Tsh level symptoms and conditions

I was put on Yasmin several years ago to control symptoms caused by ovarian cysts. I was told this was pretty much the only solution. Against my better judgment, I went on it. Things were ok for a few months but I started having mild side effects. I didn't feel like myself and my sex drive was definitely gone. Two years ago I had my thyroid levels checked and found out my TSH level was very high. After doing some research, I found that birth control can affect thyroid levels. I contacted my general doctor and he confirmed my findings. I took Synthroid to control my thyroid for two weeks and had to get off of it. I was like a zombie. I called my general doctor back and asked about stopping everything. He said to contact my ob/gyn and if she ok'd it, then it was fine by him. They agreed but also said there is no connection with the pill and thyroid. Red flag #1. After being off of the pill, my sex drive has not returned. It has been two years now. I asked my ob/gyn to do a hormone profile and they said I was too young to be having any problems like that. Red flag #2. I was tired all the time and had no energy at all. My general doctor gave me pills for depression (which the main side effect is extreme drowsiness). I was so disgusted at this point, I went to a Homeopathic doctor. I was told I had adrenal fatigue (which can be caused by the pill). I have been on a course of natural supplements for a few months and have felt better than I have in a long time. However, the sex drive is still gone and due to the pill, may never return. This has been a horrible strain on my relationship. It's upsetting when you know you should be feeling a certain way and you just don't. I have given up on traditional medicine and the idea of pills being given out without knowing long-term side effects and causing even greater problems. Ladies, if you are experiencing problems on or off the pill, see your doctor. If they offer no help, find another doctor! Also, after looking up Yasmin in a pharmaceutical book, it is listed as one of the WORST pills and listed under definite do not take. Use this pill at your own risk.

Just want to survey everyone and ask for responses for the following 3 questions:

1. how long did you keep your Mirena and if you no longer have it, why did you have it removed?

2. how many of you had your thyroid checked? who's came back abnormal? what were the levels?

(I'm a medical student doing research on this one since I believe the levonorgestrel affects our thyroid hormone. My TSH was elevated to 5.2 which is considered "subclinical HYPOthyroidism". This was mid cycle when my natural progesterone AND synthetic progestin were cumulatively high. When I had it rechecked 6 weeks later (around my period when any natural progesterone level is gone) it was normalized at 1.5. So I think that the P+P screws up our thyroid and can throw us into a high TSH and "hypothyroid state". The opposite effect may be true during menstruation and we can become HYPERthyroid for a few days... hence the really bad anxiety?!)

3. where is everyone from? perhaps we can have support group meetings?

Wow! Let me tell you my story: I was first diagnosed with HBP (170/140) during a high school sports physical in the beginning of 8th grade (I was about 14 years old). I was in top shape and a very healthy eater. I had probably (from what I remember) every test done to see what was the cause of this hypertension - and the only thing found was that my kidney's produce too much rennin (the hormone that increases BP). I was then put on Lisinopril 10mg. Everything continued well for about 6 years - I also stayed in shape and ate healthy. However, throughout those 6 years, I did notice my curly hair turning straight and my incredibly (can't do nothing with) thick hair started to thin and become style able. Now...I do know this is my fault, but in the past 2 years my healthy eating habits have slipped, I've gained weight and started smoking - plus have a sit down, don't move kind of job. However, about 1 year ago, I had a slight spike in my pressure and my doctor added a diuretic (HCTZ 12.5mg) to my lisinopril. Ok, that brought the pressure down and all seemed well. Then..... In December 2008, not long ago, I started not feeling well. Thinking I was sick, I went to the doctor's to find my blood pressure to be 190/140. Immediately, my does was increased to 30-12.5mg. That brought a quick drop in my BP down to 110/66 - I was so darn dizzy I could barely function. I was also but on short-term disability because all this caused me to be off work for so long. Unfortunately, when my dose was adjusted to 20-12.5mg and the dizziness stopped I went back to work. Now, I can't go back on S.T.D. for many, many weeks. And....... The past month has been complete HELL!! My hands (mainly fingers) and toes are almost always cold, I've been dieting for over a month and am struggling to lose weight, my hands and feet go numb more often than usual - I never used to find myself waking up in the middle of the night because of pins/needles feeling, my hair is thinner than ever and stick straight - I'm afraid I'm not going to have any left, I have UNBEARABLE headaches (sometimes all I want to do is sleep and sometimes, like tonight -it's 4:12am- I can't sleep), I have acne like a teenager - mind you, I never had more than 1 to 2 pimples at a time growing up, and that was rare (I was lucky)... Thank god for FMLA or I would have lost my job since I've spent so much time home since I thought all was good and went back to work. Only wish I could make a dollar again. Now to top it off...I was referred to a nephrologist (kidney specialist) who after seeing me only once for about 30min and reviewing blood work from the end of January (I had a high calcium level as well as some others that deal with the kidneys) wants to take away the diuretic (HCTZ) part of my medication (hopefully to reduce the calcium level) BUT DOUBLE MY MG OF LISINOPRIL. HE WANTS ME TO TAKE 20MG TWO TIMES A DAY. I was starting to think all these new symptoms that came on so quick were a result from the increase of lisinopril - now I think I'm sure. I'm not changing my medications until I can talk this over with my PCP - I'm going to ask we try a medication change. Does anyone have any suggestions? Or any suggestions why a 20-year-old has blood pressure as high as 190/140 with no family history of HBP or really any health problems? Any suggestions why the kidneys are producing too much rennin? Any meds that drop the pressure and we don't get headaches - I can live with cold limbs and numbness - it's the headaches that are rendering this 24-year-old helpless :(

