October 24th
2007
6:48 AM
Hello, everyone. I didn't know there was a page like this, but I'm glad there is. I've been on Topamax for 3 weeks because the medicine I was on for 2 years didn't do anything and the headaches weren't going away at all anymore; they were continuous. The first week at 25 mg I had the tingling for a day or two, the involuntary muscle twitches, the terrible mouth taste, and the chest pain. All but the terrible taste went away by the second week at 50 mg but I started getting wobbly legs and dropsy. I read an article somewhere where a person on Tomamax called the drug Stupamax or Dopamax and said anyone on it turned into a box of rocks. The box hit me at 3 weeks and 75 mg. I'm not wobbly anymore, I'm still irritatingly dropsy, and I am doing things that only a person with half a brain would do. Plus, my ears have been ringing for two days, and today I feel like I'm in a tunnel and everything is far away. I'm getting ready to call my doctor. On the OTHER hand, I haven't had a headache that lasted for more than a half hour in 3 weeks. So what's best? Going back to headaches or continue to evolve into a box of rocks?
-- By justforkhix | Reply | (2) replies | Private Message me
October 3th
2006
11:29 AM
Rash ???
I am under Treatment for Bi Polar using Lamictal-
200 mg in morning and 200mg at night before I go to bed. (totally 400 /day),
300 mg of trileptol at night and
100 mg of Zoloft in the morning.
I have taken the Lamictal for about 5 mos ramping up steadily( 25 mg,50 mg etc) as per directions to prevent the infamous rash. I used to take 1200 mg of treleptal and depakote before that.
Rash? I don't know what you call it. I get the feeling of a bee sting sensation periodically on my neck and collarbone area. To say the least, it itches and I have redness ( i don't know if this is from the scratching or a side effect)
Ouch!!! ( I have it now)I use ice to soothe it but it seems to progressively get more annoying. The little stings occur every 2 minute or so, isolated in a 2-3" square area, they will occur in different places at different epsiodes that occur about once every 48 hours. but always on the neck /collarbone region The Psychiatrist says it is not the rash that everyone talks about. When I was on Lithium 22 years of 1500 mg starting in 1977, I remember a similar rash at times.
I remember a rash that itched on my stomach about a month ago - I figured it was just a bug bite.
( I once attended a BPSA meeting and declared that lamectal is just lithium in disquise)
feed back, experiences and comments welcome
-- By infoanalysis | Reply | Private Message me
October 16th
2005
11:57 AM
My son has been takiing tripeltol for over a year, he is only 11 yeard old; he has been expresing extreme aggresive behavior in the last year or so. He can not communicate very well what he is feeling, but he is in extreme disconfort (unhappy, aggressive, mad, grauchy, etc.) I am starting to believe that trileptol is the cause; he is also taking geodon and abilify, which are suppose to control bal behavior. However, nothing is helping. Am I in the rigth track believing that trileptol is the cause of his bad behavior?
-- By pat94 | Reply | (3) replies | Private Message me
March 8th
2005
8:51 AM
I have taken Trileptol for over a year now and i believe it has increased my appetite. I am 16 years old and the trileptol has really helped with my Bi Polar. I feel more stable now but have recently raised my dose and am now at 1500 mg due to major swings with my mood. I am also very often tired, I seem to get the right amount of sleep but it is never enough for me not to feel tired.
-- By abercat709 | Reply | Private Message me
October 22th
2004
2:48 AM
for a number of years i had been taking tegretol for depression, my dr. then switched me to trileptal suggesting it was a purer form of the same drug, i've been on trileptol for over 3 years now, my face is a mess rash, itching alot of the time , i have never ever had any such problem before, also i am experiencing musle and joint pain, another big one is my hair is thinning loss of condition, my question is can long term rx use be causing too many toxins in my system?
-- By tnaset | Reply | Private Message me
April 18th
2003
11:09 PM
To who it may concern,
Hello, my name is christel mahler. I have a question to ask you which I hope you can help me with. I've been getting seiures since 4 years old and i've been taking different kinds of medications until it was under control. I get seiures every week, and my neuroligest is trying on me different medication on me. I'm taking right now, Lamictal 25 mLg and 100 mlg. I'm also taking trilepal 150 mlg which is a new medication and so is keppra 500 mlg, which I'm taking right now. I just got off tegretol XR-400 and 100 mlg, which I took also. I'm taking trileptal now which my DR. subscribed to me, which he just put me on besides keppra 500 mlg. I like to know if the Tegretol that I've been taking,(which I'm off now),if that has side efects like seeing double vision and not be able to see straight and lose balance? Please let me know? Does keppra 500 mlg, trileptol 150 mlg, and Lamictal 100 and 25 mlg also causes that also? Please let me know, Please? My dr. got me off slowly on the Tegretol 100 mlg and increased my Trileptal 150 mlg to 10 pills a day, 5 in the morning, and 5 at dinner time, and seeing double also.
So I told my dr. that I've been getting double vision, and he said to go down to 4 pills in the morning, and 4 pills at dinner time, which I'm taking now at this time. I've been seeing double vision everday when I took 10 pills a day. Since I'm down to 8 pills a day of the Trileptal, I've been seeing double every so often. Why is this happening? Does the medications that I'm taking causes this? Is this side effects of the medication? Let me know. I/m really nervous about this. If this is not the medication thats causing this, then what could it be from? I like to know very much. I hope you can help me? Please get back to me as soon as possible, I really would like to know about this? Thanks for listening to me and being patient with me, I appreciate it very much. Please Respond.
P.S. I hope to hear from you.
My E-Mail is: christelsplace@earthlink.net
Sincerely,
Christel Mahler
October 17th
2008
3:42 PM
I have been taking 1200mg of trileptal for about two years and just switched from cymbalta to prozac. All i want to do is sleep. Im drinking red bull after redbull to stay awake. its been one month since the switch. im wondering if should now go down on the trileptal since i dont have the norepinephrine from the cymbalta. Im so frustrated. been on 34 meds just like most of you and just want the right combo. anyway trileptal gave me no side effects other than calming me down
-- By shootmo | Reply | (1) replies | Private Message me