July 16th
2009
12:44 PM
Our 11 yr. old daughter was prescribed with Singulair. She started taking it today with much hesitation from her parents. She was on this medication years ago for her mild asthma, but her mood swings/depression were terrible. We have a new ENT now and he promises that the mood swings/depressions are NONSENSE and that these rumors were put to rest years ago. We will be watching her side effects closely, but my question is if Singulair helps so much, what other medication can someone take that does not have these side effects? What is the alternative? She is also going to see a pediatric pulmonologist in August.
-- By cdifonzo | Reply | (3) replies | Private Message me
June 6th
2009
9:34 AM
After reading all of this - I take Simvastatin 40mg - then had to go off of it, cause I got layed off & couldn't afford to get my med's filled. Went off the med - felt better (unknowingly). Then, I got a new job, got it refilled & started taking it again - my knees are killing me & fatigue is overwhelming me. I am emailing my doctor today - this is not right after all of what we are going through. M. J.
-- By joharely19 | Reply | (2) replies | Private Message me
May 27th
2009
11:02 PM
Except for having high cholesterol (310), I'm a 29 yr old healthy active female, very petite and weigh 98lbs. My mother has had a quadruple bypass and 4 stents at the age of 54, high cholesterol is just hereditary in my family. My doctor put me on 40 mg of zocor. The first week taking zocor I started feeling strange, a little soar here and there and very tired at times, also I have become very forgetful. It's been almost 2 months now and I have severe pain in my legs. First it was the right leg and now both legs, the pain starts at my lower back all the way down to my cav. I have a burning painful feeling sometimes numbing feeling, its driving me crazy!!!! I can't stand for too long cause I feel tons of pressure on my lower back pushing down my legs, It feels like my sciatic nerve. I went to my doctor and he said he is 95% sure that this is from the zocor medication, he told me to stop it right away. This is my first day without it, I know I need to do something to prevent what happen to my mother, I'm on a strict healthy diet, staying away from all fatty cholesterol filled foods, but there has to be a better way then taking statin drugs! If anyone has some ideas of what kind of alternative meds I can take, please help.
-- By felicia79 | Reply | (9) replies | Private Message me
May 22th
2009
2:43 PM
Less than 2 months after taking Lipitor I have been experiencing intense weakness of the legs, especially the hip area. A normally avid walker, last week really woke me up when I was unable to walk over 40 feet without having to stop from sheer leg exhaustion. I'd have to actually lean on my partner until I could manage to shuffle again- a shuffling gait is what I had to resort to just to make it back to the car.
This is bullshit because even though I've had some angina symptoms, right up until I went to the hospital I was able to hike; was still relatively strong.
So today I have spent hours researching side effects and have seen on this site alone many mentions of intense leg weakness and pain with Lipitor.
This, along with simultaneously educating myself on the truth about high cholesterol has convinced me to gradually cease taking this medication.
Instead I will replace with sufficient quantities of VitC, buckwheat combined with gingko, and of course I can never stop with the garlic because it is delicious.
-- By oceanfloats | Reply | (9) replies | Private Message me
May 17th
2009
5:55 AM
What a rotten drug. The past seven months have been hell for me. I am 42 years of age and put on this crap last November. I have suffered from bad headaches, leg cramps, Insomnia, Plantar Fasciitis, mood swings and the list goes on. After seeing this site and all your responses I believe the best thing to do is get of the crap. I will write in 2 weeks to give an update.
cheers from Down Under
May 13th
2009
2:46 AM
Finally people are telling the truth about this drug.
I am 17 and have had trouble falling asleep since I was two years old. After a few not noticeable prescriptions was prescribed 15mg of Remeron. I have eaten healthy my whole life and never really cared for sweets before this drug. I literally was eating an entire pie every night. I couldn't even think about anything except for how hungry I was. Running out of sweets was honestly what I imagine heroin withdrawals are like. This went on for a few months and I gained about ten pounds. I recently I ruptured my spleen about a two months ago and have been in constant pain since then. Because of the pain I barely sleep at all. 2-3 hours of solid sleep max, so I was prescribed klonopin and went cold turkey on the remeron. I am now pretty much pain free and more social. Is it possible the remeron increased the pain?