Hi All

I've been on Yasmin for a year. At first, it’s fine until there’s some side effect such as emotionally, leg cramp, headaches, breathless, chest pain, etc. since July ’08. Had stopped taking Yasmin on end Aug ’08. Since stopping it, I feel much better emotionally but was feeling so sick every day as had gained about 9 Lbs, stomach bloating, indigestion, abdominal pain, headaches, water retention (swelling on my finger & legs), having acne on my face, skin become very dry & skin allergy and the worst is that I’m losing lots of hair everyday (about 1/4 of my hair in the past few months and it’s still dropping & some portion already bald).
Could anyone give some advice how to get my hair back to normal through their experience?

Thanks

So basically this is my story.. I am 19 and have had severe asthma every\ since I can remember. I took prednisone up until I was 14, and from what I can remember I just stopped taking it around then. Then when I was about 18 I started up again because my asthma got worse. Between the time period of 14-18 I still had asthma, but started working out and became very active and healthy.I lost alot of weight had VERY THICK long hair. Then at 18 I got very sick and my doctor put me on prednisone knowing my asthma history. After being on it for a month my hair has become thin, I have gained weight, my face has rounded, my skin used to get tan very easily but now just flushes. I have headaches all the time, can't sleep at all during the night, then crash during the day. I am constantly depressed. I always have to pee. I can't be at the gym for more than 30 mins and then I just die im so tired. I can go on and on. I have tried so many time to get off but like I have read from the above comments,I become very sick and lazy I literally can't move. But what I need answers for, and what I was wondering, has anyone started to get hives/rash after coming off or being on prednisone. Every time I try to wean off of it I get them all over my legs!! NOTHING and I mean NOTHING makes them go away except when I start up prednisone again. My doctor thinks its okay and no other doctor can figure out why im getting these hives but its so obvious its from that because when I go back on it goes away. This is not a good medication to be on. I haven't seen hair loss as one of the major side effects but has that happened to anyone else. im praying to god i can wean of this drug if anyone knows anything pleaaaase let me knowwwwwww

I started taking thyroxine about 6 weeks ago - i went to the doc with tingling fingers, bloods showed tsh 34 so doc gave me 50mg thyroxine. Felt awful within a few days i was getting palpitations and felt like my skin was crawling. I couldn't bear even the slightest noise. I had diarrhea (cant spell) fast heart rate, the shakes and couldn't handle lots of people in a room. I am a teacher so it became difficult for me to work. I went up to 100 it got worse, until in the end I decided to stop them.
I am going to wait and see but I would rather be hypo than have these symptoms, my doc said you will feel great soon, pah what a load of c%%%

I had my Mirena put in about 7 months ago, since then i have been getting sicker and sicker. I was just diagnosed with hypothyroidism in June, but my TSH level is almost back to normal now and I still feeling so ill. I have gained 15 pounds, feel very emotionally unstable, I'm moody, fatigued, have constant joint and muscle pain! I am so depressed and no matter what i do I just can't feel better! I just want to die! My husband had a hunch that it could be the IUD causing this all and started researching it. He found this website and read to me what everyone had said. I was shocked! I'm a nurse so i got off the phone with him and removed it myself, which I do not recommend if you are not a health care professional. I'm sure it's just in my head, but I feel better already! I hope that all of my symptoms resolve now, but either way that is one less thing that could be causing my symptoms. I hope this helps others and let me know if you also had joint and muscle pain! Thanks and GOOD LUCK to you all!

