September 30th
2008
10:06 AM
wow, i'm glad i read all comments left by all these women, i'm a mother of 4 year old twin boys and i don't want to have more kids. i was thinking about getting MIRENA, but now i have decided not to do so, i just want to say thanks to all of you that shared your horrible experiences, i wish you all health and good luck, there is no way i'm getting that thing put inside me...
-- By luzzies | Reply | Private Message me
June 6th
2008
3:17 PM
WOW!!! I am glad I came across this website. I have twin boys that will be 7 this month. One has been on Singulair for about 3 years for allergy induced asthma and my other son has been on it for 9 months for allergies. I am taking them both off of it today. The son that is taking the medicine for 3 years has become increasingly angry and gets upset over small things. Over Memorial weekend, he lost a game he was playing on the wii and exploded. He was banging his head and then started to hit me. NEVER in my life have I seen him attack anyone. A few days later he threw rocks at his friend because he wanted the wagon. Over the past 3 years I have noticed some change in him and just took it as growing pains. He has always been a strong will child. However, over the past 3 years he has gotten worse and since he has physically attacked me and his friend, I have decided to send him to counseling. Now I firmly believe it is the Singulair.
My other son has been on it since August. He started to have anxiety within a month of taking it. His behavior has been stressed, depressed and not wanting to play with other kids. He was biting his nails to a nub, licking his hands, not talking to anyone at school and rubbing his head. I have also noticed he does like to look at the person he is talking too. Of course I thought the worse and thought he was being molested. I went to his Teacher and she has worked very hard with him, but he is still a loner. If you knew him before, he played with everyone and enjoyed life. I was told by his Ped. that he had anxiety and to have him see a shrink.
I am hoping that after taking them both off this medicine, I will see improvement.
-- By nradovcich | Reply | (2) replies | Private Message me
May 26th
2008
3:45 AM
I am so glad I found this web site I just wish I had found it BEFORE I took my Singulair this evening. I am a 54 year old mother of 12 year old twin boys and I only just begun taking Singulair 9 days ago for lingering asthma problems I could not shake. My difficulties with Singulair started right away with headaches (though I didn't realize what was going on till I found this site) and by day three I was starting to have the dreadful nightmares that everyone is describing. Now it is also obvious that an extreme depression has settled over me and seems to be getting worse every day. I feel like I am living in the shell of myself and almost as a third party observe the awful way I have been treating my family. It makes me feel so miserable all I want to do is to be by myself, shut down and sleep. I read in the other letters about body/back aches but not about what I have been experiencing. Just a few days ago - terrible leg pains/cramps began pulsate along the back of my upper legs and sometimes the lower back. I am stiff and uncomfortable during the day but at night it is terrible. Each night it has gotten worse. The pain in my legs is nearly unbearable even as I write this and is what propelled me to get back out of bed at midnight and to the computer and to this site. Thank goodness and thank everyone who has written - it is obvious you have saved me much pain and grief - hopefully my letter will help someone else. But for right now this six month supply of Singulair is going in the trash immediately!
Lauri
May 12th
2008
6:20 PM
Hi all, I've been using the nuvaring for about 2 months now. I had twin boys in Feb, and DO NOT want to get preg for a long time. I originally wanted the Mirena IUC, but my dr ended up having a medical emergency and is no longer practicing. Anyway, for my 6 wk checkup I got a male dr who "doesn't do the Mirena thing." I was so mad. My mom has had a pulmonary embolism from estrogen therapy before and I shouldn't be taking estrogen because of that. This doctor said that isn't a problem for me and I believed him. Now I'm having the worst headaches I've EVER had in my life. I am so dizzy all the time, I almost dropped my son this morning and did drop him the other day. I am unable to focus on anything or remember anything that i need to do. I'm also experiencing vision problems which ****** states could be a bloodclot in my eye. YAY, at least I have an AWESOME family doctor and he is going to see me asap tomorrow morning. I hope these headaches go away soon, I took it out today after what is now the 6th day of barely being able to keep my eyes open. I'm wearing sunglasses now so I can look at the computer!! Hope everyone gets their situations with this resolved and we all find something BETTER.
-- By sgtswife | Reply | Private Message me
May 9th
2008
6:48 PM
I had my Mirena IUD removed on Monday, May 5, 2008. I had it inserted on November 10, 2005. I was having major side effects from the birth control, and every doc I went to said that there is no way that Mirena would cause the side effects I was having because the "progesterone amounts are too low to cause these side effects". I have had the following side effects:
WEIGHT GAIN
JOINT PAIN
LUMPS IN BREASTS
BREAST TENDERNESS
HUNGER (as if i were pregnant)
DEPRESSION
LOSS OF SEX DRIVE
HAIR LOSS
SWOLLEN ABDOMEN (BLOATED?)