May 7th
2009
1:17 AM
Started Lisinopril eight weeks ago and took it for three weeks. I suffered the consistent cough. However the worst was the altered taste. It is worse than just metallic, it is bitter and food taste can change mid-meal. The problem started after the first week taking the medication and has not gone away even though I am five weeks since the last dose. I am concerned as to how long it takes this side effect to go away.
-- By grossman | Reply | (2) replies | Private Message me
May 5th
2009
11:55 AM
I have been on Lipitor for five weeks. I can't believe how awful I feel. I ache all over. I my arms and elbows are sore; I have had pins and needles in my hands; charley horse like spasms in my calves (mostly at night); sharp knife like pains in my upper thighs; even my teeth hurt. I am a 46 year old female – I can’t believe this. I have made an appointment with my doctor as I have to get off this drug. I have experienced some blurred vision and hearing impairment too. If I hadn’t of found this website – I truly would have thought I was a bit crazy….
I have never had any symptoms like this before and never thought of myself as an old lady - but that is what I feel like. It is unbelievable.
.
April 14th
2009
9:33 PM
I get these painful cramps in both legs the back of my legs above my
calf muscles. They always come after midnight when I am asleep. i
get up and I have to walk 30 minutes or more until they stop,and for
two days my legs are sore.
April 9th
2009
12:59 PM
My son used a nebulizer 2 to 4 times a day every day from the time he was one and a half years old. When he had just turned three his doctor prescribed Singulair. It was like a wonder drug for us! It took care of his asthma and we didn't have to use the nebulizer any more. He's been on it ever since -- he's 10 now -- he also takes zyrtec and has a rescue inhaler that he uses maybe once a week. About every other year he requires a course of steroids and a week of regular nebulizer use. Also, for the past year he has also required a daily inhaled steroid.
Now, about his mood issues. My son has always been sensitive and intense, moody. The first time I became alarmed was when he was 7, and he told me he wanted to burn his hands on the stove to punish himself for forgetting his homework. I consulted a psychologist who evaluated him and said he was not clinically depressed. Since then he has had periodic "dark" episodes -- especially in the winter. He has said he wants to die. He has had crying jags over things that are upsetting (loss of a pet was the worst) but it seems excessive for him to be saying he "just wants it all to end." He has told me that he is always unhappy and that he hates himself. He has also had problems with moody acting-out with friends. He will brood about hurt feelings until he loses his temper and screams at the friend. I have worked very hard with him on learning to manage his emotions. He hit a friend at school who was teasing him. He accepted his consequences willingly and willingly wrote letters of apology -- he told me he thinks he has anger problems and doesn't want to be this way. And his character is that he is a sweet, caring boy who can't stand to see anyone hurt, but also can't stand to be hurt.
A couple of years ago I asked his allergist if any of the meds he's on are linked with depression. He said no. We have a family history of depression, and I thought my son had gotten the worst combo of all the genes.
Recently, this all got to the point that I decided he needed to see a psychiatrist and quite possibly take medication for depression. Before I made the appointment he had a check-up with his allergist. Going down his list of meds the dr. said, recently Singulair has been linked with depression, have you noticed any moodiness or sadness? My first thought was that I have, but that he's always been like this. My 2nd thought was that he has been on Singulair for most of his life. I said yes and that I'd like to try him off of it.
My son resisted going off of it. He has had enough negative experiences with asthma that he didn't want to risk it, but I insisted. I didn't expect to see any change, but I thought it was important, as I was going to take him to a psychiatrist to consider depression meds, to see how he did off of it for a couple of months.