Pam

Hi,
I am 50 years old. I was diagnosed with as hypo at age 39. My doctor prescribed Synthroid at 25mcg and I have (proudly-ha!) worked my way up to 125mcg. I was always one of the "lucky ones" who could eat any and everything and my weight stayed the same. I am a busy mom of two and a first grade teacher, so the 33 lbs. I have gained since age 39 has not been due to diet changes or sitting around with a bag of chips in front of a TV all day. I also questioned my doctor about this and he just brushed it off. Well, I am tired of not feeling good about myself. My life is in good order except for my weight. I want someone to take this seriously. Should I see a specialist rather than my regular internist?
Wow! I think I just lost a little weight telling you great people about this!
jf

I was put on synthroid a year ago, due to a tsh level of 87. I pretty much felt better right away after taking it. First I took 50mcg and then it was upped to 100mcg. Everything went well until I had my latest tsh test. The level was going up again (tsh 5.4) so the doctor decided to put me on 125mcg. After about a week I began feeling like crap. Slugglishness, tiredness, muscle pain, joint pain, and it became progressively worse. I have an appointment coming up thank god. In the mean time I read 3 books on thyroid and it was mentioned that most people don't benefit from just taking T4 (ie. synthroid), despite the fact that the pharmac. and some docs say that body breaks t4 down into t3.
Some people's body cannot successfully break it down enough, some are cellular resistant to thyroid hormones, and those people absolutely need t3 in order to not develop Hypometablolism. The cell need the T3 to function. But unfortunately one can be hypo and still have good TSH levels, because this particular test only tests if there is enough T4 in the body.
Unfortunately, it's so hard to explain that to mainstream doctors.
One doctor I read about said it right: Don't just treat the test results but also the bodily symptoms, for everybody is different anyways. Just like our finger prints are unique, so is our hormonal metabolism.
I'm going to try to talk to my doc about this, but if he doesn't listen I will look for another doc until I found one that will. Good luck to all in this hormone jungle.

Hi all, I have had the Mirena since May of 08. I had twins in Feb of this year and was given the little plastic ring for birth control. That gave me TERRIBLE migraines. i hardly ever even have headaches let alone migraines. It was impossible to take care of twin infants along w/migraine pain. I really shouldn't be on estrogen anyway because of a clotting problem in my family. So my doctor recommended the Mirena. I wanted it anyway because I can't remember to take pills now, (I'm a little busy.) Since I had it put in I have been losing my hair in unbelievable amounts which my doctor attributed to my just having twins. My depression and anxiety meds are NOT working anymore. My fourth and fifth toes on my right foot are completely numb and stiff, almost like I have arthritis or something. I have NO interest in having sex w/my husband. But after taking care of twins, who does?? Just kidding. I am not very happy with this IUD, but have decided the alternative (being pregnant) is not a better option at this time. So, for now I will continue to be a bitchy, balding, arthritic, celbate mother of two. Good luck to everyone else

Re: Dosage Confusion- Synthroid

This simple of communicating dosage became confusioning. To prevent confusion synthroid is always discussed in terms of (mcg). That is, micrograms (mcg) vs. milligram (mg).

This is of tremendous value The conversion factor is 1000, for example a dose of Synthroid represented as 0.025mg, would be converted as
.025mg x 1000=25mcg. To fully understand this blogger’s statement feel comfortable to talk with your pharmacist or physician.

I've been on synthroid now for about a year. My dosage is VERY little (0.075). My doctor keeps running blood tests every 3 months and assures me I am within the "lower-end" of the norm, but I still feel tired, sleep deprived, wake up with night-sweats and I keep gaining weight...

I am only 24 and have just been told that I need to take this medication for the rest of my life, it\s pretty depressing. I keep asking if there are other ways to lose weight and feel more energized. He tells me that I need to keep taking this medication and has put me on a "sleep hygeine" routine where I go to bed and wake up at the same time every day.

Does this "disease" mean I will always be overweight and tired for the rest of my life? I would like to know if someone else with more experience with this medication can give any sort of advice? Feeling a little hopeless about it and not really interested in complaining to my doctor anymore.

