Tubes symptoms and conditions

I had Mirena put in January of this year, I am 49 years old. I did not need it for birth control as my tubes are tied. I was having very bad perimenopausal symptoms so my doctor suggested I try it for the hormones. I was still having heavy periods 8 months later. A little over two weeks ago I had a complete hysterectomy so obviously the Mirena is gone! I was and am having HORRIBLE joint pain as others have posted. I feel like I am 100 years old some days, my legs and shoulders and hips hurt the most. I read that the Mirena hormones are contained in a steroid reservoir, whatever that means,does anybody know? I have been on steroids before and this is exactly the same reaction I had, hip and joint pain so bad they had to take me off. Well anyways, I am glad it is out of my body but my question to anyone is, once you had it removed, how long did it take for the joint pain to subside????

I have been on Mirena for a year and I just spent three days in the hospital taking care of an ectopic pregnancy with surgery. what a painful experience. I I know birth control is not 100% but now what do I do? i don't want anymore children but I don't want to have my tubes tied yet either.

Wow, I'm speechless I came across this website! I just had to share my experience! I had my Mirena removed yesterday. I'm 29 years old, I had it put in 5 years ago under General Anaesthetic whilst having a laporoscopy for Endomentriosis, I was advised by my doctor to give Mirena a go - at that stage I was desperate for a bit of relief from such heavy bleeding and cramps. Reading everyone elses side effects, has made me realize, I have suffered a bit over the last 5 years! I gained 25kgs, and could never understand how I could not shift the weight, I'm really active, play a lot of sport, and eat healthy, I was diagnosed with depression also, and have been taking anti-depressants for 4 of the the last 5 years, I've at times been very short fused, angry, and anxious. Now I've had the Mirena removed, I can't wait to see if I can shift my extra weight with ease! Having it removed was absolutely horrific! The pain was so bad, all I can describe it like, is someone giving your cervix a Chinese burn! OUCH!! I have been bleeding quite heavily, but have been told this is normal????? Is it??? My husband and I hope to start a family soon, so fingers crossed all goes well! I know for some woman out there, the Mirena is great! But for those of us who suffered... I feel your pain... literally!

I am so glad I found this site. I thought I was crazy with the fact that I have put on weight, break out, and right before my period get so blah..I feel nausea than am starving, heart burn, tired and feel like S#$T before and after my period. The only good thing was I only had a period for 3 days but the other stuff is enough to make me stop it now. I have been on it for about 6 or 7 months now and have decided not to take it anymore. I think I will look into getting my tubes tied since I am not having much luck with pills...thanks all for making me realize it isn't me.

I am a mother of 5 children.I have used the patch got pregnant had the ring got pregnant , so my doctor recommended using the mirena instead of my tubes being tied. So ive had it in for about 9 months and I swear im losing my mind i feel like im insane!! I am angry and short fused all the time and the next minute im crying. So just reading the side effects some women have had I've finally figured it out.Also I was quite happy when the doctor said my period may go away well it has just recently but no im scared I may be pregnant!! NEVER will recommend to anyone to gt the MIRENA

I had the Mirena put in 2 yrs 9 months ago. I had continual spotting for about 6 weeks after insertion, which was really annoying but they did tell me to expect that. For 2 years I noticed a couple of side effects...some cramping and the belly flutters (which is so weird to hear of other people having them because I thought I was just crazy!!!) And the acne..oh, the acne! Also I haven't been able to lose weight very easily, even with dieting. All these things were ok side effects to me. But now after 2 and a half years the side effects have gotten a lot worse. I kept telling my husband that I was sorry, I just couldn't' understand why I can't get motivated to do anything besides sit around. I am bloated all the time and crampy. Not just cramps but I'll have sharp pains in my uterine area. I went in for my annual exam and they said the strings were where they belonged. Prior to that exam, I was having light 2 day periods regularly. Since then, I have been bleeding (some heavily, some light) for SIX WEEKS straight along with having cramps and fatigue and the missing motivation has gotten even worse. It is coming out tomorrow morning. This is not worth it at ALL!

