April 15th
2008
11:55 PM
It has been 18 days since my 9 year old daughter has taken Singulair. Our daughter had been taking Singulair for approximately 2 years. It was in the last year that we started to notice some behavior changes and mood swings that were so often unprovoked. We were somewhat concerned and thought like so many other parents that it was a phase. Then in December 2007 she came home from school with a tummy ache and had several episodes of vomiting. She seemed better the following day, but we took her to the pediatrician to be sure that this was a virus. The stomach pains continued, and then anxiety attacks began. Over the next month she began to wake up each day with stomach aches and we began more visits to doctors and more testing. She had abdominal X-rays, CT scan, mekel scan, GI consult and endoscopy. All were ok except she did have some small amounts of acid in her stomach. She was treated with Prevacid with really no significant changes. As weeks passed she missed more and more school, she just could not make it through the day. She had intense separation anxiety, and developed OCD about being sick again and vomiting, fears that she may stop breathing; fear of dying and the list goes on. She was refusing to ride the bus to school, and was having more and more panic attacks that would last for hours. We finally took her to a psychiatrist after we had done every test we could possibly do and all were normal. She woke up with the fear and anxiety, and fell asleep each night the same way. The doctor said she had "OCD" which she believes was triggered by the fear from vomiting. "This was the first time she had vomited since she was an infant.” She was treated with Lexapro, and Klonopin. The symptoms worsened over the next few days even with the new medications. After many calls to the doctor we were finally advised to have her admitted to a children’s psychiatric hospital for closer evaluation where higher doses of medications could be administered. She was there for 4 horrible days with slight improvements. Over the next few weeks the medication did begin to help some and she was able to make it through school each day as long as she was able to call me a few times a day for re-assurance. I thank God each day for her wonderful teacher and staff that have helped us through this. They all have known her for 3 years and knew this was just not her character at all and she was truly struggling. She was always known as "Smiley" to everyone because she always wears a grin. We began therapy with a psychologist as well and she has good and bad days. Then we heard the news about Singulair and I began to trace back other issues she had with focusing in 2nd grade and how things just seemed to progress from there. It all happened so gradually that I would never have put two & two together. She is showing improvements every day with personality, mood, attitude, fears, and the "OCD". She told me today that this was the best day ever!! I have made all the Doctor's involved aware of this information and the progress she has made in the last 2 1/2 weeks. Her doctor did cut her meds in half this week as well. Thanks to everyone that has posted their nightmares as well, and we will pray for you and for full recovery for all those that have suffered.
-- By benitez91 | Reply | (2) replies | Private Message me
April 5th
2008
5:24 PM
I am updating as my almost 7 year old son has been off Singulair for a little over a week now. He seemed to actually go through a "withdrawal" period for about 2-3 days. He was very emotional with his moods swinging wildly, giggling uncontrollably one minute, and then crying at the drop of a hat. Thank goodness we did this over a weekend so his teachers didn't have to deal with this! His stomach aches continue, but they don't seem to have the intensity they did before and this morning he even said to me that his stomach hurt and he was trying to figure out if he was just hungry or had an actual tummy ache. I gave him a small breakfast and he said, "Yup, I was just hungry, it's gone now." Before, he couldn't ever tell if it was a real stomach ache or if he was hungry. His stomach just always hurt. He did have two nights in a row (the first two nights w/o Singulair) with really BAD nightmares--even came into our room crying both nights. Since then, he hasn't woken once during the night. My husband and I can't remember the last time we went a whole week without our son ending up in our bed!! No complaints of headaches, leg pains, no sinus infections, etc. So far, I would say that he is getting better--the side effects, at least. Because our son is severely asthmatic however, we do take peak flow measurements 3x every day. Since going off Singulair, his peak flow hasn't been as good. Not terrible, but not as good.
Interestingly, I spoke with both our pediatric pulmonologist and our pediatrician's office. Our pulmonologist was very supportive in going off the medication as long as he had other controller meds (which he does). Our regular doctor's office has two pediatricians, one was very interested in what our pulmonologist had to say, what our son's side effects were, and was supportive of our pulmonologist's decision, etc. (She's the one we always see.) The nurse told me that the other ped. was not recommending that ANY of her patients stop taking Singulair. The ignorance of some doctors--lesson learned for me. Never see that pediatrician!!
The tough decision for us will be what to do if our son's asthma gets worse with recurrent pneumonia and hospitalizations for URI's returning. We are hoping that doesn't happen and that we can find other ways to help control his asthma! I still feel that Singulair was the most effective in controlling his asthma--just don't think we can put him through all the stuff that seems to come with the Singulair!
