Ty symptoms and conditions

Hi! I JUST had the Mirena put in Yesterday...Tues. And within one hour I started to feel foggy, light headed and crazy! I started getting a pressure headache. Being the last patient of the day, I knew the office was closed. So I looked online and found you all. I am horrified at this point! I couldn't sleep last night at all! I was so nauseous and had the poops. (sorry, tmi) Today I feel full of anxiety and my heart is racing. I feel like I'm on drugs or drunk! My head is still pounding. I kept calling my OBGYN and didn't talk to him until about 2 hrs ago. He said none of these symptoms are from the Mirena. So I hear that is most of the Docs words around here! He suggested I give it more time and call him in a few days and if I want it out, he will take it out. Well the thing is, I am ready to pull it out myself! I feel like I'm crazy! Seriously! I don't know what to do! I called my PCP and they refuse to take it out b/c they didn't put it in. They suggested going to the ER. Well my insurance for sure won't cover that!! So what do I do? I feel like I'm going crazy and no one will listen! We are moving to Italy in a month nd I need this resolved AWAY before then! Any advice will help! I just know when I call my doc, he will try to make me keep it in! What do I do?? HELP! Thanks for being here! Wish I had found you before. I am really good about researching things and I didn't with this. I trusted my doc! The other thing is I hear a ton of you have gained weight!!! I JUST had a full tummy tuck June 5th and I freaking better not gain weight!! LOL I want this out!! Calling my doc tomorrow and demanding he take it out. Has anyone had a doc refuse taking it out and if so, what is our recourse? It's our body right?? Thanks again for listening to me gripe!!! ;) God Bless!!
Danielle

My baby is 3. She had strep throat from Jan to April. I'm talking off the antibotic for max 4 days and the fever would return along with swollen glands, difficulty swallowing and just plain miserable. Took me 2 ENT referrals for someone to finally agree with me that this is not normal and something needs to be done. We scheduled a T & A for April 18th. The surgeon told me that she had a severe sinus infection as well (surgery day). He recommended that we start Singulair 4mg at night along with Nasonex to possibly help with her constant sinus congestion. I gave it to her and noticed nearly an immediate a change in her disposition.(looking back now) At the time I simply chalked it up to having her tonsils out. She was on the medication until Friday May 9th. Her babysitter said that she was seeing what I was at home...only I hadn't shared my dgtrs behavior at home with her...call it guilt for being a single mom who works...I just thought she was having trouble adjusting from a week at home with mom from the surgery recovery to getting back into the "norm" routine. At home she would cry at the drop of a hat. Not just wimper or whine....but tears and screams for nearly an hour. I would ask her why she was crying and she'd simply reply "I don't know Mommy." One minute we'd be playing and she's be laughing and the next she was angry and anxious. She would complain of "tingles in her feet"...I thought she had just been sitting on her legs and her foot had fallen asleep. She would deliberately instigate her older sister...totally not her. She became fearful of her room at nighttime...and took for ever to get to sleep. A co worker had mentioned that a little boy she worked with had his medicine changed b/c the dr said one of his meds may contribute to his behavior issues. Being a nurse I asked what med...SINGULAIR. I immediately went to the web and googled singulair. I found this site...and began to read parents horror stories of their experiences. She has not had another singulair nor will any of my children - EVER. I feel guilty that I didn't take the time to research it before I put her on it. I feel blessed that I was in the right place at the right time to find out about this site. I thought that my kind and sweet little girl had turned into. I know it's only 5 days off the med but she's back to her sweet self about 75%. I am blessed that my experience was not even a month long...but losing your child to a medication that no one warns you about even for a day is WRONG. I think I would be more "forgiving" if anyone along the line of me picking up the med had said ANYTHING...but no one said a thing. My prayers are with those who were not as lucky as I was to stop this med so quickly. I hope your children return to their pre singluair selfs quickly and permanently.