I am 25 years old. I had my Mirena put in in February of 2008 after my daughter was born. This was my third child and I chose this birth control because I was told it was the best choice aside from having my tubes tied which I wasn't ready to do. I have had it a little over a year and half now and had quit having a period. About 2 1/2 months ago I had a very heavy period that lasted about 3 weeks. When it quit I thought it was just my body trying to tell me it needed flushed out. Well a week later I had another 2 week long period. I made an appointment with my doctor and they couldn't find the IUD. They said it had shifted so they ordered an ultrasound to locate it. I am still waiting on those results but am most likely going to have it taken out regardless. I didn't have a single problem with it until recently. My husband and I are thinking about having another baby and I am not going back on this medicine after we do. I will get my tubes tied because I am not dealing with this again. My dr said that if the IUD isn't the cause of the bleeding it is something else and most likely the IUD caused that problem as well. Thank goodness I found this site because I thought I was the only one having this problem as well. Good luck to all and I will update as soon as I hear about the location and results of the ultrasound.

This is my 2nd time with Mirena. The first time I had no problems and kept it in for 4 years until it was time for another baby. My baby is now 17months old and I've had Mirena for 3 or 4 months now. I hate it. I'm having severe mood swings, crying fits and depression. I haven't been able to eat well or sleep well. I'm considering having my tubes tied after having this Mirena removed. I'm calling my doctor first thing Monday morning to get this taken out. Does anyone else experience severe mood swings as well?

I just had mirena removed today!! Everything was fine for the first nine months. Then i started feeling like i was pregnant and bloated and sick to my stomach all the time. It was great not having any periods until three weeks ago i started spotting and it never stopped. I was having breast pain and i even found a lump. I had to go for a mamo and ultra sound and nothing came back abnormal but what the heck is going on with my body?
I started reading the posts on here and called my doctor right away and he removed it today. I am so tried and i never sleep anymore. and i cry all the time. I am so upset i just want my body back!!! Thank you for all posting on here. I am hoping that my body returns back to normal soon. I had my tubes tied 13 years ago and was hoping never to be on birth control again but i was to control my periods each month. I also found out i know have a ovarian cyst. Is it due to the mirena? to to sure but having surgery soon for that. This whole thing is crazy!!!
Please really think about it before you put it in. I have never felt this bad in my life. I hope soon to get my life back. I have fell in to a deep depression and i need to get out of it soon. If you have any of the side effects please get rid of it. Thanks

Wow, am I ever glad that I've read all of these horror stories!! I am scheduled to have Mirena inserted next month (for the first time) and I was told that it is the best way to go! I am 26 with 3 babes (my youngest being 6 mos. old) and I was just looking for some type of birth control until I get my tubes tied (I am looking at a 1+ year wait). I have tried every other type of birth control and anything chemically induced makes me a crazy person. I wasn't even told that there were hormones in Mirena... that's how much was explained to me! I am canceling my appointment.

How interesting that I find this information out now. I had my third child at 39 in 2005 and have always suffered from bad periods. I was talked into having a mirena inserted and thats where my story begins. I was told that I would have spot bleeding for about 3 months - after 9 months of continual periods I was well and truly over it as was my partner. I went to my gp who order an ultra sound. This showed it had moved and was sitting sideways and would have to be surgically removed. The side effects were herendous for me and still are after having it taken out two years ago. Not only did I have my periods for 10 months non stop, I had continual nausea, migraines (which I had suffered previously but not to the extent I was having them), massive weight gain, fluid retention, the worst pms which was constant and so so aggressive towards everyone I came in contact with. My sex drive went out the door and my relationship started to fail. My hair also started to fall out in handfuls and still does to this day and my skin was always so dry. I was also constantly tired and had very little energy. Two years ago I went in to to have the mirena surgically removed and at that time I also had an oblation and my tubes tied. The oblation worked for about 6 months but my periods are worse than they have ever been and thats because now Im told Im pre-menopausal!!! I still have the occasional migraine, my hair still falls out in handfuls and my skin is still really dry. My sex drive is starting to come back (thank god). I thought all these crazy symptoms would go away once this horrible mirena was taken out but it seems they're here to stay. I now see a psychologist every week trying to get my aggression back under control which is working well. I wish I had known about all these symptoms prior to having the mirena - I might still be with my partner instead of being single. My advise to anyone wanting permanent contraception - get your tubes tied and stay right away from mirena.