-- By allergymom | Reply | (2) replies | Private Message me
June 3th
2007
9:00 PM
My four year old son has been on singulair for 6 weeks. He has started complaining about nightmares, wetting the bed and has become irritable and easily agitated. In addition, he seems to go into these wierd episodes of not being able to control his body...like someone high on drugs. Has anyone had a similar experience?
I will be calling his dr. in the am.
-- By jaycee | Reply | (6) replies | Private Message me
May 7th
2007
8:31 AM
MY GRAND DGT. HAS BEEN TAKING THIS FOR ABOUT AN YEAR. HER MOOD IS SWINGING. SHE GETS SO ANGRY TO THE POINT SHE CLENCHES HER FIST. AND SOMETHIMES SHE COMPLAINS OF A TUMMY ACHE. I READ IT CAN CAUSE SOME ANGER AND STOMACH ACHE. BESIDES THAT IT WORKS.
-- By sbhollier | Reply | Private Message me
April 2th
2007
7:59 PM
My 3 year old son has had many sinus problems over the past two years. He had his tonsils out last August along with tubes in his ears and removal of his adenoids. He still has constant drainage from his eyes and nose so he has been on Zyrtec for about a year without any side effects. About 3 weeks ago his ENT suggested singulair to help with all the sinus drainage that just won't go away. I just related it to a number of problems he has experienced in the past 3 weeks. My son has delayed speach and does not communicate well. He kept complaining of a tummy ache and we went to our family practitioner and "it's just a stomach bug". I also noticed that he has been waking up during the night and getting into bed with us. I know he has been having more dreams, but He is not able to tell us if they are nightmares. Just tonight when I was putting him in the bathI noticed a rash around the base of his penis and he would scream if we tried to examine him. I am sure that it is Candida Albicans and that is when I googled Singulair and Candidiasis and found all the other side affects that are on this site and others.
-- By jillyscraps | Reply | Private Message me
December 6th
2005
8:25 AM
My now 4 year old daughter has been on the drug, 4mg chewable tablets for children since April 2005. We did not see any personality side effects. The only two things we have noticed is that she started wetting the bed at night. She was dry at night before the drug. And just recently, after 8 months of use she is complaining of tummy aches without any other symptoms. She doesn't feel like she is going to throw up or has cold symptoms, just a tummy ache. We were called by the preschool yesterday to bring her home due to this. She has been complaining off and on of a tummy ache for over a week with no other symptoms, no fever.
We are taking her off of Singulair after reading all the posts in this forum. She takes no other medications.
I'll post back my results to see if her side effects clear up.
-- By jenny326 | Reply | Private Message me
March 19th
2005
12:15 AM
My 2 year old son has been on Omnicef for 5 days now, and for the past 3 has been miserable and cranky. He has had a tummy ache and trouble sleeping, and diarrea that seems to be getting worse. Omnicef was prescribed for him for a double ear infection, but the side effects caused by this medication seem to be worse at least equal to the symptoms of the infection itself. Tomorrow we will go back to his Dr. to see what our alternatives are.
-- By kohnke | Reply | Private Message me
July 5th
2008
12:50 PM
My 2 1/2 year old has been on Lactaid milk now for over a year. Just after her 1st birthday she began this mysterious vomiting all the time.
-- By markelmom | Reply | Private Message meShe did test positive for the rotavirus right around her 1st birthday but the vomiting and loose stools continued for nearly a year afterwards. So after numerous tests including a horrible one to test how much reflux she had (which came out as minimal) her docs said she must be lactose intolerant. We put her on Lactaid but the vomiting continued. It did get better but it didn't totally go away until just after her 2nd birthday. Then more than 8 months later with no throw up she came down with what I think was the 24 hour flu because she couldn't keep anything down for a full day. Took her to the docs and they said just keep her on liquids as much as possible to keep her hydrated since she also hadn't had a wet diaper in more than 12 hours. The next day she was better and finally had a wet diaper but now she complains of a tummy ache all the time after she drinks her Lactaid. At first I thought maybe it's a comfort thing since I held her so much when she had the flu but now I'm not so sure. She has been complaining now for over two weeks. The only other thing that is new for her is we are trying to potty train. She has woken up with a dry diaper for over 6 month now so we thought she would be ready. However, she is very reluctant and holds her pee for a hours after she wakes up dry. I do notice that she also has quite a bit of gas when she is complaining of her tummy hurting and her stools are firmer than they used to be. I thought maybe it was because I would buy generic Lactaid like one person mentioned but she complains even with the good stuff and even the new Organic Lactaid. She doesn't eat much dairy products other than milk. She doesn't like yogurt and rarely eats cheese and we don't give her ice-cream. So not sure what is going on?? That's why I was searching on the net and found this site. Hope someone has some suggestions for us.