November 7th
2009
6:19 AM
my grand child is almost 3 year old , he has been on singulair candy for almost 6 month , what we noticed is a noticeable change in his behavior in the form of nervousness , he turned cranky , recently his teacher reported that he is not him as before , his appetite in that good as before , he became nagging while he was a sweet child before singulair .
-- By drtselim | Reply | (3) replies | Private Message me
June 17th
2009
3:46 PM
I'm 15 years old and i've been taking prednisone for a few months, and from what i've read i'm on a really high dose. i was diagnosed with rheumatoid arthritis and another autoimmune disorder concerning my muscles at the same time. my doctor told me prednisone was my only choice; it was either that or i would lose the ability to walk. he told me there'd be side effects, but i had no idea it'd turn out like this or i would have fought harder for another course of action. i started out on 30mg twice a day, and since then was weaned down to 20mg twice a day and now i'm down to 30mg once a day. i've been looking up a bunch of information trying to figure out if there's a way to lessen the side effects or any hope at all that they will get better. apparently there isn't much. after reading a bunch of these stories i gotta say i'm not feeling great about this. i totally understand everything everyone is going through. i'm sure you can imagine what it's like being smack in the middle of high school with a huge puffy face, acne so bad on my face, chest, back, neck, and shoulders that wearing a bra could put me in tears, and mood swings so bad i've lost friends over it. everyone knows how brutal high school can be, where appearance and attitude are everything. and i try to tell my doctor about it and he literally looks at me like i'm a whiny teenager and says "you're just going to have to deal with it." and people like my mom and my closest friends don't get it either. nobody understands how beyond frustrating it is. i'll get into the worst moods and not have a reason for it, but i'll stay angry for hours or burst into tears over someone looking at me the wrong way. it'll get to the point where i have to isolate myself from other people because the abrubt mood changes get so bad. as bad as i hate to admit it, the pain from the arthritis is gone now and supposedly my muscles are doing better too. developing arthritis caused me to have to quit cheerleading, something i've loved doing for 6 years, because the pain got to the point where i couldn't get my arms above my head or bend my knees. however, i'd almost rather deal with the horrible joint pain than deal with the side effects of prednisone. if your doctor gives you and alternative method, take it. i've always been confident in the way i look and really outgoing and happy and now i sometimes catch myself thinking about suicide. that's shocking to me because i've got so much going for me, but this medicine makes me miserable. and when i complain about it, anyone i'm talking to just looks at me like i'm being a cry baby. my mom does too, she'll say things like "you just have to do this. i know it's not what you want but to be honest i'm sick of hearing you bitch about it."
i feel a little better knowing other people feel the same way - like nobody gets whats going on with them. the prednisone does give me days of really great euphoria and days when i feel like i could run a marathon, but waking up in the morning to the acne and huge face puts me to tears every day. i have to pee all the time, usually getting up at 2 or 3 am. i don't sleep well anymore and i do sweat all the time. which also sucks being a teenage girl. i'm always hungry, and when i eat i never feel full so i don't know when to stop. my neck and face have put on so much weight that when people see me in the halls or out and about they ask me what happened. mind you these are people i don't talk to, just ones i know from classes or whatever. and it's pretty bad when teenage boys i've never really talked to ask what happened to your face. kind of a blow to the ego, or whatever is left of it at this point.
i'd like to know if, as my dosage gets lowered, the side effects will diminish and when i'm off the prednisone completely if they will disappear altogether. any help there?
or if there is any way to help the acne or puffy face
my doctor just put me on something called methotrexate or something like that to help wean me off the prednisone, and does anyone know what those side effects will do? or if they'll affect the prednisone side effects?
i'm constantly obsessing over gaining weight and what my skin looks like and what i eat and how heavy my face feels and the occasional pressure in my eyes to the point where i just want to be put out of my misery.
and after reading other people's stories i really don't understand why this drug is still given out as freely as it is. but maybe all doctors are like mine, they just don't get it.
best of luck to anyone who's on prednisone, my heart goes out to you; i'm right there with you
sorry this became like a book it wasn't meant to be this long
March 28th
2008
1:59 PM
I have been crying for almost 24 hours now. I cannot believe what I am reading and hearing about Singulair. My son has been to hell and back again and again. I cannot say for sure the Singulair is the culprit. But after reading all of the other stories on this website, I am convinced it is a strong possibility.
My son is 11 years old. He has severe allergies and asthma. He takes many, many medications for this including Singulair. He as been on Singulair for about 8 years now (my best guess because he has been on it for sooooo long.)
My son was diagnosed with ADHD in pre-school. He has taken many medications for the ADHD, but none have ever done any good at all. We thought some of the medications even made things worse. Now, I'm not so sure.
After exhausting all the ADHD medications, our pediatrician sent my son to a psychiatrist and a counselor. The psychiatrist put him on 2 different antipsychotic medications. Again, neither one did any good and seemed to make matters worse. The psychiatrist sent my son to a psychologist to be tested for Asperger's. For those of you who don't know Asperger's is a high functioning form of autism. The psychologist ruled out Asperger's by diagnosed ADHD and Anxiety Disorder. He did not prescribe any medication.