I had mine inserted 10 weeks ago and I am having it removed this afternoon and I cant wait! My problems started on day 3 and have not stopped. I am 50 (had my tubes tied 20 years ago after 2 kids)and my gyno suggested Mirena as my periods are very very heavy and occur about every two and half weeks. My daughter (25 with 1 child) had hers inserted 2+ years ago and has not had 1 problem so thought I thought it might work - wow, was I wrong! I have had the constant feeling of just achey all over, headaches all the time,angel to devil in .0001 seconds, panic attacks (never had them before and NEVER want another one - very scary)sinus infections, high blood pressure (have always been 120/80 now I am 160/100) I just feel crappy all the time and unmotivated. I have never been like this and hope its all related to the Mirena as nothing else in my life has changed. Like other meds and procedures this is not for everyone so I would encourage people to listen to your body as well as your inner voice and take action to get your old self back. Honestly, as badly as I feel since getting my Mirena....having heavy periods every two and half weeks seem pretty minor in comparison!

I've always been the kinda of girl that has horrible side effects with birth control. Every time i went on a different pill i had to deal with migraines constantly. I hated it. After i had my daughter i looked into mirena. I read everything online about it and just figured what the heck i'll try it anyways. Well i put it in in February and it seemed like the best birth control ever. I didn't have any headaches so cramps, my periods even pretty much stopped after the first month. 3 months later i was having sharp pains in my side. I thought maybe the IUD moved or something and that's what was hurting me so i went to my doctor. They sent me for an ultrasound and turns out i had a huge cyst on my left ovary. The doctor tried to see if it would just shrink and go away but 3 months later i was still feeling the same. The doctor told me that it was a big possibility he was gonna have to take my ovary. I only have one baby and i know i want more so that scared me really bad. I ended up having to have the surgery and luckily they were able to drain the cyst without removing my ovary. THANK GOD!! While they were in there they also found another good sized cyst on my tube that they had to remove. I didn't think anything about my birth control being the cause until about a week after my surgery. After that i went online and started reading more about Mirena. The first website i went to had it in big letters on the list. MAY CAUSE OVARIAN CYSTS. It also said these usually fix themselves and aren't a big deal. Well in my case i wasn't so lucky. I just wanted to warn those other ladies out there that know they want more children that there is always a possibility that Mirena could do this to you too. And maybe in your case you might not be so lucky and they'll have to take the ovary. It makes me sad that a birth control that i had in for just 6 months could have lowered my chances so much for having that second baby i've always wanted. My doctor also told me now that i've had to have surgery on my tubes that im at high risk for ectopic pregnancy now. Im now looking into different birth controls trying to find the right one for me. Any suggestions?

I haven't gotten the Mirena put in yet but am terrified! I heard such bad things & then I found this site & I just want to get my tubes tied now. I am 24 and my fience is 30. We are trying to be responsible and not get pregnant until we feel we are ready and in the right place in our careers to support a child the way we never were. I did wonderful on Depo (no weight gain, hair loss, skin problems, nothing) but was taken off it due to the potential of lowered bone density after being on it for 10 years. I tried Ortho & Ortho-lo and both of them made me have bad mood swings, headaches, and I gained 17lbs. I tried Seasonique but that made me have migraines and the worst cycles of my life. I just got switched to a Progestin only pill that is supposed to be similar to the Depo but I can't take the every day same time pill thing. I can never find a good time to work with. The MIRENA has been on my mind for a year now and I just want the real honest straight up facts...not the doctor version. Please help me!

i got my mirena put in 06/2009 after my 3rd child. the dr asked if i wanted to tie my tubes, but i'm only 22 so i didn't want to decide my future just then. he recommended the iud. it hurt a little to put it in. then i felt like i was going to faint all day that day. then came the major cramps. then the endless bleeding. my doctor said he could give me some sort of medicine to help with the bleeding, but i just want this damn thing out. let's put it this way... if i wasn't bleeding all the time, i'd think that i was pregnant from all the side effects: nausea, fatigue, endless hunger, weight gain, mood swings. it's RIDICULOUS. i'm taking mine out at my next appointment. i'd rather take the time to put a condom on my boyfriend.