Less than a week later, he had been in a wonderful mood -- to the point of being silly and giddy all evening -- for 3 days in a row. The kind of mood that I don't see him in often, and when I do I think to myself, "he should be like this more often." One evening he even realized he had forgotten to bring home a homework assignment. I thought, "oh no, here we go, his evening is ruined." But he talked through his options with me, looked a little uncertain, and said, well, okay, I guess I'll have to tell my teacher I don't have it. I'll tell her I'll make it up at lunch if she wants me to. That was it! He didn't mention it again. I didn't say anything about his mood, because I really don't think I can know anything after just a few days -- it could be coincidental. The next day, he said to me that he thinks being off the Singulair is "working." He has now told me that a couple of more times.
I am tentative, but amazed. Even if my son does have a predisposition to be depressed, maybe the Singulair was making everything worse, and things really can improve for him. I am afraid to be to hopeful. At the same time, I feel guilty for giving this medicine to him for 7 years without a second thought.
As an aside, my son has periodically complained of leg pains, that I always told him were growing pains.
I would love any feedback that anyone can give me. So far (these two weeks), his asthma has been controlled with pulmacort, zyrtec and albuterol, so that aspect is okay.
March 3th
2009
7:55 PM
I started taking simvastin (the lowest dose) about 6 months ago with amazing results when it came to my cholesterol. After about 2 months I started getting headaches. I went off the drug for about a week and the headaches went away. I went back on the drug and 3 weeks later the headaches came back. This went on for a few cycles. This last time I went off the drug was February 7. I have not taken it since and I have had a headache since then. This time it has not gone away. I HAVE NEVER had headaches before taking this drug. And all I know now is that for the last month my life as I knew it completely changed. Of course the Dr. put me on some pain meds for the headaches that made me sick, sick, sick after 3 days. I just can't take the pain meds as they are worse than the headaches themselves. HAS ANYONE HAD THIS and if so how long did these headaches take to go away.
-- By lynnk | Reply | (1) replies | Private Message me
February 21th
2009
12:51 AM
I first posted my problems with Mirena on Jan. 15. Sice then I have been to the doctor 3 times and am now scheduled for SURGERY!!!! It seems that the Mirena has turned sideways in my uterus and after several attempts to remove it, without success, the doctor I'm seeing now says she will have to sedate me and use x-ray guided equipment to remove it. Has this happened to anyone else? I just can't believe this. No where in anything I read before I had the Mirena put in did it say that this was even a possibility! I get so mad when I watch their commercials on TV. They really need to tell people the truth about the possible side effects. They make it sound like there aren't any. I just hope that the women who are considering getting it inserted find this web site before they make their finial decision. I wish I would have found it sooner!
-- By danielle91819 | Reply | (1) replies | Private Message me
February 1th
2009
9:31 PM
An update to my husband's experience after taking Lipitor 10 mgm/day for 4 yrs. He developed Parkinson's disease and stopped taking Lipitor at that time--summer 04. He is taking anti Parkinson's drugs as well as many vitamins and suplements in an attempt to correct some of the damage done by Lipitor. He is fairly stable. My niece's husband who was diagnosed with Parkinson's at the same time as my husband and had been taking Lipitor also, continued on Lipitor for another 1 1/2 yrs. He had a progressive neurodegenerative disease course and died 2 yrs ago. 3 other individuals with whom I am acquainted who have been diagnosed with neurodegenerative diseases have not stopped their Lipitor--one individual's diagnosis has progressed from Parkinson's to Parkinson's with Lewy Body dementia to Multiple Systems Atrophy. this is the same progression my niece's husband experienced. The other 2 individuals are currently diagnosed with Parkinson's disease.
Husband started taking 1200 mgm of coenzyme Q10/day upon diagnosis of Parkinosn's. This amt has been shown to be beneficial to those with early stage Parkinson's--irregardless of their statin status. Seem all parkinson's patients have abnormally low levels of CoQ10 in their blood--and statins DEPLETE CoQ10. What a set up!!!!!