Thanks:)

Hello To All,

I too am on this med, I have been on it for 1 year as of July 2008-

35 pounds, brain fog, headaches, eye sight for reading, chest pain and fluttering heart beat. My doctor who is my friend has told me that he will up my dose... "Dear God" any more and I will go nuts. Does anyone know of any study done in a medical journal that theu could forward to me so I can show my doctor.

Please email me at ****** I would be so very thankful.

Thanks to all and be healthy.

I've been taking Levoxyl for approximately two years or Hypothyroid. Before that I took levothyroxine, but my symptoms were worse with that. I've never taken Synthroid.
When I was first diagnosed, my TSH level was around 144... off the charts. It tooks about 4 or 5 months before I got level. The medication seemed to make my symptoms increase. Each month however, my TSH level dropped.
I started feeling good when my TSH level was below 10. I felt awesome at TSH level 1.
My doctor became concerned that my level would drop too much so she lowered by dosage to .150mcg. Over several months, I noticed my symptoms returning. I requested to have my level checked but my physician said it wasn't time. By the time I was checked, my TSH was 20.
My dosage was increased to .175 mcg. The last two weeks after the dosage increase have been horrible. Migraines, vertigo, nausea, irritability, and absolutely no motivation.
I've been feeling better over the last two days and think I'm getting level again.
Don't assume your doctor knows you better than you do. Find out the number that works for you and fight for it!

Hey, First off I would like to say thank you all for posting, I was just diagnosed with hypo. I was placed on 50mg then increased to 125, I felt terrible so I cut it in half. I take the pill at night, but I still feel all the symptoms you guys feel, I woke up this morning with no voice, hoarse. My tsh level was 13, I am going back to the doctor for more blood work this week. I think I my ask to be switched to another brand. I hope all of you will soon feel better.

I was on Topamax for 10 days with a few minor side effects but nothing serious enough to quit it. My husband and I went to the library about 6pm. I am 46 and never wore corrective lenses but was noticing that the shelves farther away were blurry, I didn't worry too much since I had been having ongoing thyroid problems and figured my eyes were swelling (though that normally happened only in the mornings). By the time we got home and were sitting down to dinner I noticed that when standing in the kitchen the people in the other room were completely blurry. By 11 pm I could only see clearly within 18 inches of my face.

I awoke at 2 am with a severe headache and almost complete blurriness, I had to hold the pill bottle very close to my eye to be sure it was correct and even then could not be sure. My husband gave me the meds and I went back to sleep. I didn't wake up until 1pm!!! When I awoke all light was painfully bright and I could see NOTHING clearly! I was rushed to the hospital and was diagnosed with acute angle-closure glaucoma caused by TOPAMAX!!!

Thankfully the docs were able to reverse the symptoms but said one more day I would have been permanently blind. My eyesight has never returned fully, though I can function just fine and do not feel depressed about it.

Please, be very careful on Topamax. The stuff is dangerous to many people though a life-saver for so many others. Also, may I suggest to those with the tingling that you get your calcium levels checked as this is a classic symptom of low calcium. I just wonder how Topamax affects the other body systems, such as the adrenal and parathyroids.

hello everyone
i am a full time college student and I believe that i have some side effects from synthroid. As i was reading everyones blog i notice that some people feel the same way that i do. At times i feel that i'm normal but if something upsetting happens i get really tired, depress, and I have a never time concentrating at school and home. My body hurts all the time. especially my joints and i feel that i don't want to do anything. I have about a year left until i graduate and its the going to be hard. I cry sometimes for no reason. help! i'm going to talk to my doctor but if any body else feels the same way please reply.

I was born without a thyroid gland so I can't compare the way I feel now to the way I would've felt with a thyroid. I've been on Synthroid my entire life (22 years), and I'm up to 112 mcg now. I am very skinny (5'5", 104 lbs) and feel constantly fatigued no matter how many hours I sleep, what I eat, and how much exercise I get. I periodically get pain in my hip joints, heart palpitations, and intense mood swings. My thoughts race but I have very little physical energy. I feel restless and gloomy almost all the time for absolutely no good reason. My doctor tells me I'm depressed but I honestly have no reason to be depressed and I wish she would see it as a symptom instead of a diagnosis. I graduated from a good college, I've got a job I like, I have friends, I enjoy life and my hobbies, yet I feel overwhelmingly sad. This does not seem like depression to me.