HEADACHES
GROUCHY/ON EDGE
ACNE
CYST (had a couple weeks ago... i was on vacation in Vegas and had a cyst burst.. never had these issues... this was the last straw)
STABBING PAINS IN ABDOMEN AND IN AREA OF OVARIES
PMS SYMPTOMS EVERY OTHER WEEK FOR TWO YEARS
BREAST GROWTH D TO DD
VAGINAL BLEEDING AFTER INTERCOURSE
FATIGUE
TENDERNESS OF ABDOMEN
BACK PAIN
HIP PAIN
As of today, Friday, May 9, 2008 (4 days after Mirena has been removed) I have lost 9 pounds. I am sure this is probably water weight? I am feeling a little better every day. The night I got home from having it removed, I had major mood swings... would be happy one minute and crying my eyes out the next!!! I would not recommend this IUD to ANYONE.. not even on my worst enemy (if I had one). This needs to be taken off the market. It is not safe! I have spent thousands of dollars on ultrasounds on my breasts (thinking i could have cancer because the lumps i had in my breast) and on other doctors bills to figure out what was wrong with me.. only to find out that "Mirena is not the cause"!!!!
-- By mon_cheree | Reply | (14) replies | Private Message me
March 28th
2008
10:03 AM
I'm just heartbroken over this. My 6-year old identical twin boys have been on Singulair for 4 years to help control severe asthma. Looking back...I now realize there was a definite "personality" change in both of them after going on it. I've been living with it for 4 years now and have just "gotten used to it." Since October, one of my sons has experienced severe back pain, abdominal pain, fatigue, swollen lymph nodes (though I don't know if this is related), and sadness. I have put him through tests because I just knew something was wrong - he has had an MRI spine, CT chest, abdominal ultrasound, and lymph node biopsy (all negative). I am just crushed because I wonder if I have put him through these tests for absolutely NO reason. That all along, it has been the Singulair. My other son has had insane mood swings for the past 4 years and I had just chalked it up to his personality. He can be extremely mean to his brother and has indicated to me that sometimes he just doesn't "want to be."
The only positive thing out of this is that I learned how insightful my pediatrician is. He took both boys off the Singulair about 6-8 weeks ago. I have noticed a slight improvement in his symptoms, but they have not yet all gone away. I'm hoping there's not lasting damage...
-- By twinmom | Reply | (5) replies | Private Message me
March 13th
2008
11:27 PM
I have been on the ring for 2 years, ever since my twin boys were 1 year old. I never had a problem until 2 months ago when I had spotting a week early, swelling in my face hands and legs and my breast were really sore. Just this week my breasts are sore again and I have had two fibrocystic areas that have been mammo'd but now they are so prominent that you can feel it through my clothes! I think it is the hormones from the ring and I am now considering an IUD!
-- By genaoneal | Reply | Private Message me
March 7th
2008
10:08 PM
has anyone noticed excessive breast tenderness with the NuvaRing. my boobs have always been a little sore the week before my period, but now they start feeling sore, and even aching, up to two weeks before. it freaks me out monthly as breast tenderness is a sign of pregnancy.
-- By rose149 | Reply | (5) replies | Private Message me
June 12th
2006
7:00 AM
Dear Silke
Thank you for the support it is good to know that i am not alone. I was on the pill for 6 month, and befor taking it had no prblems I have twin boys and got pregnant in a second, every docter I have been to see has brushed me off with early menapouse no one can explain to me how such a drastic change cane happen in such a short time.I hope that time will help as it seems the only thing i can do is wait.
thank you
Tami
October 21th
2005
7:45 PM
I've read some of the other posting and I'm a bit concerned. I have twin boys who were started on Singulair about 2 years ago for seasonal allergies. They went on it around sept. and remained on it thru may. They came off of it during the summer months but were put back on it again in Sept. My boys were about 2.5 years when they were put on it and now I'm starting to put the pieces together. They have developed agressive behaviors toward me, their father and each other. They are very moody and irritable and have become anxious about being left at school, which was not a problem during the summer months they were off it. They also become very hyperactive after initially taking the medication at night. I also have a nephew who was put on it about a year and a half ago. He is 8.5 and has developed anxiety about going to school, which he did not have prior to taking this med, headaches, and stomache aches. I'm not sure if all these are truly being brought on by singulair, but its highly likely.
-- By debbie313 | Reply | Private Message me
October 23th
2008
6:59 PM
I am a mom of twin boys who are 3 1/2. They were 9 weeks premature so we battled RSV for the first two years of their life. Allergies are also an issue therefore, they were put on Singulair at 10 months old. It really seemed to work for them and things seemed to be going okay but once they turned 1 1/2, their behavior started to change. They were constantly throwing toys at each other, sippy cups at people across the room, screaming for no reason, etc. Some may say it was normal behavior for little toddlers. Then the "terrible two's" set in. They started biting, pushing, screaming over anyone who talks to get attention, not listening and for two kids that slept through the night....all of a sudden that stopped too! My husband and I mentioned it to the pediatrician and also tried to going through the state (developmental clinic because of being premature) thinking that we would get some answers and everyone seemed to think it is a combination of their age and the fact there are two of them....sibling rivalry. We now deal with two kids that use to sleep through the night, now end up in our bed every night to fall asleep because they don't like their room and their erratic behavior is stressing my husband and myself out. When they are good, they are great but when it gets bad....it is a nightmare! I even find it hard to get people to watch the kids because they are too much to handle! After reading these postings I realize I am not the only one with kids going through this and that the common link is SINGULAIR! I am not giving this to my boys ever again and I already put a call into the pediatrician to discuss my findings. I have a sense of relief to know that it is not only my children who's behavior is like this but I am scared because I pray that there is not any long term effects that can not be corrected once this drug is out of their system. I just want my boys to be healthy and okay!
-- By jennchick | Reply | (1) replies | Private Message me