Hi Everyone,
I just spoke to Sarah Sellers from the FDA ,she seems to be working hard on the review of Singulair.She has received a lot of good information from all who contacted her.She now needs reports on completed suicides or thoughts and attempts, to further her investigation.The email address is sarah.sellers@fda.hhs.gov Please if this drug has had these effects on you or a family member report this as promptly as possible.Thank You Kate Miller

I am posting an email address for people that have stopped dispensing this drug and see the symptoms of the side effects disappear.Please tell all who have seen a change in their child or loved one to email this woman.I met with Dr.Sarah Sellers and other members from the FDA in Washington DC she is in charge of Safety Review in the office of Surveillance and Epidemiology.This is critical in the investigation into SINGULAIR .Everyone wants to help and this is how to begin.The email is sarah.sellers@fda.hhs.gov Our Congresswoman has requested the TV advertisement for SINGULAIR to be changed,they are stating mild side effects and that is not known to be true at this time.I am reaching out to all of you who have posted and that know anyone who has ,to please do this along with filing on ******.We have to work within the guidelines of the system,this will certainly help the investigation to be more accurate.My husband and I are in this to help all the families that have suffered so greatly,take this opportunity to help also.Thank You in advance Kate and David M.

I just got a very condescending private message from a doctor on this site who said that while my articles from Europe are very helpful that I don't know what I am talking about and that I could mislead the public. Then I see how many parents and patients got a condescending attitude from their own doctors.

Well the public has been mislead but it is not my fault. I don't see any experts in this field stepping up to the plate to acknowledge that these side effects exist, have been reported by authorities in other countries, and that these experts are interested in learning why they are happening. This is an extremely widely prescribed medication that involves the lives of millions.

Merck's research director was quoted as saying that they know of no mechanisms by which these side effects could be related to psychiatric adverse drug reactions. That was a flat out LIE. So what if I quoted you a research article from China that was very complicated and yes, could possibly be misinterpreted by somebody? I just needed to give you an example. The only expert so far that had the guts to give you a truthful statement was Dr. J. Douglas Bremner. Thankfully, he corrected a misunderstanding about saying that it was "unclear."

I hope that we will all hang in there and something will be said by somebody, anybody on this site that will make the FDA listen and investigate Singulair (montelukast) all the way back to the very original studies done in test tubes not on people. And, then take a new look at it from the standpoint of what we now know about human genetics. I guess I will keep repeating myself about one size does not fit all.

I would also PRAY that all clinical studies on Singulair (montelukast) would be suspended until the FDA decides why these side effects occur. And that they would issue a statement to doctors to make conservative decisions regarding treatment with Singulair until the results of the investigation have been reported.

I hope that nobody thinks that I am trying to mislead anyone. The answers are either unknown or being hidden by Merck. How would I know the answers? I don't work for Merck. How many other people are out there trying to translate articles in foreign languages to see what's going on? American doctors are calling Merck and being assured that there is nothing to these claims.

I wonder how many experts there are that just don't want to be another Jeffrey Wigand or don't know what is wrong?

I know that I am ranting but somebody should do it.

hello
i started using advair inhaler a 3 days ago, is it possiable
to develope larngitis from this? ty joa

2 pesons I know are taking Ultram.BOTH are experiencing SAME side effect........a hangover effect & tiredness while on it. One has excruciating back pain & the other has cervical & lumbar problems from an accident.TY
The Ultracet however did NOT cause this reaction. Is it a case of aspirin vs tylenol in each? TY

i have hade 6 treatments of remicade i am recieving it for AS. So for around 7 months so far i know about the chemical feeling headache you get but there is something new that i do not understand today is the 31 Mar 2003 so since 27 Mar 2003 i have continual muscle pain in my legs cannot bend, cannot sit,and no relief with any medication i have even muscle relaxers i do suffer from almost nightly leg cramps but this has been 27/7 going on 4 days now im not sure if this is related but i really cannot survive with this pain i feel like it is killing me. If anyone knows what i am talking about please let me know . ty my name is di