February 19th
2009
12:07 AM
I have had mine in for 7 months with no problems...I think you all were pre bi polar prior to insertion...
-- By anastasia01 | Reply | (3) replies | Private Message me
October 17th
2008
10:12 AM
Hi a little over a year ago i received a kenalog injection for allergies and have been having a lot of the same side effects you all have been having. I have a very large indentation on my butt. I have an appointment with a plastic surgeon to see about have the indentation fixed just out of worry that it will keep getting bigger because it has over the last 12 months. I have also had problems with my period. I have went from having extreme bleeding to 2 periods a month to now bleeding for 3 weeks at a time. I have also lost a ton of weight and am down to 115 pounds even though I eat all day long. A drug of this kind should not be on the market!!!! ON THE PACKAGE INSERT FOR THIS DRUG NONE OF THESE SIDE EFFECTS ARE LISTED. Somebody should be held liable. If any of you have any information on a class action lawsuit please let me know. Surgery to fix this is very expense not to mention just looking at it in the mirror and knowing that it could have been prevented if someone would have informed me that it could have possible happened.
-- By wishingforsomehelp | Reply | (3) replies | Private Message me
August 28th
2008
12:40 AM
I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik
July 26th
2008
11:47 PM
I started taking Lipitor 12 years ( 1997 ) ago as my Cholesterol was at 315. I was always athletic but had a crappy diet. My Cholesterol dropped to 200 within a year. However, in 2001 I ruptured my left Achilles playing tennis. Thought nothing much and that I hadn't stretched enough. Recovered from that and started playing tennis again in 2002. Within three weeks of playing again, I ruptured my RIGHT achilles! At that point I started to question the effect of Lipitor on muscles/tendons with various medical "professionals". ALL said it was nothing to do with medication. I quickly developed a tingling/numbness in both feet that doctors said could not be happening but it WAS!
I've had MRI's, nerve conduction tests, wondered if it was diabetic, alcohol, etc. Finally found sites such as this where real life experiences validated my concerns over this statin. I told my Dr. I was quitting Lipitor last Monday, she had no problem with that. This is Saturday night and I'm sitting here with a NOTICEABLE decrease in my numbness/tingling in both feet that I've had for the past TWELVE YEARS!!
I hope that the statin did cause my "mild sensory polyneuropathy" as was diagnosed in 2002. As of right now, it seems to be getting better in less than one week! I can flex my toes with NO pain and my feet don't feel like dead weights.
I WILL NEVER USE A STATIN AGAIN!
-- By rickinatlanta | Reply | (3) replies | Private Message me
January 3th
2008
10:40 PM
I was diagnosed with Crohn's disease in July. I had my colonoscopy/endoscopy the day before 4th of July. Got sick with what I thought was the flu on June 26th. That's when I first landed in the hospital (dehydrated & sick). After the diagnosis I was first put on Entocort and Pentasa (Pentasa is supposed to be a remission drug - keep you from having flare-ups). Entocort didn't work so they switched me to Prednisone. I've been on Prednisone for about 6 months now. Going from 20 mg to 40 mg and then I'm finally weaned down to 5 mg. I get to go completely off of it Jan. 13th. Scared of what other side effects might occur from coming off the drug. While on it I've had emotional problems, acne(never had a problem with it before), moon face, gained 30 pounds, joint pain (I was in therapy for as long as insurance covered. - I recommend water therapy, it helps for some people as it did me), trouble sleeping (haven't slept a full night since I got sick), certain days I'm really really thirsty, I've had sort of what I'd call restless leg (I had this before I was on this medicine but it has gotten significantly worse - mostly at night or when lying down), and dry skin.I have to say though that the WORST side effect is the FOG. It's horrible. I enjoy learning and using my brain and when I'm on this I can't think, I mix up words, and it feels like my brain is covered in cobwebs.I had to drop a calc 2 class and that got me off the track I'd set with my academics. My inflammation rate is down where it's supposed to be as of the last blood test a couple weeks ago. So I guess the Prednisone and Remicade are doing what they are supposed to - but I still don't feel as if the pain (not associated with Prednisone - caused by the disease) has gone completely away even if the inflammation has gone down. And Prednisone's effects are just horrible. Some nights I feel depressed and just want to cry and cry. The past months have been trying because of several hospital stays, switching to many different doctors (gastrointernologists, nephrologist, urologist (kidney stones), primary doctor - and they think maybe I should see a rheumatologist), and Pentasa (it began shutting my kidneys down). I just hope that when I come off the Prednisone the side effects will fade (hopefully quickly but lets be realistic - ill just be happy if they go away sometime in the next few months) and I won't flare up again. Anyone know the best way to get rid of the weight? I'm already drinking lots of water and I go walking and do exercises everyday.
QUESTION: When tapering Prednisone does anyone have a place(s) on their stomach that are sunken in and feels dry compared to the skin around it?
Anyways, I hope that everyone overcomes their difficulties, whatever they might be or concern. It's hard to have a life when you are constantly fighting your own body to stay healthy.There are plenty of situations in life that are already hard enough to deal with without medical issues of your own. Best of luck to all!
-- By tesa | Reply | (4) replies | Private Message me
Mirena (2) PredniSONE (1) Kenalog (1) Lamictal (1) Lipitor (1)
February 19th
2009
2:42 AM
THIS IS IN RESPONSE TO anastasia01 RUDE STATEMENT
Excuse me! Obviously, there are people who don't have any problem with Mirena or it wouldn't be on the market, so maybe you are one of those lucky people. Everyones body is different and responds to hormones differently, so for you to sit there and make a judgment like that when you don't know what kind of hell I have been through in the past TWELVE years of my life with hormone treatments or what other people on this page have been through, is absolutely ignorant! I am so happy for you that you have had no side effects and thats wonderful, but thats all you had to say. Attacking everyone else is so uncalled for! Don't judge people you don't know! Especially, people reaching out for help!
-- By infoneeded09 | Reply | (1) replies | Private Message me