I find that after I do aerobics I get a tightness in my chest, which makes me worry about my heart, but again my doctor doesn't seem to think this is cause for concern. I have been irritable/fatigued for YEARS and I suspect I'll feel this way for the rest of my life. The worst of it started when I hit 16 years old and started the 112 mcg. My tests are always normal and it frustrates me that my doctor disregards my symptoms. I've tried other doctors, but they always send me away with my 'normal' test results. Can anybody help?

I have been on Levothyroxene for 14 months now. I have been experiencing nightmares, a "butterfly" feeling between my chest and stomach, itchy skin, dizziness, and am still fatigued. My dose is 50mcg. once a day. that was upped from 25 mcg. a day as my TSH level was not within the normal range. Sometimes I feel like I'm feeling WORSE after being put on Levothyroxene. I also am still gaining weight and am constantly bloated, having bouts of diarrhea, and my blood pressure won't stay regulated. I am currently recuperating from a bad cold and the cough is hanging on. My other meds I take are Atenolol-12.5 mg. once a day and Xanax-.25 mg. two to three times a day. Is there an interaction between all these meds(I take them at different intervals thruout the day to avoid interactions)?

hi murph 70,
not sure if this site will help you work out your results,i looked my tsh level up on here.
www.pinelandpress.com/faq/hormonelevels
you could give it a look. i am also having problems with my cycle. i have started to ovulate again (thank goodness!) my periods are still coming between 33 - 38 days instead of my old pre yasmin cycle that was 28 days on the dot. i have some periods that are really heavy and some that are so light they are more like spotting. i suffer pms (with mild anxiety) about 12 days before my period starts until 2 days after bleeding starts. i get an outbreak of acne about 10 days before my period and savage backache just before my period too! all are symptoms of pms,i never had any of these symptoms before i went on yasmin except for the odd monthly spot on my chin! i really wish i had not messed with my perfectly normal cycle but i was totally ignorant to the fact that any of these awful things could happen just from taking a pill,i was told it would improve my life not wreck it!
sorry for the rant murph 70 but i find once i start on the subject i can't stop! hope the site i suggested is of some help.

silke.
my heart goes out to you...... remember you are strong and you will beat this! please feel better soon!

I took Synthroid for about two years for my hypothroidism, it really helped me to feel better and get my weight more on track. Since I have moved to a different state, thus a new doctor, I have been taking the generic for synthroid (levothyroxine). This has been for about 6 months. Since I went off the pill three months ago, I have not had my period. I just had my TSH level checked and it is normal on the generic, but I still haven't gotten my period. Can anyone help me??

I started Advair over a year ago, first 500/50 then decreased to 250/50. During the past year I have steadily gain 50 lbs, severe muscle and joint aches, as well as depression, forgetfullnes, and confusion. There were also a few periods where I had brief blackouts. In April of this year, I bought a treadmill. I was not able to walk over 2.0 mph or for longer than 1/4 mile. I started having chest pains. I went to the doctor and they admitted me to the hospital for heart tests. The tests came back negative, but they found that I had extremely high thyroid levels. My TSH level was 80.76 (normal is 3-5) and I was diagnosed with hypothyroidism. All of the above symptoms are also symptoms of hypothyroidism. My symptoms started to improve after taking the thyroid medication. However, at the same time my asthma improved and I stopped taking Advair. Three weeks ago I had to begin the Advair again and now I am starting to gain weight with muscle tightening and weakness. After reading this site, I now believe my symptoms were more from the Advair than the hypothyroidism. I will no longer use Advair. I would rather be on prednisone than have to experience these side effects.

PLease be careful. I have been on a suppression therapy dose of synthroid for over 8 yrs. I had thyroid cancer and my endocrinologist said I needed to keep my tsh between .3-5.6. For the last yr I have been feeling awful. My heart rate was arnd 145, I had shortness of breath, muscle aches, hair falling out, could barely eat but I gained about 30 lbs because I was swelling up from edima. I had almost every symptom of being hyperthyroid. My endo said I ran on high test!! I thought I was going crazy. I was on 2mcgs of synthroid. My tsh level became .009 and then became non-exsistent(.oooo) I now have dialated cardiomyopathy, and congestive heart failure.
So if you are not on the correct dose you can have very serious side effects. Make sure your levels are checked on a regular basis. If you are not feeling right make sure someone , like a dr listens to you and hears your symptoms. I had repeated ly told my dr how I was feeling and he said I needed to be suppressed. to prevent cancer returning, well after almost dying from heart failure how suppressed should someone be????? Now My entire live is suppressed....