January 20th
2009
10:03 AM
Hi-I am a 59 year old female have been taking 20mg Simvastatin for 3 months for a cholesterol level of 238 and have noticed significant symptoms that cannot be from any other origin than this medication-dry skin, change of hair texture, psoriasis and bulging in thumb joints, stomach flu, shoulder pain and tingling in hands, vision problems. I am a healthy flight attendant except for all these things that have happened in the last 3 MONTHS!!! I am seeing my doctor tomorrow to discuss a change. I want to take a natural medication to lower my cholesterol.
-- By 1dmm | Reply | (1) replies | Private Message me
January 16th
2009
4:49 PM
I am 34 years old. I am a pharmacy tech. I have asthma and allergies. I have taken singulair pretty much every day since it came out on the market. I've had asthma since i was about 10 years old. I took theophylline as a kid. Steriods on and off especially during times when my allergies are bad. I still use Advair during the fall and spring. Every drug has a side effect. However breathing is pretty good damn thing. Do I have days when I feel low? Yeah. Do I sometimes have nightmares? Yup. Are "natural" products the answer. Not always. The fish oil that some of the posters are touting can also cause GI problems. Some of the natural products contain herbs and other plant derivatives that can be harmful for a child that suffers from allergies. Not proactively treating asthma can be deadly. Some of the parents are suggesting steriods as the answer - those can cause weight gain, growth suppression and can lead to a worsening of asthma.
Singulair has never made me feel like I've wanted to kill myself. I was more depressed and angry as kid when my asthma did not allow me to partipate in normal childhood things. I was sad and hated life when I couldn't keep up with friends at recces because I was having trouble breathing. You have to outweigh the costs with the benefits. I am more irritable when I have asthma flareup then I am on a normal day. For me, I choose to breathe. And singulair has been helping me for almost a decade.
I'm not saying the medication isn't causing these symptoms but maybe there is an underlying cause to your child's depression.
Any drug has a side effect. But without medical research and the medications that come with them - people would still be dying of simple diseases and we wouldn't have vaccinations. As a society, as a whole, we are a culture that looks to someone else to fix things and then blames the people who try to fix it. We need to stop being the "hot McDonald's coffee'" society.
-- By vabenavidez | Reply | (23) replies | Private Message me
December 20th
2008
3:38 PM
feeling some relief to have validation to why i have been feeling this way.
i thought i was going the way of father (heart attack in his 40s) due to many symptoms over the past month similar to heart issues, except the leg cramps. i thought of my mother in-law, her diabetes, poor circulation.
i knew i had just had a thorough heart evaluation with my doctor last spring and everything was fine, except my hereditary cholesterol. frustrating. he had prescribed lipitor at that time. last week while driving to my office Christmas party i thought about driving straight to emergency.
food always seemed to help, as well lots of water. I think because i had liquids when eating, dehydration is what was being addressed.
on my own, i stopped lipitor (only prescribed medication i take) four days ago. no more nausea, no more light headiness (briefly early morning yesterday), no more weakness, leg pain decreased; these were my main symptoms.
I also experienced occasional foot cramps, general aches, heaviness in my esophagus immediately upon eating (thought of my mom with her hiatal hernia) indigestion maybe.
I had one episode a month ago (about the time all this started) where out of the blue i thought my legs were going to fall from under me, they became tingly like they were going to sleep, i was light headed as if i could faint. i had just finished a relaxing picnic by a natural stream, on a beautiful sunny day.
doctors who prescribe this medication should be more aware of these side affects. seems they are either not listening to their patients, or do not have the knowledge of these side affects, and in result, should not be allowed to prescribe.
My concern now is how long the discomfort in my legs will last, though they have improved. to make sure no serious damage has occurred,
i will see my cardiologist in two weeks to have blood work.
I would suggest to anyone who has not contacted their physician since stopping the statin, to do so. print a copy of this site and bring it with you!