I'm so glad I decided to visit this site today. After reading the post by christinaf (8-28-09), I decided that I too would research IUD self removal. I've been wanting mine out forever and I had made an appt this past January to remove it. My ob, however, talked me into keeping it because I've been wanting my tubes tied and she wants me to wait a little longer to think about it... so until then she wanted me to keep the IUD. Anyways, after deciding not to spend the money with Planned Parenthood I've been seriously thinking of removing my own for several months. I read christina's post and afterwards searched IUD self removal. I found a site ****** where there was a video link instructing on IUD removal. The video can be accessed by going to ****** After watching the video, I realized just how easy this would be and decided to give it a try. Sure enough, once I located the strings all I had to do was pull and it took about 10 seconds of gentle pulling and OUT it came!! I'm so relieved.... I cannot wait to see the expression on my ob's face when she learns what I've done. No more pushy pep talks about how "wonderful" this device is and "what a great decision keeping it is because it's reversible." I'm thinking of searching for an ob who will do the Essure product... no hormones and it's permanent!
Finally, I'm going to go back to being a WOMAN!! I can't wait to have my first REAL period, it's been a year!

I felt it was extremely important that I make a post regarding my experience with Mirena so that it might help other women in a similar situation. I had Mirena inserted for the first time in the spring of 2007. The first few months I had some pretty intense periods, but this declined and then my periods disappeared completely. I was so happy with the Mirena, couldn't say enough good things about it, and was shocked by the numerous posts by women reporting nightmarish side effects. I had the Mirena removed just under two years later because my husband and I decided to try to get pregnant. That route didn't work for us so I had the Mirena replaced in the beginning of July 2009. The MOST IMPORTANT part of this post is that I had numerous nightmarish side effects the second time around with Mirena even though I had no adverse side effects the first time. I had morning sickness like symptoms complete with vomiting during my periods, migraines, hair loss, and severe mood swings - to the point of being suicidal or homicidal at times. I had to stop listening to the radio while driving for fear that a love song might come on and I might start to cry so hard that I wouldn't be able to see the road. I started to obsess about killing myself - triggered by the littlest of things or nothing at all. It took me what seemed like forever to make the connection to the Mirena - especially since I had no adverse reactions the first time. I called my doctor to make an appointment to have it removed only to be told it would be weeks before I could get in. I called my local urgent care who told me they couldn't help me - no one there could remove it for me. I was so desperate once I realized that the Mirena was the only aspect of my life that had changed during the time I decided I wanted to set fire to myself that I wanted it out immediately. I researched self-removal online and was substantially reassured by the results of that research that it was possible so I decided to remove it myself. I pulled gently, slowly and it came out without incident. I had no spotting afterward and only minor cramping. I woke up the morning after already feeling more optimistic. A string of things went wrong that morning and I never once thought of hanging myself from the attic rafters. There was a gigantic and immediate improvement. That was two days ago. I am still having horrible migraines and my breasts are still extremely sore, but I have not had a single suicidal impulse since. I even think my sex drive, which had disappeared completely is starting to return. Last weekend I told my husband that I wanted a divorce and needed to move out of the house immediately. This weekend we are going out on a date and I can't stop trying to cuddle with him:) I'm almost certain that making the decision to remove the Mirena saved my marriage and quite likely, my life. Bottom line, EVERY woman will react differently to Mirena and EVIDENTLY each time you have Mirena placed the side effects can vary - greatly. I hope this helps someone.

PLEASE READ BEFORE GETTING MIRENA.....I recently had my second child (which was unplanned) so i was all for it when my doctor told me about Mirena. She talked this big game telling me how great it was and it was perfect for a person like me, so i had it put in at my 6 week check up. To start, it kinda fells like mild to moderate labor pains when they put it in. Not even 2 days later i started experiencing swelling all over my body most of it was in my feet and legs, kinda like when your pregnant except i never had that with either of my children. I have constant pain in my back, hips, and feet. Weird fleshy discharge. I feel like you should when your on your monthly cycle with the bleeding, tired, crampy and hungry except its not just once a month, its been this whole time. I've gained 10-12 lbs in 2 months. I HATE it!.. To top it off it took me THREE requests to finally get them to agree to take it out and it comes out next week...They like to tell you they hardly ever have anybody get it removed but thats because you have to fight with them tooth and nail. It might actually be wonderful for some people but NOT for me!.....So warning to all other women out there BE WARE because i know i'm not the only one...