For some unknown reason, I've only given my son the Singulair off and on for the last year. My son had the best year in school ever. However, his pediatrician was still not satisfied. He sent him to see another psychiatrist at Children's Hospital in Pittsburgh. We were told he is believed to have more than one disability. He is believed to have ADHD, Aspergers, Teurettes and a possible 4th medical problem that has not yet come to light.
We are scheduled to see a neurologist at Children's Hospital on the 15th of April to rule out any medical reasons for his tics. We see the psychiatrist again on the 18th of April.
I am so tormented by this recent news. Has all of these problems been caused from him taking the Singulair for so long? Although he has had his best year in school yet, he still has a lot of problems. Are the side effects of the Singulair permanent.
The other side of the coin is this: It is also very scary to watch my son not be able to breath. Asthma can also be life threatening. What is a parent supposed to do.
Also, I now don't know whether to keep these appointments that are coming up. I hate so much to put him through more. He has endured enough doctors and tests to last him a lifetime. However, what if it is not the Singulair and there is help out there for him that I am not aware of.
Please if anyone else has had a similar experiences e-mail me. I would love to hear from you.
God Bless everyone who has been through this kind of hell.
-- By foxhlam | Reply | (4) replies | Private Message me
March 23th
2008
1:12 AM
Been taking Topamax 300 mg a day for the past 4 year. I also take 450 mg of Wellbutrin. This is to help with migraine. Although my total count of Zomig pills I took last year was 120 pills and some of those I broke in half so I wouldn't have to use a whole pill for a migraine. So that mean, with the Topamax and Wellbutrin combined, I still had at least 123 migraine this past year. Three months of migraines. That's insane. I can't stop the "Dopamax" because my doctor says it would be really bad with it. I have terrible memory loss, forgetfulness, and loss of words that is embarrassing. The nurses did not inform me of the side effects when I first started taking it and I thought I was going crazy. I started looking up ADHD on the computer thinking I had developed it as an adult. I was made at the nurse when she asked me how I was doing remembering things and and if I was stumbling for word......I wanted to slap her off her stool.........at that point it was NOT funny.
-- By starleena | Reply | (4) replies | Private Message me
January 6th
2008
5:49 AM
Started on Effexor XR after trying several other antidepressants. Effexor worked the best for me, and I loved it. But the longer I was on it, the worse things became. I started on 37.5 mg, then up to 75mg. Then to 150mg and then 325. By that time, I was completely numb. No emotions. I did not cry for over 3 years. I ended up with severe headaches, heart issues and more. Do NOT stop taking this med cold turkey. It made me sick and nauseas, so I went back on it, gradually lowering the dose until I was off. But even weaning off of it took me a good 4 months before I felt somewhat normal again.
My twin sister took it for 4 days and stopped immediately due to it causing severe heart issues that led to an ER visit and now-daily Atenolol, a heart medication.
A friend took Effexor XR this summer, and after a couple of weeks, pretty much went crazy on it and ended up in the psych ward on a 72-hour hold because she was a safety threat to herself.
There are other medications out there without such drastic side-effects and withdrawal effects. Pay attention to any changes and mention them to your doctor right away. I loved this med cause it worked the best for me, but hated the side-effects enough, that I couldn't stay on it.
-- By enigma0526 | Reply | (1) replies | Private Message me
February 2th
2006
7:39 PM
Not sure where to begin with my side effects...
The biggest (and scariest) of them is that, since I have been on Advair, I have had more and more severe respiratory problems. Every year, since I began the "medication", I have (at least once per year) bouts of either Bronchitis or Pneumonia (sometimes even both). Advair is obviously formulated to make patients become dependent on the drug to where they can NOT stop taking it. I have even tried to wean myself off of it, but thru this process, I truly felt like I was dying. I struggled so hard to breathe. I eventually had to go to the doctor and get a dose of prednisone and begin Advair again.
Another side effect that torments my every day life is thrush. I can not seem to shake it, no matter how many times I have been treated for it. I ALWAYS rinse after using Advair, with water AND a mouthwash with ingredients that are used in treating thrush.
I have also had other side effects as well. I have a twin sister and she has experienced some of the same. One is a strange "cramping up" or "locking up" of our feet. It's very strange and has NEVER happened to either of us, before Advair. It's painful and we have no control over it. The toes separate/spread and "lock up" in cramping pain that lasts a few moments at a time.
Since being on Advair, I have also had weight-gain. The only reason I mention it is because others have posted it as a side effect. I have never blamed Advair for this, but who knows? I think it's just neglect on my part. ;)
Those are the only that immediately come to mind. If I think of any later on, I will post them. :)
Singulair (3) Topamax (1) PredniSONE (1) Advair HFA (1) Effexor XR (1)
December 6th
2009
4:59 AM
HI, my son is 3 yrs old and has a twin sister. He has been on singular for 4 months and i've taken him off it in the last week. He seemed to be cranky and yell at me when he was on it. My question is, was what were your or your child's sideffects when they came off it? My son is crankier and yells more, he is defiant and a naughty and sometimes mean to his sister, which is not normal for him (it could just be a stage, but I'm curious if it is withdrawals from the medication. Any comments greatly appreciated. from Australia
-- By joey09 | Reply | (1) replies | Private Message me