April 1th
2009
10:54 PM
I started with Lisinopril and had severe isolated visceral angioedema. Thought I was going to die. The attacks felt worse than childbirth. Urine flow would totally stop and bladder would cramp. Bowels would not function. Over a 10 on the pain scale. Went off Lisinopril and 3 days later Dr. wanted me to start Benicar. Within 5 days I was in emergency room with visceral angioedema even worse than the Lisinopril. I have had CT scan, ultrasound, numerous blood and urine tests, PAP, colonoscopy and everything is negative. It has taken a full week for all symptoms to stop. I finally feel normal again after 2 months. I cannot take this family of drugs. And Dr.'s need to be more informed about this serious side effect. My Dr. never considered it could be the Lisinopril or the Benicar since I didn't exhibit any facial edema. More information about this rare, but serious side effect needs to be published.
-- By roscoemonkey | Reply | Private Message me
October 18th
2008
8:44 AM
For Medications.com October 18th
Earlier this past summer I took this drug for ninety two days after I was prescribed this medication when I visited the doctor for a bladder infection and I was told I also had high blood pressure. No tests were done except for a urine test at that time and no follow up tests were done later. This drug not only gave me a slew of other side effects but pushed my simple bladder infection to where I no longer urinated in a normal manner regardless of the amount of fluid I added. Only after discontinuing this drug did normal urination return after a few days.
Allergic reactions were as follows. Severe debilitating stomach cramping resulting in swelling of the abdomen, and all digestive organs. Angioedema. (no pre history of this) Urine flow continued to lessen even with increased fluid intake, resulting in bladder pain and a sensation of bladder being pushed from the body. Lack of energy, flu like symptoms, insomnia, leg cramps, many bouts of rapid heart beat, some lasting for awhile, even after stopping the drug. Lack of appetite and a change in taste buds. I had several bouts of angioedema but thought it was 'something I ate, stress etc', as within a month of my diagnosis, my daughter had an extreme reaction to Ciprofloxin (see floxintoxin under that medication) and anything that was going on with me was put aside. She was debilitated by her drug reaction and was unable to walk etc, so I thought I wasn't handling stress too well as I was getting older. Each bout increased in severity leaving me lying debilitated on the couch for four days, eventually for a full week until luckily by that time my daughter was able to take care of herself and began thoroughly investigating this drug only to discover that Lisinopril was the true cause. The warnings with this drug are not very explanatory and leave so much out that should be for patients to read and digest to make their own health decisions and it takes a lot to dig deeper on the Internet to find the true adverse reactions.
We thought by stopping the drug I would get back to normal quickly and I did with the help of a herb called marshmallow which reduced the swelling after a couple of days. However after I thought I was cured I stopped marshmallow and within a couple of days had another angiodema reaction and I thought it was because there must be traces of this drug left in my system. I then took marshmallow for over two weeks and feeling fine I stopped again. Then another episode hit me with not only the stomach problems but a severe bout of coughing that lasted a couple of hours and trickled into a few days. It was then I began digging on the Internet to find the words I wanted to hear, that this drug caused long term problems. I found it by adding UK after other words and found this and much more.
ACE-INHIBITORS
A particular group of heart pills called ACE-inhibitors (the chemical names end in -pril, e.g. enalapril, lisinopril, ramipril) can occasionally cause urticaria, although they more commonly cause angioedema; about one person in 100 who takes an ACE inhibitor is likely to get this problem.
The reaction is not caused by true allergy, allergy skin and blood tests do not show it, so why does it happen? Reactions are thought to occur because an unwanted pharmacological effect of the drug causes the release of compounds similar to those released in an allergic reaction. The only way of showing that a regular medication is the true cause is by stopping or changing the treatment.
To complicate matters, the angioedema attacks may not start until the individual has been taking the ACE inhibitor for months or even years making it difficult to spot the relationship. Also, attacks may continue for several weeks after the drug has been stopped.
I could not find anyone doing following to patients with adverse reactions and I think that is a very bad problem. We are on our own. I do hope this helps others and if you want copies of all my research let me know.