))REMOVED IN APRIL 09, STILL HAVING SYMPTOMS, ANYONE ELSE PLEASE CONTACT ME..I THINK I'M GOING CRAZY(((((

To spare everyone of a very long read of the SAME symptoms as everyone on here, I will list:
Dec08 inserted
PAIN PAIN PAIN CONSTANT PAIN
BLEEDING
Cramping so bad I had to stay in bed
Insist something is wrong
Dr. says all this is "normal"

April 09 Removed
PAIN CONTINUED CONSTANTLY
Dr. Says all this is "normal" be on you way

May 09 switched to new Gyn
US revealed retroverted uterus ( I knew previously)
Cyst on rt. ovarie
A small amount of fluid in cul de sac ( Dr. states that the mirena perforated my uterus & now the fluid is sitting there)
Given 2 antibiotics & a pain reliever (did nothing)

June 09 Went back to new Gyn
States that " I don't know what to do, I have never had a patient with these problems, you may want to get a 2nd opinion."

August 09 (now)
Continue to have same daily, continuous pain & pressure in uterus & rectum area.
Sometimes feels like a bowel issue as well?????? Some sort of connection here.
Pressure, heaviness down into my upper legs & knees feel swollen
Sharp knife like pains in breasts
Nausea that wakes me from sleep
Tearful, sad, becoming depressed, feel like Dr.'s think I'm crazy!
Spending money we do not have on$50 copays and GETTING NO CLOSER TO THE ANSWER!

WHEN WILL THIS STOP??????????????????????????????

Contacted Mirena, they just jotted down notes & said hope you feel better.
Blood work some white blood cells, but nothing major.
I eat Advil like PEZ candy, if a friend can give med a pain med I get a days relief then it's just right back the next day. I don't dare ask for meds from Dr.'s they already think I'm nuts!
I have wasted so much time with this, I am missing my infant experience life, my 4 yr old needs me as well! My husband can not take another minute watching me in pain & crabby all the time.

Seriously, enough already, I get it, I made a mistake.

Contact mee if you want to chat.... ******

Not doing well .....M.

Ladies~
I went to my doctor Tuesday 7/21/09. She made me feel like this is the answer. I really want a endometrial ablation done, but I was told, that there could be problems down the road as I get older. I am 43 and we are done with having kids because my tubes are tide.
But after reading all the comments, I am really scared to have this put in. I have MS I was diagnosed 5 years ago this June. I just can not afford to have a flare up.
Ladies i really need your input on this, if you would please.
thank you
T

This is my less than 24 hour update from yesterday since I had my Mirena removed. I had my yearly appt. yesterday and explained to my dr. all the problems I've been having over the last year. I thought he would try to talk me out of having it removed but he was very sympathetic and removed it without question. So, I'm definitely relieved about having it out. I'm sure it will be a while before I will be able to notice any changes that I can directly relate to the Mirena coming out. But, I can tell you that my husband and I can already tell the difference during intercourse without the Mirena. It is so much more comfortable so, we are very excited about that! I requested Yaz for birth control since I've been on it before and never had these emotional issues while on it. He also gave me a brochure and DVD on the Essure which is the in-office permanent sterilization procedure. So, I'll be doing research on that to see if that will be a good thing for me to do.
Another thing, too, during my gyno exam, he found a lump in my left breast. I have never had any problems and definitely no history of any kind of cysts. I'm not blaming the Mirena but all of this is just way too coincidental. Now at 35, I'll be having a mammogram and ultrasound to determine what this lump is. I'm just praying hard that it won't be anything and definitely trying to stay positive. I'm just very relieved to have the Mirena out and I will stay posted as to any additional changes in the future.

