and toes and hands and feet. Strange 'bubbly' sensations under skin. Strange 'wet' feelings (like blood running down) under skin. Sore to the touch 'sunburned' feelings on skin. THIS IS AN ABSOLUTE POISON AND MUST BE TAKEN OFF THE MARKET!!! STILL AFFECTED 3 WEEKS AFTER STOPPING PILL AND COUNTING!!! DO NOT TAKE WITH STEROIDS OR IBUPROFIN OR CAFFINE - MAY LEAD TO MULTI-SYSTEM ORGAN FAILURE!!!!!!!

I was given samples of Levaquin for a U.T.I. and read this site before beginning the pills. I was scared out of my wits by reading the postings and drastic and lasting side effects. I went to see 2 pharmacists, who assured me there were very few people who developed these reactions. I decided to try the pills, just taking the first one to see how I did, as I was in such tremendous pain from the infection and it was getting worse rapidly. I felt no side effects, other than a slight metallic taste in the early morning, and felt 100% better just a little more than an hour after taking the first one! I took one per day for 7 days and never had any side effects. I am now done with the pills and would recommend that people consider taking Levaquin and not being freaked out by the messages on this site- tho I realize each person is different, Levaquin worked well for me and I had less side effects than I can remember ever feeling from any antibiotic.