Now I am hoping there won't be any more bouts but I'm still taking marshmallow and when I think I have the courage I will wean myself off it slowly and watch for signs. Believe me angiodema isn't fun and you can't see it on the outside of the body which makes it difficult to understand.
October 12th
2008
6:46 PM
I have had a merina in for 12 months to reduce heavy periods as tehre was no change I went back to the doctors to have it removed only to find it had been out of position, so had another one inserted and some blood tests as i was feeling unwell, depressed,weight gain,itching eyes, feeling cold, insomnia,heart palpitations,headaches the tests showed i had hyperthyroidism yet i had more symptoms of hypothyroidism i feel this was caused by mirena but the doctors deny it yet looking into different sites the above symptoms are very common so i don't know if i feel unwell due to the merina of the thyroid will be going to the specialist this week hopefully to find out has anyone else had hyperthyroidism diagnosed while on mirena
-- By portresort | Reply | (6) replies | Private Message me
September 4th
2008
6:00 PM
My mother was given this drug, Lisinopril, because the doctor decided she had high blood pressure after she went in for a bladder infection (she's had these all her life, every now & then). The doctor also prescribed Nitrofur (please avoid THAT one like the plague - she was on the couch for a week in stomach agony). We didn't put 2 and 2 together on what was really going on until yesterday. She was on Lisinpril for 3 months and every 2-3 weeks had an episode of extreme stomach spasms, bloating and fatigue. These episodes have lasted 3-5 days each, keeping her on the couch in agony. I researched the internet and found out that Lisinopril is made from SNAKE VENOM, can you believe? Turns out lots of people have reactions from this, including coughing. There was one woman who had the exact same things as my mom and wouldn't you know it, stopped using Lisinopril and the episodes went away. Turns out this is an allergic reaction, something they say is rare, BUT I think it depends how long you take it and how sensitive you are. So my mom immediately stopped taking it. What's happening inside is something they call gastrointestinal angioedema (in layman's terms, internal hives). If you experience coughing, the hives are in your throat. If you experience the stomach pains, the hives are all in your intestinal tract and very possible more areas internally. So then I looked up and found an excerpt from "One Earth Herbal Sourcebook" on Google and found the author had experienced something similar, using ayervedic (indian) herbs to fix the problem. I couldn't find where to buy ayervedic herbs, calling Whole Foods Market with no success. Well, all over the world there are healing herbs that do similar things. So I did find 2 that would work. Marshmallow (the herb, not the campfire kind) will help relieve swelling internally. There is another herb called Goldenseal (don't use it if you have very high blood pressure as it can cause a spike) that has antibiotic and anti-inflammatory properties. Anyway, now you know what is going on inside - hives you can't see from snake venom. Take that to the doctors and see what they say. Maybe your just better off like we are to research yourself and find a natural answer from nature. I hope this can help others avoid the hell we've been through.
-- By floxintoxin | Reply | (3) replies | Private Message me
August 17th
2008
7:03 AM
I took my first Flowmaxtra last night, had difficulty going to sleep, woke up feeling I had been having bad dreams, my wife tells me I was talking in my sleep ( unusual ) and I had a sinus headache, also unusual. also discovered no ejaculate. to sum up,
sinus headache, disturbed sleep, no ejaculate
I will settle for a reduced urine flow, I am taking no more of these pills.
-- By ianshearer | Reply | Private Message me
January 31th
2008
2:41 PM
insomnia, reverse ejaculation, . Insomnia after 5 weeks, reverse ejaculation after 3 days. stopped Flomax 8 days ago and still can't sleep without a pill ! never had sleep problems in my life. does something to the sleep mechanism in your brain. they show 2.4 % with insomnia - i wonder about that as it seems a consistent theme on this board. Flomax did not stop me from going 3 x a night and only yielded a very moderate urine flow improvement.
-- By jaydude | Reply | (2) replies | Private Message me
November 30th
2007
5:00 PM
Been on Flomax for 3 days, already noticed no ejaculation AT ALL, seem to be more sluggish and tired than usual, urine flow has improved and pain has subsided. not decided on benefits outlaying side effects yet.