T. - 47 years - trying to stay healthy!
-- By toddg | Reply | (3) replies | Private Message me
November 15th
2008
9:41 PM
About eight years ago I felt heaviness in my chest along with some pain/discomfort when doing hard physical labor and occasionally in the hot-tub. Following my doctor’s advice and an angiogram, a stint was placed and medication administered – Lipitor and plavix I also went through a 6-month program for cardiac recovery including dietary changes and a proper exercise program. About six month following that I gradually just stopped taking my Lipitor and plavix and returned to my old eating routine and other life-style. I don’t smoke (never did) and don’t drink or otherwise indulge in any recreational drugs. I’ve never been hypertensive with blood pressures typically at 115/68. I maintain a trim and healthy appearing body just naturally or genetically. I eat lots of red meat, not a lot of vegetables, drink gallons of orange juice, and eat much more junk-food than I should. About six years after that (near heart attack) event I was given a “stress test” by my physician… I was then 61 and tested at the level of a 38 year old! Two years after that I had a significant heart attack out in the middle of nowhere! It took almost 6 hours to get me to an emergency room in Spokane, Washington (that’s a story of its own). That was on a Thursday – I was back to work full-time the following Monday (four days later). This time around with more drugs than I could swallow in one gulp! Lipitor, Plavix, Coumadin, aspirin, and carvedilol. The combination or amount was more than I could tolerate and I was weaned off all but the Lipitor and aspirin within a year. My heart has returned to nearly full-function and I have no physician imposed restrictions. All that said, I’ve been gradually developing muscle soreness (pain, actually) in my fore-arms and legs. I’ve been growing more lethargic and tired with each passing month. I’m now 65 and feel that the Lipitor is inhibiting my health… I want to get off it and be “normal” again. Or is it just being sixty five? Can I just quit taking the drug? Leaving only aspirin for blood thinning and the hope of a better diet for cholesterol control.
-- By fgwilder | Reply | (6) replies | Private Message me
November 13th
2008
11:31 AM
Join the push to BAN STATINS as these drugs have caused more harm to mankind than terrorism. Educate your friends. family and co-workers. Get the word out. The tide is turning and the time is NOW. Learn the truth about cholesterol and heart disease. The deception by big pharma is coming to an end. You can save lives by speaking up and sharing.
-- By bobby | Reply | Private Message me
November 6th
2008
11:42 AM
I had Mirena put in about 5 weeks ago to control heavy periods. After about 2 weeks I started experiencing a foggy head feeling and bouts of dizziness. I didn't relate this to anything and thought it might be from lack of sleep. Last week I stated having spells of rapid heartbeat and nervousness that lasted anywhere from 10 minutes to 10 hours. Exercising is out of the question since it makes me now feel lightheaded. I feel like I can't think or concentrate. At first I didn't think the symptoms were related to Mirena, but since I am otherwise very healthy and don't take any other medications, I started doing a search online and came to this website. I called the doctor and told the nurse my symptoms and she called me back to say that they never heard of anything like that and I must have some other medical problem...They insisted it was not Mirena causing the symptoms. I mentioned that my symptoms are actually ones listed by the manufacturer as "possible" side effects. They disagreed with that. Now I'm thinking of going to another doctor to remove it, if they'll do it. Can anyone tell me if they had these symptoms and if they got "better" with time? Or do they just get "worse"..??? If I knew that they would improve I would hold on a little longer. Has anyone had improvement after the first few months?
-- By jady4 | Reply | (7) replies | Private Message me
November 2th
2008
11:00 PM
I have extreme thumb spasms, often both thumbs at the same time. i had an episode a few weeks ago of a severe pain in my hip running down my leg. I was in bed all weekend as a result and needed a cortisone shot to help relieve the pain. I forgot a name right after they tell me and I am only 50 years old. I lose my balance and sometimes almost fall and have vertigo every now and then. I wonder if all these symptoms are from lipitor. I have been on it for at least 3 years.
-- By rosenbergelisa | Reply | (3) replies | Private Message me
October 18th
2008
2:06 AM
I'm not looking to offend anyone, but if you look up the FDA info on Mirena, the symptoms many of the ladies here are complaining of ARE listed. So for those who claim to feel deceived, I think that they most likely did not do the research they ought have done. If you are going to be shoving some foreign object into your body, and for such a long period of time, It seems common sense that you'd want to know everything there is to know about it beforehand. It's your body- show some responsibility and take charge of yourself. Just like a car salesman, the doctor is going to tell you what you want to hear in order to make the sale. It's up to you to find the truth. And the truth is not that hard to find.