I had the MIRENA removed yesterday. I had it for 1 month and the first sign of change to my body was odor, I stink, bad, I did not have this problem before. So when I had my 1 month appointment for the follow up I decided to take it out. This was not so easy, the Doctor was really mean to me, told me the odor has NOTHING to do with the Mirena. Now that I'm reading all these posts I realize everything that went wrong with me had to do with this Mirena, trouble sleeping, acne, mood swings, weight gain...ack! I don't need birth control because I have my tubes tied, but I needed to control my super heavy periods, but let me tell you, I would rather have long periods over all these other side effects, oh, and my cramps got so much worse. What really bothers me is how the doctors want to push this product on you like it's the best thing ever, they are lying, big time!! I'm sure they get some kind of commission from Bayer. I'm really mad, and feel like I really can't trust my doctor.

I am so lethargic it's not even funny. I can see why the Mirena is 99.9% effective-you're either sleeping or so tired you have no interest in anything, let alone sex. I had a vivid dream last night which I don't tend to have. Also, i've been so blue and can't seem to bounce back from it. I had almost no cramping when I had it inserted but it was expelled immediately. The NP had to reinsert it and said I should use ibuprofen whenever cramping, which seems to be happening more frequently. I've had this only a week and four days. I am concerned that my body may be trying to expel it. Also, I've have to frequently urinate. I have had UTI's in the past but not for a long while. This isn't worth it. I may tie my tubes as I originally planned. After all I have two absolutely beautiful children- my son and daughter.

I'm 39 yrs old and I had the Mirena inserted in Sept.of 09. Since I've had this put in, I have a period every 2 weeks and it last for 2 weeks if not longer!!!!! Very annoying....... It seems like I'm always bleeding or discharging and I can't stand it anymore. I've also experienced hair loss, I have always had thick hair and now my hair is getting thin and it hasn't been growing. I'm also experiencing insomnia, my sleep has progressively declined since this was inserted. Now I'm on my second medication to try and get some sleep. I'm tired all the time, extremely moody. I get pissed off all the time over nothing. It is affecting my relationship with a man I'm totally in love with and if something doesn't change I'll end up losing him. Before the Mirena things were great and now they're getting worse and worse. I don't do things with my friends anymore cuz I'm tired all the time and moody and my boyfriend gets the grunt of it all. He has a 5 yr old and I have no patience with her and I've always been really good with kids and I never had such a lack of patience before the Mirena was put in. Needless to say I have an appointment on July 7th to get it out. Oh and did I mention the 15lbs I've gained since I've had it put in. I've never been overweight or had weight issues in my life. Since this has been put in, it seems like I keep gaining weight and it doesn't seem to stop. I go to the gym and do weights and I do a lot of cardio and nothing seems to stop the weight gain. I'm praying that after this evil thing is taken out, I can get back to being my happy self and treat the people around me the way they deserve to be treated. I know some people haven't had any problems with the Mirena, but for me its been a living hell!! No birth control is worth all these side effects. I'm thankful I found this site because I didn't know what the hell was wrong with me until I started reading all the things that other women have experienced that are similar to what I've been going through!

Dear EZ-RUST ... you must be a doctor with that attitude towards everyone ! I just had surgery 2 weeks ago to remove an ovary/tubes/cysts and so on from Endometriosis. I had the Mirena inserted at that time. MY DOCTOR told me that is is a great thing and I totally trust his judgment being a specialist, also, I did my research and read a lot of these comments regarding side effects prior to my insertion, and I thought wow, that's crazy, but I thought everyone responds to meds differently, I knew two other girlfriends in my office that were looking into this and one is going to be getting this as well. So I did cover everything, got the good reviews from another friend, plus read us on the Mirena... Positive = no bleeding since put in other than mild spotting after surgery, but that spotting was probably related to surgery ...... BUT I now have some side effects after 2 days and thought it was a intestinal / bowel issue ... but I have the acne, mild headaces, look 6 months pregnant = after only 1 1/2 weeks of this being inserted !!!!!!!!! Plus the moodiness which that can be caused by anything in general as well as a sore lower back. I WILL be having this removed as soon as I am back in Canada, I am in the USA enjoying the 4th of July celebrations .... But you are a bit harsh, judging other people ! Conditions are conditions ! Having your opinion is one thing but being so defensive makes me think you work for the company !