-- By jamest857 | Reply | Private Message me
November 4th
2007
6:39 PM
I have been taking Flomax for 5 days. My urine flow was about the same for the first day or so, and I believe I have been getting up as many times as normal. The urge to go seems like it is less, however.
The first day, I noticed no sperm (only clear liquid) after ejaculation. this happened twice. the rest of the days were normal.
I do notice that I get dizzy sometimes after standing and feel like I have sortness of breath.
I took saw palmetto for a year and it is worthless (one pill per day), as my doctor told me it would be..
-- By jm98029 | Reply | Private Message me
October 25th
2004
1:47 PM
after the first pill, I grew an extra arm. After the second pill, my head exploded but not to fear as shoving the 3 pill down my now exposed esophagus resulted in my growing another head albeit out of my left calf. I skipped the next four pills. Pill number eight increased my urine flow to 3.9 gallons/minute. Pill number nine made me thirsty (or was it pill eight?). I'm saving pills 10-16 for my ex-wife. Pills 17 and 18 were given to my Great Dane who is now a teacup Great Dane. I'll take 19, 20, and 21 tomorrow.
-- By jzehmisch | Reply | Private Message me
October 18th
2004
8:07 AM
Restricted urine flow, dizzyness, extreme fatigue, stomach cramps, gas, feel like I have diarreah all the time but it's just the sensation, strangley I am wide awake at 3 am.,hot, and normally I'm always cold. Two weeks into Wellbutrin 2 pills 150 twice a day. I was switching from Lexapro because I heard the sexual side effects were less. Hard to feel sexy when you feel like this. I quit and went back on the lexapro. The next day I felt much better but I'm wondering how long before my system it totally rid of this drug. For me it was poison.
-- By maydays3 | Reply | Private Message me
April 6th
2004
10:30 AM
The drug did a great job of clearing my congestion, but it had had a terrible effect on my urine flow. It is almost as if their is a blockage. It also seems to constipate and it is difficult to sleep.
-- By jimmcq | Reply | Private Message me
January 22th
2004
12:06 PM
Beta Sitosterol,three tablets (113mg) taken daily with meals, combined with non time release Wellbutrin 150mg twice daily, caused prostate enlargement. Have started and discontinued the BetaSitosterol three times in the last several months with no additional changes to my vitamin/mineral/prescription drug progam. Within 7-10 days the urine flow begans to decrease and at the end of two weeks urine flow is severely restricted. Have tried to contact the company 'Source Naturals' at their listed website at www.sourcenaturals.com but it is not available.
Anyone else have a problem with this natural plant enzyme?
Ta. W.dean
July 21th
2003
4:27 AM
I had an acute case of Kidney Infection and was in a great deal of pain from the Kidney Itself and from the burning sensation when urinating.
My Doc gave me 500Mg of Levaquin and FloMax to help promote urine flow.
All drugs have some side effects,but In my case the only one I had was fatigue.I'm a very healthy runner in great shape and I found that my work effort was higher and I got tired quicker than normal,BUT the Meds did their job so I'm over the infection.
Considering my condition with the infection,Levaquin was good choice for me and I would take it again under similar circumstances.
-- By storage | Reply | Private Message me
Flomax (5) Lisinopril (2) Wellbutrin (2) Lipitor (1) Levaquin (1) Guaifenex (1) Mirena (1) Benicar (1) Methylpred DP (1)
August 15th
2009
12:17 AM
I am 59 (weight 158) and was having big problems with flow and frequency. Started Flomax about 3 months ago. The flomax worked great but I noticed the side effects immediately (dizzy/light headed/trouble sleeping). After about 3 weeks I began taking it every other day which helped reduce the side effects but didn't hurt urine flow etc. Still the dizziness etc was too much sometimes so I opened the capsules and took 1/4 to 1/3 dose. This is working best for me. Almost no dizziness and urine flow is still good.
-- By rpvmike | Reply | Private Message meP.S. Watch out using flomax in 100 degree heat. The heat seemed to magnify the dizziness factor and ringing in the ears.