I did research Mirena before choosing to use it. Not just by reading the pamphlets, comparing to other birth control methods and talking to my ob/gyn, but also by browsing through forums filled with horror stories like this one. I have had Mirena for about 1 year. I barely noticed the insertion. I had minimal cramping the day of insertion. I think I bled for a couple weeks. Over the course of about 6 months, my periods got shorter, lighter, and disappeared completely. Once in awhile I will have some brownish spotting, but it is rare. I have no pains or weight gain. My husband only feels the strings in certain positions. The negative effects I have noticed are that my face is extremely oily, I'm fatigued, I have little sex drive and I'm irritable. Besides these, I am very happy with Mirena. I get baby fever rather easily, and even though I have had three children in just over four years, without Mirena I would most likely be pregnant again at this very moment.
Of course my doctor raved about Mirena ("My wife LOVED it!"). He's paid to do that. The same guy tried coercing me into inducing my last labor just so that he wouldn't have to be woken out of bed if it started naturally in the middle of the night. Guess what! I DID drag his butt out of bed in the middle of the night, and I chose Mirena because I decided it was the best option, NOT because he told me it was.
-- By radmomma | Reply | (5) replies | Private Message me
September 12th
2008
12:42 AM
One more thing:
It is imperative that you file an "Adverse Events Report" with the FDA. Insist that your or your child's doctor does as well. Doctors are NOT mandated to report adverse reactions of a drug to the FDA. The system is currently voluntary.
I think this fact is part of the reason it has taken so long for the truth about this medication to be revealed.
Also report your "Adverse Events" directly to Merck, Singulair's manufacturer. I believe drug companies are REQUIRED to report to the FDA.
I am wrong about these facts, somebody correct me please.
-- By zsmom | Reply | Private Message me
August 30th
2008
12:55 PM
Through the past years I have been looking for information about the quinolone antibiotics, Levaquin, Cipro and others.
I have not taken this kind of medications myself but a close friend did and I am absolutely sure that`s why he suffered psychiatric symptoms as well as extreme sesitivity to light and also had cramps/convulsions.
It`s a terrible long story which also etails other medications for instance statins.
I am surprised at how similar quinolone and statin side effects seem to be.
A few minutes ago I found a new site which might be interesting:
Google for "Death by Levaquin" and you will probably find the site I am thinking about.
If I write down the exact address it will be replaced by *****.
O passed away at an old people`s home at the age of 74. I will never forget his suffering.
The best thing you can do for yourself and the people around you is to "educate" yourself on diseases/medications and how the pharmaceutical industry is run.
Here are two books on that issue: Overdosed America (John Abramson) and The Truth About The Drug Companies (Marcia Angell).
Don´t give up.
-- By swedish | Reply | Private Message me
Lipitor (10) Singulair (6) Mirena (6) Simvastatin (3) Adderall XR (2) Levaquin (2) Lisinopril (1) Depakote (1) Neurontin (1) Vytorin (1) Zocor (1) Remeron (1) Clexane (1)
October 5th
2009
12:41 PM
I have had Mirena for 18 months now. I love it. I have had no side effects that you all are describing. I have 4 friends that switched and all love it and only one had to have a follow up to have the strings shortened.
As far as the weight gain, ladies, let’s be honest. We are not 18 anymore and as we get older it is only going to become more difficult to keep weight off. Blaming it on a B/C....lets think about that last chocolate bar we ate because we were busy carting the kids off to a sports practice HMMM....
With any drug comes side effects, headaches, nausea, and some other terribly worse, but lets again be honest, all of these were pointed out in the literature available.
I just thought I would take the time to write my support as this does work and work well for some women, just not all, same as any other form of B/C.
-- By quilt5 | Reply | (4) replies | Private Message me